**NEW** Starting Chemo March 2009
Comments
-
Hello all Hope you are all having a good long weekend. I sang at a Tenebrae service last night which was out of this world. Music can make such a difference to one's mood, don't you find? Francine, I definitely don't think of myself as sick. I had cancer, it was removed in 2 operations, and I am having chemo to prevent it coming back. That is how I think of it. I did have cancer. I don't have it any more. I know this way of thinking might not suit everyone, but it certainly suits me, though when my next AC lays me low I might think differently!Sessna1, (and I am deliberately not PMing you given your comment above to Francine) one of my favourite Christian examples is St Francis of Assisi. He once said "preach the gospel constantly, if necessary, use words". In other words, let it be your conduct, not your words, which testifies to your faith. One of the best ways to do that is to behave towards others with the respect that we would wish them to give us. I know you know this, I am not saying anything new. If Linda and Francine and others find direct references to the Christian God (and let me be clear - I am a Christian who is spending nearly this whole weekend at church) upsetting in what is meant to be a supportive forum, then perhaps you should reserve your testifying for other places. You have made your faith clear, and anyone who wishes to ask you more can do so. God will require no more of you, and on St Francis's example would perhaps want you to now show a respectful silence on the matter. You can ignore me, of course - I have no special standing here, but as one Christian to another I hope you will take this message in the spirit it is intended.( By the way, I am sure you did not mean to refer to any of us as dogs, and perhaps you would like to reconsider that part of your post! Metaphor can get us all in to trouble if we are not careful)
-
Hmm -not sure why that post is in italics! Sorry - it does make it harder to read.
-
Michelle54 - I took the LGFB class at Phoenixville Hospital. I went on-line searched Look Good Feel Better, found the website that lists when and where the classes are. I think I plugged in my zip code. I live in the western suburbs of Phila. near Valley Forge. The free wig program was through Bryn Mawr Hospital, I heard of that word of mouth but looked on the hospital site to locate the number. If you need, I think I might still have an email in a folder with the women's name and email that organizes that program. Good thing for the free wig - I found out my insurance does not cover cranial prosthesis, I was going to look into a 2nd one with the prescription, but now I'm not, the free one was a Henry Margu and is fine.
I am definitely on the list for Miami, and definitely up for someone else creative design (not my forte).
-
Gina - I love the pink wigs!!!
Sessna1 - keep your head up as I know you will. Everyone has their own beliefs and this is the place for us all to share them. We are all different.
I like that we are all different. Is it sometimes hard for me to read about everyone's children and grandchildren knowing that I may never have any? Of course it it. But, I read everyone's expereinces because I am truly interested in everyones lives that has to go through this terrible thing. Please ladies keep the peace and let us all be who we are. That's why we are Warrior Princesses!!!!
-
Dawnmrn1 - Thanks! I know, my PT told me to make sure it's the first thing I do ... my husband said, but how will she be able to shower? DUH!!! It was a lot easier getting that thing off than getting it on!
Sessna1 - "And when you stand praying, if you hold anything against anyone, forgive him, so that your Father in heaven may forgive you your sins" (Mark 11:25). "Do not judge, and you will not be judged. Do not condemn, and you will not be condemned. Forgive, and you will be forgiven" (Luke 6:37).
Everyone - I wish you a restful night and leave you with hugs and kisses!!
-
Hi all,
I have decided not to post on this board any more because I did not sign up to be inundated with religious ideology.
Sessna1
You have made my point so eloquently there is nothing more to say.
Linda
-
as someone who does not consider myself religous and does not identify with any particular religon I personally do not feel threatened by someone professing their faith as Sessna does. I would hate to see this forum turn into any sort of backbiting conflict ridden one- I'm sure if we looked we could find all sorts of things any number of us have strong opinions on and disagree with each other on. (politics anyone?).
What this forum is about is what we all have in common, the common battle we are all facing right now.
I don't think that means anyone needs to censor themselves in what they discuss- I think if someone else writes something you don't agree with, just ignore them unless they are attacking someone else. I personally do not feel anyone making occasionally religous statements regarding themselves is any sort of attack. Live and let live!
