The dreaded colonoscopy - not so bad

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miamimama
miamimama Member Posts: 77

Since I finished chemo two years ago, my oncologist has been after me to have a colonoscopy. (I'm 65 and never had one).  For some reason I was terrified and broke 3 appointments - but there was always  nagging and guilty feelings in the back of my mind and I would even have panic attacks at the thought of it.  Well, with the help of some little friends (Xanax) I finally went through with it, and I am here to encourage any one who is fearful to go ahead.  Not only was the prep a lot easier than I thought and the test itself easy - I can finally relax and know that all is OK.

Comments

  • vivre
    vivre Member Posts: 2,167
    edited February 2009

    I had one done too, because there is a link between bc and colon cancer. It is really important. Butt the prep is really crappy!

  • miamimama
    miamimama Member Posts: 77
    edited February 2009

    I had my choice or preps so I did the pills.  The pills are the size of calcium pills - and you have to take a bunch of them.  I started at 4pm and by 11 pm I was in bed for the night.  I'm lucky in that I can swallow large pills without any problems.  And you can take them with any liquid you want - so you don't have to drink gallons of bad tasting stuff.

    Claire

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited February 2009

    I had mine almost a year ago, can't remeber exactly what perp I used but it did require the "drinking" but as Miami said -it was not that bad at all,  the taste was tollerable, I think the worst thing was the "quanity" in such a short period of time, the actual procedure - easy as pie - the sleepy meds -were wonderful,  No after effects except for feeling tired for a few hours.

    Happy to report they did find some polyps -but all B9.  I'm good for another 5yeras God willing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Same here...very easy, great drugs, and I don't need to have another one for 10 years! I went for one after Tammy Faye Baker and Joel Siegel died from colon cancer...scared the crap outta me (literally Wink!)!

    ~Marin

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited February 2009

    When is that new colon cancer screening test going to be available as an alternative to colonoscopy?

  • otter
    otter Member Posts: 6,099
    edited February 2009

    My first screening colonoscopy was last November (2008).  I, too, dreaded it, postponed it, and whined about it on these boards.  Nearly everyone here assured me it was "no big deal," and if I had survived chemo, I would certainly survive a colonoscopy.

    They were right.

    The prep was no picnic--I had the Phospho-soda, which is a small volume but has a vile taste.  Unfortunately, it made me sick--I vomited an hour after the 2nd dose. I felt much better after that, and even managed to get about 2 hours of sleep before I had to get up and head for the clinic for a 7:30 a.m. appointment.  But it p*ssed me off, because I had never even been nauseous from 4 rounds of chemo.  There I was, throwing up at 3 a.m. and worrying I'd ruined the prep and would have to do it all over again.

    The procedure itself was a snooze--literally.  The care and handling I received was wonderful.  (Who can complain when the first thing they do is wrap two warm blankets around you and ask if the pillows are comfortable?)  One moment the nurse was telling me she was injecting the "good stuff" into my i.v.; the next moment, someone was helping me sit up and asking what type of soft drink I would like.  That was it.

    Really--no big deal.

    otter 

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited February 2009

    I LOVED the drugs!  I had it when I was 43, a year after bc, because I want to stay ahead of any other cancers.  I too dreaded it but I was flying for the rest of the day and now I can't wait to get my next one on a few years.  OK, maybe thats a stretch, but it was not a bad experience at all.

  • roseg
    roseg Member Posts: 3,133
    edited February 2009

    I'm having one in a few weeks. They do have an alternative stool test that can detect cancer/polyps, but if you have a positive result you're still in for the real thing because they'll want to remove them.

    I'm not really looking forward to it because it looks like you can hardly eat the day before and I know it will seem like the longest day of my life!

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited February 2009

    I have read that there is still another test in the wings that is not invasive at all.  I think it is some form of X-ray or that type of thing and better than colonoscopy as it does the entire colon not just the lower.

