average age of triple neg/and fund raise

I was initally diagnosed with ER+ and PR+ BC in 2002. When it came back in 2004, it still had the same properties. However, when it came back in 2008, it had mutated to now being triple negative.

So, I was diagnosed with TN 1/08 at age 44.

Sher,

 First cancer and 2nd cancer were in the same spot, on my left breast. The first time I had lumpectomy, radiation, chemo, then tamoxifen. The 2nd time I had a double masectomy and an hysterectomy and then femara. The 3rd time, I had 5 tumors all over my chest wall, none in the same spot as the originals.

Michelle

Age 50 at dx on 07.25.08 (dx delivered to me in the form of a long hug and many "I'm so very sorry(s)" from my pathologist boss).

52 first dx.  

I've been diagnosed at 56 & 60, brca 1+ positive for a mutation.

I do have an extensive family history but I personally think it is a good idea regardless of family histotry or not

to speak with a genetic counselor trained in brca mutations to see if one would qualify for testing.  So many things could factor into this information if one were to be found positive.

57 at diagnosis. 

Hi Shirl

It's Nettie here, from Scotland.

I stumbled into the Just Diagnosed thread during the long dark snowy and sleepless night in Jan after I was diagnosed. (Didn't even know that it was an American site)I was dx on the same day as seeing the Breast surgeon, and got the results of the biopsy the next week 19th Jan. "Poorly differentiated invasive ductal carcinoma, 4cm deeper than it is wide, high grade, er-, pr-"

The tumour is attached to the skin and it is in the visable part of my ample cleavage! I have seen bootface on the ultrasound when the doc biopsied it and it is not pretty!  Like a black jellyfish lurking in my wee (well size 'E' boobie)

I knew squat about thhis new language but research soon let me know that I had a bad one.

The ultrasound indicated that there was no node involvment, but the SNB showed toat 2 out of 5 were involved. So it bloody raged through me.

I keep asking if I am trip neg, and they are reluctant to tell me, or they don't know.

Apparently HER2 results take longer to come back.

Have now started chemo - 4 courses of FEC, getting my second course on Friday, god and blood tests willing, and am now losing my hair. with FEC, it's total head and hair loss. It's a ferocious b&&&&&&d of a treatment.

But I still don't know if I am HER2 neg! So frustrating. I will cope if I know what my prognosis is, and hate to be patronised!!!!!!!!!!!

Is there any stats, anecdotal eviidence ot anything to indicate that one can be er-,pr- and HER2+.

Or is it that if the cancer is not fed by hormones, then all hormone markers are neg?

I have enough to cope with financially and emotionally and physically not to know my prognosis!

Is there anyone out there who can help me????

Trying to keep it all together.

With grateful thanx

Nettie from Blantyre,Scotland (the birthplace of David Livingstone) - and the worst mining distaster.

Hugs and lollipops

xxxxxxx

Nettie

I am er/pr negative, HER2 +++.   No node involvement.   

39 first dx

41 second dx

I was 48 when I was diagnosed.

I was 38 (12/02) and 44 (10/08).

newalex

I haven't done any genetic testing yet.  My onc suggested I consider the testing and consider having my ovaries removed.  I have a cousin who has had bc twice and ovarian cancer.   I am going through chemo right now.  The second time I had a 1.9 cm on the right side which was considered new and I had a .8 or .9 on the left that they discovered in the dissection of my tissue after my mastectomy.  They said the left tumor could be a recurrence or new they can't really say for sure.   

I was 43, have to look at my signature to remember size ect. Take Care Charlene

45 first dx 3/06 and 47 second 3/08

WBC