Starting Chemo February 2009?

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  • kmn0701
    kmn0701 Member Posts: 117
    edited May 2009

    Rhubarb pie sounds divine!!!! Too bad everything tastes like crap right now. Cry

    I spent Mother's Day in bed from my damn chemo crash. The girls & hubby were nice though, I just felt like crap. I did manage to get to use my Pedicure GC today! Yay!! IT's already sandal weather here. Hell...it's downright hot here. Going to break 100F this weekend. Yuck....I'm not ready for the heat yet.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Ohh, Pie. My favourite! I grew up having rubarb, love it!

    Just got back from my walk - starting to get back to normal routines, which is nice. It was 5 C! Not sandal weather here yet! But I did wear capris testerday, so it is getting warmer. 

    I keep getting my Husband to examine my head for growth every day - it is about 5mm, it is going to take forever! I think it is coming in dark again, it is hard to tell, it is too short! I just want to ditch my wig, I am so over it. 

    Kristine - so sorry you crashed over the weekend. But, you've only gotta crash one more time! 

    It's funny, my last Tx was the only one I ever looked forward to, too. Even the infusion seemed to go faster, and was less traumatic, and my husband and I  bought scratchies (our Chemo splurge) and we kept winning, so he kept going downstairs for more. It was kinda fun!

    So hang in there y'all! We have pie, summer is on it's way, and  Chemo will soon be over. What more do we need....

  • living4today
    living4today Member Posts: 215
    edited May 2009

    It is so exciting reading about everyone and their last treatment!  Anticipating hair growth:)...I still have 7 weekly abraxene's left, so you give me hope.  I spent Mother's day with a chemo crash.  The bone pain was bad, but it's the fatigue that is really kicking me.  I am even having a hard time pushing myself to continue working, but with DH not having an income and since I carry the insurance, I keep trying.  It is so exciting to think about almost being done!  My family and I were able to participate in the RACE for the cure on Saturday...my mom, brother, 2 sisters actally ran the 5K for the first time in their lives...it was so wonderful to see the support.

     Hope you all have a great day!!

    Kim

  • apple
    apple Member Posts: 7,799
    edited May 2009

    9 weeks for me.. today is steriod power clean day and i have next week off... so i should have a couple good weeks.  (except for the ever lifting fingernails which will allow me to focus on my organ feet skills - miles to go on that journey).

    there is swine flu in a local school.. just miles away.. yuk or should i say oink?

    have a great day all.

  • MicheleS
    MicheleS Member Posts: 937
    edited May 2009

    Kim~ I could have written you post!!  7 more to go and I have no choice but to keep working.  I had to call in sick friday because of the fatigue.  I could barely shower that day.  Yesterday was a bit better but I only made it to work from 9-2:30.  Today and tomorrow, I'm determined to work full days because I'll be out again thurs... But, we're 1/2 way there!!!  We can do this!!!

    Apple~  I want some pie!!! I even have on my "fat-girl" pants today!!! (Unfortunately, everyday seems to be a "fat-girl" pants kind of day anymore... Damn steroids!)

    Kerry & Kristine~ Ya'll are doing so well!!  Thanks for keeping my mood up!!

    Judy~  I thought of you lots on Mother's day.  Just keep hanging in there!! Good luck this week (and don't go showing anyone any mouth sores!!)

    Lots of {{{{hugs}}}} for everyone!!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Jealous of the steroid high you get Apple.  I get steroid funk instead complete with heartburn. 

    It seems like a lot of us went in for treatment last week and have been in the Chemo. hole.  I hope everyone feels better soon.  Has anyone experienced a low grade fever that has lasted a week ??  I put a call into my oncologist office because I have had a fever of 99. and a little above for the last week.  It goes away with tylenol but I want to make sure I get my last treatment on Monday. 

    Off to make my shirt.  I put the adhesive "away" and I have no idea where it is.  I swear when I feel better I am organizing everything in this house.  I am tired of not being able to find things...grrrr....

  • Grace4me
    Grace4me Member Posts: 47
    edited May 2009

    Crap! My last chemo was last Wends, so you would think today I would feel much better...........not.  I got dressed and drove 20 miles to my job, sit there for an hour trying to figure out what I was doing,( a job I have done for 20 yrs).  So I'm back home sitting here so very tired. I too carry the insurance for the family, so I need to get in enough hours to pay our premiums. Oh well, enough griping, at least I know that next week I won't be knocked back down.

    I was raised in northern IN and babysat by an Amish family, her best made pie was Rhubarb! You bring back good memories......................now i wish I could remember where I left my bank card, glassess, passwords.....ect.

