Starting Chemo February 2009?

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Judy~ ((bighug)) I hope everything is okay.   

    Kristine~  I hear you about wanting to eat something and taste it (it sucks).

    Susan~ I love the hair growth.  Gives us bald ones some hope that the hair will grow back )

    I went to look good feel good class today and it was fun.  It would have been better if I was feeling better and not so rough.  Then we go out to dinner and the food just tast okay :(.  I really just want to feel better 27 more days until last treatment so I keep thinking about 40 more days until I may start to feel human again.  I am so ready to get off the TC boat :(. 

    Positive thought of the day: die little stray cancer cells, die.  I gotta keep telling myself this is why I do this (and because I want to live to be a little old Lady :) ). 

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  • kmn0701
    kmn0701 Member Posts: 117
    edited April 2009
    "Die little stray cancer cells, die".....LOVE IT!!!! I need to adopt this as my motto. Wink
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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Kristine~ I actually "cleaned" it up.  I normally have some colorful language thrown in there :)  Please adopted it as your motto :)  Remember it must be said before you get your "H" though :)

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  • gcpommom
    gcpommom Member Posts: 883
    edited April 2009

    Well, I'm home, the CT scan was ok, so no internal bleeding, yay!  It's ok to laugh now at the image of me with a bump sticking up on my bald head, like on Tom & Jerry!  Have a nice headache, but otherwise I should be fine.  Thanks for the ((hugs)) girls!

    Kristine, I'm totally right there with you, chemo does suck.  I have tx #4 tomorrow morning, going once a week is not giving me enough time to mentally prepare between tx's.  It seems like I just went, and I'm going again.  Oh well, like you guys said, gotta kill those little stray cells.

    Well, gotta go finish working on son's science fair project.  It is a pathetic project this year, I just don't have the energy (or money) this year, so I hope it is sufficient at best.

    Judy

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  • kmn0701
    kmn0701 Member Posts: 117
    edited April 2009

    Glad you're ok Judy. I think everyone is spooked after what happened to Natasha Richardson. Having cancer & going through chemo on top of it....yeah, I'd have been at the ER too.

    Jaimieh....go ahead & add the colorful language. I'm sure we all feel the same way! lol Die @$&%*!little stray cancer cells, DIE!!!!

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  • MicheleS
    MicheleS Member Posts: 937
    edited April 2009

    Just a quick drive-by post... I'm at work and way, way, behind...

    Judy~ Glad you are OK.  You were smart to do to the hosp in my opinion. Head injuries (esp while on blood-thinners) are nothing to toy with.

    Jaimeh, Apple, Kristine, Kerry~ Hope you guys have a relatively SE-free day.

    Susan~ Thanks for the info on moving your port.  I hope it doesn't come to that for me.

    Datadrudge~ I had major "why me" issues a week or so ago.  I think that's all part of the process.  I started seeing a counselor (and I'm not a counselor person usually) and it has helped me to sort out the wallowing vs healthy grieving...

    An update~ Things are OK today.  My heart still races and skips around but I haven't blacked-out again since last Wed.  My BP is pretty low all the time but hasn't bottomed out either... I'm drinking as much H2O as I can stand; I think that's helping.

    Plus, I have the most awesome friend in the whole world!!!  She sent her housekeeper over this morning as I was going out the door to work!!! OMG! Someone to clean my house!!! (This is such a treat for me!! I've never been able to budget for this before and my friend knew that I'm having a difficult time keeping up since my mom left.) I can't wait to go home tonight and relax in my CLEAN HOUSE!!!  OK, I'm done gloating now...Tongue out

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Oh Michele what a wonderful gift your friend sent :)  I would be on cloud nine if a housekeeper without strings attached showed up.  I hope you HR stops playing games. 

    I am feeling okay today I have done all the morning drop off and got a couple of things done around the house (shocking).  I'm ready for a nap but that isn't happening today.   It's a gorgeous day so I may skip out on any addiitonal housework and go ride bikes with my little man once he gets home from school :)

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  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited April 2009

    Michele, what a wonderful gift! Enjoy your clean house tonight! I think that friend is a keeper!

