How do I handle obnoxious visitors?

juliebb
juliebb Member Posts: 140

My mom is back home from the hospital, back on Hospice. I have been caring for her for 3 years. She doesn't feel well and does not want visitors. She won't even talk on the phone most times. People are getting upset with me and whining that they want to see her. Most people don't ever ask what she needs or wants, they just show up, ring the doorbell and expect a normal visit/long winded conversation. How do I handle these situations? People are talking behind my back and it's getting back to me. I have enough stress and grief.

SIncerely,

Julie 

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Comments

  • juliebb
    juliebb Member Posts: 140
    edited April 2009
    PS. I have kindly explained this to certain people that are especially pushy, and they are still calling and blabbing how I won't let them in the house. I told them I don't want to wake her from a nap when she's so exhausted. They think I'm the obnoxious one. Cry
  • idaho
    idaho Member Posts: 1,187
    edited April 2009

    I went through this with my Mom.  I got to the point I just didn't answer the phone or the door if I knew it was a "pushy" one.  I decided that I didn't care what people thought of me, it was my job to protect my mother, and I did.  I still have an Aunt that is mad I wouldn't let her in to blab her head off, but you know what?  I am glad I let my mom have peace and quiet, and if my Aunt does not forgive me that is her problem. God bless you-  Tami

  • juliebb
    juliebb Member Posts: 140
    edited April 2009

    Thanks Tami,

    You made me laugh. Thanks so much for telling me about your mom and your aunt. I should decide to not let it bother me, just like you did. I also know I am doing what my mom wants, and that is important.

    Thanks again and God bless you too

    Sincerely,

    Julie 

  • DaughterMom
    DaughterMom Member Posts: 160
    edited April 2009

    Julie,

    My mother started withdrawing a while back, and we have handled uncomfortable visits and phone call in a few ways.  We have call display, so I was able to screen the calls for her.  My mother was also accepted into a seniors only building, so when my mother moved we asked the caretaker not to put her name on the tenant list, and I only gave the special code to close family members.  In her old apartment, I just didn't answer the door.  I have a large family, many many aunts and uncles from both my moms side and my fathers side, and alot of family really are concerned and do care, but don't know how to express their concern or don't know what to do.  I created a very private, by invite only, Facebook Group, where I am able to give updates on our days etc, much like a blog.  Family members are able to write thier well wishes there, and I think this may have helped alot.  They still feel connected, and my mother gets her privacy. 

    It can be difficult, but you just have to follow your moms lead, let her be the mom and listen to her wishes.  It pains me sometimes, because I know some people are just curious onlookers, but a few are sincere, and really want to take my mom in their arms and just hold her, so to speak, but she does not want that, so I try my hardest to explain to them what is happening, and they are the ones that understand and don't get upset at her or at me.  

    Take care,

     

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited April 2009

    How about a sign on the door and a note to family and friends that reads like this :

    Mom is doing well, but is unable to see or visit at this time. It wears her out too much and she wishes to conserve her energy. Cards and prayers are always welcome.

    Edited to add, A carepages or carringbridge account for updates is wonderful. Keeps the nosey people out.

  • cp418
    cp418 Member Posts: 7,079
    edited April 2009

    What Fitzwins wrote is good.  I might add that you are respecting your mothers wishes and maybe word it such that out of respect they whould do so as well.  I am so sorry you are going through this with your mom and worse to deal with these thoughtless individuals.  Absolutely follow your mothers wishes even if it means slamming the door in someones face - - I know I would do it if really pushed.  Hugs Joann

  • Alpal
    Alpal Member Posts: 1,785
    edited April 2009

    Just a thought, would the Hospice nurse be willing to post the sign on the door? Wording similiar to what Fitz said, but on Hospice letterhead? Something along the lines of "Mrs. _____ has requested no visitors at this time." Then something about conserving energy and keeping away Germs! If Hospice does it, it will take the blame away from you. You are doing a wonderful job and don't need the added stress of rude people.

  • juliebb
    juliebb Member Posts: 140
    edited April 2009

    Thank you so much everyone ----- Idaho, DaughterMom (I owe you an email by the way and I am on facebook too ), Fitztwins, cp418, and Alpal!!!!! This is all such great advice. I can hardly think straight with all the meds and sadness, then to deal with this is truly nuts. I like these ideas so much and would have never been able to come up with them. Thank you!!!

