**NEW** Starting Chemo March 2009

Options
12122242627182

Comments

  • jdeking
    jdeking Member Posts: 408
    edited April 2009

    Dayla- I had the headache thing too, and would take advil to get rid of it (though I know we're not supposed to!) I think that is more likely with the TAC combo, and I think there are only a couple of us getting all 3 at once. Your glands are probably swollen cuz they're fighting off an infection... nice to know those WBC's are working! An NSAID like Advil should help, though it will mask any fever you may be having, which the doc's don't like.

    I go to work after tx, but it is more from necessity that by choice. I am not very productive the first day or 2 back because it is hard to concentrate and hard to stand for so long. I muddle through, and then by day 6 I am usually feeling better.

    Chrisc433 - I also had lumpectomy, partially due to size (1.4cm) and location (upper rt quad) which made it easy to conserve the breast. At the time, I had no family hx of BC so this seemed a good way to go. I have since learned that my 1/2 sister my mom gave up for adoption was dx'ed with the exact same type of cancer/node involvement, etc back in June. I am now getting genetic testing and will rethink keeping the "girls" based on those results. It is such a personal decision, but they say that a lumpo w/rads is just as successful in treating BC if it is non-genetic.

    MOB - you are doing a great job keeping up with us all! Thank you so much Ms Wonder Woman!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2009

    Okay.  03/30/2009  Cycle 2.

    Needle went in well the first time nurse attempted to find vein.  Hooray!   Have been lifting 5 lb. weights with that arm.

    I still feel like I'm a long sitter in the meds room.  I watch people come in and go out before me, but then, I'm an every three weeks and some of them are daily.  Wow.  I know, everyone is different.  I'm going to get up the guts to ask to see my last PET scan results to see where the cancer is in my body on my next visit.

    Decadron steroid high SEs - talkative, up most of the night.  Watched cable show about interventions for substance, etc. abuse.  Wow.  Watched Animal Planet Animal Rescue - a lot of sad stories.  Pets deserve to be taken care of, people.  Don't abuse them.  Play with them, they get lonely, too.  Who is that talky woman on CNN who always brings in a panel of three people with funny lookin' expressions?  Who IS that?  Please don't watch CNN all day, that's being cruel to yourself.  I like Law & Order reruns when there is a social message to take away from the episode.  SVU and Chris Meloni's blue eyes are worth a lot of viewing.  Very striking man.  I miss Jerry Orbach, he had class plus.  May he rest in peace. 

    Taste buds abandoned me, again.  Trader Joes' Triple Ginger Cookies are THE BEST, and my taste buds said, "eh."  Drinking plenty of water.  Dry mouth.  Forcing self to eat protein 1 time a day, minimum.  Slept 03/31/09 much better.  Mild tummy ache.  A little tired.

    Neulasta... Protonix...  Protonix...  Didn't have the Protonix for Cycle 1.  Let's see what happens.

    Oh!  Outback Steak House has baked potatoes that are cooked with a kosher salt coating.  Yummy.  Oh yeah!  Good stuff.  They took some fat and spices off of the bloomin' onion years ago - it's not as good and taste bud tingling as it used to be.  Too bad.

    Still can't find a good Chinese take out where they cut the veggies and meats up small and don't over-bread the meat to make it look bigger.  Tommy Burgers are a once every four month guilty pleasure.  No one makes chili like Tommy's!  No one.  It's got some weird peppery zing to it.  Great with cheese/pickle/onion, nice on a burger.  Oh, memories of good fast food in Southern Ca - Pup N' Taco, Naugle's, the "old" In n' Out, Helm's Bakery Truck raised donuts!  Yeah!!!!  Memories...  No one made a burger like '.  No one.  Mmmmmm.   No one knew how to over-mustard a pastrami sandwich with good mustard like Pup N' Taco.  Buy a cherry or grape slush.  So good.  Fries, too.  I'd take a fresh Helms bakery raised OVER a Krispy Kreme any day - yes, I would.

    Leave it to me to have food flashbacks with a low appetite and tastebuds that are on leave.  Such is life, yes, such is life sometimes.  Onward in the journey - it is better to have eaten decadent food without guilt a long ago than to never have tasted it at all!

