Embracing the Bald

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  • saja713
    saja713 Member Posts: 20
    edited April 2009

    Hi all,

    All your posts have been really inpiring!! I started chemo last week, and from what I've read and the doctor has told me I start losing my hair around this weekend. I'm just not sure how soon I should shave my head. My daughter says I should go for a mohawk at first, which I think I just might. I've been so worried about going out in public with a bald head, especially since it looks like I'll lose my hair before I am able to buy a wig, (I do have a couple scarves, but haven't got the tying down, when i'm through they look just plain not right)  but now listening to all you brave women, who cares! 

    Thanks all!

    Staci

  • ktym
    ktym Member Posts: 2,637
    edited April 2009

    Cloud, I think that is a great statement: "what can be more beautiful than a woman at ease with herself".  I would think that would set a very important example for your students.  I think its wonderful that you are setting such a great example and talking to them about it. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited April 2009

    I wonder if anyone has tried Nixoin as they went thru chemo?  If so, what do you buy.  Does it work?  The hair dresser person at the cancer center I go to rubbed some on my scalp last time.  It felt nice and I wonder if I should spend the money on it as I go thru tx.  She also said some of the ladies felt it helped to encourage hair growth.....What do you think?

  • apple
    apple Member Posts: 7,799
    edited April 2009

    i play at a big church.. and one day i was wearing a beautiful scarf but was playing something super difficult and the soprano was messing up big time.  i started having the worse hot flash.. so i just flung off my scarf without thinking and looked at her like "come sister - we HAVE to get thru this it's all YOU" - i thinked i kind of shocked her into non nervousness because we got thru it.

    so when the song was finished here i am in the middle of this big church totally bald - i was astonished.   i put my scarf back on.  i should have left it off.

    it's not that big of a deal really.  people all know we are bald.. at least everyone that i know, knows.

  • BooBee
    BooBee Member Posts: 860
    edited April 2009

    Staci.....You're the first person I've seen from our area.  Sorry you have to join us. 

    Renee

  • DV8Q
    DV8Q Member Posts: 65
    edited April 2009

    Staci you should definately get a mowhawk! I did a short girl hawk and had my hair dyed blue (non teoxic) before it started really clumping out. This is your liscence to try something new go for it. Ohh I just noticed the date of your post ..I am a little late. Fair the well. 

  • EleanorJ
    EleanorJ Member Posts: 752
    edited April 2009

    Cloud, you're more than welcome. I'm glad to hear I was helpful. The worse is to get over it and do it. Once you've felt akward the first 2-3 times going out bald you forget.

    Now, last weekend was my hubby grand-father's 80th. It was a HUGE party and I hadn't seen his family since Christmas and had the scarf back then (I was only bald for 2 days!). I was really debating about wearing a scarf or not, his grand-father looked completely shocked when he saw me with the scarf on Christmas. Well, decided against for the exact reason I said, someone WILL be uncomfortable and it won't be me, it will be all 50+ people there ;) Turns out a few people didn't even know what I was going through and a few people told me I was beautiful. It's always nice to hear. I think we make a bigger deal out of it than others do.

    My MIL actually told me that she prefers seeing bald than to see my port sticking out! As far as little kids, I was worried about freaking them out but really, I think children all handle it better than adult. My 4-year old never even bother to say anything about my lack of hair.

    Now, how many of you have been hearing a child going "Mom, that lady doesn't have hair!" in a store? I really don't mind and feel bad for the embarrassed parent that their child was so loud, but I'm hearing more of these comments than people approaching me about cancer. Just wondering.

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited April 2009

    My son Eric and I had fun with sharpies yesterday! Happy Easter!

  • apple
    apple Member Posts: 7,799
    edited April 2009
  • EleanorJ
    EleanorJ Member Posts: 752
    edited April 2009

    How fun, you're an Easter egg :) See, bald is fun :)

  • Lainey64
    Lainey64 Member Posts: 740
    edited April 2009

    Staci - I'm still not as brave as the rest of these women but I have become very comfortable just wearing my ballcap when I go out.  I also bought a couple of other hats that I wear to work occasionally.  I will tie a scarf around my head and put the hat on with it.  It looks cute and is a refreshing change from wearing my wig to work. 

  • Renrel
    Renrel Member Posts: 497
    edited April 2009

    Friday I took a walk around the neightborhood with DH headgearless and then we went to the nursury and I again did not cover my head.  I barely thought about my bare head all the while.  I was back to headgear over the weekend because I was cold.  The next step is going bald amoung people I know well and interact with.  The ones who will feel the need to comment in some manner. 

