Roll Call
Comments
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DX@55 Dec 16, 08. Felt a lump on rt side last yr and can't remember when the "oh, shit" moment really was. Went to ps to ask for a "quick needle biopsy" and he sent me for diagnostic mamograms/sonograms. Five days later a diagnostic lumpectomy.(2cm) IDC. Then a stereotactic biopsy on left -B9! - then brst MRI showed ANOTHER suspicious couple of lesions on rt brst..so 2nd core biopsy - big breath - doc says - lumpectomy with re-excision and SNB if b9 - or mastec if malignant. - Biopsy came back b9! Surg. 1/21 - Nodes came back clear -.EP+Her2-; Mammosite placed and failed - Oncotype of 22 put me in the low intermediates - i decided i would rather change my diet and exercise habits than go through chemo...now waiting on approval for IMRT and found PARABENS in the cream the Radiological nurse gave me!! Help! I need a non - paraben cream!!! I am reading Dr. Servan-Schreiber and taking a serious look at my new life! S-t-r-e-s-s-ed cuz my housesitter has to leave in May and I may still be in treatment....anyone is western Pa/Magee?
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I was DX'd at 48 (2 years ago). Originally found a lump in my armpit, turned out to be nothing, but while checking the mammo they saw a lump on the breast, turned out to be cancer. Funny, they were ready to send me home saying everything was fine. 5 minutes after I left the clinic, they called me to come back, the doctor wanted to talk to me. Thank goodness she decided to have a closer look, I'm not sure when I would have gone to do another mammo.
Shelley
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Your angel woke up and tapped that doctor on the shoulder....!!
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Interesting, because mine was an "angel" too! My bleeding nipple had nothing to do with my cancer! There are a couple other aha's on here I've read, too.
Why did JudyO delete her question/post?
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Good question. Why did she delete it? Mistake?
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Always had dense breasts, and never missed my annual mammogram and GYN visit. Had a stereotactic core biopsy 9 years ago for calcifications in my right breast, which were then diagnosed as fibrocystic changes. Fast forward to 2008, I found a lump in my right breast (accidentally...I wasn't looking...just tucked my hands under my arms one evening, and my finger touched upon it). Diagnosed on my 51st birthday in October with .6cm IDC (ER+/PR-/HER2-). Had right-sided mastectomy 11/17/08. Post-mastectomy I found out I also had a 1.5cm ILC (ER+/PR+/HER2-) in that same breast. Both stage 1, grade 1. No reconstruction. Oncotype score on ILC was 9. No chemo. Am post-menopausal and started on Arimidex in January 2009.
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Checking in although I don't really feel old, but I guess older than some. I was among the oldest in my chemo group and I was grateful that I could go through this without having to worry about dating, or dealing with young children. My heart goes out to the younger women who have to deal with this trauma. But I was also young enough to cope with the treatments. Chemo put me into menopause and I was ready for that.
I was 53 when diagnosed. My mammogram showed nothing, but ultra sound showed a tiny suspicious spot. MRI showed multi focal IDC Stage IIa (3 lymph nodes). I had a left mast w/tram flap recon, chemo, rads, and I'm now considered a 4 year survivor. WOO HOO! I've been on Arimidex for 3 years with no adverse side effects.
I was a daily user of this site for 2 years. Now I just occasionally drop in. I hope to be seeing all of you here for many years to come.
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[Deleted by otter]
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hi ladies -
Diagnosed 7/08 age 62 after found lump myself and family doc sent for mamo and ultrasound. Had lost my job and ins 7 years before so no annual exams in that time
now self-employed in graphic design and layout and work from home, no ins
always had dense breast tissue and pre-hysterectomy had history of cysts that had to be drained periodically
IDC, 2.5cm, grade 2, ER+PR+, HER2-
left mx, no recon, 2/13 nodes, almost through with 6 x TC chemo, no rads recommended, onc says will put me on Femara when done with chemo
cannot imagine dealing with this as well as children at home or working full time outside my home, am in complete awe of those who are doing some or all of that - guess the Lord knows what we can stand...
prayers and blessing to all...
