MI Survivors

We have 20 Team members so far with 7 survivors that I know of.  I'm not always getting notice when people sign up and was surprised to see a few more.  

Happy Easter Michiganders and our adopted Michiganders!

Just got my Hug from San Diego.....Thanks Lisa!

We're hanging in there.............about all I can say right now.  5 weeks until the next scheduled CT on DH.

Hey Nancy.....did you see that I 'finally' registered for the walk???  Don't know about the rest of the 'family'.......sent them a copy of your post but don't know if any have signed up or not.

More later........gotta get the biggest part of me in gear............(in other words........gotta get my butt in gear!)

Denise

Hi all--I am finishing up the last of the taxoterribles April 30th!!!  I am almost a week out from taxoterrible #5 , felt okay, but then started spiking a fever.  Now that rant/whine has been spent, I just want you to know I would like to know when you gather.  Summer time is very good for me, especially after I get thru the last of the ses in may.  I am considering the efficacy of rads-one node/stage one- and once that has been figured out, I await the final exchange of the implants.....I hope to hear from you all and look forward to getting together. 

I have also been in contact with some mid michiganders and so will make sure to continue to keep communicating because I hope to have a get together.    So glad for this board, this thread for the chance to talk to others who truly know, can relate, can feel, can cry, laugh and understand.  Michiganders rock!!!  I love this beautiful state. 

May 30th I will be getting together /organizing graduation for the seniors at my place of work.....Keep me posted, though.  Thank you

Hey there, Michiganders - for any of you who live in mid-Michigan, some of us are getting together for lunch at the Mt Pleasant Applebees on Sunday afternoon 12:30 pm.  (Apr 26)   We'd love to have more join us.  I have been lurking on this thread frequently and have noticed that you do get-togethers, but most of you seem to be from southwestern Michigan.  But if there are other lurkers here that are more from my region, then please,by all means, join us!  My name is Sue and you can just ask to be taken to our table upon your arrival.  Please post here to let me know how many I can expect so I can be sure we have the right size table.   I hope some of you are able to join us.  take care, sue

Hi Ya,

Lobby Day is next week in Washington DC.  Many gals from Michigan are going from Grand Rapids, Detroit, Lansing, and Kalamazoo affiliates.  It is April 30 and May 1.  We'll mostly be speaking to legislators about the ALERT Act and the EARLY Act that have been introduced in the Senate and House respectively.  These are great bills and would mean getting treatments to patients sooner and also emphasizing the education needed for healthcare and people of women under 40.

I don't know about the Race.  Ours in Kalamazoo is May 16.  I have company coming from Ohio on May 29 for the weekend so I may need to bow out this year.  I'll plan on next year, OK?  Let me know when the next lunch is and I'll really try to keep the date open.

I wish you well with Race.  It has been tougher this year to get people signed up and to raise money.  Go figure.  Love to all, Linda

Here is the info about the Detroit Tigers ........

KOMEN DETROIT RACE FOR THE CURE® - MAY 30, 2009
Attention: Breast Cancer Survivors!
2009 Komen Detroit Race for the Cure® registered breast cancer survivors are invited to join us for a
special Detroit Tigers game at Comerica Park!


In conjunction with our partners, the Detroit Tigers and Major League Baseball, breast cancer survivors who are registered for the 2009 Komen Detroit Race for the Cure® are invited to attend the Tigers game on Sunday, May 17. The Tigers will "go to bat against breast cancer" while the team takes on the Oakland Athletics at 1:05 p.m. Courtesy of the Detroit Tigers, Race-registered breast cancer survivors are eligible to receive four tickets to this game, to attend with family and friends. Survivors are also invited to be honored and recognized prior to the game on the field of Comerica Park as we encourage Tigers fans to join us at the 2009 Komen Detroit Race for the Cure. Details for this special on-field opportunity will be mailed to you along with your tickets.

To request tickets, email raceforthecure@karmanos.org no later than 5:00 p.m. Thursday, April 30 if you would like to participate in this special opportunity.

Tell us your:

* Name
* Mailing Address
* Phone Number
* Email

using the same information you provided when you registered for this year's Komen Detroit Race for the Cure®.

You must RSVP to the email address above to receive tickets and the opportunity to participate in the on-field recognition. Please RSVP only if you intend to attend the game. With a limited quantity of tickets, we want to be sure the tickets are given to those who will be able to use the tickets.