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited April 2009

    Renrel Congrats on going headgearless!! It definitely rates much higher than wigs, hats or scarves for me. I have noticed that people will compliment me on my bald-head look, then tell me about someone they know who had cancer. I politely smile and nod, knowing they mean to be supportive, but it really makes me uncomfortable.---just wanted to share that so you will be prepared if it happens to you.

  • TorchSong
    TorchSong Member Posts: 348
    edited April 2009

    Hi all-- I went out Saturday night to the club without hat--my first time hatless (wigless/scrafless too). I was really nervous going in, but after about ten minutes I forgot about it, unless one of my frends commented on it as they arrived. I did get some compliments, and no negative looks or comments. So--on Sunday I didn't wear a hat either (I'm a minister).  Again, people were great with it.

    So I think I'm done with hats, unless I need one to keep warm!

  • apple
    apple Member Posts: 7,799
    edited April 2009

    i really am comfortable w/ just a scarf band or baseball cap or bald as an egg.. however, i wore a wig to play at Easter services.. so many people commented on how cute my hair was.. yuk! 

      they have no idea how uncomfortable a wig is, and how you have to adjust it every time you sneeze.

  • CaliforniaCloud
    CaliforniaCloud Member Posts: 160
    edited April 2009

    Today was all about me:  I wore a hat to school because it was cold.  I started to teach with my hat on because I was cold.  By 8:10AM my head was hot.  As I took my hat off, I told the kids that I will wear my hat when my head is cold or when I am out in the sun; otherwise, I will be bald.  The kids were great about it.  What I realized is that if my head is warm, I have no idea that I do not have hair on my head, so I act just the same as usual.  What freedom! 

    This afternoon during afterschool tutoring, the boys were really checking out my head--the difference in the color of my face versus my scalp; my hairline; and they were intrigued by the different lumps and bumps on my head.  I shared that I had been surprised by those discoveries myself.  We laughed and had a very lighthearted time. 

    Thank you ladies for sharing your thoughts, feelings, and experiences.  I am sure I would have taken this path on my own, but you all have lead me to a shorter, more confident, fun loving path.

    Cheers!

    Cloud

  • ktym
    ktym Member Posts: 2,637
    edited April 2009

    I've gone bald throught this whole thing.  However, I've not told anyone but a few who had to know at work.  So, when I needed to run into work yesterday to get a few errands done and take care of some paperwork I was a little worried about the announcement why I've been on leave my head would make.  Didn't need to worry.  I walked right pass several people who totally didn't recognize me.  Cracked me up. 

  • giglgrl
    giglgrl Member Posts: 81
    edited April 2009

    I had my first tx on the 1st. My daughter was going out of town for a few weeks and was worried about not being here when the hair started to fall out. We got together and shaved it all off. I had purchased quite a few scarves and hats, but I also, have found I prefer not to have anything on my head. I was worried about how my husband would handle it on the train to work, how the people at work would take it....but you know what...everyone has been great....I did scare a couple of kids at the grocery store the other day.....and I may feel different once it is ALL gone.....but I just dont like stuff on my head.......

    I also have a caring bridge page......my son made a video of us shaving our heads......being 20 yrs old...he had the long hair thing going....so I was touched that he sat with me and shaved his head as well......there is a link to the video on my caring bridge page.

    I tend to think it is part generational thing....it seems the younger women dont seem to mind the bald as much.......??? I think growing up with punk rock in the 80's it is not as much of a omg thing to us...you think?

  • EleanorJ
    EleanorJ Member Posts: 752
    edited April 2009
    Elizabeth, I love that picture of you and your hubby, it is just so sweet. You're beautiful :)
  • CaliforniaCloud
    CaliforniaCloud Member Posts: 160
    edited April 2009

    Just popping in to update my photo.

    The weather is warming up nicely here so any time I can run around campus without going out into the direct sunlight, I do not wear a hat.  I am still surprised when children and adults look at me in a strange way, but I just do what I have always done: smile and say hello.

    I love this topic, it is just plain fun to experience personal growth with you ladies.  The tears and fears of losing our hair is behind us and now we are stepping out into uncharted territories--not about our health, but our own sense of self.  And isn't it fantastic to know that our sense of self is resilient to cancer.  I am so proud of us all.

    Cheers!

