continued Tissue expander pain!!

Options
17677798182105

Comments

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited April 2009

    Georganne - Sorry, I haven't had a pop. But I do know that I used to feel like they had shifted out of place and I needed to "shift" them back. Best wishes. - Jean

  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    HI- I have asked on several other threads -----maybe some of you can help.

    My question is:  Is it normal to have brusing after a fill?  I just had my third, and probably final, fill and it hurt terribly.  I started getting a rediddsh, purple bruise over the bottom 1/2 if not 3/4's of my breast.  The incision seems fine, but I am so concerned.  It appeared 2 days after the fill.  I do have a call into the Dr's office, but haven't heard back.

    Thank you

    MB

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited April 2009

    MB - Sorry I can't help you. I never had any bruising. You might post the question in the EXCHANGE CITY thread. There are a lot of women there that have had TEs. Are your fills very large? I never had more than 60 cc at one time. Gentle hugs. - Jean

  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    Thank you Jean- I will do that.  No, my fills have only been 50ccs.  Started with 100 at placement (delayed recon so mx had already healed).  Have 2 at 50 then this third, and I think it was 50-felt like 500 tho!  I do have a call in. 

    Thank you, again.

    And gentle hugs to you : )

    mb

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Hi all,

    I noticed my skin started to get red a day after my last fill 3/6/09. It doesn't feel hot and I don't feel sick or have a fever but I went to see the PS last night, he tried to get some fluid from around the expander, but there wasn't any, he said thats a good sign. He has now put me on Cipro (anitbiotic) just in case it's an infection. He said if it doesnt clear up I may lose the expander. Says I will have to wait 3 months to try again! I sure hope it clears up soon! Anyone ever have this problem?

    Dee



  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    Hi Dee.

    I am dealing with a painful fill and the appearance of a reddish, light purplish bruise along the bottom hemisphere of my boob.  It is hard to tell the color because the expander is casing weird shadows. I hope the anitibiotic does the trick for you.  I am waiting to hear back from my ps office.

    Good luck and keep us posted.

    mb

  • traceyz
    traceyz Member Posts: 745
    edited April 2009

    Dee and MB,

    I hate it that you are both dealing with TE issues!!Yell I am hoping and praying that things get better and you continue on with your fills and later your exchange. Best wishes to both of you!

    Tracey

  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    Thank you very much Tracy.

    I have to giggle.  I first noticed your posts because I grew up in Hampton Va.  Then- I do believe I noticed YOU on the calendar in my oncologists office!  You are a beautiful woman and I appreciate all the posts I have read from you, supporting all of the awesome ladies on this board.

    God Bless,

    Mary Beth- Williamsburg VA

  • CAZ
    CAZ Member Posts: 678
    edited April 2009

    Tracey's a calendar girl?  I should have suspected.

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited April 2009

    Dee and MB - I had a small infection a couple of weeks ago that cleared up w antibiotics. I pray that your's does too!

    Tracey - You are beautiful in your picture. It doesn't surprise me that you would be on a calendar! I am with Carol! It figures!!

  • traci126
    traci126 Member Posts: 23
    edited April 2009

    Hi All  - I'm new to the forum and have a question please.  I had BLM on 3/2 with TEs.  They put in 200cc initially.  I started getting fills of 50cc at week 3.  They have always felt firm, but a few days after the last fill they got really hard.  There is no firm to them now just hard.  I've seen a lot of postings that say TEs are hard, but is it common for them to feel more firm and then go to very hard?  I talked to one of the PS nurses today but I'm not sure she really understood that I could feel a big difference in hardness.  Anyone else have their TE get much harder over a few days?

    Thanks! - Traci 

  • italophile
    italophile Member Posts: 1
    edited April 2009

    Hi - I'm from Va, too, so it's nice to note that Mary Beth & Tracey are, too. It is so helpful hearing that most of you are experiencing similar issues with TE & fills after mastectomy. Mine was 3/26 with immediate TE placement, 200 cc then, and 2 fills of 50 cc since, latest yesterday. Continue to have pain (i.e. not just "discomfort"), tightness, and some bruising. For me, it was prophylactic bilateral after mom and 2 sisters with BC. I was blessed with a patholoy report showing no  BC. I SO  ADMIRE you brave women who are dealing with chemo & radiation treatment!! My thoughts are with all of you.  Thanks so much for sharing - Edie

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited April 2009

    Edie - There are a few of us here w/ PBM and I agree, I totally admire our other sisters!

    Traci - I am not sure how hard you mean. My TEs are certainly firm. If you are really concerned, I would make an appointment w/ your PS.

    It gets easier over time ladies.

  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    Hi Lady from Virginia.