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hi all
i was diagnosed at age 49 in 2002. so here i am 7 years later at 56; 57 years old end of june. i am "older" and i am loving it*** interesting; back in 2002 i was in a clinical trial for TAC combination chemo and now it is standard care for women with lots of positive nodes. my, my..how time flies. hah
take care all
diana50
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Diagnosed at 49 and turned 50 the following month. Found on routine mammogram. I am fine today, but still afraid of it coming back.
The good part is I don't think about it every moment like I did in the past
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Diagnosed at 53, premenopausal. Turned 54, three months later. Also, found on routine mammogram. My mother was diagnosed with BC at age 55 and died at age 62 of breast mets (3 weeks from recurrence date).
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am i the oldest among this group??
i turned 72 in october 2008 i had mammogram in october '07 and nothing was noticed. i was not very dilligent about self examining. but i did one in june '08 and found a lump in my right breast. took a week to digest this-never telling my husband of 50yrs. then checked in with the pcp and started going down the long, long road. mast in aug '08 then fec chemo. couldn't decide whether to go for rads. after much agonizing felt i might as wll go the entire way as at present i am in very good health(except for the bc), and would feel real bad if it came back later and i realized that i had not done it all... so 2 weeks ago i finished rads. now my hair and energy is coming back. i will be 5 years on arimedex. se are joint pains, but i find that if i go to my pilates class i can manage the joint pains. oh i am so glad to be over the md and hospital visits. and summer and bright sunlight is coming-what a good time to feel better.
p.s. that picture is of me before all this began.
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I am 58. Had a core biopsy on 1/15 after a yearly screening mammogram showed calcifications. On 2/2 I had a lumpectomy and SNB. My oncotype came back 26. I am currently doing 4 cycles of AC and then will do 18 days of radiation therapy. I then will be on an aromatase inhibitor. I am not looking forward to that as I have tendonitis in all my major joints. I am physically active and hope that exercise will help with any increase in joint pain. My husband was diagnosed with cancer in his sumbandibular gland last April and had 2 surgeries and radiation therapy, he is doing fine. We are just ready to be finished with our frequent trips to the cancer center. I feel fortunate that I have had a great team of doctors and look forward to lots of years to come........
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Updating my roll call notice--I decided to go to NOLA for unilateral mastectomy plus immediate reconstruction, probably DIEP. In my last visit with the surgical oncologist she finally admitted that she thought a mastectomy is best for me, and I agree. The DCIS could be all over and there's no way to know. I don't want radiation, then frequent MRIs and biopsies, then probably a mastectomy later on anyway. My intuition tells me this is the right thing to do. My surgery there is scheduled for April 21.
The input of all the wonderful women on this site has been invaluable--thank you everyone who has helped me without knowing I was reading your ideas and soaking them up!
Ina
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I am 64 and newly diagnosed with ILC in March. Calcifications were found on my annual digital mammogram. I had a core needle biopsy and MRI followed by lumpectomy with sentinel node biopsy. The two specimens of invasion were only 4mm and 2mm with clear margins and clear node so the plan is radiation and Arimidex. Right now I am ANXIOUSLY awaiting the results of the Oncotype test.
I've been reading this board for the past month and I see myself in so many of your struggles with difficult decisions and the anxieties of waiting for test results. Thanks to all of you for being here!
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I'm 60 years old here, diagnosed in July 2008. I knew 7 years before that that I had a lump, but since I had no insurance, etc., let it go until then. By that time, the tumor had taken over my whole breast and underarm, was open and through the skin, etc. A real mess. It was a slow growing tumor, which was in my favor. Responded very well to chemo, went through mastectomy and now just finishing up radiation. Had PET scan in February which showed no spread.
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dang--had such an eloquent post and it just poofed! So, will start over....
junie, here. I'll be 62 next birthday. 53 when dx with IDC. (happy Thanksgiving); Lumpectomy (Merry Christmas)....ax node dissection (15+ nodes all clean)(bs didn't do SNB at that time)...4 A/C chemos, rads...Tamoxifen for 5 years.........
