Anyone have a mood disorder before diagnosis?

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Just kinda feeling alone and beating myself up a bit, because before this second biopsy this year, I was starting to make some changes that were helping me break out of some of my anxiety and depression problems. I am waiting for the biopsy results now. The findings last fall were benign.

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  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    I think many women with PTSD  and bc have had PTSD before their  bc diagnosis.  A common cause  of PTSD for women is sexual assault of some kind. http://www.ncptsd.va.gov/ncmain/ncdocs/fact_shts/fs_women_lay.html

    I have PTSD, or something like that, and my therapist believes my first trauma was in the hospital shortly after I was born. (I was a premature baby.) I had other traumas after that.  It was only after my LCIS diagnosis decades later that I went into therapy again, and was diagnosed with PTSD or PTSD-like disorder in my mid-50s.

    I am sure that it didn't help my PTSD to have bad experience with my wire insertion.

    So, yes, you can have mental health issues before your diagnosis.  Many people have mental health issues and never seek help.  I hope everyone finds the help they need and are not afraid to get help if they want it.

  • mumito
    mumito Member Posts: 4,562
    edited May 2009

    The whole last year before DX I was depressed and gained alot of weight.I amsure itall helped bring on the B>C

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    I've had anxiety and depression problems long before the bc diagnosis.  That didn't help my PTSD for sure.  I have a long family history of depresssion so don't feel alone.  You have plenty of company.

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited May 2009

    I've had bouts of depression forever -- runs in the family (my mother was hospitalized twice for severe "agitated depression" in the 1960s -- back when they called it a nervous breakdown, and I guess it really was; an aunt committed suicide; of my mom and her 8 siblings, 5 have been hospitalized for depression -- and they're all hardworking, churchgoing farm families -- I think the "general public" is always shocked to learn that such "normal, stable" people could be incapacitated like this by mood disorders -- I think people are finally realizing how "physical" mental disorders can really be.)  Me and some of my siblings, and some of our children, have these problems as well.  The rough thing is, the chemistry doesn't respond well to most anti-depressants (could it have something to do with many of us being "non-producers" of CYP2D6? as I learned when I was beginning to take tamoxifen?).

    Sorry to go on at such length about me and my family.  The odd thing for me was I think the "project" of getting through mastectomy actually focused me...  Now, two years later, I feel depression/disorganization returning.

    Wishing you benign results, and PLEASE don't beat yourself up!  Hugs, Ann

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009

    I have struggled with clinical depression off and on since I was in my twenties, plus I have PTSD.  I've been doing well the past few years since they found a drug cocktail that works for me, finally. 

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Thank you everyone. I feel less alone. I have PTSD flare ups. I have pretty much a low grade depression always. The anxiety is the worst...I have decided I have an anxiety addiction if that makes any sense. I keep myself in hyped up mode, anticipating danger, and avoiding other feelings. My thoughts race and it's been hard to sleep. I am 43 and have been dealing with these symptoms since I was 18. Had many years of therapy to address the sexual abuse PTSD, and that just flares up occasionally now. Well it is flaring up a bit more now that I am dealing with all this breast stuff. I have PTSD related to my Mom's breast cancer battle.

    I try to escape with food, caffiene and nicotine addictions. I am on medication, though the anxiety stuff needs more of concentrated cognitive behavioral therapy. The progress I was making seems to have flown out the window the last 3 weeks. I am doing things that are not self care. UGH! I hear my therapist saying "stop indulging the stimulants and compulsive/obssesion with the breast cancer site. Take a walk. Distract." Yet I am not doing that.   I have taken extra anxiety pills on and off the last two weeks, and extra Seroquel which knocks me out when I dont want to tolerate the anxiety. I keep getting back in bed and sleeping to escape. I thought I would have the results of the biopsy yesterday. In fact I knew I would.

    The results are in and sitting on my Surgeons desk. I want to run over to her office and open the folder myself. The office staff informed me yesterday when I called that she was on vacation Thurs and today and won't be back in until Mon. So I have the weekend to get through.   I had it planned out in my mind. Get the results Thurs/Fri, calm myself down over the weekend, go to therapy on Mon to get support, and maybe even do something fun this weekend. I was going to try to go to this cookout and maybe meet some new people. Ah but I have social anxiety. So I will not go. I know me. So I beat myself up for not making myself go. I dont have any close friends here.

