Starting Chemo February 2009?

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  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009
    Helen~ Living4today, Judy, and I will be getting chemo through June.  Apple ends the 1st week of July.  Plus, Kristine and I will be getting "little chemos" 'till next Feb.  (I think Jaimeih will too!)  When is your last infusion??  I must say that I'm envious too... Happy for everyone but really, really tired of all of this.  June/July seems sooo far away.Frown
  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Suzanne:  Having been on these boards back in 2004, I would say that I still see familiar names posting here from back then, so people do stay in touch and help support and guide newbies through their ordeal with bc.  Having said that, there are also many who get back to their 'normal' lives, and eventually stop coming here.  I did.  But I still see active chemo threads from years past (even 2005), and I think that is just awesome that these women have stayed in touch all these years.  I think the radiation boards are equally helpful and supportive, plus you should be joining along with many of our other Feb Furies, so you know you'll all be there for each other!

    Michele:  I agree, June 23rd sounds like forever, but on the other hand, it always seems like Tuesdays (chemo days) just keep comin' too soon; going weekly seems to make it go faster, do you think so?

    I am actually more nervous to go to tx lately, kind of scared--I just get this feeling that se's are about to take a huge turn for the worse....I hope I'm just being paranoid.  But with the Taxol being cumulative, and a few new se's kicking in, I can't help but worry.

    hugs to everyone

    Judy

  • apple
    apple Member Posts: 7,799
    edited May 2009

    oh gosh... this was my 4th 4 week cycle.. 3 weeks on, 1 week off to recover.  Yowzers.. I'm afraid of the cumulative effects too Michelle and gpcmommom..

    my fingernails are lifting, my hands and feet throb, everything aches.. still, i can function.  I would not be a bit surprised if May and June knock me on my ass (to put it crudely).

    Would I quit?  no way.. i do have a chance to carry on taking the dreaded Femara.. maybe a chance to be cancer free for years.  My onc. is excited, hopeful  and pleased.  I hope it is working.

    Thank God for chemo.

    heh

  • Gramof3
    Gramof3 Member Posts: 301
    edited May 2009

    Michele,  My last Taxol infusion will be July 24; won't know about the Avastin until I'm unblinded.  Maybe I can take my beach towel and umbrella to the Cancer Center and pretend I'm on a white sand beach--practice a little imagery! 

    I've been very blessed with few side effects, so I really can't complain about that--however, I'll admit that I'm feeling a certain sense of "security" in going in for my tx.  I guess it's the routine, plus I can visibly see that I'm doing something to fight this phantom that invaded my life--I find it scary to think of wondering about every ache and pain after I finish my tx.  Oh wellllllll.  Have a great day.  Helen

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Michele is right I just finished TC I still BUT I am here for the long haul on Herceptin for the year and some other trial drug biosph. (sp) I am horrible at spelling.  I celebrated because the TC is what makes me feel so horrible and I plan on celebrating each step as I did one more thing to never see cancer again. 

    Helen~ I wonder about every ache and pain but my worry is slowly getting better.  I am sure my worrying will popl up again but I will just keep pushing thru it.  As soon as I feel better I am getting my backside out running again so I will be doing as much as possible to stay healthy.

    Not in the hole yet I still have steroids on board. 

    BTW, Judy did you like the fact that you can read it this time ???...lol... 

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Apple:  You're right, we need to hang in there, through all these horrible se's, because it is the right thing to do.  It sounds like you are really getting hit with the se's, though :(

    Helen:  That is how I feel lately....like these tx's are reassuring, I'm actively doing something to fight, and am getting more nervous now that I am at the tail end of tx.  I guess we'll learn to deal with that over time.

    Jaimie:  Like I said, LOVE the shirt.  I could read it last time, lol, but your new pic really shows what a good job you did.  I don't think I'd have the patience right now to make a shirt like that.

    I looked at the Chemo 2005 thread, and sure enough, the women there are still chatting away...they sound like old friends....how wonderful to have such friendships come from all of this.

    My DD's nurse is here, gotta run.

    hugs

    Judy

  • susan13
    susan13 Member Posts: 732
    edited May 2009

    Jamie-CONGRATS! and You really do look great! Love the shirt!