Found bc.org when searching for Tamoxifen side effects...been a "groupie" ever since! I read (lurk) a lot because there are so many changes just in the last few years; post a little. I want to be as up-to-date as possible because of the fear of recurrence or possible new primary....and concerns and care for other "old-age" ailments creeping in.....
"We" keeping eye on calcifications that have presented in last two mammos. Need to schedule next mammo!! I have learned so much from the posters here--my rads onc thought I was a doctor!!!
Have met on-line, and in person at get-togethers, some of the most beautiful, incredible people!!! Have shed many tears here and laughed out loud! I live in a rural, isolated area and bc.org is the best support group I could have!!!
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61 yrs here..was dx last Aug 2008 at 60 yrs during a routine mammo. They promptly did biopsy and found a 'small' tumor .08 and some calcifications. Opted for a lumpectory immediately - no nodes, ER+/PR+ -HER2-..had a 2nd surgery 9/10/08 for clear margins...did rads and finished those 12/16/08 and now on Femara since 1/1/09. Oh UGH with the Femara! Slammed back into meno with flushings, awful night sweats, BAD mood swings, now have bad joint pain(mostly ankle and right hand/thumb). Absolutely NO family history of bc. Doing some serious consideration of quitting the Femara. DH is totally supportive and really really understanding of all my se's. In all my lurking on this website, i havent come across anyone who was on Femara for the 5 yr duration and what their long term outlook is and/or IF, God forbid, a reoccurance of this dang crap.
I have a hard time wrapping my brain around the fact of the "One size fits All" dx from the drs. No matter what your dx, size of tumor, or ER/PR status, ALL gets the same meds for the magic 5 years!!! Hummm????
Think I am in a total funk and/or some type of PTSD..so calling reg dr. this morn to see if getting on some type of antidepresant could maybe help get me through all this 'questioning' period. This is such a life altering business.!
I am though, extremely grateful for the fact that they found it sooo early and it wasn't too large and have relative little side effects compared to some of the gals here ont his board. Sometimes I feel like such a 'weinie' and try to tell myself QUIT Bitchin!!! But i guess it's all relative..to each of us, everything is yukky and hard, no matter what stage OUR bc is.
Also extremely happy that I did find this website because ALL of you are sooo supportive and have so many good thoughts and ideas...YOU are a blessing!!!
Cheryl
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Hi, I was diagnosed in Nov. 2004. I was 51, with a clear mammogram inAugust of that year. My breasts were dense and my right one full of calcifications. I had a ruptured appendix in Sept. of 2004 with an abcess 4 weeks later. In November I felt a lump in each breast . I called my radiologist immediately(Thank the Lord she was a parent of one of my students.) I went in that Monday, she did an ultrasound and told me she suspected cancer at least in the leftbreast. She decided to then do biopsy on right one also and yes, stage 1 in right breast. Conclusion:Bi-lateral Breast Cancer- with one positive lymph node. I was in treatment by the end of Nov.At Magee Women's Hospital In Pittsburgh),chemo first, surgery in May(Bilateral Mast.) and 36 radiation treatments. The following February, I had a complete hyserectomy. I am currently on Aromasin and doing great. We were transferred to the state of Indiana, but I go back twice a year to Magee. My radiologist and the staff at Magee saved my life. I will be five years out in Nov. What a great forum, thanks for starting it and God bless you all. Kathy
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Hi, be going for annuals since I was 35 (dense breast) calcification's on rights side from beginning, bilat cyst aspirations, and needle and core biopsy right side.. known as a cyst making machine. Jan 2008 is when I had the needle biopsy done right side, and in June 2008 for the 6 month follow up ended up with core biopsy on right side. With the usual 6 month follow up on right. That brings us to Jan o9, it will be the yearly on my left and semi on the right. Results were 1) need and MRI on the right (we cant keep using you as a pin cushion) and 2) biopsy on the left (new calcification's). A week later Monday had steriotatic Biopsy on left, Wed MRI on both Breast, Thursday results of both were right side clean, left side DCIS.
