Ortho Dr just scared me

DebInTN
DebInTN Member Posts: 85
edited June 2014 in Life After Breast Cancer

Evidently I have a frozen left shoulder.  Began in Nov 08.  Saw primary phys in Feb 09.  XRay, shot of cortisone, series of prednisone, exercises at home.  Some improvement, but nowhere near normal so I made appt with Ortho Dr - saw him yesterday (4/22/09).  He looked at xray, came in to talk to me, found out my hx, went back out to look at xray again.  Came back and asked me if DrXXX (oncologist) was aware of my complaint.  Asked about bone scans - maybe we should have another. I told him that it never occured to me to mention it to onc.  All I have heard from my Drs is that I am as close to worry-free as anyone.  Am I naive?  Should I have called the onc first? Or was the ortho just covering his ass?  Or is this the way it's going to be?  Sort of rattled me.

Thanks

Deb

Comments

  • mzmiller99
    mzmiller99 Member Posts: 894
    edited April 2009

    Geeze, Deb - I can understand your concern.  If every ache sends our docs into a flap, what are we supposed to do?  If your onco had concerns, it seems he wouldn't have told you that you were "worry-free".

    Hope you get an answer soon.

    Susan

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited April 2009

    Deb, I bet you're right about the "CYA"!  But I also note from previous posts that you're on Femara which, as your ortho probably knows, can cause all sorts of joint problems -- including frozen shoulder.  Actually, that's probably why he asked if you had spoken to your onc about it. 

    I think we just have to get used to the worry that comes with anything our docs say that we aren't expecting to hear -- no matter how innocuous <sigh>.

    All the best, Linda

  • iodine
    iodine Member Posts: 4,289
    edited April 2009

    In my experience, you can COUNT on docs insisting on more scans, labs and exams no matter what your complaint.

    When I experienced a spinal cord bleed between the cord and the spinal column, was immediately referred to a neurosurgeon who wanted to open up my back and take bx's and then start all kinds of treatment.  He was very insistant and I took my dh on the next appt.

    All in all, I decided not to do the surgery, (as a rehab case manager I've certainly seen my share of poor outcomes with back surgery)and to wait 6 weeks to get another MRI/CT (cannot remember which I did) to see if the lesion had been absorbed and decreased in size by any amount.  Thank God, it had become smaller and more defined as a blood and not a tumor. 

    My gut just told me not to go with the surgery -- I slept on the decision for a few days and then with discussions with my dh, determined not to do it.

    We have so many decisions to make with this disease in the beginning when we are on the low side of the learning curve.  Unfortunately, we have to also be aware that docs are just gonna be scared of missing something on, so they will lean toward more diagnostics and scarey treatments.

    I don't think it's all CYA, cancer is such an insidious disease, no one can really be perfectly sure that doing all possible not to miss a mets.

    Good luck with the frozen shoulder,  over time and with good PT, it can be resolved.  But it does take a while.  Worst case is possible surgery, so keep up with the PT and work at that to prevent any surgery.

  • DebInTN
    DebInTN Member Posts: 85
    edited April 2009

    Thanks, all. 

    Linda, I didn't think about him maybe considering the Famara connection.  All I could think of was that I was trying to not worry about it anymore and now it sounds like we are going to be chasing cancer cells around for the rest of my life.  Just caught me off guard, I guess. 

    This frozen shoulder thing is for the birds.  The shot helped a lot.  Still doing my exercises at home and will see PT beginning next Thurs. 

    Sometimes I think I am going to become a hypochondriac - just like my mother-in-law ARRRRRRGGGHHHHH!

    Love to all,

    Deb

  • Alpal
    Alpal Member Posts: 1,785
    edited April 2009

    Deb - I, too, have a frozen shoulder. I just finished chemo in Jan and the shoulder pain started in late Dec. I was positive it was more mets, but reg. scheduled PET showed nothing there. Dealt with it for 2 more months, still convinced it was mets, then another PET still showed nothing. Onc referred me to PT and it is much better! My onc was surprised that even after one PET showed nothing I still was worried about it being mets. He is the best, but apparently doesn't get the paranoia thing. Sorry about your shoulder and glad the shot helped. Acc. to my research most frozen shoulders resolve themselves, but can take as long as 2-3 yrs. Mine is much improved after only 3 wks. of PT.

  • DebInTN
    DebInTN Member Posts: 85
    edited April 2009

    Allison - sorry that you are having to deal with the frozen shoulder thing on top of Stage IV.  I'll bet you really were nervous about it.  I don't sleep well anyway, and was able to sleep even less when this thing flared up.  I'm not a fan of needles at all, but it was definately worth it to get where I could move better and get comfortable at night. I pray for comfort for you, too.

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