Cancer everywhere how do i treat it??

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princessofpower
princessofpower Member Posts: 30

Diagnosed with stage 1 - had lumpectomy - and just a few weeks after found out that it had already spread to bone and liver- in two months my life has just spiraled - now need to figure out whats next - to chemo or not chemo?? and if so what type of chemo! and whats good and whats bad and what if I don't do chemo and what if I just do radiation

spread to two parts of my bone area.. what if i just do hormonal treatment.. anybody in my situation can we talk drugs? i just don't know what to take or what decision to make! 

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  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited April 2009

    My original diagnosis was stage 4 to the bones and nodes. i did chemo at the get go. 4 rounds AC and 4 rounds Taxotere. It worked really well for me. I am not planning on radiation. My docs can't agree if it would be good. I am having my ovaries out to get onto menopause. I am also a ER+ cancer.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    Oh honey, I know this is terrifying.  I don't have official "mets," but I have had 3 different cancers.  As for chemo, your oncologist should meet with you and tell you what the ideal options should be.  You will find out your receptors (meaning if you are er/pr positive or negative, or if you have the her2neu protein.  You may even be a "triple negative," which is what I am).  These determine the best options for you.  You asked about doing hormonal treatments, so I am guessing you have been told you are er/pr+?  

    If the struggle is whether or not you "want" to do chemo, that is really up to you, of course, but I can not encourage you strongly enough to fight like hell.  Cancer is a disgusting disease that will do everything in it's power to try to take over every part of your life.  Please do everything in your power not to let it take over completely. 

    I know that many more women will respond to you with suggestions of what chemo is ideal for bone mets (is it Zometa, ladies? I honestly don't know).  You will feel a lot better once you have a treatment plan in place.  That allows you to go into battle mode and focus on fighting the beast. 

    Please, come here often.  It doesn't matter the need, we are all here for you.  Someone will have an answer for you without a doubt. 

    Much love and prayers, Deb

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited April 2009

    I had a similar situation.   Started out at Stage II and had a lumpectomy.    I had a bone scan and CT scan before the lumpectomy that was clean except for a nodule on my lung.  The surgeon dismissed it as focal scarring (which it was) however the first oncologist wanted a PET scan.   Two weeks after the original bone scane and lumpectomy I get a PET scan and mets showed up in several spots on my liver, ribs, and hip.    I am HER2nu and very slightly ER positive (like 5 %).    I had six rounds Taxotere, Carboplatin, Herceptin and Zometa.   After three treatments I had a PET scan and all the areas had totally cleared.    This was in June 2008.  I am still on Herceptin and Zometa and still cancer free.     

     Like you, my world was upside down hearing the dreaded Stage IV.    But my oncologist (second oncologist) told me not to get wrapped up in the stages.  She said she totally believes many early stage breast cancer patients are actually Stage IV but unless they have a PET scan before they start Chemo, we never know it.   I guess usually they do a bone scan and CT scan but not a PET and this was the only way mine was picked up.    She said these patients are treated successfully.    She also made sure that I got all the same treatment I would get if I were still Stage II.  Which means completing local therapy (radiation) after chemo.   The area radiologist denied me radiation since I was stage IV but my oncologist was determined I have it and send me to a University Hospital about an hour away.    I am probably on Herceptin for life but it is totally manageable.  

    Try to take this one step at a time.  See what your doctor recommends.  Just because it spread doesn't mean it is all over.  My quality of life is fine.  I am single with two daughters and a full time job.  I only missed a few days of work here and there during chemo and was totally able to function.     You are welcome to PM me if you want to talk.  

    Find our your status on ER positive or HER2NU.  

    Jennifer

  • donnabee
    donnabee Member Posts: 580
    edited April 2009

    Princess, I'm in a similar situation. (We all are come to think of it.) I was stage IV from the get go with mets to bone. I am HR+ so I take Arimedex. For the bone mets I get Aredia (the poorer cousin of Zometa--you were right on, Deb. Aredia takes 90 minutes to infuse as compared to 15 minutes, but it supposed to be equally effective). I am HER2+ so I take Herceptin.I get both of these every 3 weeks. I *believe* this is the standard of care before Chemos. My onc said chemo only if these prove to be ineffective, or loose their efficacy over time.  I did not get surgery. I'm going to talk to my onc about that because as Jennifer indicated she got, I would like all the treatment I'd get if I were a stage 1. Unfortunately i'm extremely well endowed :-/ so I'd need a double mx. (or I'm sure I'd fall over). So thats a consideration, too. (I *do* have that Comme Les Garçons blazer that would fit if only....but thats another story)

