PREGNANCY AFTER DCIS

Options
nik
nik Member Posts: 34
edited February 2018 in DCIS (Ductal Carcinoma In Situ)

ANYONE OUT THERE WANT TO OR HAS GOTTEN PREGNANT AFTER DCIS?

I WAS DIAGNOSED WITH DCIS IN AUG 2007, AFTER 3 BIOPSIES THEY DID BILATERAL MASTECTOMY IN 11/2007.

JUST FINISHED WITH 2ND STAGE RECONSTRUCTION IN 5/2008.

WENT TO MY OBGYN FOR ADVICE ON WHETHER I COULD CONCEIVE AND HE SAID

"NO" MY SURGEON AND MY PLASTIC SURGEON SAID "YES"

I REALLY NEED SOMEONE WHO HAS BEEN THERE TO HELP ME?

I HAVE AN APPOINTMENT WITH THE ONCOLOGIST ON THURSDAY BUT IN THE MEANTIME WOULD LIKE TO SPEAK TO SOMEONE WHO HAS THE SAME PROBLEMS?

OBGYN SAYS THERE IS TOO MUCH CHANCE FOR RECURRENCE BUT NOT SURE I UNDERSTAND AS ALL OF MY BREAST TISSUE WAS REMOVED?? I UNDERSTAND THE WHOLE ESTROGEN/PROGESTERIN THING BUT ALL THE LITERATURE I HAVE READ ON THE CANCER SOCIETYS PAGES SAYS THERE ARE NO REAL RISKS OF RECURRENCE BECAUSE OF THE HORMONES CAUSED BY PREGNANCY.....?

HE DOESN'T CARE TO EXPLAIN AND REALLY LEFT ME FEELING LIKE HE WAS INEXPERIENCED IN THE WHOLE SITUATION....??

HAS ANYONE OUT THERE HAD THIS OCCUR? I COULD USE SOME ADVICE.

I AM JUST 40 AND HAVE NEVER BEEN PREGNANT AND NOW I WISH I HAD GOTTEN PREGNANT MUCH SOONER!!

PLEASE HELP.....MY DOCTORS APPOINTMENT IS NOT UNTIL THURSDAY AND IT SEEMS ALL MY OTHER DOCTORS ARE CLOSED FOR THE HOLIDAYS..!

THANKS

NIK

Comments

  • LUVmy2girlZ
    LUVmy2girlZ Member Posts: 2,394
    edited July 2008

    NIK ~

    Thats a hard one...though I have read that even those who have even a more advance BC had children.  I guess its another difficult answer that has to suit YOU!  I can understand the OBGYN's perspective of God forbid a recurrence and you know the stats your surgeon gave you based on your history and bi-lateral however, not having children all together in my opinion is not "living your life" like you anticipated.  While it makes it a "risk" IF you should get both pregnant and a recurrence...delaying therapy I would think givin your age ( the clock is a ticken ! ughhhhh hate that expression...but true)  I think if it were me...I would wait a little...ask your OBGYN when he/she would "recommend" as far as waiting period ...and CELEBRATE however YOU want ! Wink

     I found an article...I am sure you read PLENTY re: the subject...but for others that may have not.....

    Young women diagnosed with breast cancer have yet another challenging issue to consider following treatment of early-stage disease. The safety of a subsequent pregnancy after a diagnosis of breast cancer is a frequent concern of women of childbearing age. Physicians have routinely asked women to wait two years following a diagnosis of breast cancer before becoming pregnant. This recommendation has not been based on any data showing that a particular length of time between a diagnosis of breast cancer and a subsequent pregnancy interferes with or worsens prognosis. The fear is that the elevated estrogen levels in pregnancy are detrimental in terms of increasing the risk of stimulating dormant micrometastatic cells. In this issue of Cancer Control, Drs Mary Gemignani and Jeanne Petrek provide a comprehensive review of the data on pregnancy subsequent to treatment for breast cancer. To date, no significant findings indicate that it is unsafe for women to undergo a pregnancy after a diagnosis of breast cancer. It is unlikely that prospective, randomized studies on this issue will be conducted. Therefore, it is important to consider contributing to the ongoing national database so that the number of breast cancer patients will be sufficient to further evaluate subsets for pregnancy-associated risk.

    Much LUV

  • LUVmy2girlZ
    LUVmy2girlZ Member Posts: 2,394
    edited July 2008

    Nik ~

     One more thing to add.....my DCIS was both ER/PR - so it wasn't estrogen driven to begin with...so not sure on your dx....but just a thought!

  • nik
    nik Member Posts: 34
    edited July 2008

    Laughingjust an update for all you girls out there in my situation....

    i went and saw my obgyn...he said "no" absolutely not to pregnancy....

    i then went to see my cancer surgeon...she said yes.....no problem...no breast tissue left and

    chance for recurrence the same as a "normal person", my p/s same thing...

    so i was very confused and finally saw my oncologist...he reviewed all my paperwork, pathology...physical exam etc.....

    and to my surprise....good news.....i can get pregnant if i want after all!!!!!

    so for all you girls out there who want the same thing.....make sure you see and get a "bunch" of medical opinions....cuz i believe that is what they are "opinions" and believe me girls...i'm getting a new obgyn!!!!!!

    i will keep you all updated...

    thanks again for your help!

    nik

    hang in there...it does get better if you let it!

  • 12954
    12954 Member Posts: 374
    edited July 2008

    good lick NIK

    here's hoping you get pregnant soon if that what you'd like. I'd go with the surgeon and onc's opinions

  • nik
    nik Member Posts: 34
    edited November 2008

    well...on july 10, my oncologist said its ok to try....

    i have been trying since then.....sometimes i feel it will take forever....sometimes i think it will never happen....

    i am happy and grateful to be alive and i hope i can reproduce soon but if i do not at least i know that it is not because the doctor said "no" !

    in the meantime i will have fun trying!

  • dfc
    dfc Member Posts: 1
    edited May 2009

    Nik,

    I need your help. I was diagnosed w/ dcis in 12/07. Had a unilateral mastectomy. Now at 39 yrs old and 1.5 years later I am  5weeks pregnant. I don't know what to do. My obgyn is leaning toward aborting the embryo.  The Oncologist says let's look at this pragmiatically. You have 2 beautiful children why increase your chances of an invasive reoccurance. My husband is sick with fear.  WHAT DO I Do? 

     What did you do? what research did you find?

    You're support is most appreciated.

    DFC 

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    Wait - are you women saying that your oncologists are suggesting that you terminate a pregnancy because you were dx'ed and treated for DCIS???  No that doesn't make any sense.. there are women who have invasive cancer who take on a risk I understand that but the risk of recurrence after DCIS is so low I can't imagine that oncologists are suggesting this!!  Maybe I'm nieve but take a breath girls - I think you have oncologists that don't know this area well..

    I say second opinion - and not with someone in their same offices but someone who has more experience with fertility and cancer..  Best of luck ladies, I understand the fear but I also know the joy of living and it was fully enhanced by my kids.. so walk carefully and take things one breath at a time..  Somewhere along this path you were told what your risks were and although the estrogen can increase these risks I would think that is what you need to be looking at .. are the risk reasonable for you to take..  I'd bet Beesie has written something on the site about this if now I'm sure she will be along soon to give a hand with stats...

  • Linikjoo
    Linikjoo Member Posts: 6
    edited February 2018

    hello dfc

    I find myself in your situation of my drs tell me not to get pregnant. Any feedback would be great see how your turn out. After pergrant did ure cancer come back blc u got pregnant or everhtibg was just fine. I’m worried if I do get pregnant my cancer comes back.

Categories