How Much Vitamin D to Take

I would like to hear from those who are taking Vitamin D supplements.  How much are you taking per day?  The studies that I have heard about are saying that the current recommendations 400 i.u./day are too low especially for women who are trying to prevent breast cancer or who have had breast cancer.  I don't see my onc for my check up until June and would like to hear what others are doing.  My sister-in-law who recently underwent a bilateral mastectomy for early bc said her oncologist has put her on 2000 i.u. /per day.  I would appreciate your thoughts.

Petesmom

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Comments

  • Katalin
    Katalin Member Posts: 230
    edited April 2009

    My GP and oncologist agreed on 2000 iu and my naturopath agrees.

  • ChrissieD
    ChrissieD Member Posts: 36
    edited April 2009

    I was taking 2000iu/day as my levels were 21 at diagnosis.  Retested after 3 months and I was only at 36 so my naturopath upped the daily dosage to 4000iu's and my levels came up to 56.  He is leaving me at 4000iu's/day to try to get my levels up more.

  • brena
    brena Member Posts: 458
    edited April 2009

    PETESMOM,

    I have been taking between 1600-2000mg on most days for almost one year., taking pills is not one of my strongest points. I recently had my vitamin d level checked and it was actually high, being at 62. My Onc was not concerned with it being high, said to continue doing what I have been doing, if it was low he would be concerned. The Vitamin D test was only performed at my request and to my knowledge no one has ever checked it before so I have no comparison to make. My vitamin level could of always been high or good, at least I now have a baseline to compare future tests. If the test is important I don't understand why none of my doctors, present or past have never checked it.

    take care,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    I was taking 1000 mg for 6 months prior to diagnosis.  Once diagnosed, the test came back aat 24 so my naturopathic told me to take 5,000 a day (2500 in am and pm).  I was to stop during chemo (which I am 1/2 done) and will resume after that.

    I live in Seattle so think I will be taking vitamin D for a long time!

    Susan

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    There is a great deal of good news about vitamin D.  How much you take sometimes depends on where you live.  Also, if one puts on sunscreen one will not absorb Vit D from the sun.

    I have changed dosage more than once.  I started taking 2000 IUs.  I upped it to 3000.  My D level was around 47.  I've now upped it (most days) to 4000 IUs.  The norm for is between 30 and 100.  My onc said anything above 40 is good.

    Why doctors don't do Vit D test...because most doctors don't read...LOL  I believe int he oncology field they are catching on.  My onc said she was so surprised to see so many people who's D levels were so low.  Makes sense to me..we're told not to go in the sun without sunscreen...to dress appropriately..yada yada. 

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited April 2009

    I am working up to what my nurse practioner suggested, 1000 a day (at 800 presently), but from what I have read that isn't quite enough..  Has anyone noticed a sleepiness that comes along with the dosage?  I read that it should be taken on a different day than your magnesium and before bed.. I have been feeling more sleepy lately and I know that magnesium creates a sleepiness but I hadn't heard of Vit D doing the same..

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    Deirdre, you should have a vitamin D level drawn....25-hydroxyvitamin D also called, 25(OH)D. There is another kind, but this is the one you want.  Also, you should be supplementing Calcium and Magnesium.  I use mag citrate and calcium citrate.

    There is no need to take magnesium on a different day.  I do take my magnesium at a different time than my D and calcium if I have time.  Also, do not supplement more than 500 mg of Calcium at one time..you need to take it throughout the day.  The magnesium should be half the amount as calcium..if you take 1200 mg of calcium then you should take 600 mg of mag.  If that's too much magnesium and causes diarrhea cut back. 

    I haven't found that Vit D makes me sleepy.  I do save a magnesium for bedtime most of the time. 

    This gets so confusing.  Tongue out

    Here's one place to read..you can google and find much, much more. Wink

    http://www.westonaprice.org/basicnutrition/vitamindmiracle.html

    Good luck..but get that D serum level drawn!

    Shirley

  • rosesinwinter
    rosesinwinter Member Posts: 70
    edited April 2009

    It is really best to start by having your 25 (OH) D baseline drawn as others have suggested. If your level is low (as many are in northern climates), you will need greater  than the usual daily supplement to make any headway at first. I was prescribed 50,000 I.U. (international units, not milligrams) twice per week by my family MD for 8 weeks for repletion but there are other regimens. Note, this is a prescription at this level; it comes in a very large gelcap.

    You will need a minimum of 1000 I.U. daily for MAINTENANCE then, research shows that 1200 I.U. is beneficial for women and some researchers are recommending 2000 I.U. as a maintenance dose. The RDA (recommended daily allowance) of 400 I.U. is badly outdated but it is a major project to change the RDA for any nutrient (think LARGE committee with many opinions on the government level).  This has been a hot topic in dietetics for at least 8-10 years, and registered dietitians tend to be a fairly conservative type!  And we think it needs changing...

