WHY DOES THIS MAKE ME SO ANGRY?

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idaho
idaho Member Posts: 1,187
WHY DOES THIS MAKE ME SO ANGRY?
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  • idaho
    idaho Member Posts: 1,187
    edited April 2009

    I have a couple of "supporters" that call every other day.  They are so sweet to think of me, but I just get so mad because every time I hear their voices they sound like they are talking to someone who is going to die tomorrow- the "funeral whine" I call it!  It is getting so I don't want to answer the phone! I also get the impression they just call to see how I am just to hear the gory details and to have something to gossip about with their other friends.  Maybe I am being to sensitive- I don't know.  Does anyone else feel this way?  I feel like I am the one trying to  cheer them up instead of the other way around!  Tami

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited April 2009

    Tami, I had a neighbor in my apartment building who was like that!  (Still is, two years after my dx, but I avoid her!)  Looks like you and I have very similar dx -- and  I think "funeral whine" would be hard to take in ANY case!  Plus, you know -- even if you can't put your finger on it, you can tell when it's more about them than you, no matter WHAT the tone is.  You feel how you feel!  Maybe put them to work!  I don't know what stage of treatment you're in, but if there's any housework or shopping you need done, just ask them!  If they're really "supporting" you, they'll do it, and if not -- you'll soon be spared the whiny phone calls, I bet!

  • ktym
    ktym Member Posts: 2,637
    edited April 2009

    Tami, yep, know the type.  I tried to keep as many people as possible from knowing for that reason.  Anyone who knew who was like that I flat out told they could call and talk about anything but my cancer.  I'd tell them when I wanted to talk, but talking about it (at least to them) wasn't helpful.  Same with e-mails.  Took a few times with some of them but they got the hint or stopped calling.  You've got enough to worry about without that baggage

  • Jamie6
    Jamie6 Member Posts: 164
    edited April 2009

    Maybe you can try changing the subject next time (hint hint).  If that does not work, perhpas try turning the table around and start talking about THEM and THEIR personal issues.  Either they'll get quiet, or they may actually indulge and talk away about themselves instead - LOL. 

    One well-intended friend of mine was doing the same to me.  He has MS (multiple screlosis)himself, so everytime he gets overly dramatic about my BC, I ask about his health and how he's holding up.  He seems very uncomfortable talking about his own illness or his chronic depression, even though we've been friends for over a decade and I know all about situation.  He changes the subject immediately when I bring it up.

    Well, this tactic has worked for me so far - LOL. 

    Good luck.

    Good luck.

  • Sukiann
    Sukiann Member Posts: 310
    edited April 2009

    I think Jamie's idea about turning the tables on them is a great idea!  I know the type.  It's funny because there are people who are like that and there are people who take the bc thing very lightly.  There's a whole range out there! 

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    My family was the same way about me when they heard the news about my cancer.  I think they googled it, looked up the diagnosis and the staging, etc., and figured I was half dead already.  In fact, I have one brother that refuses to believe anything except that I'm dying!  Not a pleasant person to talk with!  I think it has a lot to do with their experiences with others, and in my case, most of my father's side of the family did die with all different types of cancers.  But that was all back in the 50's and 60's.  Most everyone else has been very supportive without planning my funeral!  I've tried to keep a positive attitude around people and not let my situation dictate the conversation all the time.  But it is strange how people feel they just have to talk about ME and CANCER!

  • Robyn66
    Robyn66 Member Posts: 169
    edited April 2009

    It makes you angry because it SUCKS!  My brother in law did that to me and I almost killed him.  I told my husband that I didn't want anyone treating me like I was sick and for the most part the people in my life were fine about it and then I saw my brother in law who looked at me with this pained expression and put his hand on my shoulder and said how are YOU doing.  I just snapped at him and said I was fine and why wouldn't I be?

    Unfortunately these are usually the same people who will tell you how LUCKY you are they cought it.  And HARP on you about being positive.  They are also the ones who are the first to roll their eyes when you are still stressing when treatment is over and think you are acting like a primadonna.  That's the part I'm at now. 

    The fact is you are going to come across all manner of idiots through this experience but the good news is you will come in to contact with some really great people too!!!!

    Good luck!!!