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  • apple
    apple Member Posts: 7,799
    edited April 2009

    Michele - i had some friends get together and pay for some housecleanings.. wow - what a luxury!!!  and with my 3 super active kids and husband a real godsend.

    enjoy your CLEAN house.

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  • gcpommom
    gcpommom Member Posts: 883
    edited April 2009

    I want someone to clean my house (whiiiinnning)

    I am still at my chemo center.  It has been a bit messed up today.  Taxol #4, we reduced my steroids to 12 mg.  But we had to stop the taxol because I started getting a horrible, burning heartburn sensation throughout my chest/stomach.  Ouchie.  They gave me Maalox (I had already had the zantac), and a prilosec.  It's better now so taxol was finally restarted, and I'm almost done.

    Then I made the mistake of saying that my IV site hurt just a little, so the doctor had them change my IV, I hate getting IV's, and tried to talk her out of it, but she said change it.

    So, I should have been home by now, but here I still sit.  I think they are just more cautious here (this is my first infusion at one of the hospital's satellite centers, it's much closer to me)  Makes me want to just drive the extra miles to the hospital, where they don't fret so much over every little thing.  The doctor here actually sat by my bed and watched me for like half an hour.  Weird.

    Michele, we're so having the same se's; I am also having low BP, they almost wouldn't finish my tx today, but I told them it's just the benedryl, last week it took a couple of days before it returned to normal.  Heart fluttering/racing, breathing still not great.  I have to make an appt with my cardiologist and a pulmonary doctor to see if we can't fix that. 

    Hugs to you all

    Judy

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    (((Judy))) good for you for going to have a scan. So glad it came back ok. now to fix your icky other side effects. *waving magic feel betta NOW wand*

    (((Kristine))) you WILL be around to watch your girls grow. This I know.

    (((Michele))) if anyone deserves a housecleaning fairy, it's you. Color me jealous!

    Oh Susan, THANKS for sharing that picture! I think you look tres adorable! I too cannot fathom having to wear this wig when it's 95 & humid. The other day is was only 70 out and I was miserable ... just walking to & from the car, for chrissakes!

    Ok, so now I'm REALLY confused. Met with my beloved breast surgeon yesterday. She stopped just short of out-and-out recommending radiation therapy, but she basically said it will lower my chances of reoccurrence to nil, and made me think it was the right thing to do, especially since I had positive nodes. She recommended a "phenomenal" radiation oncologist (cuz i was less than enamoured of the first one i met with, even if he is one of the Top Doctors), so I set up at second opinion appt with this other radiologist for 5/4.

    Meanwhile, I emailed my breast surgeon about having to wait 6 months after my rads for exchange surgery and he just now writes back: "if you need radiation therapy, then we need to remove your tissue expanders and place permanent implants FIRST. Radiation therapy has a significant impact on the breast skin. The best results come from placing the implant prior. After radiation, healing is very unpredictable."

    This is completely out of left field. No one has said ANYTHING about doing radiation AFTER the implants!!!

    Meanwhile, my oncologist is being weird and asked not to have the radiation therapy discussion until after I'm done with chemo (???) but he has made a few cyptic remarks leaning against my having rads.

    I am soooooooooo confused. Why can't these guys just all talk amongst themselves and figure it out FOR me? i am so.not.up.to. being my own heathcare advocate these days. wah!

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  • susan13
    susan13 Member Posts: 732
    edited April 2009

    Hello Ladies!

    Good news.. my scans came back all CLEAR! Oh man... let me tell you:-)

    Michele-Wonderful wonderful friend you have!  Glad to hear you are doing a bit beter. Keep up with the water. Dehydration can really get to you.

    Lisa-Get a second opinion on the exchange surgery.  My PS said he would do both ways, and neither was the "right" way.  I decided to have my radiation first , then the exchange a few months later , cause it seemed like the right thing for me to do for my treatment.... treat the cancer first, then go on to the cosmetic part.  Also it makes my mind feel better too.  And all 4 of my doc's told me it was a good decision also.  What I like is that they let me decide on how I wanted it done.  There are other ladies here who are having radiation on their expanders, so look into the boards for them too.

