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  • Beach
    Beach Member Posts: 127
    edited April 2009

    Hello Ladies......I'm new to this thread and fairly new to the boards.  My world was turned upside down on 2/05 with dx of IDC and DCIS.  I had a lumpectomy and SNB on 2/18 and had my first chemo treatment on 3/31.  Will have 3 cycles of FEC, 3 cycles of Taxotere plus Herceptin, which is to continue for a year, plus rads after chemo.  No port yet but getting put in the day before my next treatment, 4/21.......know it's a good thing but more scared of the port than the chemo!!  Faired pretty well after the first cycle of FEC.  Got my head shaved on Good Friday and now having some fun with some cool hats I picked up!!  No wigs for me......at least, not at this point.....  

    Enough of the bad stuff.....I've been with my partner for almost 11yrs and she has been my rock!!  We have two cats who figured out a tag-team system to take care of me....the female takes the day shift and the male takes the night shift!!??

    Good to find this thread........warm thoughts and gentle hugs to all of you :-))

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Hello and Welcome Beach :)

    Sorry about your dx, but you will find alot of good info and support on this site. I cannot relate to the chemo but I hope the se's aren't bad for you. If I had to lose my hair I would be like you, no wig, just hats and maybe scarves. I have a friend that had chemo and she spent alot of money on a couple of wigs and couldn't stand to wear them. She just went commando as Martha likes to say..lol  I am glad to hear you have great support from your partner, alot of ladies aren't as lucky as we are. I have two cats too and they can always cheer me up, it sounds like your kitties are keeping a good watch over you and making sure you are okay. Take care and let us know how you are doing :)

     Happy Easter everyone! 

    D~ 

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Hi Beach sorry you had to join us!

    I had the same protocol you did--FEC X 3 and Taxotere X 3. I won't have the Herceptin because I'm a triple negative.... Now on rads, #18 of 33 on Thursday. 

    I found the T to be more difficult than the FEC. For me, the 4th and 5th days were the hardest. THe T made me very fatigued and I also had some bone pain. The worst SE thougth was thrush--a mouth infection that was painful. I think if I had been more careful about frequent brushing and mouth rinsing I wouldn't have had that. I don't mean to scare you--just to let you know what I experienced. 

    You probably know this already, but DRINK LOTS OF WATER!  Not only does it flush the chemo out quicker, but the chemo can be dehydrating. It doesn't have to be water--tea (hot or cold), gatorade, juice...lots of liquids. 

    Glad you have a supportive partner--it helps so much to have someone who will support you through this. Not to mention the kitties!

    So here's a question: I'm venturing out to the club tonight (I rarely go, and haven't been in months, since before my surgery in Setember). DMy hair is very short--between 1  and 1 1/2 inches--and ll grey/white. Do I go with a hat? Beret or baseball cap? Or do I go "commando" (i.e., bare head)? I'm tempted to do the latter, but not sure I have the courage for that yet. On the other hand, it could be empowering.... I'll be with friends, and I'm not worried about rude remarks, it's the looks... I have always worn a hat outside the house (except this morning when I took the garbage out). 

    Well, I'll let you know what I do and how it goes! Gulp.

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Hi all-- Well I did it! I went to club bare-headed! I got compliments from my friends and lots of looks from others, which I sort of expected. But no stares or comments at all.

    That's it--my hats are put away except for warmth! 

  • Beach
    Beach Member Posts: 127
    edited April 2009

    Happy Easter Everyone!

    D - Thanks for the warm response and kind words ...... doing okay with my new G.I. Jane hairdo .... was actually a bit of a relief to shave it all off coz it felt quite lifeless since the chemo.  Not sure if I have the guts to go "commando" yet :-)) ...... still adjusting to all of the hats!!

    TorchSong - Thanks for your response and sharing your SE's.  It really helps to know what to expect since I'm sort of a "newbie" here!!  Yes I have been told to drink lots of fluids....even brought ice chips with me to my chemo treatment and the nurse told me that this would help to prevent mouth sores from forming....worked the first time and hopefully for the rest.  Sorry to hear about your experience :-(( !!  It's interesting to learn about your SE's with Taxotere only because so far I have only read about the T + Herceptin combo, so I don't know which is causing what SE's for these women.  Good luck with the rest of your rads......more than half way through :-))

    I was just going to ask what you decided for your night out last night.......good for you to be so strong Smile!!!!  I haven't been out in ages......did you enjoy yourself?? 

     

  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2009

    Hey Beach, I'm glad you have your partner and kitties for support. My cats were surprisingly well behaved during chemo, there was at least 1 (out of 3 at the time, 4 now) by my side at all times. I hope your chemo is as easy as it can be.

    I'm getting a new tattoo Weds. I'm getting an obama symbol with an LGBT rainbow inside. I 've wanted it for so long. I still haven't decided where yet, bu tI want it somewhere visible.

