Making Decisions

Options
SapphireSky
SapphireSky Member Posts: 7

I was just diagnosed with a new BC, after going through my first one 6 years ago.  I know that I have some big decisions to make now.

First cancer was DCIS, was a high grade fast growing one (comedo) and very small, and clear margins.  I would have to look up just how small it was because my addled brain can't remember exactly.  I had a lumpectomy, sentinel node biopsy (that was clear) and radiation.

This time the cancer is in the other breast and again is very small.  Only .7 this time.  They are pretty sure it is a new cancer, and it is low grade slow growing.

My question is to those of you who had DCIS the first time and are going through it all again.  Did you opt to have a mastectomy or do another lumpectomy this time?  I know everyone's situations are different, but I am just trying to get a handle on how I feel about options before I meet with my surgeon next week.  There is so much going through my brain right now.

Comments

  • AnneW
    AnneW Member Posts: 4,050
    edited April 2009

    HI,

    I had a small IDC the first time, not DCIS, but the situation is the same. I had lumpectomy and rads and Femara, then 6 years alter, a new primary in the other breast.

    I chose not to do rads a second time. I had both breasts removed, and implants put in. (Which I'm getting rid of next month, but that's a whole  'nother story.) And I'm back on an AI again, this time Aromasin.

    I chose the bilateral mastectomies because I lost my ability to trust my breasts.  Going through this all a second time was tough. And I never wanted to go through it again! I tried to keep the emotion out of it, and to base my decision on rational science. And given that my second cancer was lobular, it was a no-brainer to remove both breasts.

    Two cancers and still a chemo virgin. I feel lucky in a weird way.

    Anne

  • SapphireSky
    SapphireSky Member Posts: 7
    edited April 2009

    My thoughts exactly!  I never want to go through this again!  I am leaning toward doing a bilateral without reconstruction and to go ahead and do radiation if it is recommended.  Hopefully I will get by without doing chemo, too, which would be a blessing.  Thanks for sharing your story with me.  It helps to hear what others have done.

  • mke
    mke Member Posts: 584
    edited April 2009

    I had a second cancer in the other breast, unfortunately it was large enough that a mastectomy was recommended.  I was pushing for a bilateral but my doctors were reluctant.  We eventually agreed on neoadjuvant chemo (I had node involvement) and if the tumour shrank enough for a lumpectomy we'd do that, if not I have a bilateral.  We all looked at it as a sort of experiment.  Well my tumour shriveled up to nothing, I had my lumpectomy and we were all happy as pigs in a mud hole.

    However 2 years later I had a 3rd cancer in the breast first affected.   It was small, but deeply situated and there was no question of anything but a bilateral.  I didn't want reconstruction, it was just more surgery.   I don't really regret the choices I made, but I'm happy to be done with mammos, etc. 

  • SapphireSky
    SapphireSky Member Posts: 7
    edited April 2009

    Sorry you had to go through this 3 times.  Stupid cancer is just so sneaky.

    I don't want anymore surgeries either, and if a mastectomy is my recommended route I won't do reconstruction.  Enough already.

    Well, you brought up something that I hadn't even thought about with a bilateral.....no more mammos.  I am trying to pull out anything positive from this experience and that would definitely be something so positive.   

  • nim88
    nim88 Member Posts: 34
    edited May 2009

    My wife was diagnosed with DCIS in her left breast in 2005 (Stage 0 no nodal involvement) and had lumpectomy (and follow up to clear margins) followed by radiation. At the end of March 2009 after a clear mammo, during her routine ultrasound check with her BS a shadow was found in right breast, confirmed suspicious through FNA and MRI and lumpectomy done a few days later. Found to be ILC (mix of lobular and tubular!) and there was some early stage DCIS but no microcalcification - basically a lot of stuff going on! Stage 1 cancer no nodal involvement and 1cm tumor. The treatment that has been recommended is radiation plus tamoxifen. However, we have both been thinking long and hard and my wife is leaning towards a bilateral mastectomy (BiMx) because the chances of recurrence are much lower. The BS says if BiMx is done she will do a simple Mx and put in saline implants right away - no tissue expander etc. We met an Oncologist who said if she did Mx then Tamoxifen would not be necessary even though her tumor was ER and PR +. All very confusing especially when I research this and am getting different viewpoints. 

    Would greatly appreciate any views on the following:

    1. BiMx vs lumpectomy + Radx

    2. Tamoxifen in either scenario

    3. Any issue with skin sparing Mx with no tissue expansion - does that mean that more tissue gets left behind and therefore more risk?

    4. Experience with saline implants - understand there is a 7% chance of leakage/rupture - but are these lifelong things or need to be replaced every so often? The BS indicated they were kind of permanent unless they rupture.

     5.  Is it harder to diagnose a recurrence if all the tissue is gone - i.e. will it get caught too late?

    6. Does it make sense to do radiation after a Mx on the right side just as further insurance for the tissue that is inevitably left behind? 

     My wife is 44 .

     Thank you for your help and I wish all you courageous ladies all the best always.

Categories