    I know at some point I will have a double masectomy even if I dont have invasive cancer. I am high risk and on the 6 month monitoring routine. It's just deciding when at this point and depends on insurance coverage. I am choosing this cause I cannot live in fear of getting cancer. At this point I am taking it 6 months at a time in regards to that decision.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009

    Your symptoms sound a lot like mine when I'm feeling ill.  A therapist I was once seeing called it "catastrophizing".  I've also had the racing thoughts - miserable!

    Believe it or not, I was able to get much better control over that when I was going to Al-Anon.  It really helped me a lot.  They have a 12-step program called "Emotions Anonymous" - maybe you could find one of those and go to a meeting.  I swear it made a huge differerence in my life - I finally learned to stop worrying so much.

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    It is almost 6 a.m. here and I have been on the computer since 5 am.  Did not sleep most of the night.  I saw my PCP yesterday about my depression and complained I wasn't sleeping so he gave me Abilify.  Well, I took it last night - nothing.

    Cleomoon - I can't believe you have to wait until Monday to get the results - although, what's the rush, especially if its bc.

    Desdemona - I didn't realize that AA had an "Emotions Anonymous" and I will check it out in my area.  My really big problem is experiencing emotions.  Coming from a highly dysfunctional family and one with a background of depression, I literally "stuffed" my emotions and wound up overweight, unhealthy and a depressed mess.

    The problem with being in the throes of depression is that although you know what's the matter with you and you know everything you are feeling is because of the depression as opposed to reality, you're stuck.  No energy to get out.

    Good luck everyone.  May God bless.

  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    My therapist calls (part of my  PTSD symptoms) as I have very sensitive feelers - to see if there's danger out there.  I am often checking  if people are acting genuinely, and not putting on a false face.  To me, I like thinking about it that way.  Its less judgemental.

    Hang in there cleomoon.  Surgeon's vacations are awful.  I understand people need vacations, but do they understand the anxiety?

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    Hey Leaf - that is a less judgmental way of putting it.  I know growing up in my family my father was so unpredictable and could go into a rage without a second's thought, I also wait "for the other shoe to drop" with everything.  And since he had no boundaries I have3 sensitive feelers too.

    I also hate confrontations.  I told a friend tbat once and I guess I have a pretty good facade and hide it well because her jaw dropped!  I hate confrontations, I didn't say I wasn't good at them.

  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    My father was also extremely unpredictable.  It makes sense that I developed 'sensitive feelers' to protect myself.  I knew what would happen if I said or did the wrong thing.  I never confronted him, of course.  That would be risking 'utter destruction', at least that's the way I viewed it as a child.

    So I think what many people who have a history of trauma do - they do things that were truly appropriate at the time of the trauma.  They were trying to protect themselves.

    I don't think that confrontation/anger issues are easy for many people in the general population, but especially those with trauma.

  • konakat
    konakat Member Posts: 6,085
    edited May 2009

    Hi Cleomoon,

    I have been treated for anxiety and depression for 10 years -- currently on Effexor XR.  The behavioural modification treatments just didn't work for me -- it was serotonin that was screwing me up and have to get that regulated. 

    Yes, just when you feel fine and then have this BC possiblity hit you is awful.  Even if you don't have mood disorders it throws everyone for a loop.  It a terrible stressful thing.  Keep doing what has worked for you in the past until you get your test results -- I hope they're benign and this extra stress leaves soon. 

    Also, when you talk to your doctor, even if you get good results (fingers crossed) ask about a support group.  I know it's hard when you have social anxiety, but you will be in a group of people that are in the same place as you, it's less threatening. 

    I hope it goes well with you.  I understand what you're going through, it's no fun.  You are definitely not alone -- we're here, and we're here to support you as you wish.

    Elizabeth

    xoo

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    I need both talk and drug therapy.  My brain was hard-wired to believe a lot of untruths, to expect little and of that the worse and that the world is not a safe place.  I have been struggling with these issues for so long and it is so easy to believe that crap you learned so early in life.

    My doctor upped my dosage of Zoloft.  It is too early to tell yet but I think it might be getting better.

  • konakat
    konakat Member Posts: 6,085
    edited May 2009

    Yes, those hard-wired untruths -- when you're depressed they just get stronger and stronger.  Logically you know they're not true but you can't stop believing them.  When something bad like BC happens, getting sick seems to support all those untruths -- that hey, I got BC so I guess everything else awful is true.