    Robyn

  • otter
    otter Member Posts: 6,099
    edited April 2009

    Tami, you are not being too sensitive.  I do think it's hard for some people to reach that middle ground where they're not pitying you, but they are acknowledging the seriousness of your situation.  Some people treat us as if we're dying, while others dismiss our fears because (according to them) our cancer was cured.

    I've had exactly the same problem you're describing.  The strangest thing is that the worst has been from the people closest to me, not with more distant relatives or people I used to work with.  People with more distant relationships have shown concern without making me feel like I must be dying.

    OTOH, my own family (not my dh, thank goodness) seldom called me during my treatment and never sent emails or letters.  When I did talk to them, their voices got soft and syrupy--just like when people are talking with each other while viewing the casket at a funeral.  "How are you doing?  I mean, really--are you doing okay?  You would tell me if anything was wrong, wouldn't you?  Are you sure everything is all right???"

    I actually had a dear, sweet relative of mine ask me yesterday if I was okay, and was I "...you know, taking care to check for lumps?".  Huh???  Um, no--of course not.  I'm totally oblivious to the possibility that my cancer might come back or that I might get a tumor on the other side, and I needed you to remind me???

    Hugs...

    otter 

  • PT63
    PT63 Member Posts: 329
    edited April 2009

    Tami

    I feel your pain and I love the name you called it:  "the funeral whine".  There is a group of women who I am associated with, who are very supportive and very helpful but sometimes it is just way over the top.  I started making jokes about it so they would quit asking me about it in that voice.  But I also found that it only struck me wrong when it was certain people- mostly the ones who I really didn't feel would give a darn about me if they couldn't latch onto the drama around the diagnosis.

    Being the sarcastic person that I am I started calling my bilat. mx "my new weight loss program".  That would often make people pause before asking something rediculous.

    One of the most annoying people drove me the most crazy after all of the initial stuff was over.  She kept saying "Well I know you are doing well right now but it must be hard to have to worry about it coming back for the next 5 years".  Like there is some friggin magic date that you never have to worry again!

    Take care

  • smithlme
    smithlme Member Posts: 1,322
    edited April 2009

    I finally got to the point that I let all calls go to voice mail. Then, I could choose when I was ready to speak with them...when I was in the mood for 20 questions. Caller ID and an answering machine were my best friends...

    Linda

  • cp418
    cp418 Member Posts: 7,079
    edited April 2009

    idaho - You are not being too sensitive. Unfortunately they may mean well but now you have had enough with 'sharing' your diagnosis details and desire to step back from their inquisitive questions.  Basically you let them in and now they will not let go of all the details you no longer to discuss.  Maybe politely tell them if they wish to help you they must allow you to move on beyond the treatment and to the future -- not keep reliving the diagnosis and treatments.  Help you heal by allowing you to find your new normal.

    I was in a situation as described by PT63 with my MIL.  Doom and gloom as I went through chemo and was bald.  She was so inconsiderate insisting I wear a wig and not be seen without one.  Yes, I realize it has to due with her generation but I frankly got tired of her always telling me about everyone she knew who died of cancer.  I finally couldn't take it anymore and now completely avoid her unless I have no choice - and frankly I don't care what she thinks of me.  I had some very considerate friends who helped me get through it and they were fine seeing me bald - - even on my bad days when I was crying.  Just tell your friends your new mission is healing and moving on. 

  • NancySchoen
    NancySchoen Member Posts: 32
    edited April 2009

    Tami..... It must go with the diagnosis... initially my sister had the "funeral whine" finally I just told her I am not dying.... yes I have cancer but I am doing everything I need to do to get back to a "new normal in my life". You do not have to constantly think I am dying. That was the end of it and now we are back to talking about normal things like American Idol.

    As for my friends the "true" friends are the ones that are taking turns driving me to radiation and taking me for ice cream at 10:30 in the am just because we can! The others go to my answer machine never to be heard from again. They are not true friends just peope in my life that have too much time on their hands and are looking for something to gossip about.  I now know I do not need these people in my life.

    So remember you are the most important person right now. Your "job" is to get through your treatments and start your "new normal" with all the people that truly love and care about you.

    Oh by the way the next time someone tells you how "lucky " you are to have found the cancer so early tell them what I do. Gee, I don't find anything "lucky" about having breast cancer. You should see the look on their faces. It is priceless.