    This TE is like nothing I have ever experienced....But, I do believe that it will be worth it.  How is your bruising manifesting?  Is it localized?  My whole boob is throbbing.

    Take care.

    mb

  • mbscruggs
    mbscruggs Member Posts: 141
    edited April 2009

    Thank you, mykidsmom.  I am still very bruised feeling, but my husband said it looked like the color was decreasing, so I am hoping so. 

    I hope all of you ladies are doing well today.

    mb

  • traceyz
    traceyz Member Posts: 745
    edited April 2009

    Mary Beth,

    Thanks sooooooo MUCH for the kind words! Wow I cant believe you were able to you were able to connect me to the calandar...how cool! I guess you could say that its a calandar that nobody really wants to be in but I hope it helps women find strength and know that they are not alone! You should come to a Beyond Boobs meeting. We have them right there in Williamsburgh, but be prepared to laugh because we are not your average support group.

    CAZ, I was in a breast cancer calander for 2009. If you go to www.beyondboobsinc.org you can take a look at it and even order it. We call it a breast health manual disguised as a calander.

    Edie, No worries. The more fills I got the harder the TEs. I mean they were like knocking on wood! My 1 yr old nephew bumped his head on my chest and I just knew I had cracked the kids skull! He even looked up at me like he knew that wasnt right! Just hold on my sister because the exchange is like night and day! You go from rocks to pillows! Hang in there!

    Thanks again ladies for your sweet compliments! You are ALL beautiful and FABULOUS!!Kiss

    Luv ya,

    Tracey

  • oncRN
    oncRN Member Posts: 71
    edited April 2009

    Edie, I am your prohylactic mastectomy twin! I had mine the same day, 3/26.  Had 350 cc put in with placement, and will not receive my first fill unti 4/29, five weeks after surgery.  My PS suggested going slow, 60 cc every two weeks and waiting a good while before the first fill.  He feels we have the luxury of time since I am prophylactic (no radiation or chemo related deadlines to work within) and I told him I really wanted to avoid pain that would cause me to miss work.  I did return to work full time today, one day shy of 3 weeks post-op, and I did fine. You might want to consider slowing down on the pace of your fills if you are having significant pain?  Just a thought!  Good luck!

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    I had my first fill Monday, 50 cc's in both.  Oh my goodness!  Its not the same kind of pain as it was 2 weeks ago but it hurts and burns.  I am seriously hoping that I dont have to feel this way all the time because its seriously wearing me down. 

    Teresa

  • Estepp
    Estepp Member Posts: 6,416
    edited April 2009
    Tracey is just HOT... calendar or not...HOT!!!!!!!          Wink
  • YvonneB
    YvonneB Member Posts: 302
    edited April 2009

    Love the calendar Tracey! 

  • traci126
    traci126 Member Posts: 23
    edited April 2009
    Thanks for all the input and suggestions.  I've only got 2 more fills so I hope it's what Tracey described as knocking on wood!  Smile  I'd rather have hard TEs than drains any day.
  • CAZ
    CAZ Member Posts: 678
    edited April 2009

    The most distressed I was about the TEs was because they didn't move.  The implants are soft, squishy and mobile.  Huge difference.  Hang in there.

    Carol(AZ)

  • Georganne
    Georganne Member Posts: 75
    edited April 2009

    Traci126,

    I had my Prophylactic BLM on 3/3. I had 225 cc put in with surgery and since have had 3 expansions of 50, 100, and 100ccs. I too am experiencing the hardness in my expanders.  It feels like I have hard plastic thick frisbees in my breasts.  It is very uncomfortable, but hopefully when we get our implants we'll feel relief. When are you slated for your exchange? I'm supposed to have at least 1 more fill of about 100cc then the exchange in late May or early June.  I'll say a little prayer for you.  Hang in there. Georganne

  • traceyz
    traceyz Member Posts: 745
    edited April 2009

    Thanks Laura and Yvonne!Embarassed You make me blush!!

    Love ya ladies!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Tracey

  • traci126
    traci126 Member Posts: 23
    edited April 2009

    Georganne,

    I'm at 400ccs now and will have at least 1 more 50 fill and maybe 2.  The PS and I wll meet after my next fill and we'll decide on whether to have the last fill and hopefully what my exchange date will be.  I have a business trip in June so with any luck I'll get a July date.  You're strong to be getting 100 at a time!  Are you still sore from the pop you had?  Hopefully it's had a couple of days to work it's self out and is much better now.  Don't want you to have to put of the exchange!!  Traci

  • Georganne
    Georganne Member Posts: 75
    edited April 2009

    tracy 122,

    I have not had any significant pain at all from the "pop" and since my last fill. I'm actually more sore at the site where my drain was on the left. I hope you're feeling better too.  Georganne

  • Red91RU
    Red91RU Member Posts: 29
    edited April 2009

    I feel your pain ladies!  I had no idea the TE process would be so painful!!  I've needed percocet for each fill.