Tickets are for the May 17 game only, are limited and subject to availability. Tickets are not to be resold and are non-transferable. Tickets are courtesy of the Detroit Tigers and Major League Baseball's Commissioner's Initiative for Kids and are intended to provide breast cancer survivors registered for the 2009 Komen Detroit Race for the Cure and their families an opportunity to share a special day at Comerica Park.


Go Survivors! Go Tigers!

Tigers Logo

Loving the Butterfly, Nancy!

I have no idea if anyone from my 'family' signed up or not.  They've walked for 5 years and I sent them the Post you had here................but I'll be there!!

Mt. Pleasant........haven't been there in years.  Maybe as we ease into summer we could find a 'half way' point where we can meet up.  Love to meet new Michiganders!

Nancy.......sending you a PM.

Hugs,

Denise

Ok, hubby and I have never been much of sports fans but Skinny Carol (who Bonnie calls our onofficial Team cheer leader) is a big fan.  If you guys are going, I could ask dear Carol to go.  Let me know if this is a plan. I hate to take the tickets away from someone who is really into baseball. Her hubby is also a fan so it would probably be me with them two. 

Neesie ..... always thinking of you and your hubby.  Got your PM and back at ya.

Sue and OtherSue - love these names!!! I'm in if we find a half-way point to meet or even if we don't.  We could always car pool and make the trek. Where has Susieloutoo been?

Linda - keep us posted about how Lobby Day turns out. We will be with you in spirit.

Had my BRCA testing this week.  Wasn't expecting another physical for some reason.  Now everybody but the cabana boy has seen my breasts.

Nancy

I thought you might be interested in some stats for our teams from 2006 to present. They are not completely accurate since each year we have had members join us after the official date so they didn't get on the Komen roster. In 2007 we actually had 50 members and 17 survivors. We just missed getting the most-survivor award.

We still have until May 12th to round up our friends to join us. That brings me to a question. I put together everyone's email address from the beginning and can send email to those who haven't signed up yet this year. If you have friends or family members that would find this annoying, can you let me know? I'm not familiar with all the names.

Wings & Tigers fans - hope you get your tickets. 

No one is solo at the Komen walk!  We are one big happy family.  Did you see the post that there is a Detroit YSC group walking?  I told them we would look for them. 

2009
21 members
8 survivors
$415.00 raised
Home Page: http://www.active.com/donate/detroitRFTC09/wingsofhope

2008
34 members
8 survivors
$1990.00 raised
Home Page: http://www.active.com/donate/detroitRFTC08/Komenwingsofhope

2007
46 members
15 survivors
$1670.00 raised
Home Page: http://www.active.com/donate/detroitRFTC/kdNB

2006
25 members
10 survivors
$2250.00 raised
Home Page: http://www.active.com/donate/detroitrace4thecure/meercats

Hi All,

Got my race packet yesterday. Pink survivor tshirts are different this yr no logos on the back. I do like the front and the different quotes. White shirts are about the same and I think shirts fit the same as last yrs.

I did say Hi to the other MI thread. A couple girls close to my area. Wouldn't it be neat if some signed up for the walk.

Wings

OK,

I'm on the page to register for the walk.  Do I want the race packet sent to me or is someone picking them up prior to the race so we can pick them up from them OR do we just pick them up on race day?  Hopefully someone will answer quickly so I can finish my registration.  I hate to spend $8.00 apiece to have my and DH's packet sent here.  I'm so cheap!!!  If I had to, maybe I could send one (mine) then get the other whenever.  Hope to hear from someone in the know soon.

Wendy

Yeah!!!!!

I'm officially part of Wings of Hope for the 30th.  DH too.  Now I just have to start working out.  I think I'll join DH on his evening walks.  Just exactly how far is 5K in miles for those of us metricly challenged?  Oh I feel those aching leg and butt muscles already.

Blessings,

Wendy

This may sound like a stupid question, but, do we all wear the T-shirts for the walk?  I would think so but since I've never done it I'm sure I will have all sorts of questions I haven't thought of yet.  Is there still time to get the tags to put on the boas?  I would like to add one on mine for both an honor and memory of.  My mom died in 1986 and my cousin was dx'd about 6 years ago.  Her dad, my mother's brother, just died last Monday of kidney cancer.  That was one that had not been on the 'family cancer' list.  He was 88 yo and had lived a very full life but it's still a loss since he is the last of that generation on either side of my family.  We had gone down to visit him while we were in FL and I'm very happy we did.  I was able to clear up some geneology facts, although I'll have to really verify some of the info since he was kinda out of it.  The one kidney had totally shut down and the other was desperately trying to keep up. It was only a week between hospital admittance and his death.  I'm thankful it was so quick and his suffering was minimal. 

