**NEW** Starting Chemo March 2009
Comments
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MomOfBoys - I talk about this discussion board all the time to friends and coworkers. They do act interested, so I'm not really sure if I'm boring them. All have been very supportive. They all tell me how strong, etc. I am. I don't really feel that way, just doing what I have to do, those nice comments always make me emotional, and it has alway been hard for me to accept compliments anyway.
Yesterday, I decided I just could not deal with the wig all day at work, so I went in wearing one of my Planet Buffs. The kids kind of hung back, (could have been my imagination, but don't think so). A few asked if I was bald. The principal and I decided we would keep it simple, didn't want to use medicine as a reason, since most kids do need to take medicine and didn't want them to be afraid of that. We decided to say my hair was really thin from treatments and this was a covering. Funny how several parents that wouldn't really mention knowing anything about my "cancer" felt they were able to ask "how I was feeling", like it was ok because I was making it obvious. Another parent, who had chemo several years back for a different type of cancer was proud of me for being able to come to work this way since she felt she couldn't have (she didn't lose all her hair, it was just a lot thinner) during this conversation both of us were tearing up. Another parent (a Dr. or intern) told me how she is thinking of going into oncology and looking for a fellowship in that field, we had a nice conversation about her son's reaction to her mother's hair loss from cancer. Again, I was just was really tired of trying the itch my head with a wig on. Also, just didn't feel like myself, when I would get compliments (wearing wig), it was hard for it to feel they were genuine because of how I feel wearing the wig (which I can't really explain). So I'm thinking my wig will be a room decoration for the duration of being bald.
Kellerka - We are on the same schedule and treatment and I'm so sorry you are having so many SE's from the treatment. We will be 3/4 done on Wednesday, that is my focus.
Gina - I printed the recipe for rainbow cookies because they looked so good, is the one you're making the one with the chocalate layer on top and 2 kinds of preserves? I'm thinking of making them myself!
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You Guys Rock! You are my support group, I have friends and family that are wonderful! But don't have a clue! Thanks for being here! I appreciate each of you. I too read it all and take it in, but find it hard to keep track of everyone! All I know is you are helping me thru 1 Day at A time! Thanks, Dawn
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Okay, here is the evolution of the hair for me. The first is from before this all started. The second is me rockin' the short haircut two weeks ago at a ballroom comp (that was 1.5 weeks after tx 1). The second and third are from today. Geez, I wasn't really missing the hair until I dug up that old picture. *sigh* But, Mikey loves me nonetheless, as you can see, lol.
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Thanks Gina for the wedding thoughts. I hadn't thought of leaving early. Just wondered how to make it thru the long day. It's an hour from my house. For now I'm just going to hope for feeling good. I postponed #4 a week so I'll be on week 4 that day. Giving it every shot!
Nice pics Janet. You look just as beautiful bald as you did with hair.
Hope everyone is getting a weekend like we are in Oregon. Sunny 70's! Enjoy.
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Ladies and Friends,
I had a really bad day yesterday. These SE's seem to effect me on the 4th day out of the chemo. This time it hit me on the Fifth day. I just felt so rotten, diarrhea etc. For that reason I did not get on the board till today. And what did I find two sweet PM messages from Gina and Jan worried about me and the comments Sessna made. I had not even seen Sessna's comments .
I have NEVER sent Sessna any PM's . I will say no more. She has attacked many on this board and some have quit.
Tomorrow is my birthday , This has not been a very good year. Besides me getting BC my 64 year old brother died on July 4th from pancreatic cancer. WE do not have cancer in our family. I guess we do now. I was looking forward to enjoying this weekend with my family. And now this nonsense.
I had really felt that she was done with attacking us. She had been quiet for a while.I guess as my mother always said it takes all kinds..
I have said it so often as others had that this board gives support that no one else can. I now have friends whom I speak with via emails and PM's in Alabama, Florida, Texas, DC, Seattle..etc. Who can ask for more support ?
Let's not let someone ruin what we have worked so hard to make.
We have all been thru so much and held up our heads. We have shared our pets, children, bald heads, recipes, prospects of tattoos.SE's.etc.
Yes thru all we have been warrior princesses. No one would have chosen to be in this group but we have made so much of it.