  • Artemis
    Artemis Member Posts: 759
    edited May 2009
    Jamieh ~ so glad your mouth is getting better!

    apple ~ Pie!  I've never had rhubarb, but yay pie!!

    The chemo crash has been bad this time.  I'm so glad that it's the last.  The bone pain has been, well, painful and has lasted much longer than usual.

    Mother's Day was very low key.  My son wanted to take me out, but I was so tired and in pain that I told him he's excused this year, lol.

    Hugs to all,
    Artemis
  • Gramof3
    Gramof3 Member Posts: 301
    edited May 2009

    Rhubarb!!  The Germans called rhubarb "pie plant" and they make "piestengel" --rhubarb wine.  It is delicious. 

    Congrats to those of you on the "down hill side."  I started weekly T last Friday, and even though the onc said I wouldn't need a Neulasta shot, I'm not so sure. Maybe it's the steroid crash, but It's kicking me... I'll finish the T in late July, then rads, so I may be the last Feb. Fury  out the tx door  (but I'll turn off the lights and NONE of us will have to come back here!).  Have a good evening!  Helen

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited May 2009

    Jaimieh, yes I did get an exchange date. I will be having surgery on May 28th. Yee-Haw!!

    Apple, I've got some rhubarb, too. I'll make us all a cobbler!

    Kerry, I'm jealous of your hair growth. Mine will grow a little so I can feel the stubbles, then fall out again. Yell The sides and back of my head are now smooth and hairless.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Cheryl - mine might still fall out! I never got that smooth look, maybe that is still to come?

     Got an Onc appt today to put me on Tamoxifen. Hope I don't get any nasty SE's. Always get nervous wjhen I go to see her.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Whoo for the exchange date Cheryl that's not to far out.  I can't wait to hear what you think about your new soft boobies.  (boy that sounds odd typed out)

     Kerry~ I hope the onc. appt. has no suprises. 

    I still have the dang mouth sores but I think they are caused when my fever goes up.  I have had a fever of 99 and a little above for the last week.  I called my onc.'s PA yesterday and she never called me back so I am a little ticked off about that.  I hate when people act like my concerns are not important.  Oh well 2 days until my MIL comes up to help and I got a ton to do. 

  • jancie
    jancie Member Posts: 2,631
    edited May 2009

    Gramof3 - I have done (2) Taxols and have not been given the Neulasta shot either time. 

    Apple - In Switzerland they make a wonderful rhubarb pie with strawberries - great mixture of fruit - something you might want to try.  They also sell a strawberry/rhubarb jam that I have only found one time in specialty store in Dallas.

    I go in for chemo today then I only have ONE MORE LEFT!!   I will be on a major steriod high tomorrow.  Since I don't go in until 11 am and then I have to sit there for around 5 hours, I will be coming home and going to bed to watch TV or something.  It will be an emotional day for me.

    For those that have gone into chemo pause - like myself.......I have been crying non-stop at any little thing I watch on TV that I find is sad for the person.  The tears have been flowing like crazy for about 2 weeks now.

  • Denali
    Denali Member Posts: 347
    edited May 2009

    Jancie, good luck on your chemo today.  Did you mean chemo pause as in menopause?  You so remind me of myself going through the pause.  I remember sitting down and watching the movie "Overboard" (a comedy with Goldie Hawn) and SOBBING all the way through it!  Felt good afterwards.  Got it all out.  So try a comedy--heaven forbid a SAD movie--tears will still come with the humor and you'll get it all out.

    Wishing you well.

    I go in at 10am today to see if my blood counts are high enough for chemo.  They were'nt last week, so I had to delay my schedule to the finish line.  Sigh. 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Jancie you mean tampon comercials are not sad ???  I am the same way, it's horrible.  My poor DH keeps asking me what's wrong and I can't answer him. 

     Linda~ I hope you counts are up today.  If they are will you get you chemo today ??

  • jancie
    jancie Member Posts: 2,631
    edited May 2009

    Linda - hope you can get your chemo done.  One of my biggest fears is them telling me my counts are too low and I won't be able to do chemo.  I have an end date of May 27th and I want to keep it!!

    I love that movie Overboard and yes....even before chemopause/memopause I cried watching that movie.

    I keep telling my hubby to rent only good chick flicks but then I cried during Bridal Wars and I was sobbing for 1/2 hour after watching American Idol last week when Allison got booted off.

