Care of your prosthesis

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I am new to the board.  I had a mastectomy in 2006 without reconstruction.  I just got my first prothesis.  (long story)  I have a question.  I have looked several places and cannot find a source that explains how to care for the prosthesis.  I have the amoena with a thin film of covering over it.  When I got my prosthesis from the American Cancer Society no one told me the proper care and I slept on it.  It fell apart!  I was devastated.  I have a new one and am afraid to use it!  It seems so fragile.  Any advice would be greatly appreciated.Smile

Comments

  • cathy50
    cathy50 Member Posts: 46
    edited April 2009

    You must of gotten a cheap set ? My ins. payed $600.00 for mine and i get a new set every year. I don't do anything special with mine. You can take a warm cloth and wipe them off i just leave mine in my bra all the time i also get 3 bra's a year.

  • She-ra
    She-ra Member Posts: 13
    edited April 2009

    Yes they do seem very fragile don't they! It's possible that the form you were given was already used and perhaps broken down a bit. It shouldn't have fallen apart just by you sleeping it it. The best way to care for them is to keep it from getting snagged, handle without sharp jewelry on, keep forms in their case when not in use, and wash with baby shampoo (or I bought the Amoena prosthesis soap, no difference really) wash at least once a week or more if you perspire in your forms. I had some Amoena silicone forms that I received used and I swear I abused them badly. They were never kept in their case, and my toddler even got to them and bit them! LOL No worries, he didn't puncture them. Don't be too scared to use it, they are more durable than you think. I have found that some form films are less durable and softer than others.

    I often keep the forms in my bra and if I haven't been perspiring in the bra, I will use the same bra for about a week, then wash and start over. This way the forms will be protected in the pockets instead of me handling them everyday over and over and risking a puncture. Sounds yucky but honestly, I hardly perspire.

     Or you can keep the form in its own little cover, if you don't have one, you can make from cotton or nylon. This will reduce the chance of puncturing the form.

    Hope this helps.

  • Katalin
    Katalin Member Posts: 230
    edited April 2009

    My Amoena silcone "gel" filled ones with a thin, skin-like covering just need to be washed with mild soap every once in a while.  I don't wash them that often, frankly, because they don't get dirty.  They're protected by my mastectomy bras.  They're pretty darn tough!

  • marylisa54
    marylisa54 Member Posts: 13
    edited April 2009
    Thank you all so much for your advice. My prosthesis is gel-filled with a thin covering over it.  Do they come with a cloth covering?  Mine just slips into the pocket of my mastectomy bra and looks like it could be easily punctured.  Again, your comments are very helpful!!  Smile
  • Katalin
    Katalin Member Posts: 230
    edited April 2009

    My Amoenas came with a thin fabric covering....but I chose not to use it.  It's not necessary to use it if you have a mastectomy bra, which protects it better than any little piece of cloth they give you.  Have you pulled everything out of the box that it came in?  I recall there were goodies in the box at the bottom:  instructions, the covering, etc.  If the box was empty, maybe you could contact whomever sold it to you and tell them you're missing those things?

  • marylisa54
    marylisa54 Member Posts: 13
    edited April 2009

    I did not see anything else in the box when I took it out.  I could call the place that I received them from and ask if there are things missing.   I got them from the American Cancer Society.  They have a little shop in the hospital that provides women with a free prosthesis and bras.  I wonder if the integrity of the prosthesis is not as great because they were at no cost.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited April 2009

    The silicone process for the ACS forms may not be very good, so that's why the forms are inexpensive (or free) and break down more easily. Or perhaps as someone suggested, the free forms have been previously used. You should be able to sleep with your forms on without having them get ruined. The big manufacturers--Amoena, TruLife, Jodee, Anita, even the newer Silique--all provide warranties with their forms and will replace them if they break down from normal use (you do have to be careful not to puncture them because that's not covered). Most warranties are for two years.

    Regarding comfort, there are a few forms available that have fabric backing over silicone, so the fabric is part of the form and you can wear them in unpocketed bras without needing a cover. Silique makes two such forms. There are also some non-silicone forms that can be worn in unpocketed bras. If you check out the Breast Forms section of my non-profit website, BreastFree.org, I describe some of the options.

    Barbara

  • marylisa54
    marylisa54 Member Posts: 13
    edited April 2009

    Erica,

     Thank you so much for your information!  I will go the site you suggested.

  • anianiau
    anianiau Member Posts: 182
    edited April 2009

    I just googled "care for breast forms" and this info from the Amoena site came up:

    If cared for correctly, your breast form should last you for many years. However, take care not to puncture your breast form with sharp objects, such as pins or pet claws, as repair is not possible. Use of talcum powder and body lotions on or around your breast form should also be avoided. To ensure your breast form remains in good condition, you should wash it every day with soap and water* and dry with a soft cloth or towel. When not being worn, you should keep your breast form in the cradle provided, as this will help to maintain its shape.

    * special care instructions apply to the contact range of breast forms, shown below.

    The site also has special instructions (complete with photos) for contact forms.

    www.TLCdirect.org is the American Cancer Society's official retail site. They are having sales now.

    Good luck.

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