**NEW** Starting Chemo March 2009
Comments
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BandanaGirl:
It sounds like you are about a month ahead of me. I get my last AC on 4/21 and then start 4 Taxol. How did you manage the AC? I don't do well from the day of until about 7 days later. Nausea is awful. I force myself to eat something about day 5-6. I am tired, but feel better when I am busy. I take Claritin for a few days and the neulasta shot hasn't been too bad...hurts like a son of gun when I get sick though!!
You mentioned you feel O.K. by day 4. Do you get an upset stomach or just achy and tired? Did you have any reaction to the TX? What med changes did you make between the different treatments? Sorry so many quetions, but I am really hoping it is better than the AC...not sure I can handle 5 more TX's like this!
I like the new name...seems like it befits all of us!! Glad things are going O.K. Enjoy the good days!
Chris
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Patti- He weighs around 110, hoping he won't get much more than120 when he fills out. I love goldens. They are so majestic. Do they shed alot? We had read that bloodhounds were medium shedders and didn't like water - characteristics we were looking for. Well he swims like a fish and I need to vacuum up the "tumbleweeding" furballs every other day. Gotta love em anyway.
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I've been catching up on all the posts. Wow! Lots of activity. I've been very achy and somewhat nausaus again. Had tx#3 last tuesday. I am looking forward to 4/21 when I can finally say I am half over. I have one more AC treatment then switch to Taxol. I hear the SE's are quite different.
NYDeb48 - I think it was you who asked how my daughter did at her gymnastics competition earlier this month. I was very proud of her even though she did not have her best meet. She DID however finish FIRST on the balance beam for her age group. I am proud to say she is the level 8, junior B, balance beam champion for the state of Maryland. Unfortunately, she tried too hard in the other events to win and she ended up having some falls. Oh well. She did however, qualify for the regional competition that is next month so I will be able to cheer for her once more. I wore my wig for the first time that day and received many compliments. Also, I love your lap dog!!
Once again I am too many posts behind to respond individually. I do hope everyone enjoyed their weekend. We took the younger two kids to the Museum of Natural History on Saturday. It was very crowded and rainy but it was fun to get out and about. I came home exhausted and very achy and proceeded to sleep the afternoon away. It was worth it to get the kids out of the house.
I LOVE all the pets pics!! My goldfish won't stay still for the camera so I am unable to send a good picture of her. I will keep trying though. LOL.
ChrisC433 - I am also hoping that the T is better than the AC. I hear it is just different SE's though. I have heard that we won't feel nausea but will be more fatigued. I think I could handle that. I am not looking forward to one more AC but I am looking forward to being half over after the next treatment. I hope you are doing better today!
Luv2sing - This may be too late but I love the idea of the red dress, red wrap and hoop earrings. You will knock them out!! Happy early birthday!! (I'll probably forget by next week - chemo brain!)
Janet0527 - It's amazing how much better you feel once the hair is gone, especially when it is on your terms. I still have little spiky (metal like) hair. I am not sure why it hasn't all fallen out. I think I look like a baby monkey but everyone else says I look beautiful. It's weird when I walk in from of a mirror. I still think it's not me.
PattiB - I never really liked my hair either but I am really curious now how it will look when it grows back. I may wish for my old style again. I think I will have some fun with short and sassy hairstyles for a while. Curly, straight, dark, light, only time will tell!
MichelleinSJ - I don't know if I am being treated any differently but today in the grocery store I was asked if I wanted to make a donation to a cancer fund. I was wearing a baseball hat and I took my hat off and said I've made a lot of donations in the last few months. It was kind of nice to know I wasn't being treated any differently right then. I'll have to pay closer attention when I go out for dinner. Sorry to hear about your cat.
Pickle141 - Loved your jokes!! Keep them coming!! Laughter is the best medicine!!
I am finally going to physical therapy for my ALND'd arm at the end of the month. It has been feeling worse lately. It feels very fatigued and I am not able to stretch it as much as I was. I am concerned about lympodema but at the same time I know I have been overcautious with it. Will I ever be able to do all the things I used to do with my arm/hand? I am nervous about that.
The kids go back to school tomorrow and I am looking forward to trying to organize the house. I am hoping to have more energy this week since it is my "bye" week. You all are a great source of information and support. Thanks for being there for me!!
Cyndi
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Buddy.. your golden is a riot!!!!Peanutbutter.. would love to have seen that.
Good idea you bring a movie and you know how to fill the time for your tx. You are getting closer to being done and am thankful we have met doin this together. Yes, sleeping alot and feel really tired - but i have to heal my body as you say. Drinking fluids and appetite is there. Eating alot of sugar and i know that cannot be good!!! But my taste buds are asking for it.
Thinking of you tomm and all the rest having treatments. We can do it! My goldens are all on my feet and need to go feed them .Love ALL the FURKID pics. all too precious!!