  • Bethie1
    Bethie1 Member Posts: 393
    edited May 2009

    Happy Birthday living4today!!! Enjoy!!

    gcpommom-- The benadryl is supposed to make you sleepy, so enjoy your catnap!!! I do

    Guess what furies???? Tomorrow 5/20 is my LAST CHEMO!!!!!!!  Thank God this is getting near the end!!! The Furies rock!!!  Family is throwing me a party too!!! :)

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    eek, we almost fell off the first page, can't have that Laughing

    Hope everyone is feeling ok.  I had my 7th tx today, it really sucked.  It is getting harder to get a vein, I HATE getting IV's, I'm such an IV wimp....took 2 tries, and even then she had to get 2 other nurses to be sure she got it in.  Ouchie.  I cried, but not really because of the IV hurting, more because I'm just so tired and sad and fed up lately.  I asked my onc if my new emotional state could be hormonal, but she didn't know. 

    So I look forward to my steroid high tomorrow so I can clean the house a bit, and maybe even start mosaicing my DD's table (I've only had that in my basement for 10 months now).  I'm sure she'd appreciate having a table in her kitchen!

    Hugs

    Judy

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Oh Bethie, we were posting at the same time!  I did get a small nap in, the benedryl always knocks me out, I still feel a bit loopy.  AWESOME that you finish chemo tomorrow!!!!!!!!!!!!  Yea!  Enjoy your party, you deserve it!

    hugs

    judy

  • apple
    apple Member Posts: 7,799
    edited May 2009

    wow.. I just found something.  Do you remember that i had a friend who died of cancer.. a musician i met on line thru his wife.. (and i met the both of them in NY a couple years ago).

    anyway I stumbled across this article about him.. The article is very praising.. I really didn't know Rick was THIS talented.. In this photo he is quite a bit thinner.  He was fun to discuss things with because he was so very teasing in his manner of communication.. always poking fun at people and things with great irreverence.

    I was researching his disease just today, and just today this was published. (a case of journalism esp)

    http://www.dorsetecho.co.uk/news/4378663.Weymouth_musician_donates_body_to_scioence_after_dying_from_rare_disease/

  • MRSROCKYTOP55
    MRSROCKYTOP55 Member Posts: 403
    edited May 2009

    Hi Helen, I will be with you all summer.  I start the first of 12 weekly Taxol and Herceptin every three weeks for one year on May 27.  I just finished 4 dd AC every three weeks.  After the chemo I will have 5 weeks of daily radiation.  I am glad to know you will be here for the summer too.  I am a little jealous of those finishing too, but I am very happy for them too.  Life sure takes some strange turns doesn't it.  God Bless, Kathy

  • sue50
    sue50 Member Posts: 61
    edited May 2009

    Jaimieh, what a great picture!! Love the shirt!  Congrats!

     Bethie, congrats on your last tx!

    Judy, sorry your veins are getting tired. Mine were giving out...on my 7th tx it took 4 tries to get a vein. But then on the 8th tx, the nurse got it in the first time! So sometimes it can get easier...

     Hang in there all you long-term ladies, there is hope! I am finally returning to work tomorrow, should be interesting. Rads will start in a couple of weeks.

    I finally put my tomatoes in now that the Monday night Frost is over. 

      Digging in the dirt is so therapeutic : )

     

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Hi guys - just had a fabulous four days away at a cottage. Lovely to find a bit of normality in the midst of all of this. I feel like I am having a little treatment "holiday"! I have another week and a half before Rads starts, and apart from a baseline bone density next week, it seems quite doctor free......

    I can sympathise about the IV nightmares - my hand is still sore and bruised, three weeks after my last IV encounter.....

    For everyone starting Rads soon, Bethie has started a Rads thread for June!

    Great to see so many of us finishing up Chemo, I should be going in for chemo tomorrow, so I am happy I am not! Physically feeling great, just a bit tired still. Hair growth is being awfully slooooooooow

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Apple - just read the story about your friend. What an inspiring guy.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Enjoy you lack of chemo. today Kerry :)  I have started yuck mouth but I am determined I am going to drink it away this time (well I am going to try). 