    Jaimieh - I am going to ask my oncologist for some meds.  I remember him telling DH months ago that he had meds to help me deal with menopause because DH was concerned about major mood swings.  Yes....I have mood swings like crazy.  I was taking my steroids last night and dh in a joking manner said "watch out"  I know he will be giving me plenty of space for the next couple of days. 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Jancie~ They gave me the RX before I even started for effexor and I think that I am going to get it filled because like you I am a mess.  I go happy to sad in 5 seconds and you never know which is going to show up. 

    I still haven't found the adhesive I need to make my shirt.  Gotta love when I put things away 6 months ago.  Okay I guess I better get off the computer I have to plant some veggies today also which I don't want to do. 

  • Beverly11
    Beverly11 Member Posts: 443
    edited May 2009

    I am really hoping that everyone is able to get their treatments on schedule.  It is difficult to have things post poned.  My 1st one was almost post poned due to a possible shingles diagnosis, my 2nd and 3rd due to blood counts.  The 4th was ok due to the help of steroids.  Crossing my fingers for the 5th treatment (next Tuesday)

     Take Care Everyone

    Bev

  • susan13
    susan13 Member Posts: 732
    edited May 2009

    Hey Ladies,

    Just checking in. Seems like everyone is doing ok.

    Kerry-You'll have to let me know how the Tamox goes, my onc. said he'll start me when I am done with rads, which is next Friday. Can't be soon enough!  I guess the radiation "fatigue" hit me today, I'm pretty miserable. My skin is itchy, red and the entire area, which is pretty darn big, peeled this morning, and I'm nauseas and dizzy.  But 18 down, 7 more to go!

    Sue

  • KerryMac
    KerryMac Member Posts: 3,529
    edited May 2009

    Oh, Sue, I am so sorry you are feeling rotten. It sounds miserable. Still, 7 more and you will be done. Whew! I can't start the tamoxifen until 4 weeks post-chemo, so she said start June 1st. I will only be on it until I get my ooph, then she will switch me to Arimidex.

    I go for my Rads Simulation tomorrow - hope the machine doesn't break down this time!

  • living4today
    living4today Member Posts: 215
    edited May 2009

    I keep telling my husband that the God Lord either thinks he needs patience or has alot of patience as he gets to be married to me going through chemopause and than hopefully menopause in 10+years...lucky guy!  Actally I find myself more teary, but I think it is because the journey is getting a bit long.  Also, my husband and I have gardened and did yard projects together for years, some couples go on vacation, we work on our yard.  Now, this year he plays in the yard and I take naps.  Mr Fatigue has become an unwelcome guest in my body and I am so ready for him to leave.  Only 7 more weekly Abraxene.  Anyone on the Abraxene or Taxol that got the numbness in hands and feet?  Does it come and go, or just get progressively worse?  Thanks.  (My onco nixed the idea of B6 and glutamine supplements.)

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    living4today~ I actually thought Abraxene is related to taxotere.  If it is I have had numbness in my thumbs and toes and it comes and goes but I get Taxotere every 3 weeks with the rest of my chemo cocktail.    Yup, Mr. Fatigue is here also which is driving my wonderful husband crazy.  I think it's hard for him to understand exactly how bad I feel :(.  BTW, my onc. nixed anything also until after I am done....booohisss..

  • living4today
    living4today Member Posts: 215
    edited May 2009

    Thank you Jaimieh...it is so hard to not feel alone with these crazy se's.  My hubby is wonderful too, but I have noticed a bit more avoidance from him...I think it is so hard for him to see his active and energetic wife so "yucky"! 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Okay I had to celebrate a little bit after looking for my adhesive for 3 days I finally found it.  Right in front of my face.  I swear chemo. brain is here and I suffer from CRS.  Okay I may have before chemo. but it is worse now.  All I have to do it iron my shirt and then I am ready for Monday.....whoooooo..... 

    Living4today I hear you on the SE.  I think I have crossed everyone off the list they gave me at the beginning of all of this. 

    Okay off to iron my shirt I have a busy day tomorrow.  I gotta try and clean up a little before my MIL comes in on Friday.  I may say to hell with it and just leave it a mess. 

  • Gramof3
    Gramof3 Member Posts: 301
    edited May 2009

    Another reason grandkids are more fun than their parents:  I just called my gdaughters (5 and 8) and they turned on the speaker phone.  I could hardly understand them because they were shrieking and laughing so hard.  I figured they should have finished their baths and that neither of their parents was around because it usually is "quiet time" before they go to bed.  Anyway, after I yelled, "What are you doing??" the little one yelled back, "We're having an underwear war!"  I yelled again, "How do you do that??" and the older one yelled, "We're using our panties as sling shots and there goes Nemo, there goes Princess Aurora, there goes Minnie Mouse!"  Then SILENCE.  Unfortunately, my son walked in on them and was hit by Dora the Explorer!  Cease fire followed immediately.  I wish I were there to see them...just a little down day, today.  Major hot flashes and I had to relocate my entire office this afternoon--went bald and a co-worker dude said, "Gee, Helen, if you ever want to look mean and scare someone, just take off your wig." Grrrrrr. 

