Diagnosed 3/09, post-lumpectomy, crying all the time...
Just wanted to write a note - I was diagnosed with ILC last month, had lumpectomy & 5 lymph nodes removed (all nodes clear!!) 3/26/09, have appointment with med oncologist next week, radiation oncologist week after.
When will I stop crying at the drop of a hat, and when will my breast discomfort and armpit/upper arm discomfort stop?
Brand new at all this - don't know what to expect....
Thanks!
Comments
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Hi Puppers, Sorry you had to join us. But this is a great place to find Support, help & Friends.
Great to hear your Nodes Are Clear!
It does get easier...Hard to believe when you are 1st on that Rollarcoaster of DX (diagnosis)
It can take awhile for your Emotions to settle down. its a Very Scary Thing to have happen.
I think it starts to get easier when you find out what your treatment plan will be. Until then The unknown seems to keep us All Messed up. And it is Normal to Cry all the time!
The pain from a Lump & Lymph node removal can last a few weeks... less or More. Seems to be that the Node removal hurts us more then the Lump (usually)
When you do get permission to stretch & move your arm...it is really important to do this...I really think it helps in healing & reducing ones pain.
Look around the threads & ask any questions you want to.
Pam
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(((Puppers))) ~ So sorry you're going through this, but at least you already have your surgery behind you, and your lymph nodes were clear, both of which should be a huge relief to you. The discomfort may take a few more weeks to resolve -- probably a good month or even 6 weeks from your surgery date. And as far as the crying goes, we've all been there. A bc dx is a lot to absorb all at once and definitely leaves most of us feeling detached from what's going on, but at the same time very vulnerable and fearful about the future and the unknowns associated with pending treatment. Some tears are normal and a healthy way to relieve stress hormones, but if you find yourself feeling depressed day after day or crying a lot or unable to sleep, you may want to ask your doc for something to help you through this temporarily. In fact, some docs routinely prescribe anti-anxiety meds and/or sleep-aids for women who have just had a bc dx. Or, you can also pick up something natural at a health food store for the same purpose -- just something to take the edge off your anxiety.
Hopefully, once you meet with your oncologist and rad onc and have a gameplan in place for the rest of your tx, you'll start to feel much more in control and taking charge of the situation. Until then, I'm glad you've found us, and hope we can assure you that what you're going through is totally normal and absolutely does get better and easier with time. Deanna
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I had a mastectomy but the doctor that attends my support group says that it takes an average of one year to get back to "normal". Your emotions are still raw.
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Hi,
I too went though Breast Cancer surgery 2-12-09, had a mamisite, 5 days of radation and now Doc wants me to go through Chemo. Been crying my eyes out ever since.
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BusDriver ~ Sorry you're also going through a rough time. Has your doc (oncologist?) explained why you need chemo? Have you had an Oncotype-DX test? A second opinion? I know it's very scary, but most of us here have been through it, and we all did just fine. It's not a picnic, but it's not nearly as bad as we envision it will be, especially if we've known people who've had chemo for other types of cancer, or anyone who went through it prior to the newest generation of chemo and anti-nausea drugs. It's just very hard to wrap your head around the whole idea, but honestly, if you need it, it's probably not going to be nearly as bad as you fear.
I'd also suggest finding the thread here for women starting chemo whatever month you'll be starting it. There will be a thread for April already, and at some point one for May (not sure if it's started yet). I was in the August 2008 group, and I can't tell you how helpful is to share this experience none of us ever wanted with others going through it at the same time. It makes it so much easier to know you're not alone and that there are other women facing the same challenges who care and are rooting for you. (((Hugs))) Deanna
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Puppers and busdriver, so sorry you had to join our club, but glad you found us! the beginning is so scary, I cried alot too. I found lorazapam helped me a lot during that time and if your open to meditation, Healthjourneys.com have some wonderful guided imagery and meditation cd's for cancer patients. tina
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Sorry you ladies have to join us! It does get easier, talking to people seeing people LIVE with this Dx, helps! Read alot on this site and others, this does not mean you are at a dead end there is alot that can be done.In the words of my dh"How do you eat an elephant"? One bite at a time!!!! that is the best words I can give you take it as it comes , and try to find comfort with whatever coping mechanisms you have. My thoughts and prayers are with you! Dawn
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Puppers,
Sorry that you have had to join our club.