    However, it is still a fat-soluble vitamin that has the potential for toxicity.  I don't know that I would exceed 2000 I.U. daily on a chronic basis after repletion...The long-term research is not there that supports that.

  • RobinWendy
    RobinWendy Member Posts: 1,983
    edited April 2009

    I was on 1,000 IU's per day as recommended by my altlernative/complementary physician.  He then upped it to 4,000 per day and that is what I do currently.

    Robin

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited April 2009

    I did have my levels drawn and they were almost non existant so I am slowly understanding that I should be taking more Vit. D and I am also taking magnesium.. Magnesium I knew could make you sleepy - even drunk - but I have noticed that since taking Vit D  on alternative days, as recommendted, I also feel sleepy with Vit D.. Thanks Shirley for letting me know I should take smaller amounts during the day instead of all at once..  I was only taking it at bedtime on alternative days when I would trade off with the magnesium..  It's is confussing, and I have spent so much money on supplements only to find out a few months later that they don't help (per the newest indications)..  owi!!!!  thanks for all the info ladies...

  • petesmom
    petesmom Member Posts: 27
    edited April 2009

    Ladies,

    Thanks so much for weighing in on this.  I haven't started taking Vita D yet.  I see my onc in June for my check up so I will request that my Vitamin D level be checked.  Blessings to you all.

    PetesmomSmile

  • anondenet
    anondenet Member Posts: 715
    edited April 2009

    Some people taking doses over 5,000 haven't absorbed it and need to get the vitamin D injections.

    My doc's wife reversed her osteopenia with D shots after the oral supplements didn't raise her blood levels of Viamin D. She also looks really good now. It must give the skin a boost.

  • Lili46
    Lili46 Member Posts: 130
    edited April 2009

    I've been taking 5000 iu vit D since October after having my level tested and being on the deficient end. I'm having it retested next week. Vitamin D is great for your immune system. My whole family had various viruses this winter and I didn't get any of them!

  • Katalin
    Katalin Member Posts: 230
    edited April 2009

    Petesmom, you can also ask your GP for this test.  Get a copy of the results so you can keep track of your progress, and share with your oncologist.

  • Eldub
    Eldub Member Posts: 276
    edited April 2009

    I've been taking supplemental Vitamin D for a couple of years.  My endocrinologist started testing all of her patients back then - and discovered virtually everyone on her caseload was deficient (levels under 30).  (I'm in Seattle, and this was all patients with health issues like thyroid or diabetes - neither she nor I are claiming that "everyone" is deficient!)  My initial numbers were in the teens.  She put me on 2,000 IUs daily at that time.  My levels crept up to the 20s.  She upped my dosage to 3,000 daily, then 4,000.  I'm currently at 6,000 IU daily.  When my Endo first tested me, she said she wanted me to aim for a level approaching 40.  But over the months, as she's read more, the goal has gone up.  Last fall, with my levels finally in the 50s, she said we'd aim for the 60s, and then leveling off.  But then I had a bc diagnosis.  And she's continued to keep on top of the research.  Now she says she's aiming for a level of 60 as cancer-preventative (and just generally the level our bodies are intended to have) with all patients, and a level between 80-100 for patients actually dealing with cancer.  My last levels, taken in March, were great - 87!  I'm to maintain my current dosage (6,000 IU) until my next blood draw (June), and then we'll see whether it's time to back down a little or not.

    Interestingly, my Naturopath was saying about the same thing as the Endocrinologist - but a few months ahead of her.  They're now on the same page, both saying that a level between 80-100 is the goal for someone dealing with cancer, and above 60 is needed for cancer prevention in general.

    I don't take pills - I take drops.  1 drop = 2,000 IU.  I just put 3 drops on a bite of food once a day.  The bottle of drops costs around $18 (I get it from my naturopath, but it's also available at some pharmacies around here).  A bottle easily lasts a year, so it's very cheap.  My Naturopath suggested I keep it refrigerated when at home - but it's fine to just bring it along unrefrigerated for travel.

    Linda

  • anondenet
    anondenet Member Posts: 715
    edited April 2009

    Thanks, Linda,

    What brand is your Vitamin D?

  • Eldub
    Eldub Member Posts: 276
    edited April 2009

    The kind I'm taking is called "Bio-D-Mulsion Forte" from Biotics Research Corporation.  It's a little white 1 fluid oz bottle.  It comes in a variety of dosages - I have a 400 IU per drop version I give to my toddler, and originally had a 1,000 IU per drop version.  I've been using the 2,000 IU per drop version for maybe a year.  It's probably available online, too - I just haven't needed to look there!

    Hope that helps!

  • Lainey64
    Lainey64 Member Posts: 740
    edited April 2009

    Right after I was diagnosed my GYN called and told me to up my D by 1000 IU per day.  I'm also taking Caltrate and a multi-vitamin.  I think my total per day is 2000 IU.  I also make it a point to sit outside for at least 10-15 min per day when it's sunny.  I haven't had  test done but am definitely going to do that.  I appreciate this thread because I have been curious about what everyone else is doing. Thanks!