    Feel good everyone!

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Whoo for clean scans Susan.  I am thrilled to hear great news. 

     Lisa~ I was told if I had + lymph nodes that I would need radiation and I have heard people here on the boards getting radiation with TE.  It sounds like they have personal issues and they are putting you in the middle.  ((bighus))

     Judy~ I hope you get to go home soon ((bighugs)).  Geez talk about a long day. 

    Feeling human again :)  Now I am just hoping that I didn't over do it today.  I am trying to get things ready for next week.  I am looking forward to crossing another treatment off my list leaving just 1.  I went today trying to find some hotfix crystals for the shirt that I am going to wear for my last treatment but I realized I am going to have to order them on-line and hopefully I can get it together in the next couple of weeks.  I know what I am wearing not as wild as Webbie by any means but it's something to look forward to :)

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  • suzmarks
    suzmarks Member Posts: 83
    edited April 2009

    So glad to hear the good news Judy, Susan, and for the improvement Michele. Also enjoy your lovely clean home experience. How nice.

    Datadrudge-glad to hear you're doing better, sounds like you were having a rough time for awhile. It is such a roller coaster ride that we're on, or perhaps it's more like a plane ride with lots of turbulance.

    It is amazing to read about some of the SE. It's hard to put a positive spin on life when dealing with such discomfort. But as some have mentioned there's the poor little 10 year old having this dreaded disease, it sure gives me pause to when I'm having my own pity party. I spoke with my oncologist today and he's not in agreement with me about stopping my treatments after 4 sessions. He feels because I had one node with cancer that I should have the full 6 tx that I was scheduled to have. It's hard for me to disagree with him as obviously he's the doctor. However I believe he probably is more old school and conservative. Can't help but think there are other doctors who would be comfortable with me having just the 4 TC. Maybe it's just me hoping it would be the case. Unfortunately I had gotten comfortable with the idea I may be done with the chemo but now I have to continue on for 2 more tx. Yuck (notice what it rhymes with). Right now I'm sporting this red check look, giant blotches on both sides. I actually got complimented on my color and told that I must have had a nice vacation somewhere. Oh well, what's a month and a half of feeling lousy here and there? We're in for some super spring weather this weekend here in the northeast. Hope others get the same gift. KerryMac-what are you expecting up there in Ontario? 

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  • Beverly11
    Beverly11 Member Posts: 443
    edited April 2009

    Kerry - I am waiting for a referral to a gynecolgy oncologist to weigh out the oopr/hysterectomy options.  I am feeling there definitely could be a case for an ooph as I am strongly ER+ (7/8) and premenopausal.  I would really appreciate any information that you can give on this subject; if its not too personal.  How did you and your doctors arrive at the decision.  ie - pros and cons. 

     One more tx for you.  yahoo. (And on my birthday)  My 1st tx is scheduled for April 28th.  Keep my fingers crossed that my blood work cooperates.  

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  • susan13
    susan13 Member Posts: 732
    edited April 2009

    Suzanne-Sorry you have to do more chemo. I know the feeling. Just when I thought I was done I was told I had to have 4 more. But as the saying goes , time will fly by, and you will be done with it in no time.  Just go in there with the attitude that it's kicking cancers butt (unfortunately kicking your butt too), but for a good reason.

    Hang in there ladies and hope everyone's having a good day.

    Funny how good news and not worrying can make a person feel so much better.  Our minds sure are a powerful thing!    I'm off to my 3# rads, starting to feel like a pro:-)

    Sue

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Suzanne~ I am sorry you have to do 2 more treatments :(.  I have to do 6 also and then continue for a year every 3 weeks getting Herceptin so I understand.  It's surely not any fun but I keep telling myself that I need to do everything I can to keep the beast from coming back. 

    Well I over did it yesterday and I feel like an old lady today :(  Such is life I will get my act together soon.  I still have about 4 loads of laundry to put away.  The great news is I actually had some help yesterday and it was wonderful.  I am hoping that I feel better this weekend because we are supposed to be in the 80's all weekend. 