-
BTW- I agree with Sakura- I don't consider myself sick. I think the language we use to describe our situtation influences the situation- I talked with a friend about this when i was first diagnosed- she said a lot of people take "ownership" of the disease - talk about "my cancer". I know it seems like semantics- but I try to never say "I have cancer" - I'll say I was diagnosed- and if talking about the pathology-I try to say "the tumor I had" PAST TENSE. I no longer have cancer- this chemo crap is insurance to make sure it doesn't come back. Anyone who asks how I'm doing- I try to always make it known I feel pretty decent unless I'm recovering from a treatment. I think a lot of people might see me as sick cause I'm bald and I want to make it known I'm not sick.
My horribly cute cat Julio just curled in my lap between me and the laptop- making it hard to type!
-
Alyad - Your wisdom is heard and appreciated. Your furry friends are adorable.
Matthew 5:9
Blessed are the peacemakers: for they shall be called the children of God.
Luv2sing,
I said Luv2sing, everyone else, please skip the remainder of this post. ... or not.
See, I was accused of doing something that I didn't do. That was very rude. I never spoke about converting, recruiting, bringing around, or convincing people that the God I serve exists. Advertise Christianity? God doesn't need me to do anything for Him, certainly not some Madison Avenue campaign. Advertise... sell ... advertise ... profit ... advertise ... product placement. No, no. I really don't care for that phrase, even in jest.
We start wars over things that we do not understand, and then claim the other tribe was at fault when it was what we inferred about their words that started the animosity. It's really sad; however, it is what we human beings do.
Then, I was told to stop doing what I wasn't doing - and that was really weird. Then, the Bible verses came forth, and at least one member chose to leave. I can't make anyone do anything. I can't make anyone feel anything. I thought we were adults on these boards, but, ... well.
If I was of the Mormon faith, and I continued to say on the boards that I believe all alcohol imbibing is "bad," I could see your point. Our "inside joke" is a chemotherapy cocktail. Pictures of alcohol all over the place. If I felt that way about alcohol, I think it would be my place to find a different Board, or be prepared for many subjects outside of chemotherapy.
Closing my posts with "Love in Christ" serves as a reminder that some people do believe in God. Why does it bother some to anger and umbrage to know that some people do believe in God? Believers don't lose a lot of sleep over non-believers because it's counterproductive. If it bothers anyone that they can't "control" me - it's a sad thing for them to wake up every morning thinking they can possibly control God.
'nuff 'said - except ...
(King James Version)
Matthew 10:33
But whosoever shall deny me before men, him will I also deny before my Father which is in heaven.Luke 6:43-49
43For a good tree bringeth not forth corrupt fruit; neither doth a corrupt tree bring forth good fruit.
44For every tree is known by his own fruit. For of thorns men do not gather figs, nor of a bramble bush gather they grapes.
45A good man out of the good treasure of his heart bringeth forth that which is good; and an evil man out of the evil treasure of his heart bringeth forth that which is evil: for of the abundance of the heart his mouth speaketh.
46And why call ye me, Lord, Lord, and do not the things which I say?
47Whosoever cometh to me, and heareth my sayings, and doeth them, I will shew you to whom he is like:
48He is like a man which built an house, and digged deep, and laid the foundation on a rock: and when the flood arose, the stream beat vehemently upon that house, and could not shake it: for it was founded upon a rock.
49But he that heareth, and doeth not, is like a man that without a foundation built an house upon the earth; against which the stream did beat vehemently, and immediately it fell; and the ruin of that house was great.
That is all.
-
Alyad - I was just having a conversation with my PT yesterday regarding people and how we treat a diagnosis. I have a friend who after being diagnosed with BC found out she was also TN. She never changed her lifestyle because she didn't know how to 'act' like a person diagnosed with cancer. She had never been exposed to other people receiving tx or dealing with SE ... any of that stuff. I truly believe this had an impact on how she responded to her diagnosis. If you saw her, you would never know what she's been thru because she never accepted her diagnosis. She went thru years of tx and tests, but never gave in to the diagnosis. That's defnitely something to think about. My husband even discourages me from reading SEs because he feels you will believe what you read and begin to feel the way you 'think' you're supposed to feel. Unfortunately, I come from a family hx of all types of cancer, seen what it can do and now I react the same way my family members did ... I'm not moping around, but I do (for lack of better word) suffer with the SEs, the tx, etc. All I can do is get up everyday, put on my smile, look my best whether I'm going out or not and take it one day at a time.