  • marejo
    marejo Member Posts: 1,356
    edited April 2009
    I had my Vit. D level checked last year and it was 31 - on the low side of normal.  At that time I was taking 2000 i.u's of D3.  After that check up I upped my D3 to 4000 i.u.'s per day - not to mention all the time I spend outdoors when the weather is nice.  This year at my annual check up my D level was 62 - much better. 
  • Paulette531
    Paulette531 Member Posts: 738
    edited April 2009

    I was tested three weeks ago and my level was 11...doctor put me on 5000 a day and will recheck levels in three months. He said the reason I was sick all the time (colds ect.) and tired was the low level of D in my system.

  • floridian
    floridian Member Posts: 128
    edited April 2009

    I'm jumping in here at the last minute but everything that I 've read has said that 10 to 15 minutes a day of sun is what you really need. Your body produces much more on it's own than supplements if you have access to a little sun. Also, it makes you feel better! Not too much though, no skin cancer!

  • lisasayers
    lisasayers Member Posts: 850
    edited April 2009

    Yes, you can get enough vitamin D with about 15 minutes of sun.....if you have sun! LOL  I live in the snow belt....no way I would get enough sun during the fall and winter....and since yesterday it was raining and only 42, you can forget most of spring as well....Which is why I take Vitamin D3 supplements.

  • althea
    althea Member Posts: 1,595
    edited April 2009

    Paulette, how much time do you spend outside?  I didn't used to think I could possibly be deficient in D in a Texas climate where I do my own yardwork, but now I'm not so sure. 

  • Paulette531
    Paulette531 Member Posts: 738
    edited April 2009

    Althea, I try to spend the 15 minutes out doors but I use sunscreen because I burn real easy...I was surprised mine was that low and did a lot of research on how that can happen and it is very interesting. At any rate, my D level is awfully low and am hoping the 5000 daily builds it up somewhat, the next three months will tell.

  • otter
    otter Member Posts: 6,099
    edited April 2009

    Wow, this really varies a lot.

    I've been taking around 800 to 1000 IU of D3 per day for several years, in Citracal or Centrum or just D3 tablets.  I also have very fair skin and I live in a Gulf Coast state; and I spend time outside most days.  My onco tested my 25-OH Vit D last month, and it was 51.  Woohoo!

    Today when I saw my PCP, he agreed that was a terrific level.  He said 15 minutes a day outside should be enough exposure at this latitude and elevation (especially for me--I get pink easily). But, some people just can't make enough Vit D from sun exposure, and some have to take LOTS more as supplement than other people do.

    otter 

  • brena
    brena Member Posts: 458
    edited May 2009

    I am taking 400IU daily with 3-4 visits a month to the tanning salon.......my Vitamin D was checked in January and it is at 62. I am not sure what my level was prior to chemo but am pleased at where it is now. Yes, Yes and Yes I know the tanning bed is suppose to be off limits but I love the way it makes me feel especially during those times of cloudy winter months. I am cautious and do not overdue it besides I don't believe it is the 400IU daily (when I remember) that is giving me good vitamin D levels.

    My Onc doesn't know that I am tanning; although he might suspect.

    keep working at it ladies,

  • sahalie
    sahalie Member Posts: 2,147
    edited May 2009

    brena.  May I ask how long you stay in the tanning bed? 

    I take OS*CAL calcium supplement with 200 I U of D.   Soon after my bilateral mastectomy I got thyroid problems and had to have one of the four glands removed.  It wasn't cancer thank goodness.  The doctor put me on the OS*CAL which is found in any store.  I'm outside all day so my levels are always good.

    I had no idea how much the levels we take of D can vary.

  • Analemma
    Analemma Member Posts: 1,622
    edited May 2009

    After two series of megadoses (50,000 units once a week) in addition to 4000 units a day, I finally got my level up to 39, but only after I went to Florida in February and SC in March.  I'm now taking 6000 units a day, and getting out in the sun as much as I can.

    It was first tested in November 08, at 23, and then in January at 16.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    I was tested recently and my levels were quite low...not suprising living in Canada....after a long cold winter.  For the past two years I have been taking 1000 IU of D and 1200 calcium...I have now incresed my Vit D3 to 6000 IU daily...no change to the calcium.  I also plan to try and get 15 minutes on the days it is sunny and then go for a retest in a couple of months.

  • luckofthedraw
    luckofthedraw Member Posts: 53
    edited May 2009

    I just got my 25(OH)D results from the lab yesterday.  I am at 76, with a recommended level of 30-89 ng/mL.  I have been taking 4000IU's daily (well...most days) for a little less than a month, but do try to get outside in the sun a little every day too. That's been easier said than done on the east coast lately.

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