Starting Chemo February 2009?
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Hi all. Just lying in bed on a Sunday afternoon. I'm dazing in and out, reading, eating, sleeping. In principle it sounds good but with my added cancer pity party I kind of out of sorts. I did my big garage sale yesterday and did manage to make some money and get stuff out of here, very good. So happy to hear about your finishing chemo Kerry, most excellent! Good luck on rads and shots. Michelle and Grace keep up the good fight. Diane, hope your hemoglobin stays high. I, too am coming in significantly low with my RBC count. Can't believe how I hear myself huffing and puffing now. I find myself winded pretty easily. I think I'm finally being humbled by this lovely chemo. I take solace in my having only one more tx. I'm reading the book, Cancer is a Bitch. It's a good, quick read, I recommend it. Brain cells tired. Take care.
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Suzanne~ I agree about being humbled by chemo. I have been crying all day trying to figure out how in the hell I am going to get thru another 10+ days feeling like shit and all I can do is cry. Taxotere is causing shooting nerve pain thru out my back and sides and I feel like a darn old lady when I lay down. Moan then roll over, repeat moan than roll over.
I am having a quitting kinda day today. One of those days it is a good thing that I don't have to go back tomorrow because I wouldn't show up. I have 2 weeks to get my sorry butt ready before the last TC and I am having my doubts right now. Okay enough of my moaning again did I mention how much I hate cancer.
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OMG...today must be the day! I actually told my dh to go outside and get on with his life as I am just a sack of potatoes right now...so sorry there is so many of us having a tough day. This was one pity party I wish I hadn't been invited. This dang fatigue...my onco recommended zyrtec this week, so the shooting pains haven't been as bad as last week. The tough thing about weekly txs is that the rebound time is so short. I keep thinking only 8 more weeks left....my dd and i have watched 5 chick flicks this weekend. (i don't believe I have watched 5 movies in the last 5 years...) We CAN and WILL do this!!
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KerryMac Congratulations!! The kiddos in my avatar are my gkids--the baby is now 11 months old, so he has changed the most--followed by me with no hair!
Bethie, You've been absent a few days...what's up?
Mikita, With my luck, that "string" would be attached to something and if I pulled it, would completely unravel, or my nose (or something) would fall off !
Apple, I just have to ask--did Andy's hamster survive after all? I've been thinking about the poor critter.
Somewhere in the chemo fog, I neglected to put my utility bill in my "bill pay" last month. I got a disconnect notice Friday--YIKES. I've got to remember to call them first thing in the morning and plead my case or else I really will be in the dark. Sometimes I just don't connect the dots.
Take care--Helen
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Oops! Mikita is on another thread--that's why my remark makes no sense here. I think I'm already in the dark!! Helen
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Good morning! Another week begins, is it just me or are these weeks going by quickly? Maybe it's these darn weekly tx's, before I know it, it's time for the next one.
Living4today: I'm sorry you're having pain already with the Taxol. I haven't had much issue with pain yet, but have been dealing with a killer mouth sore all weekend. I'm thinking I'll lose the lbs I've gained the last few weeks, since it hurts so much to eat. I only have one sore, but wow, it hurts all the time. Ouchie.
Gonna be a gorgeous day, hope I can get my sorry butt outside to enjoy it!
Hugs
Judy
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Another day down here in Maryland. It's been raining all weekend and I don't think they are calling for it to stop anytime soon. It's not helping my chemo. hole which I need to get out of. I got on the scale this morning and I need to find something that I can eat. I am down to 131 lbs so too much from my start of 157. I will get the lecture and threat of some additional medicine if I don't start gaining soon. I have 11 days to gain about 10lbs
When I am healthy and food taste normal I would be thrilled but I;m not so thrilled about it now.
Judy I hope your mouth sore goes away soon. They are no fun
2 weeks until last TC infusion for me. I'm not ready yet but I'm gonna get there.
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Just a quick hello - crashing big and bad for my last time. I was in bed all weekend with a lot of pain, then I just got tired of being in bed so I got up this morning, but I am feeling zonked. Cumulative is my most detested word right now.....
Hope everyone is doing OK. Having my own little pity party here in Canada too, the joys!
Will write more when I find my brain.....
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Apple - OMG, that guy is my twin!!Too funny.
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Kerry sorry about your crash, You are allowed to detest this one 10x more than any other. The further I get into treatments the more upset I get that it takes so long to come out.
Cumlative....YUCK, YUCK, YUCK,....