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  • apple
    apple Member Posts: 7,799
    edited April 2009

    Suzanne - i am on my 2nd set of chemos.

    sigh.

    better to be safe than sorry

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  • MicheleS
    MicheleS Member Posts: 937
    edited April 2009

    Jaimieh~ I hear ya on over-doing it.  It is so hard to limit yourself when you finally have a "good day".  I feel pretty good today and am dying to do some yardwork... but I know that the stooping and up-and-down would make my heart and BP go bonkers.

    Sue~ So how are the rads going? Are you as tired as when you were on chemo? Great news on the sacns!!!

    Suzanne~ I didn't want to say it before but I think that 6 treatments is a good idea.  I know it is hell now but you don't want to have anything to 2nd guess  later.  I went through the same thing when I switched from DD taxol to 12 weekly treatments... It added a month to my treatment.  (Tho' I know that TC is way worse than just taxol...) I'll be thinking of you.

    Lisa~ My onc doesn't want to talk about rads until chemo is over too?? What's up with that?? He did tell me that his *preliminary* recc was "no" as did my surgeon but he still wants me to get an opinion from the radiation oncologist AFTER chemo is done. 

    Judy~ How are you cardiac SE's doing?  Today is better for me so far but I have taxol again tomorrow.  Bummer...

    Cheryl and Apple~ Yeah, my friend is awesome. (Her DH is my cardiologist so I think that *they* didn't want me to overdo it this week. LOL!)  The house is spotless.. every nook and cranny.  It took her FOREVER  (I am embarrased!!) to get the floors and baseboards done.  She even dusted all my blinds and fans... washed the windows, etc.

    Hope everyone does well today.  I know that living4today goes tomorrow too.  Anyone else? Please pray for us!

    Michele

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  • MicheleS
    MicheleS Member Posts: 937
    edited April 2009
    Hey apple! How are you doing? How much longer in chemo do you have?? I've been thinking of you a lot lately.  Honestly, I think you must be the strongest person I know.
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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Have I mentioned how much I love preschool.  My son went yesterday and is sick today :(  WHY in the hell do these people send their kids while they are sick to school....grrrrr.....  If it wasn't the end of the year I would be tempted to tell him that it was over and not send him. 

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  • Bethie1
    Bethie1 Member Posts: 393
    edited April 2009

    Hey gang!!  I'm in chemo session as I type this!!!  Got good news:  No more hydration needed, yeah!!!!!!!!!!!! 2 more chemos then rads

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  • susan13
    susan13 Member Posts: 732
    edited April 2009

    Jaimieh-I ditto that. I deal with the same thing with my daughter.  Thankfully I didn't get any of the sicknesses she brought home while I was on chemo.

    Michele-I only had 3 rads so far. There's no pain involved, and the session goes by very quickly.  I am having 3 areas radiated and they each take under a minute.  One thing I would recommend is to recoup as much as anyone can after chemo is finished to start rads.  I took 5 weeks and I'm glad I did cause I finally came out of the chemofog.

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  • gcpommom
    gcpommom Member Posts: 883
    edited April 2009

    Michele:  My heart rate has been ok, just had tx 4 yesterday.  If it goes like it did last week, the rapid heartrate started on Saturday.  So I'll let you know how that goes.  I hope we both stop having this side effect.  I did have my steroids decreased from 20 to 12mg, but still flushed red today; I am hoping that less steroids may help keep the heart from racing. 

    I was getting 12 mg of steroids on AC, but that was every 2 weeks; I wonder if getting the steroids every week is accumulating and causing problems?

    Bethie:  you sound in good spirits, considering where you're at!  Only 2  more to go, that's awesome!

    Jaimie:  You sound like me, I definitely overdo it on my good days, but like you said, the laundry and other errands need to get done.  We are also getting warm weather this weekend, and I am hoping to feel good enough to get out and enjoy it.

    susan:  so glad your scans are clear, that's a great feeling, isn't it?