    I have two more boost tx left. I am struggling with blisters and breakage under the breast. I am sick and tired of this bc. But I know that I can see the light at the end of the tunnel and finally I do not think there is a train there any more!

    Good luck to you. Nancy 

  • pshelton
    pshelton Member Posts: 140
    edited April 2009

    What bothers me is being asked "how are you" by someone who knows what is going on with me, I really do not know how to answer that question.  One moment I am handling things well and then the next I am crying.  I don't want to be asked how I am right now.  Paula

  • otter
    otter Member Posts: 6,099
    edited April 2009

    Paula, when someone asks you, "How are you?", you could consider telling them, "One moment I am handling things well and then the next I am crying."  That's a perfectly reasonable response.  It reflects the roller coaster we're on, and our fragile emotional stability.

    When I see someone I know really well and I know they've had cancer or a family emergency or some other crisis, and I want to know how they're doing, I ask them how they're doing.  Maybe that's not the right thing to say.  I really want to know, though--are they feeling okay, or are they getting stronger, or are they afraid it will happen again, or do they miss the person terribly, or have they figured out a coping strategy.  It's conversation, and I don't know how else to start it if I haven't seen the person in awhile.

    "How are you doing?" is one question I don't mind, as long as it isn't accompanied by that look of pity and the fragrance of scented formaldehyde.

    otter 

  • idaho
    idaho Member Posts: 1,187
    edited April 2009

    Otter- you crack me up!  (my favorite animal by the way is an otter-they are so entertaining!).  Thanx for the tips- definately going to use the one "nothing about bc is lucky".  I too get tired of hearing that "at least you found it early"- from what I am learning that can make a difference and sometimes not....It still is a big chunk of  your life disrupted and the haunting that never goes away. (post tramatic stress disorder?)  I am so glad I found this sight, it has been a god send.  Tami

  • nelia48
    nelia48 Member Posts: 539
    edited April 2009

    "how are you doing?" is such a tricky question!!!!!!  If I really think about it, people have asked me that question all my life!!!!  "Hi, how are you doing?" seems to be the usual greeting everyone gives everyone.  But now that I have cancer, I don't want to be asked that.  It makes me immediately think "CANCER!!!!!!  Why does everyone think of me with the big C on my forehead?"

    I've tried to be fair and realize that this is a typical greeting that people use, and not to be so paranoid abut the cancer inflection in their voice!  I've been analyzing my own feelings lately, as my emotions are on a roller coaster.  First, I DO want people to ask me, but when they do, I get irritated that they did.  And if they don't, I think they don't care about me.  And if the conversation isn't about ME, I want to talk about ME.  And if it IS about ME, then I wonder why we're not talking about all the things we used to talk about.  I'm beginning to think there is no normal anymore. 

  • Hoolianama0508
    Hoolianama0508 Member Posts: 162
    edited April 2009

    I can relate and I think what makes me angry is feeling like I have to be grateful for the well wishes that make me feel crappy.

    After my 19 year old niece found out about my diagnosis she sent me a beautiful letter stating how she loved me and was praying for me and if there was anything she could do just let her know.

    Shortly after that, I saw on her facebook page the following statement:

    "I feel I am losing someone close to me and it sucks"

    Reading that made me upset and a little angry. I got over it eventually and realized that I need to focus on my feelings and not anyone else's.

    I think we should allow ourselves to not answer the calls we feel will bring our spirits down, no matter who it is. And we should allow ourselves to be honest to people who are doing the funeral whine. 

     The next time I speak to someone and I feel less than supported I will tell them about it and excuse myself from the call.

  • bonnievan
    bonnievan Member Posts: 14
    edited April 2009

    thank you for making me feel like I am normal!!!!

    I know exactly how you feel and was starting to believe I was completely crazy!!!

  • giglgrl
    giglgrl Member Posts: 81
    edited April 2009

    I too was having trouble dealing with certain phone calls.....the BEST thing I did was set up a webpage on Caring Bridge. They offer a free website to those going through this type of thing to update family and friends on.......it has been a godsend as you can let all your feelings out on there or just update.....then people can leave you comments as well.....It has been great and only took like a minute to set up. You can check mine out at www.caringbridge.com enter my name "elizabethgigler" to view my site. Good luck.....People mean well, but yes, sometimes we feel like we are just feeding others need to be part of the drama sometimes.