    My big one was that I was finally happy in my life and then BC showed up -- so I didn't deserve to be happy.  Great, eh?  But you just keep soldiering on...I am so grateful for the nurses and my onc -- they are so caring, it really helps a lot.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009

    Listening to Prozac is a great book about depression - it's very, very interesting because it goes into a lot of aspects that contribute to chronic depression and anxiety and it's all based on scientific study.  One thing they know for sure is that there are certain people who are more sensitive than others to trauma.

    One thing I learned to do with the 12-step program is to detach, which is basically what it takes to free yourself from a lot of the anxiety and fear you experience.  I'm not trying to make it sound like a pat solution or anything, but practice makes perfect, and I have found that it helped me a lot.  I've also learned to compartmentalize things - you know, hide stuff that worries me in a little imaginary box somewhere in my mind.

    I sincerely hope you ladies who are going through a crushing depression right now get to feeling better.  I have so been there and back - no one knows how awful it is unless you've been there.  You all have my heartfelt sympathy.

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    My doctor increased my Zoloft and I think I am feeling better.  Its hard to tell.  Sometimes I just submerge the depression and ignorantly go along until, when I least expect it the depression leaps up and bites me in the butt.

    When you grow up in an unsafe house, where children are thought of as little maids and gofers without emotions or feelings and you are only as good as what you can do for the parents, emotions become stuffed (in my case literally with food).  I really want to look into Emotions Anonymous.  I dont think I know what is going to happen if I express emotions - I just know it would have been very dangerous to do that at home as a kid.

    These posts are very helpful.  One, I know I am not the only person who feels the way I do; two, you help me articulate my feelings and identify what's going on in my head.  Thank you.

  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    I was surprised at what cues set me off.  Sometimes I can figure out the connection, but usually I can't.

    I got a phone message on my answering machine.  My first impulse was Oh, no its my father.  There was a lot of mumbling going on.  (He is elderly and doesn't speak clearly.) I had to listen to it 4 times to figure out it was probably in a different language.

    I was picking up on the speaker's intonation.  I didn't realize how strongly that affects me.

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Hi Everyone,

    I just wanted to say that I really want to comment and connect, but the anxiety is keeping me from focusing. Probally from increasing my Seroquel from 25mg to 75mg a day. I am so grateful for all of your honest posts. And I will be back to post soon.

    No results today so far. Now the files are with the surgeon, but she has surgery scheduled all day. May not know til tomorrow. Time goes so slowly as I wait. PTSD getting worse with the longer wait. Having dreams now.

    Hugs to everyone.

    Cleo

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    CLEO: With people like us, the longer you keep us in the dark, the more terrible places our minds go to.  I pray you get your results tonight.  Just take a deep breath, ask yourself if worrying and driving yourself crazy will help in any way.  Then find something to distract yourself - watch a comedy, read a good book or call a good friend.  Do anything to occupy your mind.  Good luck.

    LEAF:  At one place I worked we got a new boss in.  He so reminded me of my father (who was 5'2") that when I was asked what he looked like I described him as a short when in fact he was 6'1" - I was right in that he was at least a big an ass as my Dad.  And don't push my adandonment button because all hell breaks loose.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009

    kmccraw -

    If you can't find an Emotions Anonymous chapter, look into purchasing some of the Al-Anon literature.  It's always available at their meetings, and it wouldn't hurt to sit in on a few just to learn more about the program.  You don't have to talk or anything if you don't want to.  A book that really helped me is In All Our Affairs.  I am a worry wart anyway, very high strung, and my daughter is an alcoholic.  She was on the verge of killing herself from her drinking when she was 17 - she was so out of control, and I can't think of very many things that can drive a parent up the wall worse than that.  So I went to the Al-Anon meetings and started reading their literature a lot and it really helped me a lot!  For me personally, it was much more effective than counseling.  There is this little bookmark they give out free at the meetings called "Just For Today" that I kept on my pc at work for years and then on my refrigerator.  That bookmark alone has enough wisdom to help anyone get through the day no matter what they're going through.  The 12 step programs are a great way to handle the ups and downs of life in general and don't have to apply to substance abuse.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009
    Just for Today

     Just for today, I will try to live through this day only,
     and not tackle my whole life problem
     at once. I can do something for twelve hours
     that would appall me if I felt that I had to
     keep it up for a lifetime.
     