Sessna1 - From a scriptural perspective ... I know you know Jesus was accused of doing things He did not do and still He gave His life for us all.
I agree, that you did not intend to convert anyone in your previous posts, however, what have since begun to do is deliberately offend those who have expressed they do not observe your beliefs. It is one thing to share what's going on in our lives, but you have to admit your last few posts where intended specifically for those who did not wish to hear the scriptures. That is their choice and it is not for us to further add salt to the wound by finding every scripture we can and throwing at them. That's not how Christians operate. We share, we allow people to make a choice (Free Will) and we move on.
I don't believe this forum was started to have people feel so put upon that they would choose to leave, rather than stay and continue to share his or her journey and allow us to encourage them along the way. This will be my last post regarding the situation, because as a Christian, I have done my part and am now moving on. Pray for me as I pray for you.
-
I have been reading the latest posts from yesterday and today.
Here is what I believe: this board should represent acceptance, tolerance, caring and concern for and of each other. One should not be hesitant to express oneself. Everyone does not agree with everyone else concerning certain matters. That is where tolerance comes in.
We are all in this together with the common bond of breast cancer. Christian, Catholic, Jew, agnostic, animist, athiest . . . . let us all respect each other's beliefs. Let us not be afraid to express them with respect for others who may not agree. And if one does not agree, do so respectfully. Or say nothing at all. Or just ignore that particular individual and focus on issues that are far more important - dealing with The Ailment, as I now refer to it.
To quote Abraham Lincoln, "A divided house cannot stand." (okay, that's a paraphrase or a partial quote - have to hunt for my Bartlett's!)
Let's be mature women . . . there is no need for such major dissension among The Warrior Princesses . . . patience, tolerance, understanding, caring, and concern. That is The Mantra.
Stick together, Princesses.
With the greatest respect and love to all on this Easter Weekend,
Maria
-
Hi Maria! Great to hear from you, you stated the resolution to this problem, perfectly, thanks for your input, things were getting out of hand! Thanks, Happy Easter !Happy Passover!, Happy Spring! dawn
-
Sessna1 - I have avoided jumping into this, but I'll state my opinion here, just once. All I noticed at first was that you signed your posts Love in Christ and on occasion made a few religious references. Not my cup of tea, but that's okay - I don't have to read or align with everything posted here. I know you felt compelled to defend yourself and clarify the distinction between proselytizing and testifying, and I understand why, but please know that you have made your point, and quite eloquently. For me, I can scroll past the Bible references, but I'd much prefer to see you return to writing poems about Neulasta or other witty things that I can relate to directly and that will make me laugh.
Am I sick? - I don't remember who first mentioned this, but no, I don't think of myself as being sick or even as having cancer anymore, because my tumor was removed. I'm doing chemo to make sure it never comes back, and yes, of course, perhaps there are little invisible cancer cells still floating around in my body, because if there weren't any, there'd be no point to doing the chemo, but still, I think of the cancer as already gone and these treatments as the insurance against return. When I was first diagnosed, I would say "I have breast cancer" but now I say "I was diagnosed with breast cancer in January, my tumor was removed, and now I'm doing chemo to make sure it never comes back."
Tattoos - I have collected email addresses from about a dozen women so far and will send out an email as soon as I get Michele's, since she's a key participant in the tattoo group.
Anyone that has not already PM-ed me your email address, please do. We'll periodically update the board so we don't inadvertantly exclude anyone.
Chemo brain - I'm on day 3 after AC #2 and I can only say that procrastinating on doing my taxes until this weekend was a really bad idea. I could barely figure out the proper sequence of steps to make a cup of coffee this morning.
Love to all.
-
Sorry, Ladies .... my turn.
I too am a Christian and I worship when and where I please, whether anyone else likes it or not.
BUT -- I do NOT discuss religion or politics simply because those discussions seemingly always degenerate into arguments.
I have much more important things to concentrate on than stupid arguments that are not going to change anyone's mind.
I could certainly unload those life and death things here, but I choose not to ... BC is enough to deal with here. Should anyone ask, I will certainly fill in the blanks, but they are MY crosses to bear, not yours.