    Cloud

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited April 2009
    I just finished my last chemo yesterday. Smile I have been going without anything on my bald head throughout most of my treatment. I have a braun shaver that kept the small amount of stubble I have on the top of my head cleaned up. Now that I am done I have a dilemma. Do I cover my head during the regrowth process? Do I keep shaving until I can feel the prickly thicker hairs coming in evenly on my head? Do I just continue to go commando and show everyone the regrowth process? I'm overwhelmed with the choices! Any thoughts or insights?
  • ktym
    ktym Member Posts: 2,637
    edited April 2009

    I went commando.  It looks funny the first 6-8 weeks, then gets better

  • arnie
    arnie Member Posts: 3,050
    edited April 2009

    Well ladies...I just embraced the bald!  I had so much hair all over me for the last few days that I took the plunge..  I didn't get emotional, it's oddly liberating... 

    Congrats xpectmiracles!  So looking forward to being where you are...

    CaliforniaC...I loved what you said about unchartered territories and sense of self...amen sister!

    Haven't read back to far so to the rest of you brave ladies out there...KUDOS!

  • EleanorJ
    EleanorJ Member Posts: 752
    edited April 2009

    Cheryl, congrats on finishing chemo :) I was wondering the same thing, isn't funny how we go bald, but when it starts growing we want to cover it? My hair were slowly growing during chemo and quite fast. I kept shaving, getting rid of the white fuzz and making it look more uniform, so when I did my last shave, a week later, it was about 1/8" tall, dark and pretty uniform. Now for some odd reason, on day 18 after my last chemo, it ALL fell again :( So I'm back to square one where the white fuzz will grow first. My reason for going bald was discomfort, the more I went bald, the least I could handle wearing something, even a plain scarf. There's no way I could wear scarf throught the growing process, especially that Summer is around the corner. What I plan on doing is letting it grow, than when it goes out of hand, giving it a shave, but longer shave everything. We'll see...

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited April 2009

    Your hair fell out again? eeegads! There is no rhyme or reason to this, is there? I think I'll take it a day at a time and see how it goes. Right now I've decided not to shave for a while and really see what's up there.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited April 2009

    I am at #5 of 6 # tx-taxotere.  On day 8 since my last tx, I have  5 oclock shadow on my crown!  The weather is finally warm and I don't want to wear my hat.  For now, at this moment, I feel good!

  • CaliforniaCloud
    CaliforniaCloud Member Posts: 160
    edited April 2009

    I echo Caroline's plan: just to let it grow and trim as needed. 

    I am scheduled for 12 months of Herception, which I understand retards hair regrowth once chemo is complete.  I hate the thought of shaving now just to wish I hadn't when the fall weather returns. 

    In fact, at this early stage of the process, I pretty much try to focus on scalp health, learning to use eyeliner, and never look at what is going on with the back and sides of my head.  Ha!  As you can see, nothing is happening in the front.

    Cheers!

    Cloud

  • BooBee
    BooBee Member Posts: 860
    edited April 2009

    I've decided it maybe somewhat selfish enjoying the sunshine completely bald in public places and also cruel to mothers of 5 year olds.  I went to the garden department a Jerry's this afternoon and neglected to bring a hat with me.  At the check out counter, I heard a young child say, loud enough for three isles to hear, "Mom look at that lady, she doesn't have any......"  Out of the corner of my eye I could see the mom attempt to rip the child's arm out of the socket. 

    After the dust settled I told her it was okay and if that kind of thing bothered me I would wear a hat.  I told the little guy that I had to take some medicine that made my hair fall out but I assured him that it's not the kind of medicine he would have to take.  He looked a little relieved but she still looked mortified.

  • Renrel
    Renrel Member Posts: 497
    edited April 2009

    Any suggestions for a great head decoration for my last chemo.  I have gotten more adventurous with each infusion.  Each one taking me further on the road to embracing the bald.

    1- my own hair

    2- a fuzzy pink hat with a bright blue turban wrapped around it.

    3- a natural looking wig in a color not my own.

    4. a pink wig. (my favorite)

    5- temporary tattoos of butterflys (everyone elses favorite)

    6???????

    I have been giving alot of people pleasure with my upbeat approach to infusion day and hair loss so I would like to come up with something really awsome for my last one.  So far my ideas are

    1- pink wig with a tiara

    2- some sort of face painting

    3- some sort of sign my head thing.   I am not sure what product would work for this, but to let people sign or paint or something on my head. 

    What do you all think?   I could of course, just go in bald with no special fan fare.   But I am enjoying the fan fare and it would feel rather anticlamatic to just go bald onmy last infusiion day.  I will just go bald for many days after that after all.  

  • ktym
    ktym Member Posts: 2,637
    edited April 2009

    I'll recommend what I personally wouldn't have the guts to do: paint f--k cancer across your head.  That would cheer me up to see if I was there

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