     
     

     Just for today, I will be happy. This assumes to
     be true what Abraham Lincoln said, that
     "most folks are as happy as they make up
     their minds to be."
     
     

     Just for today, I will try to strengthen my mind.
     I will study. I will learn something useful.
     I will not be a mental loafer. I will read
     something that requires effort, thought and
     concentration.
     

     Just for today, I will adjust myself to what is,
     and not try to adjust everything to my own
     desires. I will take my "luck" as it comes,
     and fit myself to it.
     

     Just for today, I will exercise my soul in three
     ways: I will do somebody a good turn, and
     not get found out. I will do at least two
     things I don't want to--just for exercise.
     I will not show anyone that my feelings are
     hurt; they may be hurt, but today I will not
     show it
     

     Just for today, I will be agreeable. I will look

    as well as I can, dress becomingly, talk low,
     act courteously, criticize not one bit, not
     find fault with anything and not try to improve
     or regulate anybody except myself.
     

     Just for today, I will have a program. I may not
     follow it exactly, but I will have it. I will
     save myself from two pests: hurry and indecision.
     

     Just for today, I will have a quiet half hour all
     by myself, and relax. During this half hour,
     sometime, I will try to get a better perspective
     of my life.
     

     Just for today, I will be unafraid. Especially I
     will not be afraid to enjoy what is beautiful,
     and to believe that as I give to the world, so
     the world will give to me.

    http://www.nhal-anon.org/Just4Today.html

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    Thanks Desdemona.  I did find a local chapter in Alexandria, VA.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited May 2009

    Oh good, km.  I hope it helps!

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Biopsy results back. ALH. Had ALH in the same breast in 04. At that time my previous surgeon did not recomend excisional or Tamoxifen. New surgeon says it is the standard of care now to excise to make sure nothing else is lurking around. I am scheduled for surgery June 6. I feel angry today. Angry that since April 14th the anxiety has consumed me. I want to will it away and will be attempting to distract.

  • konakat
    konakat Member Posts: 6,085
    edited May 2009

    Cleomoon -- I'm so sorry about the test results.  Now you know and can focus on the surgery getting rid of the disease for good.  Yes, lots of distractions are in order -- anything and everything that makes you feel good.  You'll get through it -- and keep us posted.

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Hi,

    I sent some PM's to you. It seemed easier to comment on things that I related to.

    Warmly,

    Cleo

  • konakat
    konakat Member Posts: 6,085
    edited May 2009

    Thank-you for the PM Cleo -- it sure helps knowing that someone understands.  It's important to know we're not alone or unusual in the battles we face.  It's never just BC -- it's BC and all the other stuff in our life. 

    If you told me 5 years ago I would have all the problems I have now, I'd say I'd probably curl up and die.  I amaze myself that I am doing as well as I am.  Sometimes if feels like I'm marching through a blizzard, wind blowing against me -- you can either sit down and succumb or keep going.  So I keep trudging along. 

    The only good thing about this is that my priorities have changed.  Nothing like a slap in the face with mortality to get a grip on what's important.  I've always been passive, hoping for things to get better.  I have been doing that a bit now, but I've got to focus and focus on what will make life good.  Ha, today is a good day -- I've got a job interview lined up so there's hope!  And I sure hope I'm going to be on just herceptin instead of trying to do the chemo most Fridays -- can't see them hiring me having to do that!

    Elizabeth

    xox

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Elizabeth,

    Congratulations on the job interview. Any chocolate will do for me...last week it was oreos and m&m's. Cake sounds good too. But gotta add the ice cream. This time around with the worry I gained weight. Last time around I lost weight. Better try and save the cake an ice cream binge for after my excisional June 5th. Maybe time to buy a bag of those little carrots. Let's see how well that idea works out.

    Thankfully my anxiety has calmed down a bit. The weather warmed up here and I am hot. I told myself well that is progress...only complaining about being hot. I am feeling a bit down, but that is ok. I told my therapist the other day that I should be back to my normal neurotic self by this Sat...LOL

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Feel like I am losing it. The anxiety is so bad. Sleep problems and racing worry. And I just started tapering down my meds before all this diagnosis stuff and testing started. New scripts for the lower doses, but had to leave a message today for the psychiatrist to see if I could increase my Seroquel. I don't know what else to do since I seem unable to do other things to get my mind off of this upcoming wire excisional.