    Kiss

    Julie 

  • DaughterMom
    DaughterMom Member Posts: 160
    edited April 2009

    I realized tonight that it is easier to handle unwanted visitors at home, just ignore the phone.  Well, it's a different story now that mom is in the hospital.  This afternoon my sister (with new born baby...so cute), my half-sister and I were sitting with mom.  The three of us were quietly talking, and mom was half listening, half dozing in her bed.  It was nice.  Until, my half-sister's husband came barging into the room, and to make it worse, he brought his golfing buddy with him, whom nobody has ever met before!!  I was so shocked, I just could not get over the fact that anybody would venture into the hospital room of a stranger and sit himself down like that.  The nerve of both of them just made my blood boil, but crap, did I say anything, NO!  I just sat there flabbergasted, and was hoping they would realize how uncomfortable the situation was and just leave.  Finally, after an agonizing minute, mom told the husband and the stranger that she did not need anymore visitors, and that they could wait outside.  Can you believe they just said, "Oh, we just wanted to stop by and say hi", and they never got up to leave, until my half-sister jumped up and said, lets go get a coffee.  I never knew people could be so....dumb, for lack of a better word.

    I felt horrible, and later this evening when mom and I were alone, I apologized to her.  I told her that I just could not find the strength to say anything.  I promised her that next time something happens like that I will take a stand for my mother. 

    I am thinking now, that this is just the start of long lost family members, and second and third cousins coming to visit mom just because she is in the hospital.  It just may get ridiculous, we have a big family.  I am going to talk to the nurses tomorrow about it and I'm sure we can work out something out.  God give me strength.  Good night and God Bless.

  • GramE
    GramE Member Posts: 5,056
    edited April 2009

    The hospital or nurses can post a sign on the room door that says ALL Visitors must register at the nurse's station.  Give them a specific list of who is allowed and who is NOT.  

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited April 2009

    My grandparents were in an auto accident that took my grandfather's life.  My grandmother's sister was furious when we put her and her obnoxious daughter up at  a nearby hotel and when the house was full of people for the funeral I went into her room and locked the door.  My poor grandmother had just been in a serious accident and had just lost her husband.  If your Mother's guests can be obnoxious I say you can be oboxious right back.  The only important thing now is your Mom.  BTW, she sounds like such an awesome woman.  God bless.

  • juliebb
    juliebb Member Posts: 140
    edited April 2009

    DaughterMom, That has happened to me to before, with my dad. I didn't have the nerve to say something to a visitor who came to see him in the hospital many years ago. It was not someone close and so it was very inappropriate. He had had a stroke and was suffering some brain damage, he cold not speak for himself. I just thought it was very disrespectful. I was so angry.

    Now 20 years later, I deal with this with my mom and her visitors, and I am so amazed too how selfish and insensitive people are. *Put a damn hospital gown on them, turn the tables and make a visit to that stupid golf buddy of your brother in-law....and your brother in-law. I bet they would just love having all their privacy taken away at such a vulnerable time.

    My mom too has the long lost relatives barging in on her time and space. I think I do like the idea of the nurse handling things (lefty). With my dad we did get the nurse to put a sign on my dad's door saying immediate family only, check with nurse's station first. I did that when I had my baby too.

    kmccraw423 That is so sad. You were a great gatekeeper for your grandma. I guess we all have to deal with obnoxious relatives and we are pushed. So yes, like you said, we ARE entitled to be obnoxious right back.

    God bless you girls! God bless the gatekeepers!

    Julie 

  • sbmolee
    sbmolee Member Posts: 1,085
    edited April 2009

    I was my father's caregiver and I did not care what others thought.  It was my job to keep him comfortable.  My half brother wanted to bring his MIL over for a visit on the night he passed away.  I told him no and that I was putting Dad to bed.  It was too late (8-9pm) for a person with cancer to be expected to stay up for visitors. Dad did not really care for this woman any way.  My brother still is mad after 5 years but I do not care - my dad needed his rest and did not need to be taxed into having conversations or stay up.  Stand your ground - your job is to protect your mother.  (((HUGS)))

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited April 2009

    sbmomlee... you are so wonderful... I would want you on my side if the same situation happened to me.  I am starting to be glad that I have a half sister, brother and half brother (i have never met him) and adoptive mother/sister who are not talking to me.  That leaves my immediate family and my chat family.  All of which I would love to have by my side at the end.

