Starting Chemo February 2009?

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  • apple
    apple Member Posts: 7,799
    edited May 2009

    gcpommom - hugs and a prayer

    Denali - omg that snake is huge.   *my kids love looking for snakes.. they put them in buckets and bring them inside.. uugh.

    nice shirt Jamieh

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    It is 4am, and I am wide awake.  My DD woke me up at 2am to tell me that someone was shining a flashlite in her window, and knocking....turned out to be our drunk neighbor, we've told him before to stop that....he is older than me, and always remembers to deliver some stupid message in the middle of the night (DD is up all night, light on in room, he knows she is awake).  This time he wanted us to move our car from the empty house next door's driveway so the city could mow the very overgrown lawn.  Great, couldn't that wait until tomorrow????

    anyway, after all that drama, then racing heart/hot flashes from the steroids, these HUGE storms roll in, thunder like I haven't heard in a long time.  So now I am wide awake.  gotta be up in 2 hours.  *sigh*

    I went to my BIL's funeral yesterday, and I realized that I have attended a funeral every other month since January.  BF's brother in Jan., my mom in March, BIL in May.  What a strange, terrible year it's been.  I have truly surprised myself at how strong I can be.  I had no idea.

    Of course, part of me thinks that at some point, I may just 'explode', and all the tears, all the sadness will just burst out.  But for now, I keep good spirits and I try to be strong for those around me.(although, sometimes I just feel numb, you know?)    If and when i do explode, I know you all will be here for me, and that is comforting.

    Hugs to you all....such wonderful strong ladies

    Judy

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009

    Judy~ {{{{Hugs}}}}

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    OMG - that snake. I would have totally freaked. Not a big fan of snakes, at all.

    Sue - I am taking calcium and Vit D, twice a day. I am also going for a baseline bone density next week. 

    Jaimie - love the shirt! 

    Judy - glad you got your Chemo on time. Hope you feel OK today. 

  • apple
    apple Member Posts: 7,799
    edited May 2009

    I'm going to go on the dreaded Femara after my chemos are finished.

    omg  - maybe i won't have side effects because i am special.

    i'll have to take up painting again, holding the paintbrush with my teeth.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    I'll be on Arimidex after my ooph. Not looking forward to what I might expect, still, I think hormones are the most important weapon when you are ER+, so I will put up with feeling like a little old lady.

  • Beverly11
    Beverly11 Member Posts: 443
    edited May 2009

    I was advised to take 1500 mg of calcium and 2000 mg of vitamin D3.  (important that it is D3)

    Bev

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    My head is getting so fuzzy (with lots of white hairs), but those white hairs are hard to see!  They are so fine.  I bought some mane & tail shampoo/conditioner just to try it out.  It's not bad, and I got a great deal at Sallys Beauty last week, buy one, get one free for the large size.  It should last forever, with the tiny amount I use!

    Had my 'steroid' day today, even with the little sleep I got last night, I went out to garage sales today.  I am tired, but not tired--that's how the steroids make me feel.  I feel like I could sleep for hours, if only I could fall asleep!

    So I'm off to bed now, talk to all you fabulous furies tomorrow!

    Hugs

    Judy 

  • apple
    apple Member Posts: 7,799
    edited May 2009

    ouch

    no smiley face tonite,  my extremities are killing me and i haven't a clue what to fix for dinner tomorrow.   however, it is garage sale season and tomorrow should be awesome.. that's about all i'm good for.  I did a bit of yardwork in slo mo, rearranged my son's room... he's such a dear, really coming into himself after a fairly difficult childhood -

    i'll share a bit to take our minds off of BC.   I  think he's my little genius.. so very clever, so funny, he has a joke memorized for every occasion.  i'm glad he's happy.  it just kills ya when your kids are hurting.  he burned his palms severely as a baby.. surgeries and a long long hospital stay... then tummy complications thruout the years from all the meds.  here's a pic to tug your heartstrings...

     and an after pic to share a smile.

