Was your surgery hard or easy?
I was just reading in another thread that some say a lumpectomy is easy and some say a mastectomy is easy.
My lumpectomy was not easy. I had a large lumpectomy 10 cmx 16cm, and had axillary nodes removed, high and lo. I have an 8 inch scar on my breast and another scar under my arm. I have over 20 surgical clips in my breast. I had 2 drains, and I couldn't even get out of bed by myself because of the drains pulling when I tried. I was on 500mg Vicodin, an even so the pain was excrutiating because of the drains.
It was such a relief to get those out, and it hurt like heck when I did. (stupid drains had "shoulder" on them and that's what was causing most of the worst pain.
I still have pain in the chest/breast/under arm area.
This kind of goes along with whether chemo was hard or easy for you.
I just wish when a person says "it is easy", they would take into account that it may have been easy for them and may not be easy for others, and just say "it was easy for me." Ok that was mini rant. Lol
But, was your surgery hard or easy for you?
Comments
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Wow, do I sense some anger? When a thread asks how it was, we respond how it was for US. How else could we respond?
If you have never had surgery before, it will be a shock. If you have, oh, let's say, given birth or had a major surgery such as a hysterectomy, a mastectomy is not bad at all. I've had them all. With lumpectomy or mastectomy, there are no bones, muscles or organs involved so there is no pain from that. If you had tissue expanders or immediate reconstruction there is the discomfort of that to deal with.
If you'd had a mastectomy instead of a lumpectomy you wouldn't have 20 clips in your breast. You will often see "us" say how the drains were the most hassle! I hoped the nurse opened the drain to relieve the pressure and remembered to remove the stitch before she pulled out the drain for you.
I think where your pain is coming from the worst would be the nodes. For some strange reason (nerves? muscles?) the node site is always the worst! I just found out yesterday I had 13 removed, not 1 and have to change my signature line. I was wondering why I was still numb....
I still consider my surgery easy; even with my 24" incision from armpit to armpit! I only used regular Tylenol and I have a very low tolerance for pain due to Fibromyalgia.
Hope you're feeling better!
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Yeah, a little because I get tired of people saying "oh it was a breeze". While it was for them, it may not have been for someone else. I mention the clips because sometimes people think a lumpectomy is easier than a mastectomy, while that's not always the case. Maybe a small incision, but not all lumpectomies are small.
My drains weren't clogged. There was no stitch. They used a type of drain that has a "shoulder" at the top. That's what caused the pain. I was about to ask for stick to bite on when they pulled those drains out, because they had to pull that shoulder through.
I've had a baby and it didn't seem this bad, and that was before epidurals. Lol
If I ever have to have drains again, I'll demand the type without shoulders.
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Yeah, your arm pit may not have feeling for a long time.
I had 17 nodes removed. They kept me overnight in the hospital when I had my lumpectomy/axial node removal.
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That was decent of them to keep you overnight. Do you read now that they consider a mastectomy day surgery!!
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Yeah, that's unbeliveable! I think I signed a online petition to keep it as overnight.
Can't remember now. Brain cells are going too.
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It does depend on what you had done, mine was easy because I had a small tumor, only one node out, and no drain. That doesn't even compare to what you had done. If I had the same surgery as you I would probably say it was awful. Peace to you, Tami
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What bugs me is when the doctors tell you it will be a piece of cake. I fell for this over and over again....the first was some exploratory laparscopic surgery. Dr. said I'd be okay to go back to work after a few days. It was over a month before I could even take a small bag of garbage to the curb. And then the mastectomy. The first, my surgeon told me after 2 weeks that I could go back to work, and I had to argue with him and explain why I needed him to write me a note for more time. I sometimes lift plywood at my job. It was like almost two months before I could get back. I was a basket case: problems with meds, pain, you name it. I'm going in for a double DIEP (which I always think sounds like some really yummy dessert!), and I AM NOT FALLING FOR IT anymore! Surgeon said 2 months? I booked an additional month off. But the previous posters are correct: it depends on the person. I just wish the doctors would say: most women need "x" amount of time to get over it, but some need way more...at least you'd be prepared!!! Don't get me started. ;-)
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Katalin, did your doctor realize you have to lift that much? You can't do that, after your recon either! You can rip internal stitches even if nothing seems to be happening on the outside. I didn't get recon because I can't miss the time off work. You take what you need for yourself. Gentle hugs.