  • TGF
    TGF Member Posts: 3
    edited April 2009

    I also know what you mean ... when people say "How are you?" But ... rather than go into all of the details about it ... I just smile and tell them I'm FINE!  They think I really AM "fine" ... but what I mean is ... I am F (frustrated) I (insecure) N (neurotic) E (exhausted) !!!!  What they hear satisfies them ... but I know what I really mean!

  • Sukiann
    Sukiann Member Posts: 310
    edited April 2009

    There are days when I have mixed feeling too but mostly I take things with a grain of salt.  Sometimes it is great to find out how much people care.  I mean, I really never knew how much I was loved until this diagnosis.  It's a wide known fact that people don't realize how much someone close them means until something like this comes up.  Ok, WE know that we aren't going to die from this anytime soon (because most of us aren't - yes, I now some will) but I think it can be a good wake up call for our friends and family. Not only for appreciating us but for appreciating one another.  To appreciate those that are healthy and those who are fighting some kind of disease.  People are people. No one is perfect.  No one is going to react or say what you would say.  I think it's ok.  I just let them be.  I can't change people (I have a hard enough time changing myself!).  I've lived through so much in my 44 years.  I could list all the bad things that have happened to me over the years and you probably wouldn't believe it!  I have tried hard to focus on the good.  Even if someone says something that is not what I would say, I try to focus on what the person is really trying to convey.  Most people just don't know what to say, they don't know much about breast cancer - some take it lightly, some take it as a death sentence.  I don't feel like it is my job to educate them (sometimes I do if I'm in the mood!) Most times I just let it go.  I can't focus my energy on things that could be upsetting.  It's just not worth it.  It has taken me a long time to get to this and I'm not perfect about it either!  I've had my moments where I just want to scream but I take a step back and just try not to take things so seriously.  I'm a laugher - my kids think I laugh all day long and I do.  Why not???  I could cry all day if I wanted to.  I mean there is enough in my life to cry over, believe me!  Ok, sorry to go on and on! 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2009


    Well, you know I just had to post here! Let's see, my family never call, my kids communicate through Facebook or email, some phone calls, that's okay. My sister emailed me I could "move on" when my bone scan was clear. WTF? I haven't stopped anywhere, just where am I supposed to move on to? I just stopped updating anyone on how/what I am doing. I am back into surgery on Tuesday to clean up my cancer side as there is breast tissue left. No one knows but my DH.

    My fellow workers are great, but one of the reasons I didn't do a recon (other than the physical strain) is that by having a flat chest, it tells everyone that my "battle" continues. As I've said many times, why should I have to wear fake boobs to make YOU feel better? I had lovely breasts before and don't need a recon to feel good about myself. I know I'm very lucky, but I'm 51 next month and I've had my time of cleavage...

    For the friend up the thread there that asked someone if they were worried about IT coming back in 5 years, I would say, "Gosh NO! Now that I'm in the loop I get treated way different than the average female. It's the ones who don't have access to the tests we get that have to worry!" Let her stew about that one! When people who I know don't really care, ask how I am I say "Fine, but we had such a cold winter I froze my tits off!" (I know, I know, some of you are going to be offended by that one). The guys I work with say I'm more one of the guys now.

    If anyone wants gory details I start to explain about the drains under your skin and wrapped around your chest and how you have to milk the tubes to get the gunk to move down so it can drain. And then when they have to pull the drain out.....by then I have no audience!

    I have played the cancer card a couple of times, sometimes shocking people but I don't care. I live with my results everyday and if someone pushes me, I push back.