     

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Oh, apple, your poor son. That must have been so tough to get through. Looks like he is quite the character now though! You must be really proud.

    Judy - your hair sounds exactly like mine!! Give you a race to get coverage....

     My Rads Simulation went well yesterday - no stress, not really all that unpleasent. I now have tattoos....

    We have a long weekend up in Canada. We are going away for the first time since I was diagnosed.  Looking forward to a weekend of rest and relaxation...

  • living4today
    living4today Member Posts: 215
    edited May 2009

    Apple,

    Thanks for sharing about your son...looks like he is a great kid!!  Hope you can get out and enjoy a few garage sales this weekend!

  • Denali
    Denali Member Posts: 347
    edited May 2009

    Oh my, Apple, what a precious baby he was going through so much!  But what a handsome young man and typical teen he's become!  You did good!

     Love the photos!

  • Artemis
    Artemis Member Posts: 759
    edited May 2009

    Oh, apple, poor baby and poor you!
    Cry 

    It looks as if he's come through with his sense of humor intact, a trait I suspect he inherited from his mother.
    Wink

  • Bethie1
    Bethie1 Member Posts: 393
    edited May 2009

    Hey gang!! Hope everyone had a nice Mother's Day!!  I was at my sister's so I wasn't on computer.  My sister from NC came up for her daughter's 1st mother's day (my new great nephew is now 3 mos--the cutie!!)

    Apple-your pie looks delicious!!

    Judy-you're welcome anytime, and that goes for the rest of my fabolous furry friends.  if you need an ear, I'm here!! Talk away!!!

    kerry - hope you're doing OK.  Have you started rads yet? Next week 5/20 LAST CHEMO for me, then my family is taking me out to celebrate!!! Hope everyones' treatment goes good!!!

    Where's Webbie been? Gonna sign off now yack later!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Apple your son is a cutie :) 

    I had to go to the oncologist appt. today and I actually had a good visit.  I think I am going to join a trial for biosphates (sp) which I didn't think that I was eligible for but I am.  The best part about the trial is that I will get a drug no matter which arm I am on.  The bad part is I have to have a bone scan again and a bunch of testing but anything to lower my risk of reoccurance I am for.  I was also able to schedule a bunch of appt.s for days that I was already at the hospital which just thrilled me to pieces.  The ride 1 hour each way just makes it a drag to go up there for a 15 min. appt.  so I was even able to get 4 in one day :)  The receptionist thought I was hilarious because I was so excited about it. 

    The only bad part about my visit was I noticed that my heart is racing again and sure enough my pulse was 122 after sitting in the waiting room for 15 min. :(  So I am either anemic or my RBC are in the can again.  I also found out that my effraction rate was 46 on my last echo so I have to go back because my pulse rate was high and the cardiologist thinks the pulse rate caused it.  Grrr... at least it doesn't require an injection.  Hopefully it will be back up and better. 

    We are celebrating my baby boys birthday tomorrow and it is thrilling to watch how excited he is about it.  Even though he is only 4 he seems so much older :(

    Oh Webbie how are you doing ??  Check in when you can.....

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009

    Jaimeih~ I'm on that trial.  I think it is a good one.

  • Gramof3
    Gramof3 Member Posts: 301
    edited May 2009

    Apple Great pictures. I see him as a protector of the younger sibs (oh, my brain isn't fast today--you do have younger ones, right)...just what I wanted when I was little, but I was the oldest in a family of all girls.  There was a heart-warming "Story Corps" piece on NPR yesterday from an older man in Georgia. remembering how his older brother, Fred" came to his rescue when the father of a friend was ready to "whup" him over an accidental chidhood mishap.  Your "Trouble " looks like a fine young man!