    Love in Christ,

    Sessna1

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited April 2009

    Alyad: Good news on the PET scan.  I had everything done prior to starting chemo (was going to have surgery first).  All was clear except some activity in one node...of course that came out positive on biopsy.

    Everyone: You girls are so good at keeping up with everyone.  I have 4 boys and call THEM the wrong names all the time!  I read, read, read, but don't write a lot.  I hear all of you!!

    Chris

  • Mom_of_boys
    Mom_of_boys Member Posts: 556
    edited April 2009

    Alyad... I agree with Janine.  Could be an "A" related SE as far as the glands.  Fortunately, I'm one of the ones that is getting TC only.  I did have that agitated feeling, though.  Agitated is a good way to describe it!

    Chris... Probably doesn't help you right now, BUT by day 7 I started seeing a definite improvement after my second treatment.  The second tx did seem like it took longer for me to feel sorta "normal".  BUT, today is exactly two weeks and I feel really good for the most part.  Also, as far as the lumpectomy... know that because of the size of my tumor, I went in fully realizing that I might not be happy with the results.

    Patti... Y'all just amaze me how you can be on the computer while getting your tx!

    Janine... I'm with you on the working although I know you have your dream job.  I'm working for the paycheck only right now.  I haven't yet decided on the genetic testing.  Women can pass the BC gene onto their boys in the form of prostate cancer.  For me, it would fit since my dad's mom (my grandmother) had BC and my dad had prostate cancer.  So, are you saying you would consider a mast if you test positive?

    Sessna1... I watch a lot of the Law and Order reruns as well as some of the current ones.  Last night's SVU made me cry.  Don't watch those sad stories about pets... ever! 

  • Alyad
    Alyad Member Posts: 817
    edited April 2009

    ChrisC433, I had noticed you had 1/1 node - did they want to go back in and do a full dissection? I have 1/1 too- I had  false negative SNB during surgery and they wanted to go back in and I said no. So I may or may not have rads. My dx was almost same as yours- my 1 cm was 1.7cm. my reports said grade 2/3 tho. borderline I guess. 

    janine, that's crazy that you found out your half sister has the same thing as you- I did not know my family history when I first diagnosed. Insurance wouldn't pay for BRCA test, so I still don't know about that. There are a lot of women on that side who didn't have breast cancer- but gma had it in both at age 70, second cousin at age 47, third cousin at age 50, another second cousin died about 10y ago, great great aunt died long time ago. 

     I wish I had more info, but even if I knew I had the gene I don't think I would have taken the good side. I guess knowing all that at the time I had surgery did influence my decision to go mastect vs lump but for me it was more about the location of  the tumor (sub aerola) that anything else that made the decision. If I could have kept the nipple, I would have had a lumpect even if I knew I had the gene I think.

    I do kinda wonder what I might do if I came down with it on the other side- can only do TRAM once- I hope I never have to cross that bridge.

    Last time when I had the swollen glands, i also sorta felt like I had a sinus infection/headache. Tylenol helps (which is what I'm supposed to take vs advil acc to onc?) Normally I take Ibuprofen/Advil, it seems to work a lot better for me. In the long distance hiking world we call it Vitamin I. I then ran a really low grade fever for a day or so, so I guess that supports the fighting an infection theory. So its better that I don't go to work and get exposed to more germs right? All those people with kids and stuff too. My armpits kinda hurt too.

    I guess I am struggling, cause I don't feel totally debilitated- I don't know whether to trust myself that I'm not just using it as an excuse to play hooky. I can be really hard on myself sometimes.

    I guess I have to remember that TAC might be harder than just the AC or TC that most everyone else has. I remember when onc presented the choice between TAC x 6 or AC x4  + tx4, I asked if the TAC was harder and he said no they were the same side effects wise- um yeah sure.I figured getting it over with faster was better. 18 weeks vs 24. Come early July I'll  be happy I don't have another two treatments still.

  • jdeking
    jdeking Member Posts: 408
    edited April 2009

    Dayla -

    I say at this time in our lives, if we want to stay home from work, then we should! Cancer trumps playing hooky even if you don't feel completely awful! And yes, you may want to stay away from germs right now, you might be more suceptible!

