31, Just Diagnosed, Mastectomy or Lumpectomy
Hi, I am 31 and was diagnosed with 1.5cm IDC. I have large A/small B cup breasts. I dont know whether I should have a mastectomy or Wide Local Excision. I am scheduled for surgery next week where they will do a sentinel node biopsy as well. Has anybody been in this position before especially at my age. Thanks for reading this, M
Comments
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I was a bit older than you (46) but have small breasts as well....I made a pack with my surgeon to do the lumpetomy/snb, but if he got there and discovered that I would be disfigured or that he couldnt get it all that he was to automatically remove the breast...I didnt want to be woke up to be told that I would have to have surgery again....I ended up with a lump/snb and have had no further issues 2 1/2 yrs out now.
As far as cosmetically-the lumpectomy scar is so minor that unless one knows its there you probably wouldnt even see it...the scar on the other breast from an exsional biopsy I had for calcifications was done by a different surgeon and noticable.
It was kind of scarey going into surgery not knowing if I would wake with breasts or not but it was the way I chose and I was comfortable with it.
Best wishes
Jule
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I am (was) 32 when I was diagnosed with IDC 1.3 and I took a lot of things into account. My breast tissue was really dense and without me feeling the tumor I would have been sent on my way from the mammogram thinking nothing was wrong (same with MRI). It was found with a sonogram but I found that I couldn't handle things mentally. I opted for a double with reconstruction started TE at the time of my surgery. I will tell you it hasn't been a walk in the park (I have TE pain) but it was the best option for me.
I was a B cup before my surgery and I have no idea where I am at now
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I'm 38 and a C cup. I was scheduled to have a lumpectomy based on what doctors saw on scans. When surgeon opened me up, she saw more than she wished or expected, so she sewed me up without doing anything, then scheduled my mastectomy for a week later. Now, I've found out my former boss has a recurrence of cancer in her breast that she had a lumpectomy in 16 years ago! So in that sense, I'm glad I had the mastectomy!! But, I will say this you have to do what you feel comfortable with within the surgeon's recommendations!! it's your breast, and your body!!! Best wishes!!!
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Hi you are definitely not alone. I am 33 years old and I found out last thursday that I have breast cancer. I have invasive ductal carcinoma grade 1 and ductal carcinoma in situ. I just took the test to see if I carry the breast cancer gene and I am awaitibg results. My surgeon has offeredme to have a mastectomy or a lumpectomy. My decision will be based upon my gene resilts. I wanted to have a masectomy at first but I did alot of research and I figured that the surviival rate are the same. I am hoping I could just have the lumpectomy and chemo with radiation. My surgeon said they are going treat me aggressively. I am scared and nervous but I have learned one thing and that is to stay positive. I can't make a decision for you but you should do your research. I am also going to have my sentinel nodes checked while I am in surgery. I just can't believe I am living this and I will never be the same. I am praying for everyone and praying that we can all be strong. best wishes....alison god bless you.....
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Jaimieh, I'm 40 and was just diagnosed with exactly this - found on a mammogram, same biomarkers. I too am going for the double mastectomy, reconstruction, and figure that lots of chemo will kill the remaining cells. Glad to know I'm not the only one to be in this place! Laura
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Our cases are different but here was my path: I was diagnosed at 30 with 2+cm IDC and based on the microcalcisfications all over, my onc and I decided a double masectomy would be best. Since I will probably be alive for another 50years I wanted to know that I did everything possible and I had bcups so the lumpendectomy wasnt an option Have you talked to a plastic surgeon yet, they should have a book with photos of outcomes to see what is possible with a removal of your size. Stay well and hopefull.
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This is my first post. I just got my diagnosis of IDC yesterday. I have surgery scheduled for May 13. I am leaning towards lumpectomy but have not made the final decision. In reading through a lot of threads, it seems a lot of people opt for mastectomy or even double mastectomy. This seems like a lot bigger surgery, I'd be interested in hearing why people choose this over lumpectomy.
I don't think this has really hit me yet, next week I have to have CAT scans and bone scan, which will tell them if the cancer has spread.
I am 56, and have pretty large breasts...but my lump is close to the surface, and easily felt, and can in fact be seen if I'm leaning the right way.
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I opted for double mastectomy for a few reasons. I had IDC stage 1a 2mm focus node neg, er+ Her2-. I also had dense breast tissue with bilateral calcifications. If I chose a lumpectomy and radiation therapy, I would have had to have MRI's with my mammograms probably every six months. If there was an increase in calcifications, it would warrant another biopsy. The continuous stress level would have did me in. I had the mastectomies with reconstruction. I didn't have radiation or chemo but I do take Tamoxifen. It just wasn't worth for me to live my life in fear. If you choose mastectomy, make sure you get a plastic surgeon that specializes in breasts. The scars are on the lateral side, so I am able to wear a V-neck. I was a 34B before and I am a perky 34B now. The nipples and areola were done by using a star flap with tatooing. They look pretty close to the originals. I was fortunate with my reconstruction, my breast surgeon as well as my plastic surgeon were excellent. Good Luck with whatever you choose.