     Bethie~ Congratulations!! 

    Judy~ Hang in there I hate getting IV's also and even though I have a port I have a mini so I still have to get some IV's. 

    Sue~ Good luck back to work.

    Helen~ I'm on the H train also. 

    Sue~ thanks for the compliment.  :)

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Kerry:  Glad you are back, and it sounds like you had a wonderful weekend!  So you are feeling good, se's are gone now?  That is good to hear.  This summer, I want to go camping, we used to go all the time, and haven't been in years.  It sounds so relaxing and fun.

    Sue: thanks, I hope they do it in one poke next time!  I think that some nurses are just better at doing IV's than others, honestly.

    Apple:  your friend sounds like he was a very talented and strong person, everyone had such nice things to say about him and his music. 

    Hope everyone is feeling well.  It's going to be 80 here today, sooo happy about that.  I have a bit of yard work to do, and shopping.  I just love hot weather, why do I live in MI????  Someday I'll move somewhere warmer, hopefully with no snow!

    Hugs

    Judy

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    We're in for a hot one here too today and tomorrow. We have earned it!

    Judy - I think you are right about the nurses and IV insertion. Some of them are just terrible at it, and really, that is the biggest part of their job. You think they would be old hands at it. One nurse i had tried twice and failed, the third time her hands were shaking, she had rattled herself so much. She got another nurse to do it, who got it in first time....

  • apple
    apple Member Posts: 7,799
    edited May 2009

    Rads for me were absolutely a piece of cake.. i never put anything on my skin and just had mild redness that quickly went away.

    good luck with that everyone

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Kerry, nothing to make you feel comfortable like a nurse with the shakes!  I had one nurse, and it was the weirdest thing, I never felt a thing when she inserted the needle, not even a poke!  She was amazing, but I had to switch blood draw centers, I was so bummed.  They put my IV in my hand yesterday, which was probably part of the problem, then decided to run the IV to see if it was in right, told me to watch for swelling and pain!  I was nervous when they started the Taxol, but it went ok.

    Enjoy your hot weather, I know I will!

    Hugs

    Judy

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009

    Hi everyone!  The weather is beautiful here too!  I just love this time of year.  I happy (and jealousEmbarassed) to see so many finishing.  Great news!  Good luck on the Rads everyone. 

    Now a vent:  DD's preschool end of the year program is today AND the boys' academic assembly is this afternoon.  My middle child is getting 6 awards! Yea DS!  My oldest is getting 1.  I have to miss both events.Frown  Work has been very busy and I am working fewer hours as my SE get bad.  Wed is the 1 day where I can physically work all day... Plus, there have been a few  cases of flu around here so sitting in a packed gym (twice!) would be pretty stupid I think.  I alomst had to put off last week's chemo because of a bug ans I just don't want to be in that situation again...  So, I'm sad about missing out... DH, being the sensitive guy he is, has been bitching about having to go to both events (AND DD's class party tomorrow which I also have to miss because I'll be getting chemo then) this morning.  As I was on my way to work I freaked out, started sobbing, and told him to shut up.  It was really out of the blue so I'm guessing that he doesn't know what hit him.  <sigh>  I am sooo tired of missing out, feeling crappy, and having a super-short fuse.

    Now for some good news: I have HAIR!! No kidding!! I have this super-thick fuz all over the top of my head.  It is very dark grey and makes the top of my head look dark.  Too funny for a formerly blonde girl but, hey... I'll take it!!

    {{hugs}} to everyone!