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Happy Easter everyone,

    Martha,- I just had to check in real quick to see how it went with your "date"  I see you went commando and had a good time...WOOHOOO  So happy for you sista!

    Do you feel like sharing any more tidbits...lolWink 

    Cya,

    D~ 

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Oo hi again, 

    I just saw your post Amy, can you post a pic of your tat after you get it?

    I've often thought about getting a tattoo but just haven't got the nerve. 

    Have fun on Wednesday!

    D~ 

  • Beach
    Beach Member Posts: 127
    edited April 2009

    Nice to meet you Amy.....

    I do know how lucky I am to have a supportive partner, plus my family and an amazing group of friends!!!!  Not forgetting my kitties, Pitu (female) and Milo (male), who just have this incredible way of comforting me......it's quite fascinating how in tune they are!!

    Your soon to be tat sounds pretty cool.......I never had the guts to get one.....guess that will change with the rad mapping tats :-))  Is this your first???

    Enjoy your Easter!!! 

  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2009

    Beach- I was NEVER a tattoo person before cancer. My other tats are pink ribbons, very feminine.  When I  got my first one I told the tattoo artist it would be my one and only tatt.... he said everyone says that, LOL and he was right.

  • Beach
    Beach Member Posts: 127
    edited April 2009

    Amy,

    That's what one of my friends said too........he's now on his 10th/11th??.....I've lost track, LOL!!!!

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    I have a tat on my chest--smack between my breasts. Needless to say, it's gotten a lot of attention and started a lot of conversations since my dx!

    It's a triquetra, a Celtic knot symbol of the Trinity, and of course in rainbow colors! I'm an MCC pastor, and it's symbolic of my calling. There's a photo on my profile.

    I don't know if I want another one--I love this one and the artist is great, but...Not sure what it might be or where I would put it, either one!

    (Edited for typos)

  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2009

    oh jeez beach..... don't tell me that..... I want this to be my last one LOL.

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Hey ladies,

    I just got back from the PS, the skin on my right breast (cancer side) started to get a bit reddish after my fill last Monday. I called Friday and they had me come in today. He put another 50 cc in each and tried to drain any fluid from around the TE but there wasn't any, he said that was a good sign but is having me go on (Cipro) an antibiotic to make sure to treat any infection if I have one. I don't feel bad and I have no fever, so I hope it just something to do with the skin stretching. Keep your fingers crossed because if I lose the expander, it takes 3 months before I can try it again. I am not sure I want to go through it all over from the beginning :(  Maybe I will just get two smiley faces tattooed on my chest and call it a day. I hope you all are doing well and I will let you know what happens. Take care! 

    D~ 

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    Hi everyone.  I had my first fill today.  Not bad at all.  I am a little uncomfortable but its not as bad as I imagined.  I really am hoping it just continues to be like this.

    Hope everyone had a great holiday.

    Teresa

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Teresa,

    Glad to hear your fill was not bad, it is usually sore for 2-3 days. I hope they continue to be ok for you :) I'm still waiting/hoping my redness clears up. Take care all.

    D~

  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2009

    Teresa glad it wasn't too bad!

    D~I'm sorry for your complications... I hope it gets easier for you.

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    Well today I was a bit more sore thats for sure but maybe it will let up soon.

    Teresa

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Teresa,

    Do you have a little something for pain?

    If not try a few ibuprofe, it does get more sore about 2-3 days after.

    I like to sit in a hot tub and put warm wash rags on em, kinda helps some too.

    Take care!

    D~

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Hi all--sorry you're having so much pain, Teresa. Wish I had advice to offer, but no recon here... I can offer sympathy, however, with all my heart!

     Update--skin started to break down after the 16th or 17th rad treatment (had  #21 today). I've got some antibiotic cream for it, hoping it heals it up. I'm a little worried because I have 4 more whole-breast treatments, then 8 boosts...I'm scared of what the boosts might do to my skin, if the regular ones did this! The breakdown is right in the fold of the skin under my breast...no bras, and I'm moving carefully... 

    The women's community here has had teams in the Relay for Life the last few years, in memory of one of the women...this year they're starting a new team, named for me, which I consider an honour (I'm not really one for fundraising hoo-rah, either). Martha's Miracles... So I'm walking this year--survivor's lap at least!

    How is everyone else doing?

    Hugs

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    I do have pain pills and I decided to switch to lortabs because the percosets are just too much I think.  Oh yea, Dee I love a hot bath too.

    Torch, thanks for the sympathy...awful sweet of you.  I hope your skin holds up until the radiation is over.

    Take care,

    Teresa

  • vkfrainbow
    vkfrainbow Member Posts: 18
    edited April 2009

    My partner of 33 years (In may) was dx with IDC stage II in August, 2008.