    I don't know if I'd do a bilat mx if BRCA comes back positive, but I do think I would consider having my ovaries out to stop estrogen production 100%. I will cross that bridge when/if it happens, for now I just pray the results are negative, as my half sister has 4 daughters and that would be scary for her!  It was crazy finding out about her cancer, if the adoption agency had called just ONE MONTH prior my mom would have said no, no one in the family has had BC. But they called about 3 weeks after my dx and we were all stunned. It has been good as we are all communicating now and it is like the family grew!

    I agree with the shorter treatment regimen too, I did not want 8 treatments! 6 sounded better (though 4 sounds even better than that!)

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited April 2009

    I only had the one tested and knew I would need chemo.  He is doing a full dissection when I have my lumpectomy.  I had the BRAC test and it was negative.  I have 4 sons, but still worried they may carry it as well as my 2 sisters.  I had a hysterctomy 3 years ago and had taken estrogen for about 1 1/2 years.  Nothing like feeding my ER+ cancer!  I do have rads scheduled after surgery.

    Mom of Boys:  thanks for the update.  I have my TX every 2 weeks so hoping it only takes one to bounce back!!!

    Chris

  • Alyad
    Alyad Member Posts: 817
    edited April 2009

    Janine, that is an amazing story, thank you for sharing it with all of us!

      So before that, there was no contact with the half sister at all and her bc prompted her to contact the agency to find out family history? What are the chances? That is great that there is positive that came out of this- connecting with family you never knew you had.

     I might have to ask my onc about ovary removal/testing, I don't want any children, my husband is already snipped, but I'd rather not go through menopause at 35, and I will be on tamoxifen. My primary care doc said she tried to talk to my insurance and tell them it'd cost them more in the long run, since they'll follow up as if I did have the gene and I'll have biannual MRI etc, i guess none of that has really been discussed - its sorta like okay surgery and chemo and then what's after that? I don't know. One thing at a time.

    ChrisC433- I get confused when some of us are having chemo before surgery, I forget that some of us still have the surgery to go through. I find the research I've read on neoadjuvant chemo really interesting- where they can actually tell the chemo is doing something- having it after surgery to treat microscopic cancer that may or may not be there, sometimes its hard to take. Some folks have complete tumor response to chemo- amazing- does help me to know that it really does work and I'm not just poisoning myself for nothing.

    one of my friend's dads had cancer on his vocal chords and docs wanted to go in and cut it all out, he would have talked through a tube and had all sorts of other stuff messed up- he got a second opinion and had chemo first, it took care of all it and years later he just has a slight scratchiness in his voice where his vocal cord was damaged.

  • didle20Diane
    didle20Diane Member Posts: 404
    edited April 2009

    Janine,
    I also asked about having my ovaries removed but our bodies still make estrogen without them....they also don't want to take them out while we are young.  

    My neighbor had a radical mast at 30 and needs her ovaries out by the time she is 40.  Her sister had Stage 3c before 30, her mom had bc in her 30's so she got tested and has the gene.  Most people that have the gene have someone in their family that had bc at an early age...usually under 30.  If you are positive you have a 90% chance of getting breast/ovarian cancer....which is why she had the radical.  Her sister is amazing...she had one child before diagnosis, had lumpectomy, almost a year of rads and chemo because she wanted another child....she did have a second last summer and is now back in the process of getting her ovaries out and the double mastectomy.   She is a fighter and plans on beating this disease.

    Dayla, what a drag insurance won't pay for the gene test.  My friend had to pay $3,000 out of pocket but once she was positive insurance covered her surgery, etc.......still didn't cover the cost of the gene though...

    My mother in law who is a 20 year survivor was fighting with her insurance company to get MRI's paid for since all her scar tissue.  Sonograms were a waste....she is still in a 2 year battle and they said the only way they would pay for it is if she was BRCA negative.  What a crock...she had to pay for the test, she is negative.  Good grief.  We are damned if we do damned if we don't.  I hope we don't have issues in the long run with our follow up care with our insurance companies.