I am a 3 1/2 year survivor of IDC (Invasive Cancer), diagnosed at age 41 with 3 positive lymph nodes. The beginning of this journey is really, really hard emotionally. Having your life turned upside down in an instant is a good reason why. I do need to tell you though that what you are feeling is TOTALLY NORMAL and expected! Let the tears flow as crying is cleansing, it is not good to keep the anger and fear bottled up inside.
Believe it or not this journey does get a little easier with time, lots of time. I think I cried myself to sleep for the first 6 months after diagnosis and had really hard awful crying spells asking myself why or how this could happen? It is a total crapshoot and unfortunately with the stats of one in 8 women being diagnosed with bc, we are the ones that end up with it!
Dont be afraid to seek out medical help our conselling if you need it, there is no shame. Lots of ladies including myself seek out anti depressants to help us get through the hard beginning stage of this disease. Once you see the oncologist and get the rest of your treatment plan underway you feel a little bit more in control.
The lumpectomy discomfort was a pain, I found that sleeping with a pillow underneath my arm at night helped with sleep. It took a good few months to feel some relief.
Did your doctor suggest exercises to stretch out your arm?
Please pm me if you have any questions.
Michele
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Yes my Doc has explain why I need Chemo--my Hormone Recetors are out of control--I have 3 that are positive. Surgery Doc said he got all the cancer, took both central node and 1 other, both where clean. The other day I fought with the Oncolgist about taking Chemo, she told me that I have 1/3 of it comming back full force if I don't, then I would not have a chance and 1/5 of it comming back if I do take Chemo. I also showed her the results of my Genic Test, I'm not a muted or a carrier. She still insist I do Chemo, she got very firm with me, sent me home and to come back on the 21st of April to discuss some more, I was just too upset. Told her I just didn't have the FIGHT in me anymore. I still don't know if I what to do it. I am a School Bus Driver this past week has been good, my students don't know all that is happing with me. all the other Bus Driver and other employees have been very supportive.
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BusDriver ~ Do you have any other information about your bc you could share with us? Do you know what kind of bc you had and the size? Do you know what Grade (not Stage) it was? Do you know your hormone receptor status and Her2 status? Depending on some of those factors, there is an additional test called the Oncotype-DX that may be appropriate for you. It's not the genetic test you had, but one that gives you a score to help you understand your need (or not) for chemo. You can read about it here:
http://www.breastcancer.org/symptoms/testing/types/oncotype_dx.jsp
(That's a page from the informational section of this site.)
Hope this helps ~ Deanna
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I just guess I'll need to ask more questions to the Oncolgist, all I know is that my tumor was stage 2 and 2and 1/2 cm and my receptors were postive. I've been a complete basket case, not listing to the Doc.s, the 1st 3 weeks of this starting I really don't remember much, I had surgery 2-12-09 had 5 days of Radition, then my Husband and I went to Hawaii for 2 weeks, came home and it started all over again, Doc visit and etc. I fell sorry for my husband, he's been there though this whole ordeal.
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puppers----so glad to hear that all nodes were clear !!!! My mom had ILC many years ago with negative nodes--lumpectomy, radiation and tamoxifen--and is now a survivor of over 22 years without a recurrence. She's an inspiration to me and I hope can be for you as well.
Anne
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Thank you all SO MUCH for your encouragement and support - it means so much.
I had a good visit this morning with the breast center nurse, very helpful, she said my crying is basically getting "caught up" with my emotions as it has been 2 weeks today since my surgery; for the first week after surgery I was caring for my 80-year old mom in my home (she has since returned to her own home), and my brother was visiting with us until just 5 days ago. So now it is only me, my husband, and my daughter (and our sweet dog), and I'm playing "catch-up" with my emotions.
I also visited with a prosthetic nurse today who is ordering me a couple of bras to help with support since my incision is low on the underside of my breast and I just need something to help with that. And - my primary care doc is increasing my anti-depressant meds also so that should help too!