     Webbbbbbbie, where are you?  Mikita?? SamedaynurseJan??

  • Denali
    Denali Member Posts: 347
    edited May 2009

    Early this morning I went out to put my trash cans on the curb. But when I put the garage door up, lo and behold, there was a huge snake hanging from my garage door!

    I put the shepherds back inside quickly--I could just see them playing Queens of the Wild with a viper! Reminded me of the days, DS Jeff had Electra, his pet Boa Constrictor, back when he was in college. I didn't mind her and even liked holding her, but told him if the dogs ever came up missing, out she goes!

    Animal control came out within 15 mins and caught it. It was a Bull Snake and must have been about 5' long.  They returned it to the Animal Refuge across the street. Nothing like seeing a huge snake hanging down right in front of you to wake you up.

    The snake must have brought me luck because when I had my blood tested at the Dr's later in the morning, I was good to go for Chemo #5!!! My platelets were AMAZING! After increasing only 16 pts the week before, they went from 55 last week to 224 today!!! HURRAH! Never thought I'd be so happy to get chemo!

    Another silver lining: After my recent blood transfusion, my friend Sherry says I'm now an official VAMPIRE! Very 'IN' and popular these days, don't you think?

  • sue50
    sue50 Member Posts: 61
    edited May 2009

    OOH Denali!!! That is a big snake and very creepy!!!!  Glad you're making progress on your chemo.

    We get milk snakes in our basement since we have a granite and stone foundation (our house was built circa 1750-1790.) I have had a snake slide out from under my washing machine....that was nasty...but if one was hanging from the ceiling like yours I would certainly FREAK.

    Mother's day: I was in the Chemo Hole that day but sat outside to watch a Lawn Tractor Race staged by my husband and son. I decided to participate briefly, so my DH raced with a wheelbarrow since we only have 2 tractors.

    Hair report: I have tiny white stubble all over and a few dark stubbles that never fell out. It's ok if it comes in white, I will take any color at this point. At least it's hair:  Undecided

    Tamoxifen: I sent in my prescription to my mail order pharmacy today. I'm supposed to start it 2 weeks after my last chemo. Then rads start the week after that...hope I can handle all that. Onc says to expect hot flashes (got those already) and vaginal discharge may increase.

    I was also told to start taking Calcium & Vitamin D even though I drink milk. I got some OS Cal. anybody other chemopause people taking calcium?

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited May 2009

    Linda~ I think I would have peed myself.  I do not like snakes at all.  Whooo for getting those blood counts up.  I hope I follow in your foot steps :)

    I finished my shirt.  In hind site I should have pulled the wording up a little but I just winged it. Sorry about the backwards picture.  I will get that fixed..hehe.... 

     

    Dx 12/24/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER-/PR-, HER2+

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    I thought I'd already posted this, but I guess not....I was able to get my chemo yesterday, YAY!  It was a late appt for me, they didn't even start my Taxol til 7pm. Mouth sore is still there, but healing up, so she let me get my tx.  Of course, it could come back, but so far, so good. 

    I found out that I probably cannot start my reconstruction until I am off the coumadin, so that pushes it all the way to the end of September....so bummed about that. 

    Jaimie, so sorry your mouth sores are still bad :(  I hope they improve soon.

    Gram of 3:  I have had 6 Taxols so far with no shots; my blood counts dropped a bit, but nothing too bad at all.  cute story about your grandkids, that's hilarious!  The things these kids think up!

    Denali:  thank goodness we have no snakes to worry about here in Michigan, that would have scared me half to death!

    Living4today:  I am on taxol, and have had some numbness tingling that comes and goes.  I didn't ask my onc first about taking b6 and glutamin, just started taking it.  I swear it helps.  She was upset when she found out that I did it on my own, but she got over it.

    Michele:  I was so touched that you thought of me on mother's day.  Thank you for that, it is so sweet that you that you remembered why it would be a hard day for me.  I got through it ok. 

    Well, I'm off to bed so I have energy for garage sales tomorrow.  It is one thing I can do that is normal, kind of the one hobby I still engage in, even though it wears me out afterward.

    Judy

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Jaimie:  did you shoot that pic from a mirror view???  That is so funny...you can always blame chemobrainl!!!  I really like it, the shirt looks awesome, you did a great job!!!  It looks really good. 

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