    Diane

  • crusader1
    crusader1 Member Posts: 1,222
    edited April 2009

    Hi All,

    Janine that is an amazing story. Do hope your results are what you would like to see.

    Gina- Hope you are doing well, We are notused to a quiet Gina.

    MOB- Only 15 more days till the end of tax season...

    I went to my onco today. I go each week after my chemo to have bloods checked. All was fine. But when we talked about my regimen I said I am to have 4 he looked up my chart and said if I tolerated the TC well I could do 6. Now I feel bad that I am tolerating this well. I was really looking forward to being half thru. I have no node involvement and a tumor only 1.2 CM. MY chemo was determined by the oncotype(27). After my next treatment we will talk with the boss onco. Will I ever be thru?

    Hugs to all,

    Francine

    Good luck to all who began yesterday. Now some of us will be going on round three. Yipee

  • cpanasci
    cpanasci Member Posts: 35
    edited April 2009

    It's the eve of chemo #2 and I am getting anxious having read everyone's SE from the second time around... full day at Cancer Disneyland. Starting with a wig fitting (just in case I decide to wear it!), nutritionist and then infusion. Yea us!

    I had a wonderful thing happen today that I want to share with you all: my colleague at school's mother is 70-ish and was diagnosed with liver cancer. Lynn said that they wanted to do heavy duty chemo and mom was reluctant. Far away from us in Florida... Today Lynn stopped me to tell me that her mother had her first chemo today and was doing okay (she needs 10x 3 weeks apart). Lynn asked her what changed her mind and she said that she was inspired by Lynn's friend at school (that would be me!). If I could brave it out, she could.

    Great story to inspire me to get infused tomorrow. I almost cried.

  • theredheadamy
    theredheadamy Member Posts: 43
    edited April 2009

    Hi all,

     Just a quick note---home from my second TC and it went well.  They didn't have all my bloodwork, so I had to wait a couple extra hours, but the infusion was fine--no reactions.  

    Alyad--I think most of the stuff you post echos my experiences--from the SNB clear in surgery, then positive on pathology, to the agitated with swollen glands, and feeling bad that I'm not good enough to work, but not bad enough to feel debilitated.  It's hard to feel like I should be working (it is a job that would not be good to do while on chemo) and I am starting to feel mostly recovered from my surgeries, so it would be nice to do something, but then I try to do something and I can't focus. It's a crazy space to be in.  Anyway, I like to read your posts because it lets me know I'm not the only one feeling this way.

    Hope everyone has a great week

    Amy 

  • Alyad
    Alyad Member Posts: 817
    edited April 2009

    Francine,

    how cruel is that? we'll give you four tx, but if you handle them ok, we'll give you a couple more for good behavior? Did they tell you that upfront? 

     I need to get all the details on what stuff could be affected long term by the test results. Short term it didn't affect anything so I didn't worry about it.

    Even if the knowing could save me the headache and stress of having a round of tests every 6 months it might be worth it to try to scrape that 3k together. (or maybe  ask my dad real nice) I hate going to the onco office right now- I can only imagine how it will make me feel to have to go back for tests everytime I turn around after I put all  this behind me. I don't think I have it- there are lots of women on that side who lived long healthy lives w no bc. but then again- all two generations ago- much healthier lives- less processed foods,no 8 years on bc pills like I was.

    Great story Carol- I don't see how anyone can find what we are going through inspiring but if they do that's great. I don't feel like I have a choice!

  • maidmarion
    maidmarion Member Posts: 45
    edited April 2009

    Francine,

    That's just awful! I would just be beside myself if they say that to me now. My situation is similar to yours, only 1.3cm tumor with no node involvement. The reason I am having chemo is not by the oncotype which is another story! That was sent off by my surgeon but when it came back as 39 I freaked, only to find when I had my appointment at the Med Onc that it should not have been sent off as I was ER- PR+ and it did not pertain to me, the test kept talking about a patient with ER+, the Doc  called the Lab In California and asked to speak to someone about it, she asked them right then and there in front of me why it was done, why would they have done it, I gathered the Answer came back that it was probably because it had been recommended! Total farce, What a waste of Money,not to mention my state of mind! Anyway at this point I am thinking yay maybe I don't need Chemo, as my surgeon had said in the beginning I might not, and I guess I clung to that, but no, she put into her computer all my details using what ever formula she has and came back with a score of 29% chance of reoccurrance. So at first she was telling me I had to have TAC6. when I read up about the Adriamycin I spoke with her about the family history of heart problems and told her I did not want to take it, she said that was ok, I then asked again about how many treatments I would have she said usually 4-6, I said 4 sounds good and again she said ok, hope to goodness it stays that way! So mine was based mostly on the aggressiveness of the tumor I am gathering 3/3 and age etc. Here's hoping they don't put you through two more sessions!