Hugs,
Donna
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Hey ladies.....my chemo didn't go as planned today. They first had a hard time finding a vein. I have small veins, so I was stuck 6 times before they got one. One nurse said something about a port and I said keep jabbbing. They the drugs got going and went well until the Taxotere, I felt pressure on my chest and my lower back was hurting. They even gave me benadryl before they started the chemo. They stopped and talked to the doc and it was decided that I would need to try something else. What a bummer. I was so looking forward to being almost done. When I go back in 3 weeks I'll find out what will happen next. At least I got the Cytoxan in. This really sucks.
Laurie
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Awwww Laurie, that really stinks! I hope they figure out something new for you! So many have had reactions to that darn Taxotere!
Good to hear from you Chris and Cyndi! Hope the nausea is doing better at this point.
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Laurie,
Sorry to hear about your problems at chemo today. I was lucky. All went well. I spent a lot of time with a heating pad yesterday and this morning to get the veins to bulge. I also used a squeeze ball at the same time. The nurse was pleased with my hard work.
THanks Kim for the imformative article. Lets all pray for a cure.
At this point I am feeling fine . But I know that means little . My Se always come in a few days. I will just keep my fingers crossed.
Hugs to all.
Francine
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Laurie - CRAP. That sounds exactly like my second Tx - complete with iv issues and nurses keeping on pushing for port. I also had the allergic rxn to Taxotere and stopped, only got Cytoxan. I went back 3 days later for Abraxane.
Tx3 was April 3. One week later, serious hives - reaction to Abraxane. I spent the weekend clawing at my skin, prednisone and scrip anthihistamine did nothing to relieve. Begged for two hours to get into see onc today, a shot of steroids, doubled scrip antihistamine, added Zyrtec, stay on prednisone, and throw in Ativan for good measure. really? So Gina said that Chlortrimeton helped stop her itching and I decided to take one of those too - I'm such a rebel, I didn't call and ask - but I figure with all the other stuff, one more thing can't hurt.
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Laurie - Wow, that so stinks. And they won't do anything for 3 weeks?
Cyndi - Sounds like your daughter did fabulous. I love to live vicariously through others kids now that my boys are done with sports.
I loved the baseball cap thing. That would have been worth the price of admission just to see the look on that cashiers face.
Chic - Hope the chlortrimeton works for you.
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Lauie - so sorry your chemo didn't go as planned today.
Chick - Hope all the stuff your taking helps your hives soon.
NYDeb - Wow 110 and not filled out. I didn't realize bloodhounds got that big. Why did you want a dog that is not much for water? Just curious. Goldens shed all the time, we have tumbleweeds all the time too. Wearing black is also a problem, we keep lint rollers in many spots around the house.
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gymmom - Congrats to your daughter!! That is quite an accomplishment. Good luck to her next month.
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NYDeb48 Jett is is a 64lb Shepherd/Husky/Wolf mix and is the sweetest Dog ever...she is really great with the cats in the House, but occasionally can be seen chasing any strays that do not belong amongst our two families of outside cats that live in the yard ( ten in total). The cats love her too, but she's not too keen on all that rubbing on the face stuff!
Crusader1 Glad everything went well for you today....I'm going to start with the weights and squeeze ball so they can find my veins next week.
Laurie I'm sorry that really sucks.
Well I spoke too soon about the hair, I washed it this morning and I got quite a bit on my hands! What to do now, wait till it gets really bad then shave?
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Jdeking and Gymmom:
Thanks! I know they say Taxol is a different set of SE's, they have to be better than this! I think I can handle achiness as long as I can take a pill to help. Right now, I can't keep anything down to help!
I've read about the reactions some are having to Taxotere...can we expect the same on Taxol or doesn't one react the same???
Hope all is well with the warriors tonight!
Chris
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Laurie I am so sorry. But they will find somthing even better for you to take. Dont worry.
NYDEB we were considering a bloodhound. I didnt realize they get so big. Our Golden is about 85lbs. He heads right for the creek everytime we let him out, He is almost 1 year. He steels everything. One time it was a whole loaf of garlic bread. One time it was a fully cooked pizza. Hes getting better and we love him.
Gymmom, You should be very proud. Thats an awsome accomplishment. We have missed you lately. Glad you are back with us
JDeking and chick we have missed you also.
Our golden does shed pretty bad. We bath him once a week and it does seem to help.
Love and good wishes to you all.
Wish me luck tomorrow. 3rd DD AC
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Patti - We live on a lake half the year and really didn't want a dog that was always soaked.
We just ordered a new grooming tool that the Vet showed us. It's called the Furminator, coming in the mail by Wednesday. I'll get back to you on how well it works.
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maidmarion - You'll know when it's time with the hair. For me, when so much fell out that I wouldn't have gone out in public without a hat anyhow, I buzzed it. It started last Wednesday with a few strands here and there, was coming out in clumps by Friday, and by Saturday afternoon, I had taken a clipper with the most narrow guard to it (not to the skin, but really close).
buddy1 - Hope all goes well with tx #3 for you. You're just over a week ahead of my schedule - I'll get #3 next Wednesday.
NYDeb48 - All I can say is that's one big puppy. Lol.
Nobody told me that once I shaved my head it would be freezing freaking cold all the time. Yeeow!
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Here are new photos of me and Murphy.