My pathology reports I read today say the tumor was only 2 cm, but the initial tissue taken out was 9 cm, and then the surgeon took out margins 3 more times, including skeletal muscle fragments, then it was all clear. The lump couldn't be felt, it was so far back towards my chest wall and I had a little wire inserted before the surgery so the surgeon could know where to cut...does this all make sense? The 5 lymph nodes were all benign - so that is good news.
So - anyway that is today's update on me - thank you all again for your support and love and encouragement - this is a merry-go-round ride I didn't want to get on, but now that I'm here I'm thankful I'm not alone!
Monday my husband I go to the medical oncologist to know more of a game plan - thanks for praying!!!!
PS - this is actually my 2nd go around with cancer - I had thyroid cancer in 1986 without a recurrence - and now breast cancer. Funny how this cancer is scaring me more than the other over 20 years ago...
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puppers & busdriver -
A little more than 2 years ago, I did not think I would go through a day without major crying jags. It took time (and the anti-depressant and anti-anxiety meds helped.) I have more good days now than bad ones.
Busdriver-- chemo is no walk in the park, but it is definitely DOABLE. And it was much worse anticipating it that going through it. Not easy, but nowhere near as bad as I imagined. Do not let your fear make your decision.
Hugs and PEACE to you,
Beth
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puppers and busdriver! This is not easy to get thru, let the oncologists take the lead, if you don't like what they say get a second or third opinion. They are the experts and going thru the Tx is not fun, but is doable> It is not like it used to be you don't get sick, you can work go out in public and live your life!!!! I am trying to get thru this and I was Dx in Jan, and By Oct. I should be done with everything, just like a pregnancy, I'd rather be pregnant, I Think! Hopee this helps you! Godd Luck, DAWN
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Hi Everyone,
Thank you for all your support, just a little infor. This is the 2nd time around for me, the 1st was 12-9-99 I had stage 1 Ovaian Cancer, (9 months before my Wedding). So it was more of a shock to learn I had Breast Cancer, I just never thought Cancer would come back, I'm just having a harder time. Doc said I would lose my hair!! and Chemo would be every other week for 4 months by IV. Next Oncologist appt. is on the 21st. I don't know if I have time to get a second or third opinion, Oncologist said it's best to start Chemo within 12 weeks of Surgery and mind was 2-12-09
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just a quick update.....my husband and I visited with the medical oncologist today - chemotherapy is now out on the table as a treatment option, should I decide to try it. It would reduce my recurrence risk a little he said, but with thyroid cancer & crohn's disease in my history, the decision to go with chemotherapy is a little harder to make. The doc is calling a fellow oncologist in San Fran for another opinion - thanks for your support and prayers! Radiation and hormone therapy are definitely a "go" - chemo is still up in the air for now.....
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Puppers, BusDriver and all - It is so wonderful to find people like me. I was dx on 3/11, had lumpectomy and node removal 3/23 (ILC,4cm, 4/14 positive nodes, ER/PR+, HER2-; just writing that all down makes me realize how much has changed. It's a whole new language!)
And I cry, usually in the middle of the night when I can't stop thinking. Crying is good, I think, and I usually feel a lot better when I'm done. For now I'm taking this one day at a time, being strong and in control of those things I can control most of the time, letting my family and friends take care of me when I'm not strong, and hoping for the best. Chemo is on the horizon and I am a mess when I think about it, but knowing you have been there helps a lot.
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Hi Mrs. Rogers! It will get better as things fall into place, you get your mind around it and get a plan, then just take one day at a time,it sounds very cliche, but it is true. I was Dx for the scond time in Jan, had a mastectomy with no reconstruction, currently I am 1/3 of the way thru chemo and I am doing well. It is no fun but doable!!!! I work, take care of my family and live my life, that's what you have to do. I cried ansd was miserable for awhile as well, andthen something came over me, my scans were neg, and I decided I was going to fight this beast and win!!! I am 53, married with a 14yo daughter, I decided I want to see her grow up! I hope this helps you! You are in my thoughts and prayers! Dawn
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I just joined & so I thought I'd start here since the "crying all the time" jumped out at me! I was first diognosed in Jan. of this year. Had 2 surgeries. Lumpectomy & 18 nodes removed on first. Once was cancererous. Then 2nd to go back under the lump incision to remove any other cancer cells. I have been just fine & positive & upbeat all during this. BUT, had my first visit with the oncologist & POW! now it's all overwhelming! I learned I will have 6 courses of chemo, 1 time every 3 weeks. That's like 5 months of it. AND I learned I will lose my hair. Big thing for me.