I don't know what my cousin is going to do.  She is trying to get on the liver transplant list and unfortunately, I think she is too sick to even have the surgery.  Her kidneys are starting to shut down because of the liver and I don't know if she can even live alone.  She doesn't take the meds she's supposed to because she forgets because of the toxins in her body and then things really start to get bad.  3 weeks ago they admitted her to hospital and she received a pint of blood so that picked her up but she's bleeding internally for somewhere in her body that they haven't been able to find.  Her brother and his wife live up here in MI and want to move her here but she can't take the cold.  I really didn't expect to survive my uncle.  I don't think she did either.

I would really encourage everyone to talk to their older family members before it is too late.  I had never know that he was almost shot by a Japanese soldier that didn't know the war had ended when he was sent to the Phillipines to help rebuild the island after the Japanese surrender.  I guess the guy was almost out of his mind and the Army had to bring in a high-ranking Japanese soldier to convince the Private that the U.S. had won.  While he was there, he contracted polio and was flown back to the states in an iron lung in a medical plane that had no heat what-so-ever.  They said he would never walk again and boy did he prove them wrong.  He was a wonderful golfer and did some amatuer competitions.  In the past few years, he had been experiencing 'post-polio' symdrome which had been really affecting his left side.

I don't know if anyone else has worked with the VA system but they are horribly understaffed.  I know they are doing the best they can but it is the vets that are suffering.  They should be treated far better than that for all the sacrifices they have made, but I don't know what any of us "regular" people can do.  My DS volunteers to play Taps at military funerals and every Memorial Day since he was 10 he plays over his grandfathers and great-grandfathers graves.  It is so wonderful to see everyone stop what they are doing as the song floats over the whole area. It's too bad he will not be home but in CA for his great-uncles memorial service.  I know he would have considered it a great honor.

Well DH just called and he is on his way home.  He had been installing some software at the office that was only 'going to take a minute'.  Famous last words and 1 1/2 hours later!  I had actually started dinner and it was going to be ready on time.  This seems to happen every time I'm prepared.  Maybe I'm being told something.  Have a great evening and take care everyone.

Blessings,

Wendy

P.S.  DS just called and pulled a 3.1 GP.  Yeah!!!!!!!  This ensures continuation of his scholarship for his senior year.  Sure is a weight off of shoulders, his and ours.

Wendy - Yes, we wear the pink survivor t-shirts and our friends and family wear the other one's. Some teams design their own but we do other things to stand out from the crowd - like the head boppers.

Yeah for your DS and his GP! Also - Great you and DH joined the TEAM!!

That makes 23 members and 9 survivors! We have until May 12th to round up more people to join us. Giddyup!

I'm sorry to hear about your family, Wendy. Your uncle sounded like quite an inspiration. I just started doing some genealogy on my family and created a website to keep everything together. My cousins did tons of research already. I took the photos and info from a family bible and scanned them in so we don't lose the info.

So, yes, that is what I've been doing instead of working on our Wings of Hope website. That is on my list right now!

Judy - I sent you a private message. I have one Large t-shirt we can swap of my DH and one small of mine since the survivors get a spare one every year (not pink). Maybe one of the other survivors on the Team doesn't mind swapping a Large for an extra Large of their spares? Do you need two? If that doesn't work out, we can send email to RaceLadyJan and see what she suggests. It used to be easy to ask someone at package pick up if we could swap but they changed the procedure.

About Team MEET from the Komen Site: "Meet your team beginning at 6:30 a.m. at Olympia Entertainment's Madison Lot, 111 Madison, bordered by Witherell, Adams, Madison and John R, directly across from the southwest corner of Comerica Park -- a short walk to the Walker Start. Bring banners, signs and team spirit -- photographers will be shooting, and secret judges will be on hand, scouting out the winner of the Visions Spa Salon "Spirit" Award. Foot traffic only; no vehicles in Team MEET!" (I didn't know that about the Spirit award)

We always have a hard time with this because the lot is too crowded. We will work something out and we can also plan pick-up spots to do some car pooling. For a couple of years, a bunch of us met at the Meijer's parking lot in Livonia. Damn, I have to verify that. It was close to 96 around Canton or Livonia. Is there a Costco around there also? We ended up taking a few cars but followed each other in and that worked out fine.

I'm starting to get psyched about the walk! Someone post after me. I hate being a post killer.