    Michele

    edited to add: {{hugs}} to everyone having IV troubles.  Ick.  I hate, hate, hate getting an IV put in so I'm cringing thinking about the multiple sticks.  Can you ask them to use a little lidocaine 1st?  Also, the emla cream that we port girls use would work if you knew the site they plan to use ahead of time.  You might want to ask...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    michele! i have hair too! not even peach fuzz yet, but definately a darker look! ironically, i just ordered two more blondey blonde wigs from wilshirewigs.com. i honestly don't know what possessed me. sort of a for-the-helluva-it, i guess. except i won't have the nerve to wear them to work. maybe i'll send them back. i'm going to have my regular wig cut into more of an angled bob next month anyway.

    i'm one week out of chemo, and feeling miserable, but it's more psychological. my beloved boss, who's been wonderfully supportive, who's been my best friend & knight in shining armor through this and so much more, is taking early retirement (ie: "being let go" for bullshit political reasons) and i'm devastated. i'm going to be lost without him. i wish i could quit. (i've worked here since nov 2000!) so whereas i'm thrilled to be finally done with chemo, i'm just so sad and depressed and upset and angry, i'm having trouble eating, sleeping, drinking .... eh. i need to lose this chemo weight anyway.

    i start tamoxifen next week. and on july 8th i have my exchange surgery (yay!). and then, depending on how quickly i heal, i'll do rads in august or september. my plastic surgeon assures me that if radiation screws up anything, he'll fix it, since we're probably going to wind up doing more than one surgery anyway. and the director of plastic surgery at sloan kettering, whom he studied under, prefers to do exchange and then rads anyway. my oncologist is on board with this plan, so i'm really really relieved. the radiation oncologists, not so much, they'd like to do rads first, but they'll just have to deal. there's really no good reason why i have to live with these damn expanders until december.

    to everyone still doing chemo, i send you tons of hugs and perserverance vibes. i thought may 13th would never ever ever come. but it did. hang in there. (((everyone)))

  • Artemis
    Artemis Member Posts: 759
    edited May 2009
    Michele ~ I'm sorry your husband is being insensitive and that you had a meltdown, but YAY for your children's awards and parties!  I hate that this stupid disease is making you miss out.  Congrats on having hair!!

    KerryMac ~ Glad you had a nice getaway.

    Lisa810 ~ Congrats to you, too, for having hair!  What a drag about your work situation.

    I'm sitting here waiting for the surgeon to call me.  I talked with his office on Monday; they said he'd be in today, would look at my scans from last week, and then he'd call me.  *tick tock, tick tock*

    Hugs to all,
    Artemis
  • Bethie1
    Bethie1 Member Posts: 393
    edited May 2009

    Hey gang!!  I'm done with chemo WOOHOO!!!!!!!!!!!!!!!!!  I got slightly nausous at dinner we had pizza, and I had gone without food too long before dinner, so took a kytril for nausea.  Feel good now!! Have too get a blood count next week before being mapped for rads!!

    Kerry-- Glad you had a chance to get away!!

    Michele- Too bad your husband is being insensitive., but your child getting an award marvelous.

    Lisa810-  Awesome-- you have hair!!!!!!!!

    Apple-- Thanks for the tip about rads. You're story about your friend is awesome!!!

  • Artemis
    Artemis Member Posts: 759
    edited May 2009
    Yay, Bethie!!!!!  Congratulations!! Cool
  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Michele:  I'm sorry you had to miss your kids' events.  I know how guilty that can make a mom feel, but don't beat yourself up over it...there will be lots more events to attend, for sure.  I totally agree with you about the short fuse....I am getting crabbier each week, can't stand myself sometimes.  YAY for growing hair!  You can join in the hair-growing race with me and Kerry.  Mine isn't thick at all, still at the white fuzzy stage with some dark hairs mixed in.  Thanks for the advice about lidocaine or emla cream, hadn't thought of that.

    Lisa:  So sorry that your boss is leaving, you sound very close.  Maybe you can stay in touch with him?  Maybe your new boss will be nice, too.   You're growing hair, too.....you can join in our hair growing race! 

    Bethie:  Congratulations on finishing!!! 

    I am going through major steroid rage tonight....DD's fiance, who lives with us for years now, tied up my one and only bathroom to take a 2 hour long bath, again.  I got so angry when he told me 'whatever', that I typed up a list of nasty "bathroom rules" and "kitchen rules" just for him and hung them up.  He hasn't seen them yet.  I just get so tired of being everyone's maid and waiting to use my own bathroom.  Now I am so wound up that it is 3 am and I am wide awake.  URRGGHH, I hate steroids.  I only got 3 hours sleep last nite.  I'm tired, but can't sleep.