I too have many friends and family to talk to but they cannot understand how we feel and what we are going thru.
I will continue to ignore the postings of Sessna and continue to enjoy the support of all my friends who stand by me on good days as well as on bad days.
I will continue to post photos of me, my family my cats, my hunks etc. I will continue to enjoy all of our adventures in what a call this journey BC.
Don't worry ladies I am still here. If I could put up with all the medical things which I have been thru this stuff is meaningless.
Have a great weekend..Finally good weather here in NYC.It will be in the seventies.
Hugs to all,
Francine
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Janet.
What a great set of pitures.
You are still glamorous..
Enjoy your dancing..
Francine
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Janet. You are so beautiful. I think you' re even hotter w/o hair. It really does feel so good when you buzz it all off. Hugs
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yes I agree this is the only support forum I need. I heard of a young survivors group here I could go to- but I guess I felt like wouldn't have enough in common with them- and that one or two person could dominate the conversations. Here we can all talk when we want- several times a day if we want- rant and complaign.everyone gets heard. Works great for me, I tell DH and other friends about stories from this board all the time, show him some of the other rockin bald chicks we've got here!
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Janet: The picures are great. You look fabulous. Bravo!
Francine: So sorry you are not feeling well. Hope today will be better for you. I agree that this board has been a great place to come to for support, venting, laughter, pictures, recipes etc. No one can take that away. This year may have been your toughest but brighter tomorrows is what you are putting up the good fight for now ....and you are doing a great job of it! Happy Birthday to you and enjoy the spring weather in New York. Your city is at the top of my to do list. I have so many friends that have gone there and they say it is remarkable. I look forward to going there one day.
Hugs
Beth
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Janet...your pics are beautiful! Crusader1
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Arnie,Thks so much for the delicious cake.
You are indeed a pleasure to have on this board.
Great graphics.
Pickle..Thks for the birthday wishes. Do drop me a note when you visit NY.It is a fun place to go. I am serious. I would be flattered to show around any from this board who come to NYC BTW I have been to Calcary and have enjoyed the whole area..Canadian Rockies and Glacier National park- In US south of you
Hugs,
Francine
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MOB
I tell my friends, family nad husband about all the wonderful ladies on this board. I often refer to them in my conversations. This board is a lifesaver for all...Such great support.
I told a friend who just had a double mastectomy how we post pictures of us bald on the board. She was amazed. I said that is who we are and we are proud to share our bald heads with our true friends. She was amazed. I often tell her what we share ..
Enjoy the day.
Hugs,
Francine
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Francine! I too have had a bad couple of years, but I keep saying"This too shall pass!" Happy Birthday! Keep up your wonderful attitude and you will prevail!!!!! Don't let people ruin you!!!!
Janet ! You are a beauty! DANCEDANCE DANCE!!!!!!
kellerka! Enjoy the wedding, Do what you can!!!! Don't make yourself sick!!
You are all my friends,and we all know how hard it is but there is strenght between US!! Thankls, Dawn
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Janet - You look great in all your pics! Love that dog!!
Kellerka - Enjoy the wedding. It is in the sunny 70's here in Phila. too. Out running errands and enjoying my convertable, nothing has flown off yet!!
Crusader - sorry you weren't feeling well, hopefully day 6 will be much better.
Alyad - we seem to have a lot of the same results on our facebook quizzes!! I think they are fun and silly at the same time.
Going to get the fingernails clipped shaped and painted, minus any cuticle cutting. They are still hard as a rock!!
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The rainbow cookies were a hit. Here is the recipe from allrecipes.com with my modifications
INGREDIENTS
* 8 ounces almond paste (or almond filling if you can find it)
* 1 cup butter, softened
* 1 cup white sugar
* 4 eggs, separated
* 2 cups all-purpose flour
* 6 drops red food coloring
* 6 drops green food coloring
* 1/2 cup seedless red raspberry jam
* 1 cup semisweet chocolate chips, melted, add 1 tbsp butter to keep chocolate from breaking when its cut
DIRECTIONS1. Preheat oven to 350 degrees F (175 degrees C). Line three 9x13 inch baking pans with parchment paper.