    She underwent chemo - 2 rounds, followed by a 5 day cruise.  Today she will be discharged from Moffitt Cancer Center, Tampa after a bilat. mastectomy, removal of all right (affected side) lymph nodes since one came back positive and two sentinel nodes on left axilla.  Bummed about positive node and hope to get final path report by next Wednesday when we come back for drains (2) to be removed.

    I originally posted under "how do I talk with my girlfriend" since she was initially not interested in doing/learning anything about this disease.  She's come 180 degrees since then!

    Glad to meet of y'all here!

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Hi all,

    Martha that is awesome that they named a relay team for you, I would be honored too :)

    I hope you skin issues are okay, can the docs have you put something on the skin to help it? I don't know alot about radiation so I am sorry if that is ignorant. I sure hope you get that resolved soon.



    Teresa, for me I take a half of a percocet and that works for me. vicodin/lortab are okay but I had to take more to get rid of the pain. Hope you are doing better.



    Welcome Val, Good luck with the path report next week! Let us know how things go okay?



    A BIG hello to everyone else!

    D~

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited April 2009

    Martha -- could you ask your docs/nurses if they think silvadene cream would help you?  It's a prescription burn cream that contains -- yup -- silver.  It's miraculous for burns -- that's how I found out about it -- and I've read on these boards that women have used it successfully for skin breakdown from rads.

    Val, I remember your post from last September -- fingers crossed for good path report.

    Hugs to all,

    Ann

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    The more I think about it, the more I think Im going to slow down this process.  Maybe a fill every week is too much.  Im going to talk to my PS on Monday.  Dee did you fill every week?  I keep tell myself that Im only going to be 3 weeks post op on monday so expecting no pain is probably crazy. 

    Teresa

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Teresa,

    No, I am scheduled for fills every 3 weeks. The original plan was 100 cc every 3 weeks. The only reason I had another one (50 cc) last week was because he was trying to get some fluid out from around the expander to test for infection. My skin is still reddish but goes away when I lay down. I'm not sure I had an infection to begin with. I will see the PS again on Monday and well see what he thinks. I hope he doesn't want to take them out :(  Yes 3 weeks weeks post op you are still healing ALOT. I think we will still be healing when we have our exchanges, so don't stress it. Take your pain meds if you need them. I rode the riding lawn mower today and I'm paying tonight, bad choice on my part, but I just want to be "normal" again. Take care of yourself and talk to your PS about a different fill schedule that you are comfortable with.

    D~ 

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    I understand that need to feel normal again.  I did some spring cleaning to day and just cleaning the windows was a bit uncomfortable.  I go tomorrow for the fill.  Im kinda nervous.  If I am as uncomfortable as I was last week I think I will ask to do it every 2 weeks.

    Ill let you know

    Teresa

  • dee1961
    dee1961 Member Posts: 1,672
    edited April 2009

    Hey Teresa,

    I saw my PS and he agrees that it probably wasn't an infection, not sure what was happening but it seems to have resolved itself. I will see him again in a month due to him being out of the office my third week. SOO, I got another 50 cc fill and I'm very sore tonight. I had to get up tonight and take half a Percocet. Oh well..  How are you feeling, I hope it wasn't too bad for you :) Let me know how you are doing. Take care.

    D~ 

  • sftfemme65
    sftfemme65 Member Posts: 790
    edited April 2009

    Hi Dee

    Well it definitely isn't as bad as it was last week.  I am sore but nothng like last week.  Thank goodness.  Its so funny to watch myself grow, Im like 7th grade now.  Hoping for 8th grad next week.

    teresa

  • beastybabe
    beastybabe Member Posts: 196
    edited April 2009

    Hi Ladies

    I was diagnosed in January 08 with breast cancer in the right breast and no node involvement, but in march of the same year found out that the cancer had matistized to my spine.  Its in my T8 vertebrae - (which is where your bra strap would be across your back) the cancer is ER+ and PR+ and Herceptin -, I had 5 days of rads and have been on Tamoxifen since May of 2008.  So far I have had no progression (touch wood)...

    Im still coming out...my dad knows and is okay with it, my son knows and is not so okay with it and I have meet so amazing woman through a group meeting that happens at the local womans centre.

    My question and I guess my fear, is that any relationship that I get into will be my first in every sense of the word. Do I meet someone and let them become involved before I tell them about the cancer or do I be honest and tell them upfront and hope they stick around.

    And then theres the whole this is the first time I will have been with a woman and that scares the shit out of me too.  Oh by the way Im 39 and have an 18 year old son.

    And when this first time happens....how do I explain my scar's

    I hope you dont mind my asking you all these questions, but coming out is hard enough and then having to deal with the cancer as well....my heads spining....

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