CMF Question

Hi everyone,

Just wanted to pop in and say HI!  Sorry I've been kind of scarce lately.  I feel guilty, but I've been trying to sneak in here and read to try and keep up with everyone's latest news.  I just haven't been posting much.  I fear that I'm not much help to the newly dx'd CMFers, because I didn't have CMF; I'm only an honorary CMF'er.  Thanks for taking me under your wing when I first found bc.org!!  The support of all you ladies has meant so much to me.  This is a wonderful group of women!!

Thanks for all the HAPPY BIRTHDAY WISHES!!  I had a great birthday celebration, and now I will be heading to bed.  I'll try to pop in more often. 

Hugs

Harley

P.S.  It was great talking to you, Carol!  Your support has meant so much to me, really!!!

Colleen,

Gee, I was so tired last night, I didn't read any of the posts before I posted. 

I'm sorry to hear about your Mom!   I'm keeping her and your family in my prayers.

Hugs

Harley

Oh Colleen, I am so sorry to hear this;  however, my MIL lived with it for 8 years after diagnosis and hers was really really bad.  She had a pretty good quality of life as well.  I willl keep your mom in my prayers.  My MIL did not die either from the heart failure, she died from a very bad hip fracture that was irreparable.  I too, hope your mom will be able to cope with this as well as possible and have a good quality of life.

How are you holdling up?  Everyone else?  Thinking of you all and sending love.

xoxo

Hello All - Thank you all so much for all your good wishes and prayers for my mom.  I was able to see her yesterday and she is doing ok.  She still has fluid around the heart and lungs and they are trying to get rid of it through meds.  But right now even for her to get to the bathroom takes a lot out of her.  The drs. said maybe she would be released on Friday, but no guarantee.  As far as me I am doing ok.  Disappointed that she will not be able to come home with me on Sunday.  I live to far for her to make the trip and be away from her drs.  I am just hoping she gets stronger and then maybe she will come.  My kids are really disappointed also, but we will just have to wait and see.  I am glad to see everyone is doing pretty well.  I will see the BS next Wed. it is amazing that it has been six months since my mast.  I am also going to Albany for a class trip with my son's 5th grade class on Tuesday.  Wait what was I thinking!!!! LOL.  He really wanted me to be one of the chaperone's and I figured in a few more years, he will not want me going with them, so I said yes!!!!  Well I wish everyone well and I will check back soon,

Love,

Colleen 

Aprilgirl.....did we miss the post by lemonjello about CMF?   I don't remember it....not that anyone should be extremely surprised by that!!! 

Susan,  It's amazing how the sun seems to give us an uplift, isn't it?  Just think,  you are 2/3 of the way done.  I know how sick you are of all of this.  How well I remember that feeling, but you are rounding that corner now and are on the homestretch! 

I'm also glad to get your response about lemonjello.  I thought I was losing it!  I couldn't find her post and didn't want to ignore her!  LOL  You're such a sweetie to bump the thread up for her.

I hope you do well after this treatment.  Hang in there!

Rita

Oh Lisa, I wish I could have joined you!  What a lovely beach!  Do you have quite a few gals in your group?  A friend and I are trying to get a lunch bunch or dinner bunch started in our town.  The Illinois gals do this once a month but it's usually in Chicago which is too far for me to get there regularly so we're attempting to organize a local group.  So far we haven't been too successful but w'ere going to keep trying!

Hey All - I had such a wonderful weekend.  My mother was released from the hospital on Friday early evening.  And on Sat. I went to Philly with my sister and my goddaughter (Niece).  We walked around and had a nice lunch.  Sat. night a lot of my female family went to my other niece's house for girls night out.  It was in honor of me which was so nice.  We had a nice dinner and a few drinks.  (Maybe two many) LOL!!!  Around 11:00 we were singing and just having a great time when the doorbell rang.  Two South Jersey policemen were there, they received a noise complaint.  I guess one of her neighbors did not like our singing.  My sister said to them that she was sorry, but we were having a cancer survivor party.  The policemen then said he was sorry to us and left.  So we toned it down a little bit and enjoyed the rest of the night.  If you can believe it my mother stayed at the party until midnight.  She looks pretty good and she is back at my sisters house.  She will have a nurse come in a few times a week to check things out for her, but right now all is well.  My mother said in her 87 years she has never been at a party where the police were called.  But it was FUN!!!  I hope everyone else had a great weekend.  The weather in NY & NJ was in the 80's.  

Colleen

I am half way thru CMF and my hair thinned out quite a bit, but i did not lose it all!!  i either wear a cap or go without.  i get a shot at the time of my chemo, so don't have nauseau.  she should talk to her doctor about getting more for nauseau, she should not have to suffer.  Good luck to her!

Mandy,

Hey there!  Hope your weekend was great!

Hugs

Harley

Mandy..........That train ride sounds like a nightmare!  So glad the rest of the trip went well! Also glad to hear that you are half-way done!  Now you're on the downhill slide!  Hugs to you!

Rita

Hey Harley, I sure wish you lived closer.  I need a facebook pro to help me with all these invitations and other things that I get.  I never did find the Easter eggs on Easter and can't seem to get around the site.  I've learned how to find my friends and send basic messages but the rest is foreign jargon!  You seem to have it all together!  Is there any hope for me or do I fall under the category that you can't teach an old dog new tricks?  LOL

Hi ladies, good to see you Harley!

I can't do facebook either, I give up.  It just gives me yet one more thing to check, and I could spend all day on it, if I gave into it.  I'm a dinosaur, I admit it.

Mandy, what a god awful train ride you had!  And I thought Amtrak was supposed to be better....

Hi Rita!  Hey local arimidex lady, do your hands and feet swell on this stuff in this heat we are having?  Mine are, I'm figuring it's one of those lovely little SEs of this stuff.

Colleen, your party sounds just wonderful...love that the cops came.  And that your mom did too! 

Everyone enjoy this lovely day.

xoxoxo

Hey Rita! Thank you so much.  I figured it was combo of the heat and the arimidex and nowadays, I like to follow your two week rule, which is a great one.  I can't wear my rings at all, not even my big old diamond that hubby got me for having my kid and I sure miss it.  I also miss my wedding ring, 50.00, but I love it.  I've put em around my neck.  Did your onc give you a diuretic, or just say "yep, goes with the program" formula, like mine does?

They do hurt in the AMs, but not too much once you are up and walking...little fat pillow feet .

Facebook and I are hopeless.  People keep finding me on it and sending me lovely things, and I want to respond, but get lost.  Everyone that did, I love you, and I'm not ignoring you!  Just technologically impaired!

Susie Q: My hair quit shedding about the half way mark...I mean, it still did, but on a minor scale.  Hey, you are HALF WAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! THAT RATES A WAAAAAAA HOOOOOOOOO!

love you all

annie

Everyone enjoy this beautiful day!! Burgers on the deck for us and watching the cherry tree blossom.

Oh, news!  My daughter just got inducted into the National History Honor Society!  We went as p roxies for her, she had a frat formal to attend.  My DH stood up and took the oath on her behalf, we all had a good laugh! 

Scarp: What a bummer for your daughter.  I will tell you what I always say...get second and even third opinions.  My cousin had severe scoliosis at age 12-13.....she is fine now. Will send you an email later about her.

To everyone, hope all is well.

Hugs

Mandy