I suggest we remove the religious (and future political) "discussions" to another forum where that is the topic and not clutter this thread with conflict.
Bunny
-
Hi All,
Okay ladies this is Easter weekend and I think we can now all agree to end the dissension amidst the group. Quite a few have agreed that this board is not the place to post religious comments etc. We are here because we all have or had BC. WE share a common bond, not one we chose but one we will overcome. Many of us have comforted each other in many ways at many times.I do not believe that I would have been able to face the chemo without the help and guidance of this group. I know that many of you feel the same. It was great to be toasted by Gina and then Britt at the start of my chemo. As I have said in past notes I do have a very large support system thru my family and friends. But just knowing ladies going thru the same thing at the same time is invaluable. I have told so many about the GREAT women on this board.
Now am I supposed to tell them about someone who is disturbing me on this board. Someone who is not speaking about BC and who is bringing religion into the board. Please let's put an end to this nonsense and all agree not to post biblical quotes etc on this board.I am afraid to say more as someone will probably accuse me of more bad things. I am a very kind agreeable person who just does not think these comments are appropriate here.
Lets just support each other in our battle. Let's use the one thing WE ALL have in common to keep the conversation going.
WE have all comforted each other on their bad days. We have laughed together and cried together..Please let's continue.
It would be a shame to have more members like Vangoghpro drop out.
Ladies please show your support as many have already done.
hugs,
Francine
-
Oh this tiredness is enough already..day three and counting!!!Some pain from the neulasta but fading.
Healing thoughts to ALL!
Donna
-
Thanks Bunny..
I agree with your comment and definitely with your religious views.
Happy Easter,
Francine
-
"
Alyad,
My cat Murphy, a very sweet girl would love to meet Julio..
Pardon my appearance but I am wearing my PJ's and my sleep cap...
Hugs,
Francine
-
Donna I am glad you are doing well. I am sorry you had pain with the shot. It seems to me that days 3,4 and 5 I get really tired too. You got one down. Yeah for you.
-
Everyone - I have a very important decision to make by April 16th.
I'm taking a picture for book that's only published every five years. Do I wear a wig or do I wear a wrap? Remember now .... once this picture is taken, I can't take another one for five years ... so help me choose wisely
. Going without either is totally out of the question, so don't even think about suggesting that one!
-
Francine, Murphy and Julio would have some really cute kittens! Too bad they are both fixed! He showed up on our front porch 2 years ago as a 3 month old kitten from who knows where! he cried at the door and I went over to see- looked down at his little mustache and goatee and thought- oh GREAT, we have another cat! No way we could turn that face away! He brought balance to the house- we had two cats already- a 10 year old and a very frisky 1 year old that was pestering the heck out of the 10 year old. So now the two young ones wrestle and play and "mostly" leave the old lady alone (Sage- the grey fluffy one in the other pic).
Julio is also our official greeter- he's a very friendly cat and loves to lick people on the nose. He demands attention from anyone that comes over.
" " alt="" border="" hspace="" vspace="" width="" height="" align="" />
-
Luv2sing .. I would go with whichever YOU are most comfortable with. For me, the choice would be a cap/hat .... but then I decided no wigs a long time ago and don't even have one. I just go bald LOL.
-
Luvs2sing . . . . hmmmmm - every five years - you would look gorgeous in either a wig or a wrap - I think it depends upon whether you want to "commemorate" this particular year by what you are going through. If it were me, I would wear the wig. But that's only my opinion and I know how much you love your hair!
-
Luv2sing - you are wrong in so many ways. You didn't even take the post to heart that was especially for you. I hope you keep studying the Bible, even if you don't "advertise" (your word, not mine) that you are a Christian.
"This will be my last post regarding the situation, because as a Christian, I have done my part and am now moving on. Pray for me as I pray for you."
On that, I agree with you. We will pray for each other.
Love in Christ,
Sessna1
-
Hi All,
I've missed you, but as the days have rolled on I've gotten more and more overwhelmed with the idea of the number of posts awaiting me on this board. Not that I don't have time to read, it's just the responding is so difficult. Every time I want to respond to an individual post I lose my place, and so I either don't post responses or I bounce all over the place. So this time I'm writing first, and I have about 8 or 9 pages to read.