    I can't go to the psych hospital cause of responsibilites at home. And I know I can manage to get through somehow. Always have. I wish I could let myself cry, but no luck yet.

  • lynnea
    lynnea Member Posts: 226
    edited May 2009

    Hi Cleomoon- this thread has really touched me. The irony is I was telling someone the other day what my life was like in my 20's and 30's and they didn't believe me, because I am so different now.I'm 55 yrs old and I have to say I hope I never go back to that dark place. I have been on Prozac since 1990 and I will never NOT take it! It is to me what insulin is to diabetics. I have tried twice to go off it and both times symptoms came screaming back. I am utterly convinced that depression is a biochemical disorder !



    Like many of you ladies-I grew up in a highly dysfunctional family. Alcoholic grandparents who created a crazy daughter (my mom-also suffers from depression and is a FLAMEING CODEPENDANT) who married my dad (a WWII vet who self-medicated his PTSD with alcohol) My dad was raised by foster parents after his mother died, until he was 8 yrs old and then his dad remarried a "refrigerator." So needless to say I was raised by two people who totally lacked the basics needed to parent healthfully. And needless to say I am totally neurotic. Mix a biochemical depression with neurosis and you have a mess!!!



    In my teenage and college years I was very aware I had problems-but didn't know what to do about them. I was a pre-med major and I was petrified to ask for help because of the stigma attached (this was the 70's) and I was afraid it would prevent me from getting in med school.LOL It was probably what kept me out!!! Anyway by 1979 I got career in gear and finished med tech school and was finally able to afford therapy. I had a wonderful shrink who basically reparented me and we addressed a lot of my neurotic issues. But even after 8-10 years I was still suffering from depression and anxiety. In those years I also got involved with alanon and adult children of alcoholics and while I was able to develop more healthy coping skills - I was still symptomatic. I had tried some of the older drugs (Xanax,amitriptiline) but none of them really helped. When Prozac came out I begged my dr to try, but he was hesitant because it was so new and early on there was so much bad press about it. So I soldiered on!! In 1989 I graduated from nursing school and started my 1st job in critical care. BIG MISTAKE. The stress almost put me over the edge and within 9 mos I was begging my dr to put me in the hospital. He said enough is enough and we tried the Prozac. Within 10 days my symptoms TOTALLY disappeared. It was like someone flipped a light switch!! Too bad I had quit my nursing job.-but I've never look back with regret. My symptoms of depression and anxiety were often times paralyzing, and I often slept to escape them. The worst of which was constant obsessing-I could not go to sleep until I wrote down everything that was going round and round in my head. I read those old journals now and I can't believe the stuff I thought about!!! I also would cry at the drop of a hat. Anger was a big problem, as was CONSTANT suicidal thoughts. I attempted suicide 2x and was hospitalized both times.I had panic attacks because I was afraid to be home alone with my suicidal self. Nothing worked until I found the right med. I am not that same person. I'm telling you all this because you have to keep trying. If the med you were taking helped, then don't stop it. If it didm't work-keep trying different ones, until you find the right one. Some people have to try many different ones until they find the right one. The drugs are very similar chemically-but each person's chemistry is different as to how they respond.



    To you other ladies who have suggested other modalities, please don't think I'm poo-pooing them because I have tried all of them and yes they were helpful in COPING with the depression and anxiety, but they didn't cure it. Only the med did that-in some people IT HAS TO BE BIOCHEMICAL. The irony is when I started the meds my PMS symptoms totally went away too. When I told my shrink about it he laughed and kind of said "if you say so". Today Prozac is used for PMDD. Who'd a thunk??! There is still so much we don't know about neurochemistry, but at least it's come out of the closet a little bit. Depression is a real physical illness and like other physical illnesses stress makes it worse. And BC diagnosis and treatment IS stressful!! So be very gentle with yourself and good luck with your surgery. Have a blessed night. Lynne
    PS One of my favorite quotes was one by F.Scott Fitzgerald the author of The Great Gatsby, who also suffered from depression; "In the dark night of the soul-it's always three o'clock in the morning"

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