I think I need to find a therapist
I have been post chemo for about 4 weeks. I see my oncologist Wed to get the Tamoxifen. All I am doing is having nightmares about recurrence and I am sitting at my desk obsessing that I have some other cancer that no one knows about that is killing me as we speak.
I have been in some sort of pain every day since my surgery Oct 27th. The expander is digging into me. I can't sleep on my right side.
I feel like I have no dignity left, I am embarrassed at how emotional and easily upset I was during chemo, I have never lost the weight since my two kids were born (now 13 and 9) so I am embarrassed about doctors seeing my body and casually talking about how obese I am. I can't look at myself in the mirror because it horrifies me to see where my breast used to be. And I feel like all I do is complain. And everyone seems VERY sick of me.
I really don't know how to get through this. I am beginning to really hate the people who are saying to me "as soon as your hair grows back you can forget all about it" I don't know, I am already on meds because I am bipolar but I haven't had a psych doc for years because I have been stable. I don't think I am losing it but I am getting seriously depressed.
Robyn
Comments
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Robyn
You've made the first step by saying this here so please continue down this path and seek out further help (ie, therapist)....maybe something as simple as a med change will help.
Please dont let yourself get into a pit of depression!!!!
Hugs
Jule
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Robyn. Even without previous issues what you have been through has been such an emtional roller coaster to put it mildly. I am quite surprised at your Drs. callous remarks concerning your weight. That isn't appropriate behavior in my opinion. However, your Dr. may be able to recommend someone within the hospital where you have been treated. They may have programs in place to address your needs at this time. I hope you are able to find someone to talk to. But do take advantage of your appt. on Wed. to talk to your Dr. If not your onch then who ever is your prescribing Dr. for the bipolar meds might be able to help you find someone. Cancer treatment truly can upset the apple cart so to speak. And just because your hair grows back.........it's not something you will "forget about". People who say that to you have no idea what they are talking about.
Good luck to you.
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(((Hugs))) I'm so sorry you're having such a hard time, Robyn. BC and the treatments for it are horrible, emotionally & physically debilitating experiences for all of us, and I can only imagine how much harder it must be for you with some of your pre-existing complications, such as the bi-polar disorder. All I could think of as I read your post is to focus on one problem at a time. I think Jule made an excellent suggestion about having your meds evaluated. Maybe you need something slightly different than you did in past years. But beyond that, if you can't sleep, which would make anyone depressed and frazzled, maybe you need a sleep med, or a new sleep med. Maybe your expander can be adjusted. List and address one thing at a time -- rather than letting them pile up until the load seems unbearable.
As far as the weight issue, exercise and a very healthful diet are so important to fighting bc. Perhaps with that added incentive now, it will be easier for you to exercise and eat a health building diet, which should help you shed those unwanted pounds. In fact, there are some great threads on this site to share motivation and nutrition information. One I like a lot is called, Motivation, and it's just a bunch of us who are all at various stages of getting in shape, trying to stay motivated, encourage, and learn from each other about exercising and eating right. Maybe it would encourage you, too. Deanna
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Robyn: You have to remember that you are an early stager and have an excellent prognosis. You do need to talk to someone ( a pro ) to help you through this stage of your recovery. I do mean recovery. Sometimes we have to discipline our minds. When negative thoughts come in we need to simply replace them with positive thoughts. As we do this more and more it becomes our normal thought process. You seem to have a very negative inner dialog. This can be fixed and will make you a happier and more peaceful person for the rest of your life. I hope that you find someone that will council you and give you the tools you need to be truly happy. ((HUGS))
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Robyn.... I agree with many of the other posts. In the beginning I too felt like it was all caving in on me. I am over weight, I never exercised. I felt the same as you all my dignity was gone. I was obsessing about cancer somewhere else in my body. With all the surgeries, infections, treatments and not sleeping I too was in a deep depression. I went to my regular doctor who takes care of my depression etc and he made adjustments in a couple of my medications. I do not think that your onco will have enough of your history to make these kind of decisions. I also talked to a therapist at the cancer center she was wonderful. I must say that with 2 tx left I am almost there. But without all this help I would not have made. So seek support and keep coming to the threads they have gotten me through some tough nights. We are all here for you. Only other women who have bc truly know how you feel. Hugs to you Nancy
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Hi Robyn,
I finished my treatment about 4 weeks ago as well and have had many ups and downs as I try to adjust and learn about this "new" me. We can never go back to who we were before breast cancer - it changes who we are. That can be a good thing after we get through the adjustment period and the realization of what has happened. Hopefully, it can make us stronger.
As I was going through the all the surgeries and the chemo I felt like I was playing an active roll in fighing this. When treatment ended and I didn't have the same amount of support because some thought I was now "okay" and ready to get back to "normal", I felt out of control and alone.
I saw my breast surgeon today and spoke with him about this exact topic. He reminded me that I needed to put myself first right now and do everything I can to take care of me and that it is not unusual to be having these feelings of anxiety, fear and sadness. We've lost a part of ourselves and now we will begin to find that new and stronger woman inside.