    Like  Jennifer as well, I work full time (more than full time). My side effects are minimal and I feel pretty darn upbeat most of the time. Its been almost 3 months since my diagnosis. Quality of Life is good. PM me, Princess--we can talk. HUGS -- donna

  • princessofpower
    princessofpower Member Posts: 30
    edited April 2009

    wow thank you so much

    i am so scared and this helps so much - i have had so much bad happen recently, mom had brain surgery, boy i liked decided to like someone else, house burned down and we lost everything, and then this ... everythign just seems to messed up.. donnabee you didn't actually have to do chemo? I know i am ER and PR + and HER 2 negative if that sounds rights so maybe I should be starting with something like you instead of going straight to chemo - the thought just scares me.. 

  • vivre
    vivre Member Posts: 2,167
    edited April 2009

    Have you looked at the Block Center in Evanston IL? They believe in building the body up as much as possible before chemo. It is an integrative approach to cancer with the basis that most people who die from cancer, actually die of malnutrition. There is a lot you can do to boost your immune system while you wait for treatments. My tumor actually shrunk 2 cm in the 5 weeks from dx to surgery just because  I ate so well and exercised daily (daily walks that I needed for all the emotional therapy), I also took some supplements. My doctors were surprised that the tumor had shrunk, but I was not. I was feeling so darn well, that I could even believe I had cancer. Check out Dr Ray Strand's book, What Your Doctor Doesn't know about Nutrition may be Killing You. He maintains that proper nutrtion and supplements do not feed tumors as many other doctors do. He feels that boosting the immune system is the best way to combat any illness. He sites some of his patients who came through chemo with great results by follow his healthy lifestyle changes.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    Vivre-that is very interesting!  Where is that place in Evanston (at the hospital?).  Also, do they help people after treatment? 

  • vivre
    vivre Member Posts: 2,167
    edited April 2009

    Whoopsie-go to blockmd.com

    They will send you out a complete information packet for free. I heard of them because of a seminar Dr. Block spoke at. His approach to cancer sounds like the best approach, combining traditional treatments with CAM, which I think is the best of both worlds. This is the route I would take if I ever had to go that path again. In the meantime, I keep up my strict regime of nutrtion and supplements, in the hopes that I won't have to. Good luck to you all!

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited April 2009

    Vivre --- I totally agree!!!!!!!!!!!!!   I continued supplements and a great diet all the way through chemo and radiation.   I have been NED since... granted it is only coming up on one year.    However, neither interfered with my chemo.  And, I have been sick only once and that was with the stomach flu.  Not even a common cold all the way through chemo and thereafter. 

    Jennifer

  • scath
    scath Member Posts: 17
    edited April 2009

    I was just diagnosed with Metastatic breast cancer which has spread to the lungs, skeleton and not sure where else. I have met with my onc who is waiting for a final result on the pathology to come up with the treatment plan (chemo and/or hormones). My concern is that I am having a minor heart surgery to relieve fluid buildup around the heart before starting treatment. Since I am having the heart surgery this week, that will push cancer treatment out about two weeks. How fast does it spread? I am handling all of this well and want to make the right choices for myself. Any advise?

    Thanks

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited April 2009

    Scath

     I recall it taking forever to get me into chemo.  My biopsy results came back February 22, 2008.  After going through the lumpectomy, tests, more test, first oncologist, and then second oncologist (port insertion), I didn't start getting chemo until May 1.   I am HER2Nu which from what I heard is more aggressive and moves faster also.    I know that entire time I worried non stop.   I was Stage IV right from the start.  Discovered after lumpectomy when they did my bone/ct scans.   

    Jennifer

  • WLL
    WLL Member Posts: 96
    edited May 2009

    Very scared--I had a CT scan, the results indicated enlarged nodes--right cardiopherenic angle, retroperitoneal and bilateral inguinal nodes. A 3cm right adnexal cyst, possibly ovarian.  My oncologist wants me to have a PET scan and an ultrasonic and wants me to see a gynocolgist. I am currently going through chemo AC. I had stage 2a breast cancer. I had a lumpectomy--NO lymph node involement. If anyone had a similar situation--I would love to hear about it.

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