exhausted

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suecco
suecco Member Posts: 317
edited June 2014 in Palliative Therapy/Hospice Care

well,im here lurking away!! but i am so totally exhausted, sleeping alot, unsteady on my feet, struggling to eat, lacking energy, i suppose all the usual chemo side effects that i have worked hard in the past at pushing away to keep up my normal existnce.  Back to see onc tomorrow, a new one as my onc on paternity leave, so am apprehensive about my bloods, hoping for a slight improvement so tx can go ahead, although am looking more and more like marge simpson each day! the steroids im on have eased the discomfort of my liver although still enlarged, its feeling better. so not doing too badly up to now, tomorrow will tell, so fingers crossed for me for a glimmer of hope

love and hugs

Sue xxxxx

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  • EWB
    EWB Member Posts: 2,927
    edited April 2009

    fingers, toes and eyes crossed for you Sue, and a few prayers thrown in as well.

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited April 2009

    Sue, hang in sister. The exhaustion /fatigue is hard on the emotional state too.

    Prayers that your wish is granted and you can continue. xo

    Janis

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited April 2009

    So glad to hear from you....As Janis said, such exhaustion is emotional too, so go with the flow for now. I can well relate to your anxiety about seeing a  new team member-but I'm sure all will go well with him/her. And hey, as I've been telling myself today....maybe a new input will be helpful, and give some new ideas.....Love as always,xxxx

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  • heatherpalmerton
    heatherpalmerton Member Posts: 2,247
    edited April 2009

    Sue, sending you everything I have, crossing everything i have to cross, that all will be well.  I am hoping that your labs will be good and you can con't your treatment.  Sending many gentle hugs your way. Heather

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    (((sue)))

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  • Lifestooshort
    Lifestooshort Member Posts: 159
    edited April 2009

    Prayers, hope and hugs, wishes, and good vibes sent your way!

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  • Analemma
    Analemma Member Posts: 1,622
    edited April 2009

    Sue, it's good to see you checking in, that's for sure.  I'm hoping for some positive news for you. I know you're hanging on tight.

    Brenda

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  • EGAL
    EGAL Member Posts: 539
    edited April 2009

    I am hoping for a good report tomorrow Wink A big hug to you.

    Ellen

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  • navygirl
    navygirl Member Posts: 886
    edited April 2009

    sue...good to see you post, I'm sending you a big cyber (((hug))) and praying for good news on your behalf. Our love is with you!

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  • katie11
    katie11 Member Posts: 2,514
    edited April 2009

    Sue,

    I'll be thinking of you tomorrow and hoping for some good results for you!  You've had such a tough time recently and deserve some good news for a change!

    Hugs to you for tomorrow!

    Katie xxx

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  • suecco
    suecco Member Posts: 317
    edited April 2009

    Thank you, thank you, Not much to report on the blood front, some lfts higher some lower, too soon to see a difference, but tolerating tx well enough so thats a good enough sign for me. Still just chilling, relaxing and sleeping, finding that a bit tough, but Im sure I'll manage! Onc was a bit of a scatty irish woman who has said, we'll take it a week at a time, could be looking at maybe 6 weeks before we know more, thats a few more than i expected.

    Had my first 'timeframe' conversation with my niece last night, shes more like a sister than my brothers daughter, so it was tough but so is she.  have contacted my sister who actually lives in the next road to me, twice to tell her i'm not very well, with no reply, typical of her really. 

    love and hugs

    Sue xxx

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited April 2009

    Morning Sue...logged in specially to see if you'd been able to update. Glad you're managing to relax. Sounds as if the scatty Irish doc was helpful in a strange way! Don't worry about your sister-you've done all you can to update her, and if she chooses to stand back then the problem is her's. Look after yourself-how are the birthday plans coming along? Love as always,xx

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2009

    Big hugs from across the pond. Good to hear from you!

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  • luvtotravel
    luvtotravel Member Posts: 933
    edited April 2009

    So glad to hear from you.  (((hugs)))

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  • Analemma
    Analemma Member Posts: 1,622
    edited April 2009

    Sue, it sounds like the news is vaguely positive, in that the onc suggested you will still be around in six weeks.  It's strange how we look for optimism in offhand remarks, without actually coming right out and asking.

    But it's good to see that you are still well enough to check in.

    Brenda

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  • Lilac
    Lilac Member Posts: 183
    edited April 2009

    Sue, it's good to see you signing in  I'm keeping you in my prayers.

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited April 2009

    Okay, if we look at vaguely optimistice.... I was just selected for a FOUR Year bone density study.... not bad for someone originally diagnosed as 6-9 months.... this is 3 yrs plus later ..... I see a raspberry in my future.... but would have to go back to original onco to give it to him... not worth the bus tokens or time.

    Sue.... you have to accept that you are frail and breakable.  Treat yourself kindly.  If a light breakfast is all that you can manage... then manage that.  Dont look at the overall, just today.  Make today a nice day and start again tomorrow.  Before you know it.... you are finished chemo.  Put your trust in only yourself and those that support you - even if she is a scatty Irish woman.  The sister that is so close but so far away.... not your problem.  She is not supporting you, so she does not exist right now.... only those who lovingly help you get through today.  Hope that helps.

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  • heatherpalmerton
    heatherpalmerton Member Posts: 2,247
    edited April 2009

    Sue, Sending you many gentle hugs. Heather

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  • CapeBretongirl
    CapeBretongirl Member Posts: 364
    edited April 2009

    (((((Sue)))))

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  • CapeBretongirl
    CapeBretongirl Member Posts: 364
    edited May 2009

    Praying for you {{{{{Sue}}}}}

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  • WingsofHope
    WingsofHope Member Posts: 497
    edited April 2009

    Just popping in to let you know that I am praying for you as well!! 

    I love Dreams advice....  ((HUGS))

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2009

    You're still at the top of my prayers, Sue, and it seems to be working. Please keep us posted.

    ((((((((((( gentle hugs ))))))))))))))) 

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited April 2009

    May every day and week continue to be a gift!

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    Thank you Wings of Hope... that advice should be for everyone.... we need to be good to ourselves.  There is no one in the world that is more special than you.

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  • suecco
    suecco Member Posts: 317
    edited May 2009

    well add in oral thrush to the mix! and as you have all so rightly said - this is me time - no more making others feel better now, its my turn and damit if i want a day in bed - a day in bed it is!! Managing a little food so as thrush does improve should be ready for a nice big sandwich!! cant wait

    love and hugs to you all xxxxxx

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited May 2009

    Sue!!!!! You could do without that-but glad to hear you're taking things at your pace-keep it up,xx

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited May 2009

    That's the way.... now who is in the kitchen making things for you.... time the family catered to you... and if they cant do it - they can go get what you need - prepared foods, soups.... etc.  I mean how hard is it to take care of you after all the years of taking care of them?

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  • EWB
    EWB Member Posts: 2,927
    edited May 2009

    Popping in to see how you're doing. I think of you often and hope you are feeling well and tolerating tx!

    So wish there was something I could do; all I have to offer are gentle hugs and kickass prayers.

    Sweet dreams tonight, I pray you have restful night and wake to sunny day and lots of love

    Elaine

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2009

    Sue, glad to hear from you! You must be feeling better if you can bitch about the thrush! Yell That's a VERY good sign.

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  • getwell
    getwell Member Posts: 535
    edited May 2009

    Dear Sue,

         Positive vibes coming your way.

    HUGZ

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