    Suzanne:  I, too, would probably do all 6 if you are able to physically do it.  I know that I am worried about getting all 12 taxol treatments in, so many women have to stop due to neuropathy.  As much as we hate it, like you said, it is just another month in the grand scheme of things, albiet a sucky 'nother month!  I'm sorry, truly, I know that getting it in your mind that you may be done, and then not be, has got to be really hard.  :(  Are you getting any good days in, or are you pretty much laid up between treatments?  Those good days are the only thing that keep me going, I know they'll come, and even though it's only a few days, it does help get me through it.

    Hugs to everyone,

    Judy

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  • webwriter
    webwriter Member Posts: 535
    edited April 2009

    Hey ya'll! MAN! I can never keep up around here!

    Big sympathy and "THAT SUCKS" for you going through the horrid phases of this, including the stupid depression that feels real even tho it's chemically induced. HURRAY for everybody showing improvement. HANG IN THERE for everyone getting close.

    Generic, I know, but as I said, I can't keep up. I'm reading when I can tho. I keep writing down all these comments I want to make and then lose them again. GRRRR! My eyes are still watering and burning constantly. My car battery is dead it's been so long since I was able to drive! The neuropathy is still nasty, my nails still hurt, my feet still feel burnt, and although I could tell the difference between pickles and tomato on my sandwhich yesterday for the first time in months, neither tasted like themselves. And yeah. I'm still tired with the weakest legs known to man. To top it off, I've got cording in my armpit and edema so bad I look like a water balloon.

    Not complaining so much as realizing it's going to take awhile. Done doesn't really mean done and I'm impatient as hell. I'm exactly two weeks out of Louie the Last. Auntie A says there's fuzz on the back of my head. I think she loves me. I'm sprouting a mohawk tho. I never did really go totally bald, just kept shaving once a week or so. I've quit to see what will happen. Apparently, the stubble that stayed is all I'm going to get for awhile. Front and center on my head. 

    Maybe I'll grow it. Could be fun!

    Thinkin' of you all and hoping I can see again soon.

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  • apple
    apple Member Posts: 7,799
    edited April 2009

    Michele  - I am more than fine. as if i don't have cancer.  i quit taking the glutamine, ....it is quite expensive and i want to see if i can have no hand side effects and take less medicine.  I am totally obsessed with organ practice.  It is so hard.  I am a good musician, but adding feet into the mix, trying to read and play at the same time, acquiring the dexterity to move my feet up and down 32 keys is a real challenge.  Fortunately i have the time and also an organ on which to practice.  i am waiting for this tote bag, which i bought off of ebay for 22 dollars to arrive.  I will dye and redye it to try and make it a brown one.

    http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&ssPageName=STRK:MEWAX:IT&item=180346116702

    maybe it will come tomorrow. - i am really exited

    i guess i was just born ornery and strong.   i am lucky. not lucky to have advanced breast cancer (LOL) but just you know, really blessed with things i can do. 

    i wish there was some magic sentence i could tell you that would make everything better for you.  You should be fine.  your diagnosis is not all that bad... not at all.    you are very lucky that your cancer was caught so early and is very treatable.  it has to be awful having such horrific reactions.. but all this will be over for you soon.

    hang in there.
    Dx 5/10/2008, IDC, 5cm, Stage IIIc, Grade 3, 4/9 nodes, ER+

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  • Bethie1
    Bethie1 Member Posts: 393
    edited April 2009

    Hey gang!!!

    gcpommom-  Thanks!! I'm doing great! As of 2 weeks ago when I did chemo #5, I haven't needed my neulasta, and now after today's chemo #6,  don't need hydration anymore.  My weight is doing good, and with Taxol there's a tendency to retain water, then they put water in you to hydrate, so their afraid with the hydration that I'd be retaining too much water.  So all I need now is just the next 2 chemos, then rads!!!