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I'm 52 and had a very small area of dcis in my left breast. Since thats the heart side I just didn't feel comfortable with radiation treatments which I would of had to have if I had gone with the lumpectomy. At the time it seemed like a mountain of information and I chose the option I felt that I could live with and I knew for me I wanted to know I had given myself every tiny edge to never face this stuff again.
Now looking back 6 months later, there is a small chance I would have gone with the lumpectomy if the doctors would have said it was safe to do without the radiation treatments. In fact some of the newest research I think has looked at this as a possibility for women with dcis with adequate borders. At the time however radiation was recommended so the mastectomy was the choice for me. I went with the bilateral. There are no perfect treatments. Both lumpectomy/radiation and mastectomy have their plusses and minuses. Both have after effects.
I would suggest looking up research and side effects of both options and then go with the one you feel most comfortable with. There is however no doubt in my mind that even now if the path had come back as invasive that mastectomy would have been my only choice. Of course thats my opinion. I have seen women encouraged to do the lumpectomy/rads and then they are back on here with recurrences. To me that chance at whole breasts would never be worth a repeat of this stuff. ((((((((((((hugs))))))))))))))))) to both of you in your decision process, for me where you are at now was much worse than anything I faced with the actual surgery.
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It was one year ago April 14th that I had my mastectomy. I will be 52 in a couple of weeks. My 51st birthday gift was the pathology report. I had three tumors in my right breast only one of them I could feel- it wasn't there in February but there in March. I am a big girl with 46DD breasts so currently I am quite lopsided. My mother was a 34 year breast cancer survivor and both my parents have each had two types of cancer each plus a number of other blood relatives have had and or died from various forms of cancer. My cancer was stage 2 grade 3, hormone negative and HER-2 positive. I didn't have cancer in the lymph nodes but between the lymph nodes which I was told is somewhat rare. I also had some heavy duty chemo. I feel I didn't have a choice between lumpectomy or mastectomy because of the number of tumors and family history. It is important to have confidence in your surgeon and support team. My husband was an important part of the mastectomy decision because he wanted me breast or no breast- we have even made the decision to have a prophylactic mastectomy for my other breast. Having the mastectomy helps me feel I am doing everything I can to live a much longer life. I look back over the past year and still sometimes cannot believe what I have been through. This is probably one of the hardest decisions you will have to make but it is your decision and you have to feel comfortable with it. It is a life decision. If your local cancer centre or hospital has supportive services maybe reach out to them and they should be able to put you in contact with some local persons to talk face to face with about their decisions and how they coped with the days after either type of surgery. Good luck you are not alone!
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I just had a lumpectomy clear margins and negative syn node. I questioned the Dr. upfront and he said that it was equal with radiation. The Dr. also said because I had large enough breast, the location of it and clear margins/neg. modes this is what he recommended, my oncologist agreed. I have to start chemo soon and then rads. It's a hard decision.
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I had a mastectomy in January (12 days before my 41st birthday) of my left breast and I wasn't given a choice as the tumor was 5cm. At the time when I was told that I would need the mastectomy, I opted for a double but was told I would have to wait 6 weeks to book the time in the OR! So, I went ahead and had my left breast removed and will have the right one removed when I'm given the o.k. Even though my BS told me that the possibility of it going in the right side is 1% that is not the chance that I am willing to take. I have very dense breasts and didn't show on a mammogram. Going down this road once is enough for me. I'm going to do what I can to prevent a recurrence. My husband is very supportive of me and understands where I'm coming from. I have also opted not to have recon.
This is a very big decision to make and one that you will have to be comfortable with.
Good Luck to you.
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I agree with the others that it is a personal decision and that once you've made your choice it all gets a lot easier. I chose unilateral mastectomy plus auxillary lymph node dissection.
The large tumour which hadn't shown up on Mammogram was obvious and palpable. I was offered a choice of lumpectomy or mastectomy. The surgeon said that research showed the overall survival rates for all breast cancers over ALL ages and stages was 50% with either procedure. He did add that if I chose lumpectomy, radiation for 5 weeks would be non-negotiable. Survival rates are unacceptably low without radiation. There are side effects to radiation and may be complications from scarring including damage to lungs and heart... rare these days but must be considered.
He also said that there is an additional statistic to take into account. Statistics are misleading so I queried him on this twice. He said that with lumpectomies there is an additional 1% per year over 5 years that wont make it. Meaning, for each year of the 5 year period one woman out of 100 will die because she didnt choose a mastectomy. I would check this out with your specialist just in case I misunderstood.
I've just turned 57 and its unlikely I'll opt for reconstruction but I wish both sides of my chest were even. My surgeon said women often leave it a year before they undergo recon. I can understand younger women opting for bilaterals with recon for cosmetic reasons, so the breasts match nicely. The fear factor must also play a part.
Best of luck with your decision .... it's a hard one that's for sure
hugs xxxxxxx
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Wow, a double mastectomy. I had unilateral two weeks ago and this has been the hardest thing I have been through. The tightness and pressure on my chest is crazy. I am trying the exercises but they are tortureous. How soon did you do reconstruction?? Any tips??? Thanks, Mary
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