    Ok, I'm done complaining now.

    Hugs

    Judy

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Judy has roid rage!! No one gets between Judy and her bathroom and lives to tell about it. Oh, dear, it is worse than PMS, isn't it. Jolly Steroids. The joys of modern Chemo. Remember, it is just the steroids talking, oh, and all the crap you have been through in the last 6 months. Hope you managed to get a bit of sleep at least. 

    Bethie - Yah for you! Hope the crash isn't too awful, and keep in mind it is the last time you will have to do it. 

    Artemis - any news from the Surgeon??

    Lisa - let me know how the tamoxifen goes. I am starting June 1st....

    Michelle - what wonderful kids you have! Super smart. I know it is hard to miss out on things that are happening with your kids, but remember you are doing this to make sure you are around for a long long time. It will be over soon, and you will feel normal again soon too. It is so hard when you are in the middle of it to think you will ever get a normal life back again, but you will. I am feeling really great already, it will not take long to bounce back. I walked 5km and mowed the lawns yesterday!!

    So, the hair race is on! I am actually starting to get darkish patches as well as scalp on my head! So far it looks as though it is coming in dark, I am really hoping for a few curls, I have always had straight hair, with one of those very annoying kinks half way down that always flips out the wrong way. I miss brushing it. 

    So, hope good days are had by all. 

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    lol, Kerry, but it wasn't that I needed to use the bathroom, it is more that anyone would spend 2 hours taking a bath when there is only 1 bathroom in the house.  Even though we've told him not to a million times, even though he knows how ticked off my DH gets because he is always in the bathroom.  He watches movies in there while he bathes, or reads his books.  He often bathes twice a day, the little priss, or is in there for forever doing who knows what when he isn't bathing.  Sorry to him, but it ain't a library or movie theater, it's a bathroom--, get in, get 'er done, and get the heck out!!!!  

    Yeah, I guess I'm still angry, that's what happens when you get 3 hrs of sleep two nights in a row.  *sigh*  Well, going to some garage sales should cheer me up, get me out of the house.  Another gorgeous day today.  Actually, the whole week ahead looks like beautiful weather.

    May always makes me nervous, sometimes we get bad storms.....I had a horrible experience back in 2000.  I left my college class in the middle of a tornado warning because my kids were freaking out and I only lived 1/2 mile from school, which was located in my neighborhood.  By the time I got 1/4 of the way home, the rains and wind got so bad I couldn't drive.  I had a friend on this particular street that I stopped on, so I ran toward her house for cover.  I watched HUGE trees toppling over behind houses as I ran.  I was so scared!  Just when I got to her driveway, there was some swirling white mist....I hesitated, but ran through it, and was thrown 6 feet, off my feet, and landed in her garden.  Long story short, she wasn't home, I was cut up and bruised, and got whiplash.  Turns out there were funnel clouds reported throughout the area (the ones that don't touch down, but suck up and drop things like grills and shopping carts and unfortunately, college students), and that is what got me.  Been scared of storms ever since.

    Hugs

    Judy

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Oh, wow, I have never known anyone sucked up by a Tornado before! That is a wild story. We occasionally get warnings here, but not sure they really ever appear. One of the trees where we were staying this last weekend was hit by lightening the morning we arrived. They said it sounded like an explosion, and bits of tree were everywhere. One car got its mirror knocked off, luckily no-one was hurt.

    Your DD's fiancee sounds like he needs his own private bathroom. He watches movies in the bathtub?!! Hysterical.

  • Denali
    Denali Member Posts: 347
    edited May 2009

    Judy, you're a saint!  I'd have thrown DD's fiance out on his bootie years ago.  If he's over 18, he should have a place of his own!

    You guys have scary tornado stories.  I remember yrs ago I was at work when we heard there was a tornado around the area of my house.  They let me go home early and I raced home because I knew my kids had a long walk home from their elementary school.  I was soooooo worried about them.  I arrive home and there's my 10-yr old son STANDING ON OUR ROOF.  I was furious and asked what he was doing.  He said, "I'm looking for the tornado, Mom!"  sigh.

    Believe it or not, the kid lived to see his 39th birthday this year!

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