    I started out with 60ccs in surgery on 3/10, then had my first fill 3 weeks later at 50ccs.  I was still in pain from the surgery that I couldn't differentiate fill versus surgery pain.  Then my next fill was 60ccs and wow, was I beside myself.  I couldn't breathe.  The pressure was so intense on my rib cage. It took 4 days to feel better.  After that experience, we went to 40 ccs and that was much, much better.  This week I did 50ccs which had me shaking in pain last night.  But I'm starting to bounce back.  My doctor recommended a heating pad on my back and that has really helped.

    I'm also experiencing some bruising after each fill...not black and blue, just a red discoloration under my skin. 

    According to my doctor, everything is fine and looking good.  But yowie...the stretching process is something else.  I can't believe what our bodies can do.

    It helps to read all your posts.  I'm finding with every fill each week, the pain is different. 

    The nurse told me more difficult, not easier as the process progresses.  That scares me because its been rough from the start and we've had to be very conservative in the fills.  I'm in denial on this one.  I'm hoping with each fill it will get better.  I don't know how some of you manage the 100cc fills.  Power to you!

     Wishing you all a comfortable week.  Good luck with the fills.

  • Peggio
    Peggio Member Posts: 274
    edited April 2009

    Red- I too have had a hard time with the fills and only got usually 50ccs each time.  My first fill was 100ccs and I almost passed out from the pressure.  My 2nd 3rd and 4th fill were okay.  I usually waited 3 weeks in between fills.I had rib cage pain where I felt like my ribs were bruised about 3 weeks ago and I'm glad I still had the vicodan from the Mx. I felt like I needed one more fill before my exchange and it was really painful. Again I'm glad I had the vicodan and I also had the PS give me  muscle relaxers. I told my husband the other day, I wished I would have kept up with yoga and been more stretched beforehand. 

    The good thing is  the discomfort ends each time. Hot showers help me and stretching.  Also my DH rubbed my back right around my ribcage and that helped.  I am done with fills and ready to get these expanders out!  So my exchange date is May 19.

    Your exchange will come too  - but go at your own pace.

    BTW I was only filled to 400ccs and I can't imagine 700ccs that some women get! You can PM me anytime if you want.

    Peg

  • SaraJane
    SaraJane Member Posts: 75
    edited April 2009

    Hi Ladies, 

      I wanted to post in here again and share my 'GOOD NEWS' :)  Too often we will express our bad and forget to share our good!!  To start from the start... Bilat w/ immediate recon (expanders) Feb/10/09  ... drains out after one week and deemed 'Cancer Free... no chemo no rads!!'... stitches out @ two weeks. I had a small fill at surgery time, Right only 60 cc's none on the Left as my PS was worried about my skin.  First post surgery fill first week of Mar 60 cc's on L only.  Mar/11 I had 100 cc's on both sides followed by 60 cc's on both sides on Mar/17 that took me to 220 on both sides (and we're aiming for 450 to allow room for 400 cc implants).  

      That was when my skin (on and around the incisions) started to blister/open/drain/bleed and just didn't seem to want to heal.  I was told it was abcessed stitches, that it was 'pissed off skin', that it was 'unusual but would be fine'.  This seemed to go on forever...   During this time I was not only terribly worried/frustrated but I also had unbelievable pain on my left side from the expander pushing into the muscle.  I had no fills again until April 14th when I had 60 cc's on each side.

      Once again, after the fill on Apr/14th the skin opened on the L side and emitted some clear liquid and when I squeezed the hell out of it, it pushed forth a small white mass... very similar to what the ps's assistant had called 'an abcessed stitch'.  

      I'm very happy to report that the pain has almost completly gone.  I had a very successfull and almost painless fill of 80 cc's on both sides today (just a few rib pains and some tightness.. but nothing overwhelming... so far!) and the skin is FINALLY looking okay!!!

      *BIG DEEP LONG SIGH*

      My long winded point is... *nods head* YES... the whole process sucks.  We have to deal with unknown/foreign pains/feelings that seem otherworldy to us.. but the PS says 'it's normal'... but we will get through this!  

      I'm going to finish my glass of wine, carfully lay myself in bed... try to stretch my L arm above my head and rub the cording (scar tissue) below my expander... and thank my lucky stars that the Cancer is gone... and that THIS TOO SHALL PASS...

      I wish you all sweet dreams and healthy tomorrows ...

      Lisa :) 

  • traceyz
    traceyz Member Posts: 745
    edited April 2009

    Lisa,

    You are correct my dear! This to shall pass!!!Wink Heal well my dear!

    Tracey

Categories