Okay I must post something + after my days in the hole. Red Devils came to my house this weekend and did an awesome job. I am actually not embarassed to have someone come over
I was shocked it was 2 guys but they where really nice and did a super job. Now I can't wait to see them again. They are going to be coming 3 more times which I am thrilled about.
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I crashed and burned Sat night due to the Taxol pain. Here it is Monday and I am still hurting like heck so I don't think I am going anywhere today or doing much of anything.
Jaimieh - there was a time when I was doing A/C that I was just ready to give up on chemo. In fact I am there now again with Taxol even though I only have 2 more treatments. I am so tired of this crap! I am tired of feeling like dirt! I figure that it is ok to have pity parties considering everything that we are going through right now.
I am tired of not having a brain like Kerry - I start talking and can't find the words and I am forgetting everything.
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OMG - what a weekend.. My dear sisinlaw died last nite. Her family is town.. all 2 million of them and we are hosting many of the children. The funeral is not until Thursday and until then i have 11 house guests, 7 of them who are children and speak Spanish and whose mothers cook Mexican food. - and others who are going to hang out here because our house is so kidfriendly.
there is joy in sorrow - and ungodly amounts of work. i mowed and mowed, i cleaned and cleaned, i changed beds, i found the towels and i cooked.. i woke up Sunday and could hardly straighten up to walk erectly. (Thank goodness for hydrocodone).
Gramof3 - the hamster lives, surprisingly. (sorry i laughed)
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(((((( Apple ))))))) I am so sorry to hear about your SIL.
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Apple: I'm so sorry to hear about your SIL. It's so caring of you to take in so many houseguests during this difficult time. It sounds like you have a lot on your plate right now, both physically and emotionally; take care of yourself, ok
Kerry and Jancie: I hope you both start getting some relief from the pain soon.
Jaimie: I had lost a lot of weight on the AC, but boy, since I started Taxol, I weigh more than I have in years. I think I've gained like 10 lbs from my lowest AC weight til now. I don't want to gain any more, so I am watching what I eat (usually I can shove any old food in my mouth and not gain any weight). Old habits are hard to break!
I finally took a pic of myself for my avatar. I am wearing my favorite wig that looks most like my hair, my head scarf (which keeps said wig in place all day), and my new eyelashes. Thought I'd try the false eyelashes--they're not that bad actually. I am holding one of our 4 dogs, a chihuahua named Sophie. She's a sweetie.
Hugs
Judy
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((bighugs))Apple~ I am sorry to hear about your SIL.
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Kerry-Congrats! YEAH! Love the pic!
Apple-so sorry about your sis-in-law.
I hate to report that the rads for whatever reason has me a little nauseas the last 2 days. Not sure why that happens. Though nauseau was not supposed to be a rad SE!
Hang in there ladies, everyone has come such a long way!
Sue
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Kerry-Congrats! YEAH! Love the pic!
Apple-so sorry about your sis-in-law.
I hate to report that the rads for whatever reason has me a little nauseaus the last 2 days. Not sure why that happens. Though nauseau was not supposed to be a rad SE!
Hang in there ladies, everyone has come such a long way!
Sue
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Apple - so sorry about your SIL - hope the next few days are not too stressful. Take time to rest yourself....
Sue - hope the nausea goes soon - do you think it is related to the rads? You are zooming through them, and will be done before you know where you are.
Judy - great to see such a lovely photo! You look different from what I pictured you like! You look great, and I love your dog. I have put on 5kg with Chemo, from what I weighed after surgery. I lost weight after I was diagnosed, so am up about 2 or 3 kgs in total I think. I am really looking forward to getting out exercising again! I have no eyebrows or eyelashes, i am just resigning myself to being a baldy for a few more weeks - hope they grow back fast!!
I am doing OK today, haven't really moved from the sofa much though. My In-Laws are going home Wednesday, so I need to get up to speed tomorrow.
Thinking of you all...
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dam cancer.. i also lost my British music frined (41 with a wife and 2 kids) last nite... less than an hour apart.
stupid disease.
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Oh Apple, I am so sorry, what sad news. Please know that we are here for you.
Kerry: thanks; I haven't been brave enough to post a bald pic, like you, and you look awesome! I look like uncle fester without my hair! I haven't even gone bald at home, no one but me has seen me bald. (and a doctor or two, I made my husband leave the room, how sad is that)! My 11 yr old son doesn't even want me to go out in public without a wig, he's at a weird stage right now, so I don't want to make him uncomfortable. We've always been close, so maybe me being bald is just too much for him, too scary??? I just wear the little caps at home.