    Went back the Hospital today to get my Neulasta took advice and had Benedryl, little nap this afto and feeling ok thus far, BM's good and still drinking gallons of fluid, Little bit of indigestion, but manageable. Have to go see radiologist Doc tomorrow for follow-up from treatment (mammosite) all seems well so don't anticipate any probs. Still on the steroid high and making the most of it.

    Dayla Sorry your feeling foggy right now hope it passes soon......hate that feeling of not being able to concentrate, had it when going through menopause, come to think of it it's still with me, bugger, I don't stand a chance do I?Laughing

    Julie

  • PattiB
    PattiB Member Posts: 421
    edited April 2009

    Jdking & Cpanisi - Those are great inspirational stories! Another door always opens!  I have had so many friends and acquaintances contact me and offer their services, cards, gifts, phone calls to help me through, several are people I didn't even expect this from.  My school parents are arranging meals - I tried to stop them (I kind of feel guilty since I have been feeling good, and it is just my husband and I until Steph comes home in May) but they have insisted and are bringing a meal the Thursday or Friday after each treatment.  Some have also given flowers, gifts, cards,etc.

    DidleDiana and Theredheadamy - Glad we all had no reactions today!!!  Hopefully for Kellerka too!

    Cpanisi - See we were fine, but still can help felling that anxiety each time.  The mornings off are the only time my top number on my blood pressure is high and mentioned.  I am usually normal/low.

    MomofBoys - I set at a desk all week so I have trouble sitting in a chair that long and I'm restless feeling confined.  The computer is hooked to the wall and you actually have to stand to use it. My Onc came in to see me and asked "Did we actually give you chemo three weeks ago - You are doing great".  My girlfriend went with me we both have spoiled only daughters (something you don't know of yet!!)  and most of our meeting was us complaining about them and my daughter lack of manners from 4 1/2 hours away at college.  The onc said I was on a decadron verbal run.  She is in her early 30's no kids yet.  I think we scared her.

    Good luck tomorrow all receiving 2 or subsequent treatments!!!

  • crusader1
    crusader1 Member Posts: 1,222
    edited April 2009

    Alyad- Yes they did tell me that upfront. But I do like how you put it. If I do well I get more. I will have to do more research before I meet with the doctor in a few weeks.

    Julie,- I don't see your stats on the screen. Do you know the specific pathology..eg. grade, stage, etc. Where did they get that score of 29 per cent recurrence.Glad you are still feeling fine. You can email me with your stats etc..I am just curious ..

    Carol..What a great story. Makes us feel good about doing this chemo. You are so brave...

    At my Feel Good Look Better class I gave info to the daughter of the lady opposite me who was to begin her chemo at my doctors office. I said nice things about the staff etc. The daughter then told me that the mother who was putting on makeup ,wigs etc was 90 years old. God bless her.

    Hugs to all,

    Francine

  • Janet0527
    Janet0527 Member Posts: 141
    edited April 2009

    Wow, it's almost impossible to keep up with all the posts on this thread.  Today for me is one week out from tx 1, so I went in for blood work to find my white count way low, despite having had a Neulasta shot on Day 2.  Since I'm going dose dense, they gave me a Neupogen shot to make sure I'm okay for tx next Wednesday.  Hmmm.  I've been waking up with moderately sore bones, so now I'm pretty sure that will be compounded.  Lovely.  Tylenol does seem to help at least. 

    Tomorrow is a work day - looking forward to waking at 5:30am, something totally against my nature, chemo or not.  Friday I get a break from work for some ballroom dancing - in a happy twist of timing, this event falls at only 10 days after tx 1, so I still have hair to go with my rhinestones.  Of course my body would rather lay in a lump on a soft surface than dance...