  • busymomof5
    busymomof5 Member Posts: 25
    edited April 2009

    I am so happy to find this group. I finished chemo on March 16th, 4 dose dense A/C followed by 12 weekly doses of Taxol. I was sick the whole way through, nausea, loss of appetitie, loss of taste, I was sure that my intestines would never work again. On the  Taxol my hands broke out in a horrible rash that blistered and got inflamed with every new dose. Several of my nails are discolored. One got infected and I had it surgically removed on Friday. Now I know why they pull off nails as a means of torture! So, what did I tell people when they asked how I was. Well, one group of close friends I told the truth. The others, now I know who they are, I said I am fine. I realized some people really do not want to know. They ask because that is what you are supposed to do. I ran into a "friend" at the grocery store last week. She asked how I was and why she had not seen me in awhile...yes she knows what I have been doing for the last 6 months. I showed her my hands and nails and told her how sick I was at the end of chemo. She said "I have been busy too. I just started and online company for college packs" Then she told me all about the product and how busy she has been. No, "oh I am sorry that you are going through this." I was hurt and angry. I decided to write the truth about the past 6 months on my announcement page on the Helping Hands website. It was the good, the bad and the ugly. I really wanted the people who say" at least there is a cure" or "you need to stay positive or..." to know that this is really hard. I figured I will hear back from real friends and will not hear from others. I do have real friends who will listen aand will cry and laugh with me. I treasure them so much. That is why I finally joined an online support group. I realize that only others who are going through this know how I feel. Some days I am happy and optimistic, some days I am terrified.

    I have kept my sense of humor through it all. It just tends to be a little darker than it used to be.

    LOL,

    Ann 

  • idaho
    idaho Member Posts: 1,187
    edited April 2009

    Oh Ladies- I just love you!  TGF and Barbe I love you straight forward style!  I have been reading your posts for a couple of months now and feel that I must tell you I love reading your opinions!  I will always remember the FINE answer now, and Barbe I am so sorry you have to have another surgery.  I love that you feel you don't have to make people comfortable - I am one of those people pleasers- I would love to be like you and just say screw you, I'm comfortable, sorry you are not!   Tami

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited April 2009

    I have a friend who always has to follow me around as if I was already helpless and unable to care for myself.  It drives me bonkers!!!!!!  I can't stand the sympathy looks.  Then I have others who don't even call me because when they do call , they only want to askme about the cancer and won't tell me about what is going on in their life.  They say  "Oh, you don't want to hear about my petty problems"....yeah I do......I  feel anger because it is as if both extremems want to take control of my life....No!  Yeah, my life is quite different now and I just don't know how to act sometimes.....right now anger is a huge part of it all.  Thanks for this thread!

  • pshelton
    pshelton Member Posts: 140
    edited April 2009

    I pretty much do answer the "how are you" question with "sometimes I'm ok and can just say I have breast cancer and sometimes I am crying all the time"...its true, I just start crying at weird times but I know its normal to feel this way.  I am so thankful for all the support that I do have.  I made a website that I update and everyone I know can go in and read and sign my guestbook and leave messages, that is the best thing I have done because I read those messages everyday and it is so helpful. I have 95 of them as of today : )  

  • Titch
    Titch Member Posts: 141
    edited May 2009

     I am only recent diagnosed and yes I have experienced the "funeral whine".

    1. I announced my news yesterday to my work colleague.  Today I had a work colleague come up to me and he said "I wanna wish my Condolenses to you". I said to him "I am not dead".

    2. My own mother, started talking funeral and burial plans..... My only sister, wanted to talk about my children and there care after my death.

    I am trying to be really positive about what life has thrown me, and my mind is fighting the beast and beating it.  Even if I was terminal, I still have a life to live...... and don't want to be talking about the inevitable.

  • apple
    apple Member Posts: 7,799
    edited May 2009

    you know...

    i am bad (my bad)

    if i don't want to discuss my health (which is more than often).. i respond to the 'how are you' question with 'oh.. i just have a few pooping issues.. nothing i want to get into" 

    i don't have pooping issues.. it's just a great way to stop the 'C' conversation.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2009

    It's hard to be getting those phone calls of the "funeral whine" How Are You, but -

    At least they care enough to call.

    It's the callls I don't get from the ones I thought were friends that bother me a heck of a lot more.

    Leah

  • pmellon
    pmellon Member Posts: 38
    edited May 2009

    I find that no one can win with me anymore -- but most of that is just my mood and my issues right now.  The phone rings constantly and I screen them and complain.  And, then I remember how grateful I am that people care and there are worse problems that I could have.  We are on such an emotional roller coaster and until you've gone through it, you just can't relate.  I am a pretty positive person on my own, but I am so sick of the Positive talks and the how lucky talks.  And, it drives me insane when people ask how you are.... but what else are they going to say?  Everyone, for the most part, just wants to be there for you and show you they care.  That's what we need to remember, when we feel like strangling them!!  Thanks all for making me feel a bit more normal!!

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