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I had a mastectomy and my stitches went from the sternum all the way under my arm. This was the very first time I was ever in a hospital and I never had surgery before, so I expected nightmarish, horrible pain, etc., etc. So, in comparison to what I expected, it was easier. I do remember waking up and screaming in pain. They were still working on me, I think in the recovery room. My armpit was beyond what I could ever describe. They asked how bad the pain was on a scale of 1 to 10. I screamed out -- 10!!!!!! They put me out, and I woke up in a room -- no pain. I had what I would call discomfort with the drains. They seemed to press on my ribs and yes, they pulled when I tried to get in and out of bed. No one told me about the constipation either and I had a terrible time with that.
All in all, I would have to say the radiation IS BY FAR much more painful for me than the surgery. I am a burnt extra crispy, peeling, weeping, oozing mess! Can't wear clothing on it and just in the most horrible pain with it. I'd take surgery any day!
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I was one of the lucky ones. A lumpectomy, no drains, clear margins, and ready to go up and out in a day.
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I think that surgery is much like having a baby. It is horrible pain while it is happening and then as time goes on we say "it wasn't that bad." I feel the same way about chemo. It was awful at the time and I would never do it again. Now, if I needed to, I could do it again.
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My lumpectomy and SNB were very easy. Although I woke up in a lot of pain in the recovery room, they gave me lots of meds, and after that I didn't need to take anything but Aleve for a couple of days. I have quite a large scar, but it's completely under my breast so that probably made things easier. The SNB scar is pretty large, too, and that was much more uncomfortable and gave me numbness and tingling down my arm for a few weeks.
I had a second surgery a week later for Mammosite placement and then 5 days of radiation, also with very little side effects.
All in all, for me, the scare and stress of having breast cancer was far worse than any of the treatment.
Tricia
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Brenda my surgery was tough - but doable - before I had the MRSA. I thought I was mentally prepared for the pain since I had 3 c-sections and a hernia surgery. After my unilateral mx with immediate free-tram, I stayed in the hospital for 5 days (Mon - Fri). I was fine in the recovery room - and later, the pain was bearable WHEN the nurses brought my pain meds on time. Then, on Wednesday when the night nurse came on duty and never brought my pain meds (she was busy doing paperwork), I had to ring and ring and ring and no one came. The pain became a nightmare! So finally I dragged myself out of bed, bent doubled, made it to the doorway and yelled "WHERE ARE MY PAIN MEDS!"
Boy that got people running in a hurry! (BTW - I did register a complaint against her. All my other nurses were angels.) By Friday, when they sent me home, I was feeling better - I wasn't able to raise my arm over my head or stand up straight, but I felt happy that I was well on my way to recovering even with the annoying drains.Two days later, I was in the emergency room with pain off the scale, difficulty breathing and a fever. When they finally got the pain under control with IV Dialuaid they found I had a gallstone and said it was the cause of my fever. A couple of days later they scheduled me for a special gallstone cat scan - which meant I couldn't have pain meds. They brought me down in a wheel chair for the scan and the women technicians said, "Ok - hop on the table." The table was narrow (about 8 inches wide) and very hard. I was able to sit there but I couldn't lay flat. They tried to help lower my torso down flat, but I started crying and then screaming in pain! The woman looked so surprised - and told me, "didn't they tell you this procedure requires you to lay flat for nearly an hour? without pain meds?" I said "No!
Then with a negative comment against the doctors who ordered this test (because obviously the doctors were CLUELESS as to what was involved in the test and my ability to withstand it) - the technicians (who really were angels) sent me back to my room. Low and behold - turns out I did NOT need that test - they ordered a different cat scan which did allow me to have pain meds. Another angelic nurse ran downstairs right before I was to go into the machine and started the IV pain meds - which took effect immediately. I was in heaven - was able to lay flat and withstood the shorter scan very well.UNFORTUNATELY - all that laying flat on my back put undue stress on my abdominal incision which, on top of the loss of muscle due to the free-tram and the MRSA staph - made the incision reopen. Yucky mess - packing that wound twice-a-day for four months! And all that gall bladder scanning was for nothing...........because when they finally got hold of a gastroenterologist - he looked at all the liver enzyme numbers and scans and declared that it was NOT my gall stone causing my fevers but the fluid build-up under my abdominal incision. So finally after 10 days of testing and poking and pain, the plastic surgeon was forced to aspirate the fluid in my side. I remember hearing nurses in the hallway whispering about the large amount of fluid he took out, but I don't remember the number they used. Two days later - it came back positive for MRSA - even though I was already on IV antibiotics including vancomyacin (my lungs had already tested positive for MRSA when I first arrived in the ER.) So they finally added another antibiotic to my cocktail and within 3 days my fever stopped and I was able to go home.