     I'm on Day 8 after tx 1 of AC - I know the hair will go in another week, but I swear it's starting to feel funny at the roots.  I keep tugging on it to make sure it's still there.  Lol.

  • GTYforeveryoung
    GTYforeveryoung Member Posts: 10
    edited April 2009

    How do I join this group?  I started chemo on 3/17/09 with TC X 4.  Start my second dose next Tuesday. 

  • nicole0714
    nicole0714 Member Posts: 48
    edited April 2009

    Second treatment done today. Went fine, no issues really. Hair still hanging in there with the cold cap. Falling out everywhere else though. Seems like most people are doing ok with their second treatment, maybe we all know what to expect from each other and are mentally prepared and are taking the extra precautions this time! I do hear the fatigue gets progressively worse, so any tips on that from the veterans would be appreciated!

    Francine, I too know someone with a similar diagnosis as you (tumor markers, staging, no node involvement) and she only had four of TCH. Look up the standard of care or the protocols for this (or maybe I can forward them to you) and that way you can have a real discussion with your oncologist about it. That has to be frustrating, but ultimately, you want to beat this thing forever and do it with the best odds that are out there. But you don't want to necessarily put your body through way more than what is indicated.

    nicole

  • nicole0714
    nicole0714 Member Posts: 48
    edited April 2009

    Francine, she was actually on TC as she was Her 2 neu neg.

  • crusader1
    crusader1 Member Posts: 1,222
    edited April 2009

    GTYforeveryoung -I  believe all you have to do is tell Gina that you want to join. I believe that just puts your name on the list above. I guess you could send Gina a private message if she doesn't see your desire to join first . No dues or anything just a desire to support others going thru the same stuff as us..

    I guess you do need a desire to be a March Warrior Princess. Are you a princess? Only kidding...

    Nicole- Thanks for the Info. I sent you a private message...

    Hugs to all..

    Francine

  • didle20Diane
    didle20Diane Member Posts: 404
    edited April 2009

    GTYforeveryoung  I just sent your information to Gina to add you to our roster.  We also have a facebook private group.  See my signature to request membership if interested.

     Diane

  • Alyad
    Alyad Member Posts: 817
    edited April 2009

    Janet, I loved the quote" Of course my body would rather lay in a lump on a soft surface than dance" awesome... a lump on a soft surface, that's me. Even the carpeted floor is good enough. I see the cats laying in the sun and think- that's it, they have the right idea.

     I don't really have that many se's - just suffering from extreme inertia. I just zone out and lay there. in a way I don't feel like I have been able to be this relaxed in a long time.

  • Alyad
    Alyad Member Posts: 817
    edited April 2009

    Welcome to the group GTYForeverYoung! sorry you had to join us, but it's great you found us!

  • marshall2000
    marshall2000 Member Posts: 110
    edited April 2009
    Hey to all: Haven't posted in a few days, good luck to everyone with whatever tx and s/e you are going through this week. I leave it to  gina and mob to keep up with you all and i have noticed that didle is jumping in there too, God Bless all of you organized souls, i couldn't find my ass half the time even though it is attached to my body(and i do have some serious junk in the trunk, hard to lose LOL), let alone keep up with everyone. Welcome to all the new members. I have been feeling kind of pissy this week  BITCHY is probably a more accurate description. I have a positive side effect that i want to share. My son has a cat that we rescued over the summer when it was still a kitten, there were actually 2 kitten rescues several weeks apart, one his one mine.  Anyway, the cat he rescued has never taken to me, won't have anything to do with me no matter what. Well, my hair is gone now, and the psycho prozac baby kitty as i so affectionately call her has decided that i am now her new best friend, rubs all over me, wants me to pet her constantly, she is really sweet. The only thing i can figure out is that i now look like my son, so she has decided to like me, go figure, animals are so quirky sometimes. Have a good night.
  • kellerka
    kellerka Member Posts: 49
    edited April 2009

    Well I made it thru TX #2 with no reactions. Kind of just waiting for it to hit. But I'm going to work from home half days and listen to my body better this time around. They changed some of my meds and gave me 7 Neupogen shots to give myself over the next 7 days. I hate needles so that should be fun. But maybe it will keep me out of the ER room like last time. Glad to read that the others did well today. I'm 1/2 way thru!