The sweetheart cat.She just loves attention..
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Here are new photos of me and Murphy.
The sweetheart cat.She just loves attention..
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Francine,
what a sweetie pie......love your look, too!
hugs,
Diane
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Diane
My husband is not a big fan of the bald look. But I am real comfortable with it. This is the thing I always thought I would fear the most. After getting BC it is just meaningless.The cancer is the real thing..Our hair will grow back, eventually ..
Thanks for the nice commenst as usual.,
Hugs,
Francine
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crusader musphy has such a cute little white moustache. i love his face. so precious.
Nydeb. I was looking at the furminator also. please let me know if you like it.
janet Thank you for the wishes. Every treatment is scary.
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Y'ALL! I can't keep up!!! I spent about an hour this am reading all the weekend posts (yikes!) but then had to dash off to meet the onco (will have an update on that later) and forgot to post. We just finished dinner and I have 5 min before I need to head out to a girl scout meeting.I will catch up with you all later tonight.
hugs
gina
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Oh yes I read a mention fo the aritcle mentioned by Kim from Nova Scotia while reading the premier cancer site in the USA..the NCCN . I guess they must really have something.
Thanks Kim for sharing .
Hugs to all,
Francine
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Francine,
My husband is not comfortable with my bald either......he is OK with the buffs but bald, UGH he can't handle it. Also I told him about the tattoo and he freaked about that, too. He is normally not so conservative but he will just have to get used to it. I am not getting my forehead tattooed! jeez......can't a gal with BC do something for herself after all this s**t is over?
hugs,
Diane
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Here is my lab a few days before she left us......and my JRT Duncan who is 13 1/2. I will try and get a better pic of his cute little brindle face sometime this week....he is camera phobic.
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Janet, Bunny, Deb, Diane, Buddy, Francine, Maidmarion, Dyala, PattiB - all your beautiful furries sound like such good friends! I wish, wish, wish I had a beautiful canine or feline to show off. But alas, we just have Annaliese, Sarah and Jimmy. Jimmy is the big one. Just kidding.
Oh, and we also have Squawkers. He is pretty cool, because I can turn him off when he gets too noisy. No offense intended to bird lovers.
Pickle, PattieB, Diddle - love the new avatars!
BandanaGal - we are not confused. Good name change!
Luv2Sing - can't wait till we can see the red dress. You will look beautiful!
Laurie - I am so sorry to hear about your reaction! It is crazy that so many of us have such a horrible reaction. Chick mentioned her's, and I also had a reaction just like you. The good news is that you got the Cytoxan! YEAH! The other good news is that there are alternative regimes. Good luck with managing the Cytoxan SEs (hopefully minimal) and keep us posted on the new plan.
I got my new plan this afternoon. CMF for 12 weeks (weekly). The good news is that the SEs should be really manageable. AND I should get to know the nurses at my onco's office really well! The downer is that I have to put off my reconstructive surgery for a couple of months. Grrr. This is one of those moments when I KNOW there are many more gals that have it much worse, and my chemo is an insurance policy. So I'll hush it! Marshall - who is that funny puppet again? I gota find that.
Michele54 and Janet - can I be "in" on the tattoo thing, but sort of sit on the fence? I've never been a fan, but well, that was before all THIS. Anyway, the idea, concept, etc is awesome. Oh, also, I may chicken out.
MOB - how are you doing?
Ricki and IowaDiva - ditto.
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thanks for the info on how to add a picture crusader1. Going to try it out now. Here is a picture of one of my dogs Rocky.
And here is a current picture of me in my car. scarf on because I have very little hair left
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i have to mention that last week I was able to get my mastectomy bra and my silicone breasts. And I just love the freedom of deciding whether I am going out with boobs or boobless. My friends have a blast when I told them that today was a boobless day. Because I really did not want to be bothered to where them. LOL
Also reading all the posts about getting a port. My suggestion is get one. I makes everything so much easier. Mine was put in while I was in surgery. And My treatments and labs are a breeze. Everything goes through the port. So I do not have vein issues nor do I have to worry about leakage nor do I have to worry about scar tissue build up from the poking and prodding of my veins.
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Robin,
Love Rocky! I could just go through my computer and plant a big kiss on him! What a cutie.
As for the mastectomy bra.....I only had one breast removed and my other is so big yet that I still have to put it on every day especially since spring/summer are around the corner. Wow would I love to go boobless
Hope everyone has a good treatment today for those who are going.....those recovering from yesterday hope your SE's are all minimal. Remember hydration, meds, rest and excercise if you can.
hugs,
Diane
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Hi Robin! You are lucky you can go boobless, I have one reconstructed , and one boobless, I got my prosthesis and mastectomy bras a couple of weeks ago and, feel more confident I have been so loopsided, I make my friends laugh, me getting ready to go out consists of straping on my hair and my boobs, lol! Everyone says I look great, but I feel kinda like a cartoon character, not quite real!!! You look great and I love Rockey!!! I love the animal pics, I should try to take some and post them, I'm just lazy. Good luck to all having Tx today! No bad reactions please, I'm off to work!!!Dawn
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