Quick update from here. I feel good, except I itch like crazy. My entire head is covered with acne, I'm on an antibiotic for it but I still itch, and now I'm having an itchy allergic reaction on my palms and the bottoms of my feet, and my fingers. I also have phantom itching around my breasts. It's making me crazy.
I cooked for Passover, and the food came out delicious. Thank goodness, I could taste most of it! How disappointing would it be to cook for two days, have the food come out the best it ever has, and then not be able to taste it. With Passover, Jews have a special meal including a service, and the whole thing is called a seder. Our seder this year included some of my friends who have helped me so much this year, and I think that's why I wanted to put in so much more effort with the cooking.
Now the kids are on spring break ... good timing, as this is my third week! I have another treatment on Friday.
Okay, now I'll go read.
Michelle
-
Hi Everyone, Just a quick update. I got my hair buzzed off yesterday and what a relief. I just didn't want to deal with long strands falling about....I know it will be more like "metal shavings" falling out but for some reason I think that will be easier for me. My daughter, hubby, brother and siter-in-law came with me to a place called Compassionate Beauty. The owner gave us a china white shooter before the shave and it was great. I was sure I would cry but I didn't. I just thought of it as one more thing off my list....one step closer to getting everything over with. I bought 4 hats and another wig (1/2 wig) to wear under the hats. We went to the Farmers Market and I actually got a compliment on my hat and the lady wanted to know where she could get one. I jokingly said "would you want it with or without hair?" She and her friend couldn't believe it was a wig under it. That made my day! We all had a good laugh and the lady was so sweet. I'm wearing it in my new pic. I'll post my hair buzz later...couldn't believe how much grey I have....gotta love L'Oreal!
I hope everyone is enjoying a lovely long weekend. It is 15 celsius here in Calgary today, sun is shining and the dogs are anxious to go for a much needed walk.
Silly Thought of the Day: If the cops arrest a mime, do they tell him he has the right to remain silent?
Enjoy your day and may the SE take the long weekend off!
-
pickle! You look great, I have one of those 1/2 wigs too. and I love it, more comfortable than the full wig! I know about the grey those of us who have been coloring our hair for years, forget how much there is! Have a great day! This to shall pass! Dawn
-
Hi again.
Just wanted to let you know I'm up to page 30 and still reading ... but we're going out in less than an hour and I'm not ready.
Rachel: the first post I read was about your fainting ... OMG! How scary! I'll keep reading to see how you are doing now. What was the hen's night?
Jan: Aww. The tattoo would upset me, too. Jews aren't supposed to get them because supposedly if we alter our bodies we can't be buried in a Jewish cemetery. But I know lots of Jews who have tattoos, and honestly, I don't know many women who don't have pierced ears. But I still have a thing about actually getting a tattoo because of that. That and, the needles scare me, and I already have enough issues with my skin ... etc. I'm betting at least one of my kids ends up with a tattoo eventually,though. They're all creative, theatrical types. My daughter is a Hot Topic girl with her purple hair and black fingernails. I wouldn't be surprised.
I love all the pictures, as usual. Unfortunately, the cat pictures make me a bit sad. My cat died on April 2. She was so sick, I was glad in a way, but of course sad to lose her. You know.
I wanted to respond to other posts, but of course now I can't remember what. Back to reading ...
-
Alyad, Murphy already has a guy friend named Karl. He is very aloof but a good looking guy cat. Your cats look adorable too. My son moved to Minn. and left us his two cats. We were not happy at the time but now are cat lovers.
"
"
Pickle. I do love your joke of the day. very funny. We need laughs on this board.I have one of those half wigs but can't get used to it. Maybe I should try again as you look so good. I have been to Calgary before my trip to the Canada Rockies. Beautiful Country..
Luv2sing- Your posts have always been so sweet and caring. I am upset by the comments Sessna made about you. Maybe she will leave us soon..
Michelle- Glad you are back on the board. My Passover was great. But I just go to friends and family. I did post back a few days myself and my husband at the seder. My new avatar is me and my granddaughter at the seder. I too feel good now. My chemo is this Monday. Here we go again..
Hugs to all,
Francine
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team