    Jamieh, Michelle-I'm in the Avastin tial, but I'm pretty sure I'm in Arm A--getting a placebo.  If so, do you think I can try for be bioshophates trial, or do you have to wait to start a new trial???  I'm TN, so am hoping to find something else if Avastin doesn't work out.  I'll try to remember to ask next week

    Bethie. Great to hear last tx is on the horizon.  Will you be doing rads?  I cant remember. DONT forget, if you get to Branson later on, let me know!!!  My younger son and his family are talking about Silver Dollar City on June 20 and I'm hoping to make it.  NP told me yesterday to start taking iron for the low hemoglobin.  Not sure I could keep up with everyone the way I'm huffing and puffing right now.

    I'm going to try to go through here and do a "roll call" of Furies.  I see several that have gotten quiet. Do you think some of us have burned out?  Is it we're just tired and maybe read but don't post?  I can understand that.  Hopefully we haven't lost our Fury Spirit...I'm concerned about Webbie and Mikita, and samedaynurseJan among others. 

    Denali  That snake would have had the run of my entire house as I would have been in Texas and still runnin.'  Even after years in law enforcement and dealing with some faily bad actors, I think the scaredst I ever was was trying to help an officer get a snake, (which had crawled up his leg as we were out in a field incident,) out of his uniform pants. The snake and the officer were fine, but I peed my pants.  

    Take care==Helen  

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009

    Helen,

    I don't know if you can do both trials.  However, I don't know how old you are... if you are old enough that you might have bone density issues, you could get zometa off-trial.  Zometa is one of the 3 arms (and many think that it is the most promising).  FWIW~ I'm getting Avastin off-trial because of my age and the tumor grade and I still qualified for the bone-drug trial... So, you CAN take Avastin and the bone drugs.  I got assigned Clondronate and it hasn't affected my sensitive stomach at all.  (But, I really wanted zometa... bummer.) 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    I submit my paperwork on Monday for the trail.  Michele did you have to have a bone scan first ??  I read that I have to have a bone scan and I am not happy about that because of the hours that I have to spend up the hospital :(  Oh well maybe I can link it with another appt..  That would make me happy.  I'll just add that to my list of growing things I got to get done.  My kidney has been reminding me that it's not happy so I sure hope that it holds up thru my last chemo. 

  • Grace4me
    Grace4me Member Posts: 47
    edited May 2009

    Just wanted to check in to tell you all that I am 10 days post my last chemo to Taxetere and this morning I have updated my computer, done 4 loads of laundery (about 10 more to go) swept, mopped our family room, dusted things that haven't been dusted in months....and played with my two dogs, (Weimarainers).   About 4 hours of pretty hard work............now I'm broke out in sweat and feeling tired, but life is slowly returning to normal.  There is hope after all this.

  • living4today
    living4today Member Posts: 215
    edited May 2009

    Grace4me,

    Thanks so much for the update and encouraging news.  Especially since I am getting ready to go into my "chemo hole" for the next two days.  I am excited though, only 6 more weekly treatments.  I know you had lots of SE's while you did chemo, are they starting to go away?  Thanks for the hope!

  • Denali
    Denali Member Posts: 347
    edited May 2009

    LOL--Helen, I burst out laughing at your snake story!!  How funny!  But not at the time, huh??

  • Bethie1
    Bethie1 Member Posts: 393
    edited May 2009

    Helen,  I'll definitely consider it when if/when I get to Branson. We'd be landing in Springfield anyway.  My sisters and I are thinking about a trip there in September, but I first have to look to see when the Osmonds are playing at their theatre there.  I've been following them since I was 6!!!  Have you seen any of their shows or others in Branson?  Hope to meet you soon!