    Kathy

  • GTYforeveryoung
    GTYforeveryoung Member Posts: 10
    edited April 2009

    Well thanks for welcoming me in!  I had my first TC treatment on 3/17 and am scheduled for my second on 4/7.  I too am feeling just as nervous for the 2nd as I was for the 1st!  I hope the se's are not cummulative.  I have a 8 month old and a 3 year old in the house!  Thankfully my mother is coming up for the week to help me and my husband is wonderful at helping too!  But I of course have trouble letting go of the reigns.  Must be a mom thing.  I am on day 16 since my first TC and not loosing any hair.  I wonder if it won't fall out?  I wish it would just do it and get it over with.  The waiting to see is horrible!  Anyway, I need to go to bed.  It is 12:35 my time.  Has anyone else had trouble sleeping?  Good to be on here!

  • laurie41
    laurie41 Member Posts: 61
    edited April 2009

    GTYforeveryoung...Before I started my TC treatments I slept through the night, that is the nights I didn't work. But now I can't sleep. I wake up every 3 hours because I have been getting hot flashes. Those are not fun. One day nothing and then... WHAM!... hot flash. I told my Onc and he said that was good for me because my cancer is ER+ and if I'm getting flashes then I'm not producing estrogen. I really don't think getting hot flashes are good in my opinion but if it is helping I'll just deal with it.

    My hair started falling out on day 11 and all I have now is only 1/8 in. long and that's still coming out too. I have a few bare spots on my head but I refuse to shave it all off. I need my stubbles. At least my eyebrows and lashes are still intact. Maybe you're only of the few that gets to keep their hair. Good for you.

    I think my brain is shutting down. I can't remember how to spell or type. I'm getting so forgetful lately. I go into a room and forget what the hell I went in there for. Or the other day, I had a hat on but when I got upstairs my hat was gone, and do you think I could remember when I took it off or where I out it. Hell no! I had to ask my hubby where my hat was and it was on the kitchen table. Chemo just fries the brain cells. Darn it!!



    Laurie

  • ginagina
    ginagina Member Posts: 327
    edited April 2009

    Hi ya - do I get the last word in tonight? Apologies for the mute button action on my end.  Just a slow, sleep filled couple of days. I figured it would be easier to sleep through the ick than to deal with. I am feeling relatively human now (so to speak) and thought I would catch up here quickly. OMG, that's not easy given how much you guys are posting!   And my foggy head and an attention-grabby-husband ("What are you doing? What are you doing?") aren't making it easier!

    Soo.... a day late (and I am sooo sorry) to March 31st Premiers - Maidmarion and Sakura... You made it! You did it. Wasn't it easy? Well, maybe easy is not the right description.  Just consider it DONE. One down!  Sakura - I want to know more about your overnight stay too! Jeeze I barely got that for my bilateral mastectomy! I say go for the port. It should make your infusions easier, though you still get a little prick, it is nothing like hunting for a good vein in your arm. And veins collapse (unfortunately). If you have 15 more pokes, they will most likely have to work their way up your arms over time. I got one because my veins are tiny. Downside - you will like you've become part of the Borg. Or the Matrix. Whatever SciFi reference you can relate to.

    So now for your much delayed celebratory drink, here is a Martini, James Bond style.

    OK, the drink is pretty small and maybe doesn't look too entising...But, I was thinking we needed more cute boy pictures here.  This one (SC, that is) is rather old-ish and kuky now... but still the best Bond, IMHO. Discuss. Wink

    Chemo Princesses that went in today...sorry I missed your shout-out! Hope everyone is haning in there.

    Reeney, I think you are our only chemo virgin tomorrow. And cpansci you are up for next round. Anyone else?

    Welcome newbies!!

    Hugs all!

  • ginagina
    ginagina Member Posts: 327
    edited April 2009

    Oops, almost forgot

    the prettiest G&T I could find!

    enjoy

Categories