Susan: Do you think it was from the rads, or do you think you're coming down with something? I didn't feel nauseous with rads, but who knows? What did your doc say about it?
It is surprising how badly one lousy mouth sore can hurt, geez, it hurts just to talk or swallow, and even into my ear on that side. And now I have chemo tomorrow, so I wonder if it will go away at all.
Hugs
Judy
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Hey Judy - I have to say that I am actually a very unbrave baldy! I usually always wear my wig, and if not a wig then a scarf. We just decided to take some photos of me bald as there weren't any, and I thought I might regret it if we didn't get some. My husband loves it! He wants me to keep my hair short once it grows back, but I think I will grow it back long. The kids don't seem that fussed by it, although my daughter likes to look at my scar where my boob was - she is quite fascinated by it, I think.
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Apple, you are in my prayers.
OK, I'm going to whine... All through treatment I was able to keep up with my kick-boxing and tai chi, albeit with frequent breaks. Now that I am done I cannot even bend my legs without them burning! I am more fatigued than ever! I have heard about chemo being cumulative, but sheesh! I am impatient, I know...
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Oh Apple I am so sorry to hear that this dam disease claimed another one of your friends.
I don't think my baldness is beautiful but I got over it pretty quickly especially when I had horns. It was kind of a shock factor for everyone else. Now I just want any kind of hair back (remind me that I said this later). I go with just a hat on at home and sometimes out in public but I do were a scarf to hind my bald back.
Cheryl~ Sorry that chemo is still leaving you with a gift
Your not impatient at all. I'm not even done yet and I am ready to be done with the SE's. I say this as my stomach muscle twitch like crazy.
Positive note from the hole. I got to eat a bunch of cheese and crackers today which seem to have made a difference in the way I feel. That and I realized that a big part of my problem was that I am running a low grade fever so a couple of tylenols and a sweat party later and fever is gone. YUCK!! I gotta remember when I hurt to take my fever.
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oh gosh.. such aches and pains after chemo.. it's because i worked so hard Friday to Sunday.
to take your mind off of your cares.. have a listen to one of my friend's songs. it's his band. It was commercially successful in Britain. he has gorgeous voice. it's very different. He was a hoot. very edgy.. i met his wife on a piano forum.. i met them at a party in New York, and we pulled off an impromptu Ave Maria.. the kid had some training!
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Apple: I'm so sorry to hear of your recent losses. Why oh why, are you hosting so many people?! THEY should be helping YOU! Play the chemo card if you have to!
Please know our thoughts are with you and hear us screaming, SIT DOWN AND REST! Take care of yourself!
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Apple - My thoughts and prayers are with you at this time. Sometimes, we really get a lot to deal with at once.
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Denali the Stevermers don't rest or waste. We are all hosting tons of people. We have a huge, frugal, vital, intense family - lots of people are helping me.. i just had to preclean because i've been neglecting housework so as to horse around on the piano and organ.
thanks for your thoughts. i will meet many of Beth's Breast Cancer support group on Wednesday.
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Apple that is inspiring music, what a sad loss of such talent. My condolences to you for both SIL and friend. You really are dealing with a lot. Hope you rest up from all your hard work.
Judy, well the picture was a surprise. I was so used to your avitar, now you come to life as a real person. I, too have a chihuaha. If you have any good tips on getting her to let me know when she has to go outside please share. I've never had this problem with other dogs. I always have to put her outside at my own discretion. I've used rewards and praise when she goes outside but don't get why she won't go to the door. If there are any experts out there, please chime in.
Jaimieh, looks like we will both finish up about the same time, tx 6 for me is May 20, so it's nice to be on a count down although the SE from 5 are still working their magic so hard to think about 6 yet. Right now I'm loving the taste of steel wool in my mouth, NOT! Good night fellow BCers.
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Gcpommom--the weight thing is discouraging. I haven't lost anything on AC, and now I may gain on T? Not what I want to hear!
Apple--I'm very sorry to hear about your SIL and your friend. Sounds like you have a wonderful family and I'm glad you are getting help with the hosting.
Cheryl--Kick boxing and Tai Chi! And I'm just happy if I can get up a short flight of stairs without huffing and puffing like the Big Bad Wolf. You are awesome!
Jancie, Jaimieh, Kerry, I figure the crashes and hole time we are putting in is kinda like childbirth--give us a chance to put some time/distance between us and the chemo, and we won't remember how painful it really was!
Take care. Helen
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Jaimie - so funny, I discovered Cheese and crackers as the cure-all this weekend too! Think it is the protein in the cheese....??
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