    I start rads about mid June roughly 3 weeks after last chemo!! Thanks for asking

  • Grace4me
    Grace4me Member Posts: 47
    edited May 2009

    Living4today-  Hang in there!  Everyone says I'm trying to rush it, but I'm looking forward to a day that SE and my next appointment is not my all consuming thought.  i still am a bit achy, my sinus's are still bleeding...but the neorpathy in my fingers is limited to just a few of them and my eyes are not as dry. I think the strength in my muscles is a combination of all the surgery's and the chemo. My onc said I was in the top 1% of people with SE of the chemo, MOST people do not get as deathly sick as I did. If it were not for my DH I would have died of dehydration at least 3 times. So just know that when you "go down" as I always told my family I was doing, that IT WILL NOT LAST!!!  YOU will get your strength and mind back....the pain WILL stop and IT IS SO worth it to know that we have done all we can to stop BC in its tracks.

    I will be praying for you right now.

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Well, I am having my 'crash' day, soooo tired and achy.  I did manage to do one load of laundry and make dinner, which is simmering on the stove right now.  Slept over 11 hours last night, and still tired. 

    Of course, 2 days of going to garage sales could be part of the problem, eh?  Oh well, I like to go to them, and it is nice to spend extra time with my DD.

    Kerry:  it's gonna be one sloooow race!  Hope you are enjoying your weekend away!

    Jaimie:  I've been having the racing pulse again, too.  I hope your rbc's are ok.  Not sure what causes my racing heart, but it seems to be on the 3 &4th day after tx.

    Helen:  I think that we're all a lot more tired these days, for sure!  I think we still have our spirit and our strength, though, even though we have a few members that appear to be taking a break, which is understandable.  I know that lately, I do not feel much like talking to people around me, as I have been much more irritable and sad lately.  But I always try to come here to talk to you guys, the only ones who really get it.  I don't know what I'd do without our chemo group.....the Feb. Furies Rock!

    Grace:  it's nice to know that there is a light at the end of the tunnel.  Glad you are starting to feel better :)

    Well, off to eat dinner, will talk to you all later

    Judy

  • Bethie1
    Bethie1 Member Posts: 393
    edited May 2009

    gcpommom- what chemo are you on?  Right now, I'm on Taxol, and at first I had a jittery racy feeling through my body from benadryl 50 mg given intravenously. This is given to counteract any reaction you may have from Taxol, but intravenous form is apparently too much for your body too soon. It was for me as well. Do you get benadryl as well? If so, this could be why you're feeling a racy feeling; I had it through my entire body with a tingling sensation.  Suggestion:  If you do get benadryl intravenously, ask doc and/or nurse to stop that form and take over the counter benadryl.  Take 25 mg 1 hr before your chemo then the other 25 mg just before chemo is administered.  I did this, and slept like a baby!!  Hope you feel better.  Take care furies!!

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Bethie, I am on Taxol right now.  I get by IV:  12mg steroids, 25 mg benedryl; my chemo is on Tuesdays.  However, I have no real problems with racing heart until Saturdays, and the benedryl is long gone from my system by then.  I had the same problem, but MUCH worse, on the AC, and we had to stop tx's.  The benedryl actually makes me very sleepy, no tingling or racing.  I already had SVT (tachycardia) prior to b.c., and for some reason, the chemo is aggrevating that condition.

    Thanks for your advice, though, and I am glad you are doing better with your tx.

  • living4today
    living4today Member Posts: 215
    edited May 2009

    Typically, I am not a person who likes to draw attention to myself...but Happy Birthday to ME!!!!  BC sure changes the way a person looks at their birthday.  Today I am 41 yrs old with hopes and dreams of being 101:) Planning for the "crash" later today...for some reason I can't sleep and am writing this at 2 am.....Hope everyone has a great day and have a "treat" on me!

  • Denali
    Denali Member Posts: 347
    edited May 2009

    HAPPY BIRTHDAY, living4today!!  But goodness, don't crash on your birthday!  Move your celebration to a day you're feeling GOOD!  Do something really special!

    Today is my crash day too, but for some reason I'm up. 

  • Artemis
    Artemis Member Posts: 759
    edited May 2009
    Happy Birthday, living4today!
    Cool

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