I am under additional stress as of Sat. because my son, DIL & 2 grandsons who are living w/me since Dec., are now moving out because my son had a silly fight with my other Daughter in Law. He imagined she said something & now is moving out. He won't let me see my grandkids & they are in my house!
So that has me the most upset.
I am glad I found this board. I was looking for something like this to share & talk & learn. I do have a strong faith in my Lord & I do call on His help daily.
I hope to get to know you all
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Welcome Helen. I am sorry you need to join us but you will be blessed with friends and comfort. It helps so much to find others who have been there and done that.
I also have a strong faith in the Lord. And like you, I thought I was sailing through this until my Oncologist visit. He said, "How are your doing?" and I started to cry. I left with a script for an anti-depressant which I started today. We'll see??
I will keep you in my prayers - for your treatment and recovery, and for your very difficult home situation. Remember - all this isn't too big for the Lord!
Love and hugs,
Paula
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Thanks Paula! I feel so much better already since finding this board! I'll be busy looking at each thread.
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Hi Helen! My Dad lives in Little River, SC and have been to Sunset BEach many times, you are not alone and you will get thru it. I've had BC twice in 6 months, and have had 2 rounds of TAC with 4 to go. it is doable, I'm bald and doing well, just came home from my 20th anniversary dinner, if I can do it so can you!!!!! Dawn
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Busdriver, I am so sorry you are going through this, and that you've got such a difficult set of choices ahead of you. I am praying your oncologist is a bad***warrior who kicks your cancer to the curb with those chemo drugs.
A friend of mine who's a therapist told me that crying is great for reducing stress toxins and that I should cry as much as I can. She also said a great panic reducer is to breathe slowly and deeply, 10 times, with my hands held in my lap and my mind still. It really helps.
Blessings and prayers,
Laura
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my new sisters - you are amazing!
God bless you all today!!!
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oh - PS - my oncologist has sent my tumor off for oncotype-dx testing, so it will be about 10 days to 2 weeks before we have the results, and before my treatments begin (chemo or radiation) - has anyone else had this oncotype-dx testing done??? just curious
another PS - my doc increased my anti-depressant, and my crying jags are nearly gone this week...and my pain is nearly gone also - the difference between 21/2 - 3 weeks post op pain was huge - a big improvement - thanks for your prayers!!!
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I did. My score was in the low range. Oncologist felt comfortable that tamoxifen would be the best treatment route for me.
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Hey Sisters:
New to this forum.. so be patient with my ignorance. This is my second go around. In 2005 I had a total mastectomy & all axilllary nodes removed . No chemo or radiation.
The cancer has returned behind the implant this Jan. in my supraclavicle lymphnode and afew on the chest wall. I am doing chemo now . , Once a week for three weeks then off 1/ Just ended my 4th round with positive reduction in size. Yeah!!!
My question for anyone out there today is... shortness of breath>>> my dr. says it is not chemo medication related.. Hmmmmmmmm/ funny it started the same time & has progressively gotten worse. Seeing a pulmonary specialist with a long battery of test . No answer or solution yet.
Meanwhile i can hardly walk across the floor to the phone without feeling i ran the 50 yard dash.
Sound familiar to any one else?
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Oh yea... crying jags for me are unbelievable bad.. Come @ anytime & in waves.
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Hi,
I start Chemo 4-30-09 at 3:00pm, really not looking forward to it. How am I going to FEEL? My Husband and I are commited to a fuction this weekend. It's called Market Affair, it's where alot of Vedors get together and sell their wares. I make Angel, Spring and Christmas Pins to wear, and I really don't want to miss it!!!
DX 2-12-09, Stage 1, 21/2cm, 2 nodes clear, ER-PR-HER- (Triple-)
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