SO........my answer to your question is - my surgery was EXTREMELY hard - and so often I look back wishing I had opted for just a lump with rads. Still, finding out after my surgery that I was Her2++++ made me feel perhaps it was worth going through it to reduce the risk of a recurrence and, in the long run, when I get all my revision surgeries over with - maybe this time next year I'll forget what happened to me and will stop venting here at bc.org. In the meantime - thank you all for patiently listening to me tell my story over and over again - I love you all.

P.S. Barbe - do you sense MY anger here?

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Brenda.. I do not have much to add here... I had a pretty easy mast... BUT.. I just wanted to say to you and ALL ladies like you... GOD BLESS and I AM SO SORRY... eeeekkkkkk
(((((((((((((((((BRENDA)))))))))))))))))))))))
((((((((((all ladies like Brenda)))))))))))))))))))
Love Love Love..
Breast cancer sucks!
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Bilateral mastectomy with tram reconstruction here. I felt like I had been hit by a bus!
Node removal is probably the worst part though - I don't like all the creepy sensations that go along with the recovery
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Swim, I find you anger is very focussed now! Good for you
Time to write all those pissy letters to the hospital. You sound rational and very clear in your relating of the horror you went through. Time to start some bitchin'! -
Hi everybody, I had my lumpectomy on 3/17. I took 3 Vicodin total afterwards. No pain at all on second day, just had a pulling sensation of discomfort. When I removed the dressing that night, I discovered it was the tape pulling on my skin. No more discomfort. Basically no pain or discomfort since then. When they took of the steristrips, I couldn't believe the incisions were as big as they were, as no discomfort involved!
Tomorrow I go in for my mastectomy. My surgeon told me it will not be much worse, the incision will be a little bigger. So I don't anticipate much more of a problem than I had a month ago.
Worst surgery I had was 10 years ago, total hip replacement with bone graft. If that's a 10, the lumpectomy was about a .5. Had a lap cholecystectomy 2 years ago, that was the easiest surgery I'd ever had. The lumpectomy was no worse.
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Hi I had my mastectomy Tuesday morning at 7:30. I was home by 1 pm. They put in one drain. And something new (they told me it has been available at our hospital at least for only a week.) An automatic pain medication pump. I have had virtually NO pain. This afternoon the doctor pulled the pump and since I have no pain anyway, I am much more comfortable tonight. Couldn't pull the drain. He thought maybe tomorrow but I think it will probably be on Monday. My main problem with the drain is I have a lot of difficulty sleeping on my back. Tuesday night I slept about 2 hours. Last night, from midnight until about 3, then restless for an hour an a half or so, then slept until about 7:30. Dr gave me Ambien today. It's now 8:30 and I'm feeling tired now, so it will probably go better than last night.
The supervisor from my office in the hospital went back to see me Tuesday afternoon and I was already home. Two of my friends stayed with me and took me home.
Wednesday the bra lady is coming to see me.
So far, this has been a lot easier than I expected.
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One more thing. I have friends bringing in food every day. Tuesday rotisserie chicken, yesterday chicken and noodles, tonight vegetable beef soup and corn bread. And more to come on the weekend. mmmm.
