I can't get my act together and I don't know why

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Comments

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2009

    Dream,

    I hear you about your sister, not being the least bit scared about her bc dx...  it scared the CRAP out of me!!   Her husband is a class A  A**hole!!

    Hugs

    Harley

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Oh well, I have to go, I promised, but will have to work on her to find someone to go... I cant go to all of her appointments..... my hubby would kill me, then who would go with her.....lol

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2009

    Catherine! You made ME hear the announcer....too funny!

    Oh Dream, your sister is probably being blase with you so you don't stress over her as you have enough on your plate. She probably thinks she's doing you a favour! Sit her down and have it out....Kiss

  • barbinar
    barbinar Member Posts: 8
    edited May 2009

    Hello all.  As a long time breast cancer survivor (23 years next month) may I make a suggestion about life after cancer?

    I lost one breast in 1986, mastectomy, chemo...

    Lost the other in 1988, mastectomy, chemo, rads, tamoxifen for 7 yrs.

    In 1996 was dx 3rd time... mets to ribs.

    I lost my hubby to cancer....I got cancer and he got lost.

    THAT was when I finally figured out what 'worked' for me in relation to life after cancer.  SIMPLIFY.  It's on old Quaker tenet.  Keep everything as simple as possible.  

    Now, I don't recommend throwing out your husband (necessarily), but you get the idea.  Kick all the stuff our of your life that you haven't used in .....oh, say a year or so.  If you have survived without it that long you won't miss it.  Where is it written we have to have a Christmas tree?  Or send cards?  Or read the ones we receive?  Or have throw rugs in every room, or 7 sets of dishes in the cabinet, or 329 books we have already read or will never read, or forty-lebben different kinds of stationary?

    After my hubby left I moved from a two story house to a small mobile home and boy did I simplify.  And lived there 13 years, just recently moving in with my disabled dad with even LESS of my own space.  And not missing one thing I really need.  

    Next I plan to upgrade to a cave in the wilderness somewhere. Cool

  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited May 2009

    13 years with mets? That's really simplifying!

    I have a nearly 100-yr old Craftsman Bungalow that's a stretch at 850sq ft. Has the mini-closet spaces too. It has a teensy studio & 3/4bath in back, but I can't use it for storage, 'cause there's frequent guests. I thought I was living simply - you have downsized to maybe 1/2 a house?

    That's incredible - THIRTEEN  years with mets.

    Lisa

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Actually my sister is a little simple-minded.  I think I can say that without pc police hitting me.  She has CP and unfortuneately it meant that she did not develop emotionally at the same rate.  She is not afraid because she doesnt know to be afraid.  She thinks that only stage 4s pass away from cancer.  And I dont want to be the one to sit her down and make her afraid.  The only thing I can do is make sure the BS is clear about the risks of surgery and cancer.  At least the first time her adoptive mother went with her.  And she said the followup appt a cousin went with her because her mother was busy.  Her mother passed away several years ago.  Her father passed away in December.  Our biological mother passed away just before the adoptive mother did.  Kathy has 2 sisters by adoption and she has got on their last nerve so she didnt even ask them.  So now I am the GOOD sister.  Heaven help me......!

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2009

    Dream,

    (((HUGS)))

    Harley

  • kes
    kes Member Posts: 559
    edited May 2009

    Dream,

    That is soo sad about your sister. I hope that she makes out O.K.

    Dr. Gloworm cracked me up. That is too funny. My laugh for the day.

    Kerry

  • sueper13
    sueper13 Member Posts: 1,224
    edited May 2009

    I agree with the simplifying strategy.  Since I was diagnosed, I have retired, my youngest has left the nest, and we have acquired two wonderful empty nest dogs that enhance our lives.  My relationship with my husband is deeper, richer, better than it has ever been (thirty-first anniversary this week). I think simplifying can also apply to one's perspective--five years ago when I looked in the mirror I thought "I'm getting old, I'm going to get wrinkles and white hair" and felt some minor dread, but knew I would overall be okay with it. Now I look in the mirror and I think the same thing but it makes me so happy--I'm getting old. I'm going to get wrinkles and white hair. Hallelujah.

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Well it was an interesting meeting with the BS.  Then the nurse came in with the paperwork and Kathy got confused and upset so I asked the nurse for 5 minutes, took out my trusty notebook and drew her pictures.  Once she knew exactly what they were going to do, she was ok with it.  Then we had a nice lunch and I put her on the subway to go home.  Kathy was shocked that I would even consider being there for the surgery.  Hubby of the year will pick her up afterwards.  Her adoptive sisters are saying that she is trying to use cancer to get additional attention.  Yeah how is that working for her?

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Sueper13 - you look absolutely lovely.  Yes growing older causes changes but as you have realized it is better than the alternative.

  • GramE
    GramE Member Posts: 5,056
    edited May 2009

    Dear Dream:  you deserve a special ((((( HUG )))))) for being there for Kathy.   I am sure Kathy would have picked a dozen OTHER things to "get attention", if she had a choice.   Such pettiness on the part of the adoptive sisters.   

    On cleaning out things:  I am still throwing out things, and donating others after moving into an apartment 3 years ago.  36 years in a split level house before.  There is not one single thing I miss or wish I had not gotten rid of.    As an aside, I wore out 3 shredders before I moved, and 2 since moving here.  Don't forget to get a receipt of the items and value for income tax deductions.   The usual accepted "value" of an item is 1/4 the original cost.   

    I found an article on displaying the American Flag.  Did anyone know it is supposed to be flown at half mast on Memorial Day?   Just a bit of trivia to challenge the brain cells.  