2. In a large bowl, break apart almond paste with a fork, and cream together with butter, sugar, and egg yolks. When mixture is fluffy and smooth, stir in flour to form a dough. In a small bowl, beat egg whites until soft peaks form. Fold egg whites into the dough. Divide dough into 3 equal portions. Mix one portion with red food coloring, and one with green food coloring. Spread each portion into one of the prepared baking pans.
3. Bake 10 to 12 minutes in the preheated oven, until lightly browned. Carefully remove from pan and parchment paper, and cool completely on wire racks.
4. Place green layer onto a piece of plastic wrap large enough to wrap all three layers. Spread green layer with raspberry jam, and top with uncolored layer. Spread with jam, and top with pink layer. Transfer layers to a baking sheet, and enclose with plastic wrap. Place a heavy pan or cutting board on top of wrapped layers to compress. Chill in the refrigerator 8 hours, or overnight.
5. Remove plastic wrap. Top with melted chocolate chips, and refrigerate 1 hour, or until chocolate is firm. Slice into small squares to serve.Here is the nutrional info....just so you know you are warned
Update: if you click the nutrional box, it will take you directly to the website.
Here is what it should look like
And here is what ours looks/looked like
Francine - Hope you are feeling better for your big weekend! Thanks for posting.
Janet - Great pics! love the bald noggin. And the dog!
It is sunny and 60deg here (yeah) so off to take Sydney to the gardening shop. Hub got his wish (a big screenTV) ....jeeze does he know how to wear me down on stuff like this! So he has taken little guy to Frys to by "extra" cables. Ya, sure.
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Hi girls. I have a silly question. I had 3rd AC DD Tue. When I left I was feeling too good. I even mentioned to my Sis. I wonder If I got a whole treatment. I havent felt bad yet. This is day 5. I know it sounds silly but somthing has changed.
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Hi all,
I don't often post on this thread, although it is where I started reading when I was first diagnosed. I expected to start chemo in March, but the pneumonia got in the way, so I ended up participating on the April thread. I do feel I have a connection with all of you though, because in my darkest hours, when I was just learning what DD meant, found out how to spell emend, checked into HER2, and became convinced that no, I would not die because I had breast cancer, you were the ladies who pulled me along, all through March.
What has me posting now is that I am soooo sad to see that one very squeaky wheel has gotten a lot of attention where none is warrented. My instinct is to say "ignore her, feel sorry for someone who has to infringe on others space" etc etc, but it's hard to do that when the person is violating (my opinion here) the spirit in which we extend our hand to all who enter here. My only wish is that all who come to this site in need of comfort, knowledge and friendship, will continue to do so - there are many more
ladies that will follow us, and they will need you, just as I did (do). So, while I may be an April Angel (hey, I just made that up 
...the March group got me where I am...thank you allGeri
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Geri! There is always someone who has a self serving motive in any group and I agree you have to ignore that person, because they are using the forem for something it was not designed for. Thank you for your support! I wish you all of the best with your April Angels!!!! Dawn
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Hi gals....when you are logged in you can "suppress" members that you aren't interesting in reading their posts. I really never read any of hers all the way through but once I saw the guns out I had to shut it down for my own sanity. I DO plan on beating this disease....when I saw that she didn't, that did it for me. I don't need negativity while I am going through all this.
hugs
Diane
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Geri - April Angels - that is a great name!! Thanks for staying with us. Good luck with your treatments.
Gina - I'm sure that was the recipe I printed, that I misplaced somewhere. They do look really good, I took lemon breads for the nurses, dr, secretaries last treatment. I was thinking of making something this time too, maybe I will try baking them tomorrow. Yours look really yummy and your daughter's card is adorable. Thanks for the recipe. Enjoy the Big screen.
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Francine Happy Birthday to you tomorrow! Have a wonderful day!
Janet the beautiful salsa dancer.....you look FAB bald. I love it myself. I took my bald head to the Caps game today (they lost
) with only my yankee hat covering it up.....didn't get too many stares, I think I got more from the BALD men LOL!buddy I felt WAY better after my second treatment but they gave me a little less decadron....did they change any of your pre meds that you know of? For my 3rd this Wed, I don't have to take the decadron the night before and they are giving me even less of it through the IV this time, too. They told me I shouln't hit the wall like I did for my first treatment.
gina those cookies look yummy.....looks like a lot of work! About flat screens....my man is now obsessed with his. He upgraded and gave me his for the family room upstairs...I was happy with my 15 year old TV that was given to us used several years ago for FREE...I have no idea what size, it worked for me. I bet your man is in manly heaven.