  • juliebb
    juliebb Member Posts: 140
    edited April 2009

    sbmolee, It makes it easy to just start weeding these people out of our lives now. It's nice to see that I am not alone and that others know exactly what I am talking about. Your situation happened once with me, my mom, one of my brothers, his girlfriend's mom (who really doesn't know my mom) when they stopped in and visited with her at midnight after picking my brother and his girlfriend up from the airport. (That is one crazy sentence and I am to lazy to fix it LOL) People are so stupid. We got into a big argument over it the next morning, but he eventually saw my point and understood. Wonder if there is a good book of rules for this? Something to give the stupid people.Innocent

    dreamwriter, I am sure you have weeded out some of the toxic people in your life which I think is so important. I am doing the same here. It's not worth the misery or aggravation, right? I know you have wonderful people loving you. 

  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited April 2009

    I guess I may have an internal agenda that picks out certain attributes and surround myself with them.  All of my friends are generous, big hearted people.  They would take a t-shirt off and offer it to someone who needs it more.  The stunning thing is that there are so many people who fit that simple stereotype.  And they have found me.  No one wants to leave my side.  No one thinks that I am greedy.  They all seem to want me to enjoy the end of my life - and are willing to contribute to that in very generous ways.  One makes sure I get to see plays and shows that I normally would not have the money for.  Another makes sure I have enough material for sewing and quilting projects.  And as you said I have wonderful people loving me.

  • sbmolee
    sbmolee Member Posts: 1,085
    edited April 2009

    I can honestly say I have not missed my step-brother.  I like sane people to surround me...those with common sense and not self-centered.   I am such a strong advocate for the underdog, the abused, the sick and the elderly.  Just let me know if you need me to take care of someone for you! (smile)

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited April 2009

    Everytime I have been in the hospital I have requested no visitors. We are there to recover or heal, or rest.

    Just immediate family and my BFF.

    I like to think, where were these folks when we were healthy?

  • saint
    saint Member Posts: 1,877
    edited August 2009

    I am bumping this thread with a similar complaint & question for my stage IV sisters:

    Does anyone else seem to find that stage IV holds some sort of celebrity status????? I have seen it on the boards-women who are NED but gravitate to the metsters.

    I have also seen it locally & have talked to other met-sisters & brothers who say it happened to them, too------does anyone else know what I am talking about?? I just am SO confounded by what seems to be a very odd phenomenon! Help me out here if you know what I'm talking about!

    Hugs--be well & stay strong 

  • EWB
    EWB Member Posts: 2,927
    edited August 2009

    curiosity? wanting to DO something for others, frightened about what MIGHT happen, wanting to know whats in store?

  • saint
    saint Member Posts: 1,877
    edited August 2009

    obsessed??? some odd form of Muenchausen's??

    I'm talking NED ppl who post almost exclusively on stage IV, palliative & mets sites, Someone brought it to my attention again today that isn't part of this world...........she noticed I have an acquaintance at church who ALWAYS asks how I am & when I say, "Fine" she sidles up to me & grabs my arm & whispers, "Now tell ME the truth!".......Like where was she when I was laid out????? That's the kind of odd thing I am asking about. not just idle curiosity & helpfulness...but a sort of obsession.......ya know?

    I know some ppl will get PO'd by this & I am NOT accusing anyone...If the shoe fits take a good look at you & don't shoot the messenger. 

    Anyway--wondering if anyone else is getting annoyed by this sort of person or  if it is a rare occurance.

    Be well & stay strong 

  • juliebb
    juliebb Member Posts: 140
    edited August 2009

    Well, I hope you are not referring to me. I posted mostly on the alternative board trying to learn and to share what I learned. I was/am learning for myself and daughter too, as my mother reminded me more than once. I loved my mother very much and we had a very healthy relationship. We were both blessed. Yes, she passed Memorial Day evening at 11:11pm. Her physicians were amazed at how well and long she lived given her diagnosis. I like to think I was a big part of that. I was a good daughter and she was the best mother. 

     I just hope you are not suggesting this about me and my post. It would be very hurtful to me. 

  • juliebb
    juliebb Member Posts: 140
    edited August 2009

    As far as that person from your church, she is a moron. A waste of time person. 

  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2009

    Yes, yes ,yes Saint. How I know what you mean, and how it frustrates me. This type of voyeurism is awful. I felt most uncomfortable a few days ago at a post made on "our" stage 1V board, by a 20 year old male, who has no form of cancer, was not searching for information for friends or family. But had been reading our posts, in some quest to feel better about himself (he suffers from depression). Have we already forgotten the outcry a few months ago when we were being innundated with the "I have headaches, is it brain mets, ", "Amn't I lucky not to be as ill as you guys", etc. So to see a post from someone who blatantly admitted that he had no reason to be here, underlined how many inappropriate cruisers/voyeurs are attracted to these sites. The final straw was when he then proceded to tell us not to worry about our families when we died! How dare he presume to even begin to understand the agonies we face on losing our families. Interestingly, I was the only person who suggested that he really shouldn't be posting here, so perhaps there are many who are comfortable with this phenomenon. I appreciate that there is little privacy on the boards, and what we write is there to be accessed by all. But I wish the voyeurs would limit themselves to reading, if they have to do that.I have long felt that certain parts of the form should only be accesible to those diagnosed with mets, and posts like that one only strengthen my conviction.