    Hugs and Blessings,   Nancy 

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2009

    Nancy

    Are we supposed to fly the American Flag at half mast EVERY MEMORIAL DAY??  No, I didn't know that.


    Thanks for the info.

    Hugs

    Harley 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2009
    Harley, No, just the leap years.....Laughing
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Barbe, you are multi-talented!

    A Canadian expert on American flag etiquette.Laughing

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2009

    Barbe,

    Sorry for the stupid question, but I don't have a flag.  It's still nice to know.  Thanks for the information. 

  • barbinar
    barbinar Member Posts: 8
    edited May 2009

    Yes, Lisa, you get the idea.  I took over 2 rooms and a bath in my dad's house and the rest is still 'his space'...though of course I use it freely in caring for him.  The two rooms are all I have for 'my stuff'. 

    But as someone else mentioned on this thread, there are other ways to simplify in additiion to living space.  Sometimes we have to down-size relationships (who needs those negative ninnies?) and delete too many extra cirricular avitvities that drain our resources.  The trick is to replace these elements with things that ADD to our well-being rather than drain it.  

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2009

    {{{{{{{{ Harley }}}}}}}}}}}}

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    DREAM:  I am so glad Kathy has you as a sister.  She got breast cancer to get additional attention?  How do you do that?  I don't think even people with Munchausen's Syndrome can pull that off. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2009

    hahahhahhahaha

    I think that's why my family is ignoring me...they think I just wanted the attention and managed to convince a surgeon to cut my breasts off.... 

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009

    That took some tall talking Barbe!  The only attention I want for my health is that I am so healthy and look 20 years younger because of it.

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    What, pray-tell is Munchausen's Syndrome?

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Never mind I looked it up.

  • Harley44
    Harley44 Member Posts: 5,446
    edited May 2009

      Dream:

          :D

    Harley

  • GramE
    GramE Member Posts: 5,056
    edited June 2009

    Hey ladies, How are you all doing?   No one has posted in almost a month.  I will NEVER get my act together, but I am plugging along, one day at a time.   Found out only 2 more Herceptin and I am done with it all as of July 16.  

  • KAK
    KAK Member Posts: 1,679
    edited June 2009

    Nancy, we'll all be doing a big Happy Dance for you in a month!!!

    Dream, my heart goes out to you for having to deal with all the special complications that come with Kathy's cognitive impairments.  As if you don't already have enough on your plate.  Lordy.

    Barbinar, I totally agree with you about simplifying life.  God bless you for surviving with mets this long.  I've been through a few butt-kicking experiences before cancer that taught me a lot about re-ordering priorities and tossing out the stuff that's not really important in one's life.  So, thank goodness, that was not a new concept to me when b.c. came along last year.  It did help that I didn't have to get into simplify for the first time in my life.  But my previous griefs have been largely emotional.  Breast cancer has kicked my butt physically, too, in a way that nothing else has before.

    Nancy, I feel like I'll never get my act together post-BC either, but I'm doing the best I can.  Talk about having to lower my expectations for myself!!   I keep having to remind myself every doggone day that it's amazing that I was able to return to work full-time as a physical therapist, which is a demanding job, so that I can keep this roof over my head & hang onto my health insurance.  And if that means I don't have the energy to keep up with housework or laundry or the yard or ten gazillion other things, then so be it.  My real friends still love me for the person I am, not for what I can accomplish.  Where ever each one of us is at, we are all doing the best we can.

    XXOO to all.

  • GramE
    GramE Member Posts: 5,056
    edited June 2009

    I am soooo glad I sold our house 2 years ago and am in an apartment without yard work or the upkeep that I felt was needed.  Repairs are a phone call away and no snow shovelling when and if it snows.   

    I took 16 book cases down to only 6 when I moved, and that is down to 3.  I read the danged book, what am I keeping it for?  A few are travel souvenir books, like from the Vatican and Louvre.  One book case is photo albums only, so I have a very small "library".  

    The boxes of china and other "hostess" trays and such are going on Ebay one of these days.  My DS and DIL don't want them, so extra $$ in MY pocket.   When I cleaned out my closet, 6 shopping bags went to the Women's shelter.   Easy, peezy, less is best.    

  • KAK
    KAK Member Posts: 1,679
    edited August 2009

    Hey, I'm bumping this thread for a special news flash to all veterans of this forum!  One year ago today, I joined this forum & began to meet all of you wonderful, generous, humorous, courageous women.  And in a fitting coincidence, earlier tonight I delivered the first Accidental Amazon Tee Shirts to one of this threads veterans, our own kes who was in Rhode Island visiting her sister, all the way from Ontario!!  It was awesome.  Couldn't have planned a better coincidence if I tried.  She sends her love to all you gals who made this thread our refuge last year & promises to join  Facebook asap!!

  • kes
    kes Member Posts: 559
    edited October 2009

    Kathi,

    Awsome picture of the 2 of us!!!! And I must say that I loved meeting you. What a great tee shirt you made and what an awesome tribute to all of the great women on this forum, Patrice, Wish, Sue from Texas, Traci, Harley, Alaska Deb, Shirley Hughes, and many others. My life must be getting back to normal as I have been away from the boards for a while. I absolutely loved Rhode Island, I'm sure I will be back to see my sister and I will send you an email when I do return. Will have to sign up for Facebook. No wonder why I cannot get anything done. House is still a mess. Oh Well.

    PS, I love your RED shoes!!!

    Kerry

  • KAK
    KAK Member Posts: 1,679
    edited October 2009

    Hi, Kerry!!!!!   I loved meeting you, too!  Hope you had a great Thanksgiving.  Gotta send you an email or PM.

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