If you could find a therapist that possibly had some experience with breast cancer survivor issues that would be helpful. But I would definately find someone who can help you through this. It would also be good for you to talk with your psychiatrist again. Some women actually have Post Traumatic Stress Disorder after the breast cancer treatment experience. The fact that you will be starting Tamoxifen is also an important issue. There could be interactions with other psych meds that could worsen your situation.
Be good to yourself and don't be afraid to reach out as you have already started to do. There are people who care and understand what you are going through. You are not alone - remember that. I will be thinking of you. Take care.
Pam
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Thanks guys, I actually felt stronger when going through the surgery and chemo because DID I felt like I was fighting and more in control then. I also already have PTSD issues because I am a child abuse survivor and a rape survivor to start with and I never expected all that crap to come back to haunt me on TOP of what I am going through now.
Not only am I dealing with the BC stuff but the old feelings of inferiority, perfectionism and irrational need to some how "not fail" and make my doctors "mad at me" are back. My doctors have been nothing but wonderful to me but here I am terrified at going to my Plastic Surgeon thinking he is going to be mad at me because I must have done something wrong since I last saw him. Now the sane person in my head tells me that even if I did somehow do something wrong, he wouldn't get angry at me, we would just have to figure out how to fix it. He is a wonderful kind man but the abused kid in there is terrified that he will kick me out of his office because I couldn't even keep a tissue expander in my chest the right way and I don't deserve reconstruction.
See how insane I am!
Once again I am grateful that you guys are here and that I am not alone in feeling so overwhelmed even though I know I am the craziest in the room! I hope I haven't horrified you all!
Love to all
Robyn -
Robyn.... Just remember you are not crazy. The feelings you have are quite reasonable considering all you have been through. Please call your doctor and see if he/she can recommend someone that can help you to sort out these feelings. We are all here for you! Hugs Nancy
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Robyn, I know exactly where you are coming from. Although I am not bipolar, I suffered for years with depression. One of the posts above mentioned "tools" and training your mind to be positive instead of sending you the barage of negative thoughts and feelings that go with them. It is so true. I really look at it like being an alcoholic or similar dependancy. You are always evolvling, learning, watching, recovering. The two times I have to consciously keep positive thoughts, when I am trying to learn something new and when I have too much happening all at once. You're not insane...crazy people don't know they are crazy
I also encourage you to see if there is someone you can talk to at your treatment center...and to come back here whenever you need a boost. We're here and we get it...
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Robyn - I just has an Onc visit on Tuesday and i told her I had been feeling down. She has referred me to an Oncology Psychiatrist they have on their team. She is someone that only deals with cancer patients, so knows exactly what we are going through and more importantly, can help. She said most of her patients end up seeing her, especially at the end of treatment. Please, please try and find yourself someone to help you though this. There is no need for you to be feeling so terribly. You have come through a lot. Look after yourself.
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****UPDATE******
First of all, I can never say enough about how AWESOME Dana Farber and Dr. Ligibell (my onc) is!!!
I told her what was going on and she didn't have a net thrown over me and have me put away (which I considered a good sign) and, she said she would have their social worker help me find someone in my area who specializes in cancer patients. She also is helping me find a Psychiatrist because I definately need my meds looked at and if worse comes to worse there is someone at Dana Farber who is on staff that can help me out.
I had this total panic attack in the waiting room. I turned to my DH and said "what if we go in there and she tells me that none of the chemo worked and I am dying?" and he looked at me and was like" you know that isn't true" and I said " how do you KNOW its not"
So it was a good time for "the crazy" to rear its ugly head to my doc could see it. Just talking to her made me feel 1000% better!!!
Love u all
Robyn
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Wanted to let you know that this is why we have the Depression, Anxiety and Post-Traumatic Stress Disorder forum,
because what you are experiencing is so normal, it's scary.
I've turned the corner, and am no longer having nightmares and flashbacks, but it is a very scary experience that we've been through, and when we start to relax and think we are going to be okay, we fall apart.
Love and Hugs
Sue
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I did go there, but with the way I am feeling right now reading other people's posts just made me worse. I'm sorry if my post doesn't belong here.
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Robyn66, I too am bi-polar and have survied rape and child abuse. I also have weight issues. I agree that maybe it's time for your meds to be changed. It took a few years to find the right combination for me. I personally think we gain weight to insulate ourselves from what we went through in the past. Because I also have anxiety disorder and PTSD I take lorezapam. It along with my other meds keep me on an even keel. Do you take any thing for your anxiety? It really helps because our "mole hills certainly turn into mountains" but having bc is a real mountain that we will have to climb a step at a time. Feel free to send a PM to me any time you need to talk. I will be thinking of you. Good luck!
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OH, Robin, I didn't mean you couldn't post here!
I just meant that it's so common to have these issues!
I am getting better because of treatment, so please don't feel that this is hopeless.
It's all just so hard.
Sue
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