  • EWB
    EWB Member Posts: 2,927
    edited August 2009

    Oh...... THAT kind of visitor. I've been really lucky and not had a problem w/that, although I have kind of dropped out of a lot of things because I didn't want to deal with that sort of thing.

  • AnneN
    AnneN Member Posts: 241
    edited August 2009

    Elaine & Saint,

    I am thinking maybe the shoe fits me - Elaine's "amn't I lucky not to be as ill as you guys" - and I want to apologize. I am truly sorry if my posts have sounded like that.

    In my case, the motives that EWB lists are a good fit. I'm new at this, I want to learn what's in store, and I want to help others if I can. I am grateful for resources people have pointed me to that have helped me stay well so far, and I want to share them. I also want to learn what I should be doing to continue to stay well for as long as I can.

    The women who have posted information about the merits of surgery for those who are stage IV at initial diagnosis, as I am, have been particularly helpful to me.

    I haven't been in your shoes yet, so it is hard for me to know when good news is welcome and when it is not. I have probably been clumsy about that, and I apologize.

    Thank you for your honesty and for all the wisdom that you share. 

    Anne 

  • ElaineD
    ElaineD Member Posts: 2,265
    edited August 2009

    Anne, I don't think you come anywhere close -from what I recall, your posts are helpful and constructive. Plus, you are stage1V, so have every need/right to be sharing your fears and participating. It's great that you're responding to treatment-you know how much pleasure this gives us all, and also gives us an added boost. How great it is to hear of one of our sisters coping well and thriving-keep it up! Good news is always welcome. I'm not sure if you were around when we had a bit of an issue with some posts a while back-when non metsters were regulary asking about symptoms and monitoring, and there was one quite heated thread, which lead to the creation of the "not diagnosed but worried" board. I'm sure you're the same-you wouldn't wish metastaic disease on anyone-but at the same time, it's galling to be told, "thank goodness I'm not you". I think the big, big difference, is that although you're new, your needs  are the same as the rest of us, your opinions are as valid as anyone else's. I think what Saint and I find hard, is when people take it upon themselves with little or no knowledge nor experience of cancer, to feel they can advise us as to how we should feel/behave. Like any illness, I think you can really only do this through personal experience, and when "well meaning" people approach us, and tell us how wonderful we are, or how tragic we are, then it can be hard to handle. Somehow, if similair sentiments were expressed by fellow sufferers, the impact can be completely different.

  • AnneN
    AnneN Member Posts: 241
    edited August 2009

    Thanks, Elaine, that's a relief.

    The "not diagnosed but worried" board was here when I started, so I guess I missed all that.

    Thanks for the kind words and good wishes. You, too.

    Anne 

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited August 2009

    OH heck yes. My carepages, it has turned into entertainment for some folks. I wanted it as a vehicle for communication to family and friends. Too many people have access. It is almost like they are waiting for the "Other shoe to drop".

    I keep a lot to myself now. I come here and talk to a few friends (who still poo poo me). I think that is why I wanted to post on Voicesof Survivors.

    If anyone pulls that BS "How are you really" I say I am REALLy fine. Now go away.

  • saint
    saint Member Posts: 1,877
    edited August 2009

    WOW! Sorry I have been away! Didn't know I'd opened a can of worms.

    First: I was NOT referring to ANYONE in particular on the boards!!! As I stated, someone else here pointed out the existence of those typesto me that day when I talked to her about the ppl I (& others) had encountered in "real" life......No offense, but quite honestly I have never paid that much attention to other's personal stats or posting history-especially ppl I don't know (I don't recall Anne or Julie b4 this thread!!) I don't even look at the number of posts each person has made (tho that was also discussed in the same chat)

    Second: This IS a public forum! Even if I didn't like how someone responded to me, I'm a big girl. I can debate, discuss or argue til the cows come home, but in the ened each of us can just turn this danged thing off if it gets to us too much...........right or wrong everyone has a right to say what they think/feel AND the right not to participate....NO-I was NOT aiming my post at someone specifically!

    SO..if the foe *hits............ 

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