  • ADK
    ADK Member Posts: 2,259
    edited February 2009

    I had one yesterday.  I have had them before (as recently as July of 06) because I have Crohn's disease and that plus the BC predisposes me to colon cancer.  The only trouble I have had with them in the past is that the one in 2006 kicked off an exacerbation of my Crohn's and two weeks later, I had to spend a weekend in the hospital.  I don't know if something went wrong yesterday, but I recall two moments of intense pain.  Usually I remember nothing.  I have to talk to my gastroenterologist to find out what happened.  I know I have a stricture that prevents them from doing the complete test, so I am wondering if that was the problem. For normal people, the worst thing is the prep, not eating for the day before and then taking medication to clean out the system.  The procedure itself is usually no big deal. 

    Tina,

     I think what you heard about is the camera that you swallow that records the entire digestive system as it goes through it.  I asked my doctor about it and I am not a candidate because of my stricture - it does sound like a wonderful idea - I think it is still considered experimental so it wouldn't be paid for by the insurance companies, but of course it is so much less invasive than a colonoscopy.  You still have to do the same prep and if it finds anything, you still have to have a regular colonoscopy and many people do have polyps, so I don't think it's considered very cost effective right now.   Believe me, if I could do it that way, considering the frequency I have to do this, I would so much prefer it.

  • PSK07
    PSK07 Member Posts: 781
    edited February 2009

    I had the phospho soda prep, too. Ick, but better than the gallons of stuff my BIL used.  They put me on a restricted diet a couple of days before - which I think helped keep me from hours on the toilet (I'd heard horror stories).

    The drugs were lovely. The warm blankets were lovely. I got a day off work and the dinner of my choice after a nice, long nap.  

    All said though, I'll gladly wait my 5-10 years for the next one. Wink 

  • konquer
    konquer Member Posts: 8
    edited February 2009

    The phospho soda prep is no longer an alternative in the U.S.  The FDA recently took to off the market because there were some incidences of kidney damage. I had the phospho soda prep the 2 years ago. There is now a product called Half-lytely. You only have to drink 2000 ml instead for 4000 ml for the usual preps. Since we are more susceptible to colon cancer, the peace of mind is well worth the trouble. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I had my first colonoscopy  5 years ago, about 7 months after my lumpectomy.  The GI doctor said it was good I came in because of my strong family history (mom has had colon cancer twice and my MGM died of colon cancer); I had one small polyp which was benign, but have to go back every 5 years because of the family history, so will be having another one in a few months.  I had to drink Go-Lightly and take Reglan to ward off any nausea; I still felt somewhat nauseous anyway.  I didn't mind the actual procedure at all, with conscious sedation I didn't feel or remember a thing. I just don't like the thought of the prep--hopefully, the amount to drink will be less this time.

    Anne

  • vivre
    vivre Member Posts: 2,167
    edited February 2009

    I did not have to drink anything. I just took a pill and then a glass of water, for several hours. The hardest part was starving. But my doc said I had the cleanest colon she had seen in a while so I guess I should be proud.LOL By the way, the new scans coming up the pike will still not change the prep at all. The colon needs to be emptied. Also, if they see anything they will then have to go in and check it out, so it is just as easy to do the knock out and get it over.

  • Sierra
    Sierra Member Posts: 1,638
    edited February 2009

    Hi there

    hope all goes well

    the gals here cheered me on for mine as well

     been nearly 5 yrs.

    so soon another one due

    it really is the prep

    but understand your anticipation

    hugs, Sierra :))

    v. important test indeed

  • PamsComeback
    PamsComeback Member Posts: 4
    edited May 2009
    I have one scheduled for May 20th.  Actually, the "routine  colonoscopy" started this whole thing rolling.  I had scheduled a number of routine appointments, including a mammogram, and THAT is when they found the breast cancer.  So, I had to cancel that colonoscopy in favor of a partial mastectomy!  Now I am hoping that this goes smoothly, but I am truly getting tired of being tested and prodded... however, I am still kicking, and that's what's most important.
  • shorfi
    shorfi Member Posts: 791
    edited May 2009

    Me too Pam...I was just going in for routine appointments. Had the colonoscopy about 2-3 weeks before mammogram and that is when they found the breast cancer. Colonoscopy was fine... I am going for another colonoscopy in August as it will be 5 years. I'm so like you...tired of all the testing, blood work...just had breast MRI two weeks ago and left breast mammogram last week. On my way to surgical oncologist tomorrow for routine check-up.

    Don't mean to having a complaining spirit, just so happy and thankful to be alive Laughing

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