    Webbie--- (((HUGS))) Hope you feel better. I took an over the counter Benadryl an hour before chemo then just before chemo began, and I WAS FINE!!!!!!! NO JITTERS!!! YEAH!!!!
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  • Gizzie
    Gizzie Member Posts: 5
    edited April 2009

    Started Chemo 2/1--diagnosed 1/9/2009 stage 2b/3a . invasive lobular.  Have been through the Adriamycin - 8 wks.  Now on Taxol.  The tumor three weeks ago in the node could not be felt and now I think it is back to it's original size.  Is this possible?  Seeing onc on Fri for next Taxol treatment--weekly for 12 wks--this is 4th.  Will have him do an exam but I am freaking out.  They wanted to shrink these tumors prior to surgery which initially they did but now am feeling something that I was feeling prior to even going to dr.

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited April 2009

    Webbie- Does it mean that you are "out" of the hole ??  Remember we must see pictures even if you think you are still bald we get very happy about a little bit of hair growth :)  I really hope you are right about the depression being chemo induced. 

     Bethie- congrats on no hydration. 

     Gizzie- I hope it hasn't grown. 

    I have been trying to think why my back feels bruised.  I think I maybe getting bruises from sitting on the darn couch.  My DH was telling me how bad I look from behind last night because I have lost so much weight/muscle mass since Dec. I really hope that I get some muscle back inbetween my last chemo and surgery (56 days). 

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  • kmn0701
    kmn0701 Member Posts: 117
    edited April 2009

    Michele....sounds like a wonderful gift. I had a friend do the same thing for me shortly after my surgery. It's so nice to have a clean house. We actually have a cleaning lady come once a month. It's the best $80 a month I spend. She seriously saves my sanity. At least I know my house is good & clean once a month! Good luck tomorrow...I wish you NO SE's!!! (Hey, we can always hope!)

    Lisa....that's the first time I've heard that regular implants hold up well during radiation. Very strange. I know my PS said the TE's would be fine but the radiation could shrivel & harden the regular implants! Yikes. I would start taking notes & bugging the crap out of them with "Dr. "X" said this, what do you feel & why?" I'd also ASK them to talk to each other because they need to be a team working for you. Hell, I'd just break down & start crying in front of each of them until they felt guilty. Of course, I can cry at A.N.Y.T.H.I.N.G these days.

    Jaimieh....share pictures! Can't wait to see your "final treatment" outfit too!! Man, I hadn't even thought of doing something like that. lol I SOOOOO hear you on the whole school thing. Every day when my Kindergartener gets home I send her to wash up. She's had the sniffles for the past few days & I'm PRAYING it's just allergies or hay fever or something like that. NO.MORE.SICKNESS.IN.THIS.HOUSE. Puhleeeese!

    Suzanne....hang in there. Maybe in the end it's better safe than sorry, you know? (Like apple said!)  You can do it. I'm there with you having the six. It totally sucks, I could be done now but you know what.....I'll do the six & be "happy" about it because if this does what it's supposed to do then I have nothing to complain about.  Just another month & a half! Hang in there!! Glad to hear you got some nice weather. We're damn HOT here. It was over 90F today. But we're cooling off again this weekend. Thank goodness....I'm so not ready for the intense heat yet this year!!

    Susan....Yay on the clear scans!!!! Hey, did your Onc give you a choice on how long a break you got before you started rads?? I'm wondering what mine will do. I see her a week from Friday & mean to ask her but I'm wondering how long it usually is.

    Dang webbie...I was so hoping you'd say you were feeling better by now! :-(  I am right there with you on the damn cording. And I keep getting these shooting pains down my left arm when I go to straighten it all the way. It's been THREE months since my surgery & you'd think it would start going away. It's very frustrating.

    apple....I'm in awe that you play the organ. It's so complicated. It's like a dance watching an organist play. It's nice that you have something so beautiful to occupy (sp???) your mind. You're not that far "ahead" of me, I'm a 3A but I think I have everyone beat with the size of my tumor. It was ELEVEN centimeters. When they first told me I had no idea how large it was. Until I came here & realized how few people had the "6+" listed in their signatures. Scary depressing. I hope they find a cure for this damn disease. There are too many of us with long, productive lives to lead!

    Ok, I'm going to go kill some brain cells & watch American Idol.

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