Everyone......anyone wanting to visit the DC area....please let me know. I am happy to take anyone in and around the city. I am only 15 minutes from Dulles Airport.
hugs to all and have a great night......great weather here, too.
Diane
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Hi Patti
I am going to do some of those silly quizzes on FB tonight....I have a cold thanks to my 18 month old. hugs
Diane
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Buddy - No question is silly. Sometimes I think the same thing because I have had minimal Se's. I just feel really blessed and contibute it to taking better care of myself (eating better foods, drinking lots of water, walking the dog everyday, etc.). Hope you keep feeling good.
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Diane - Does this mean you are going to miss the chocolate party. Take care of yourself, so you can kick that cold's ass! Have fun with the quizzes. I am going to a neighborhood bar to see one of our school parent's band, also meeting a single friend's new man, so I may not be taking any quizzes tonight. Feel better for 3 of 4 on Wednesday.
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Diddle I am so sorry about your cold. You dont need that too. I like to do those quizes also. I am sure none of my meds were changed. Patti It sounds like you have a great night planned. I hope you have so much fun. Hugs to my friends this Saturday night.
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Yeah as much as I wanted to go the party I probably shouldn't.......I am going to cookout for the fam and neighbors and then relax tonight and tomorrow since Monday is a work day.
A cold shouldn't push chemo off with no fever should it? If so I better get the Vit C in me quick. Don't want to "miss" chemo appointment.
Patti, have fun tonight! "see" you tomorrow.
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Diane - I would hope not, but better to get the treatment feeling your best.
Buddy & Diane - It should be a good time, thanks.
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Patti - the rainbow cookies are pretty good (got to admit) but you can't do them all in one day. There's an assemble and refrigerate part, then a chill with chocolate part that you kind of can't skip. Otherwise they aren't hard. Oh, forgot to add that you really should line baking pan with a piece of cut wax paper, and then grease that before putting your batter in the pan.The dough is really thick and you need to spread it out on the wax paper (almost like thick frosting) before baking. This is pretty fiddly, but it is what gets you the thin layers.
That's a really nice idea to take something to the doc/nurses. My place is so big, I have never seen the same nurse twice. Maybe now that I will be going more frequently, that will change.
Geri - thanks for posting. It is good to know that this board can be a good place for support. By the way, what's your treatment/schedule? How's it going?
Diane - I am making plans to come out to VA for my college reunion at end of May. My current plan is to go via Pittsbgh and drive down with my roommate, but if that doesn't work out, I may go via Dulles.
On a side note: I met up with a bunch of other gals on this board who all live in the Seattle area - actually NONE of us really live in Seattle. LOL. (I found them on the Crazy Sexy Seattle thread) We met on Wednesday night and it was FANTASTIC. I've never felt more comfortable and had fun with 5 perfect stranger!
Flat screen TV - I've no idea what the obsession is? Where does this come from? The other TV worked perfectly well. He falls asleep during movies anyway. But he has been talking about this for ages (since the last gadget purchase...and I can't remember what that was). We had an agreement that he wouldn't "upgrade" until next Christmas, but he's been under so much stress lately that I felt like I was being the wet noodle on the topic. Hopefully his euphoria will last longer than the weekend...he has got to back to work on Monday too!
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ginagina! Great cookies. Let the dh enjoy the HDTV, they just love it,my husband got one a year ago, and it is a status symbol. I think, almost like a big diamond. Let him enjoy it! I think this disease impacts them as much as us, it is a problem, they can't fix. My 20th anniversary was Wed. My husband gave me the biggest vase of long stemmed red roses I have ever seen, except for in a funeral home! I think he wants to make me happy anyway he can. God Bless Him and all others who stand by us thru this time! Glad you had fun with the girls!!!
Diane! REST!REST!REST! Drink fluids and rest some more!
Have a great weekend!! Dawn
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Good afternoon/evening ladies. I, too, find myself in the group that doesn't feel a need to find a live support group. You gals are my rock right now!
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