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Hi - had my lumpectomy and sentinal node removal 3/25 (no node involvement found but only sentinal removed) and never had to take a pain pill at all. However, path said all margins were not clear so had a re-excision on 4/8 and I am still suffering! It was so very painful that when I woke up in recovery, I was crying. My breast surgeon assured me it was due to having to reopen the large incision and go back into the recently healing area (she took a lot the first time) and then excise even more. She again said she took alot as she wanted to be sure of clean margins. If this didn't work - mastectomy would be next. Fortunately, my margins were clear after the re-excision. My growth was 1.2 cms but in 11:00 position deep below the nipple but not to the chest wall. My incision is freaky. It is my right breast and incision starts just a small distance from sentinal incision, actually on right middle side of breast to the nipple, then it goes up and around the top of the nipple and back down to the middle of left side of breast almost to sternum, so it is quite long. She reopened the same incision. All I had for pain was darvocet and she had me on Keflex for a week. I went back to work, still in pain with my sports bra on and a panty liner in my bra to catch the "ooze" that was coming from the corner next to the nipple where it met with the straight incision and began to go up and around the nipple. She saw me one week later and said everything was normal and that it would be painful as she took a lot more out. She said I didn't need to refill the Keflex - just to give it time and see her in six months. It was two weeks yesterday and I am still in pain. The whole damn thing hurts and now my nipple has become extremely sensitive - almost feels like it's burning from the inside. I am miserable. My onc (start chemo on the 30th) saw it Tuesday and suggested I go back on the keflex for another week. I am suffering now and have to start chemo on the 30th. Ought to feel just grand after that too. The oozing of that corner, which was raw looking, has just about finished and I took off my sports bra to sleep for the first time Tuesday night - left off the damn panty liner, figuring I was keeping it too closed up and airless. That has helped alot as it does not look raw any longer, but now the damn nipple hurts.
Does this damn crappy pain ever end. I hate this damn cancer. I guess from the above, you can tell I am not a happy camper.
Linda
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Linda, I emphathize with you. I can't tell you if it will ever end, only that it will get better.
Chemo can be a whole nother thing. I hope chemo is easier for you.
Hugs to you.
Brenda
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Much thanks, Brenda - and I wish you nothing short of the best.
Linda
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Well I finally found the thread I posted on the other night. Guess my mind's going??? Anyway I just came from the doctors office, had the drain pulled. He said everything looks good. Although I was not in any pain to speak of before, now I have the bra on and am feeling much better. I have a checkup Monday morning, then need to start planning my vacation! My granddaughter is graduating from high school on May 28 so I'm going to Illinois for that! Then when I get back, I have the appointment with the oncologist to see about the Arimidex.
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I was dx in April 2007. I had a lumpectomy in May 2007 because my surgeon wanted pathology on the monster first. I told him I'd be getting the bilateral mx for peace of mind.
The lumpectomy was easy; the sentinel node biopsy was a bit painful in terms of reaching high up afterwards. In 3 weeks, the SNB issues were fine and in June of 2007, I asked for a bilateral MX for peace of mind (docs were very upset with me and insisted I leave the lumpectomy but I did not want radiation). For ME...and yes, we are all very, very different, the bilateral mx was a cake-walk. I took no pain meds (my surgeon was horrified when he came to see me the next day and saw the chart and the pain pump in the hall). Since I'd already had a SNB, I didn't require anything further with that and the healing was much easier. For ME, I was able to go back to my yoga within 1 week.
I opted for no reconstruction and I know that helped with the recovery.
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Hi all, I had a lumpectomy Aug. 16th and was rushed back down to the surgery room to have a drain put in for the Hematopin(spelling?) I had because I was on heprin. I had Open Heart Surgery 2 times the last time was 4 years ago, I had a valve replaced and one fixed as well as an ablation to my heart....because of valve I have to at all times to on a blood thinner or I will clot. The operation in comparison to the last OHS was so so much easier. However, I am dreading radiation , for I have heard how tired you are.......and I dread taking the Femora pill that I must start in 2 weeks..I feel ok now and just wish this whole thing was behind me....I had 4 nodes taken out 2 were cancerous. I went to Dana Farber and they said no chemo...so that was ok by me.......so all in all ,no I consider this surgery easy.....I admire and respect all of you here, for it is so hard hearing the word Cancer, my mom had this horrible illness also and I remember her and how sick she was........I hope you all are doing ok with this crummy illness, thank you for reading my story
Lynne -
Wow - didn't realize how lucky I was. I had a lumpectomy, and then they had to go back in to clear margins - have two two inch scars. The most painful part for me was when they injected the dye for the SNB. Nobody warned me about that lovely part of the procedure - my nipple hurt worse than the two incisions.
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Same here guitarGrl, that dye injection was very painful, in and out 5 times. I had to go back for clearer margins less that 2 weeks later. The incision is around the top half of the areola, hardly noticable now. Other than that I was back at work in 4 days.
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