Surgery to remove DCIS - results were dirty lateral margin and a small spot of adenosis a benign condition that mimics Invasive cancer - a special dye test was done to prove thats what in fact it was .. it came back postivie fo IDC
Surgery to get clean margins, and s SNB- All clear on both!
Have TE in and am waiting to see RO to see if I am healed enough to start radiaiton Would Like to get it done before the heat of summer sets in.
Will be 52 in July
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I'm 61. I've been pretty good with the mammograms, dense lumpy breasts, a few call backs. I always trusted the mammograms. If I felt a little lump and the mammo revealed nothing, well great! Last year I felt a lump in my upper inner right breast. A month later I decided to ask my primary care doc. I had to put her hand on the lump because it was apparently an atypical location. A mammo showed nothing! A sonogram did. The radiologist told me he was sure it was cancer. A biopsy showed ILC. That started a long journey to surgery (never get breast cancer near the holiday season). A long scary wait (what if it spreads to the lymph nodes while we're doing all this waiting?), MRI, CAT/PT.
Everyone was extra concerned about sneaky lobular cancer. So instead of a lumpectomy I had a single mast. and same time reconstruction w/alloderm and inplant in late Jan. with a quick easy recovery. Close margins in such shallow tissue, but no radiation. An oncotype score of 20.5 after another loooong wait, and the recommendation that I skip chemo. I've been on Femara 3 weeks and only SE so far is very tolerable hot flashes at night.
Now I want to tell every woman I meet that mammograms don't show all tumors. I had never heard about lobular cancer. I'm very lucky it formed a lump.
I'm so glad you're all here. Wish I had found the forum earlier. Long happy lives to us all.
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I was diagnoised with ILC Jan 04 at age at 52 am 57 now. Have been off Arimidex for several weeks now. clear pet scan and bone scan this year. So I am dancing with NED right now.
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Cheryl60 I am also on Femara since July, terrible pain in hans and thumb also. What did you end up doing?
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Hi all. I was originally diagnosed in November of 1985 at age 43 and in December 1985 had mastectomy followed by six months of chemo. The beginning of May of this year, after two MRI's, a CAT scan and a PET scan, I was diagnosed with bone mets from the original breast CA. No new tumors in any organs, etc. You might say it was a big shock after 23 years "cancer-free". I am taking Arimidex and I'm having Zometa infusions once a month. No SE from the Zometa and the only Arimidex SE I'm having so far are the joint aches and stiffness. I'm so glad I found this group for Older Women. I'll be 67 next week and although I may not have another 23 years - I'm aiming for as many years as I can get!!
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Spar 2 - dancing for you! How wonderful. Enjoy your weekend - you certainly deserve to!
Jan244 - And who says you won't have another 23 years????? Although have the mets after 23 years really sucks big time, You have the Arimidex and the Zometa, and most importantly of all, you have all of our arms giving you strength that will get you through all this.
And to all you other fine sisters - may blessings be upon all of you, no matter what life throws our way.
Hugs to all,
Linda
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Hello all, I am 58 and was dx with microcalcifactions in February of 09. Positive for cancer with biopsy. Had right mastectomy in March and I have been blessed in that I don't have to do chemo or rads. Just Tamoxifen for 5 years. Hope you don't mind me joining your group. Judy
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Hi, just one more 'well seasoned' from Scandinavia even though the summertime has just started! Well, straight to the issue. I had my first taxotere two weeks ago and my main symptom was constipation. Stomach ache was not on the list of common taxotere side effects. Did anyone of you suffer from this? Blueberry 46
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Diagnosed at 58 with DCIS right breast and IDC left breast. Right was found on annual mammo and left was found after MRI. Surgery is scheduled for July 17th, bilateral MS with immediate DIEP reconstruction and removal of ovaries and tubes. 7 days and counting, starting to get really nervous, but keeping busy to take my mind off things. Did any of you "seasoned" ladies have immediate reconstruction?
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