Suggestions for Chest Tightness?

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I had bilateral non-skin sparing mastectomies on December 10th...I knew I did not want implants and would have to travel for any other reconstruction. I wasn't sure about whether I would need chemo and rads and I wanted to have the surgery in 2008 year because of insurance. I have done well with recovery--didn't need chemo or rads-(yeah!) and have appreciated this site for help with prosthesis stuff which is working fairly well for me...

 HOWEVER in spite of stretching, exercises and scar cream my chest is just too tight...every breath feels like I'm being squeezed. In posting on the reconstruction site several people have shared that this was relieved my free flap reconstructions and it is making me reconsider this option. Do/did any of you have this problem--it feels like there is just not enought skin to cover my ribs...does it get better? Have you found anything that helps? I'd be open to simpler options than surgery... Thanks for any advice!

Comments

  • otter
    otter Member Posts: 6,099
    edited March 2009

    sarabhealed, the skin over your mast site(s) should be able to slide and move freely over your ribs.  If it feels like it's "frozen" tightly to your chest, then you probably have adhesions--scar tissue--holding the skin to the underlying connective tissue.  Your scar needs to be "mobile" (moveable).

    The best way to deal with this is to get a referral to a PT/LE therapist.  A good therapist will give you exercises and show you how to gradually release the adhesions under that skin.  It's long enough now since your surgery that the process might take awhile.

    I think all of us who've had mastectomies without recon went through a period when the skin seemed glued to our ribs and it felt like there was a tight band around our chests.  It does get better, but if you don't catch it early enough, it's a tough job to correct on your own.

    Hugs (gentle ones)...

    otter 

  • nagem
    nagem Member Posts: 353
    edited March 2009

    Early on, I had a little tightness too, but I found that yoga really helped, partly by stretching the whole area from the outside and partly by building muscle under the skin and stretching it from the inside. I also did scar massage, which I learned from a PT. Two and a half years out, I feel pretty good.

  • Mouser
    Mouser Member Posts: 245
    edited March 2009

    I agree with Otter -- physical therapy is the easiest way to deal with this, and sooner makes it easier. But my PT says she' worked with women 3 yrs out, and it still works, only slower.

    Flap recon should also do the job -- it will move the old skin off the chest muscles, after all -- but that's a lot of surgery unless you want to go that route anyway.

  • starzhere
    starzhere Member Posts: 162
    edited April 2009

    I've never heard of this.  I had a unilateral 19 years ago and was never told this tightness was a possiblility.  Does this only happen with a bilateral?

    ~elaine~ 

  • starzhere
    starzhere Member Posts: 162
    edited April 2009

    I've never heard of this.  I had a unilateral 19 years ago and was never told this tightness was a possiblility.  Does this only happen with a bilateral?

    ~elaine~ 

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited April 2009

    I think it can happen with either unilateral or bilateral. Having a bilateral, though, probably heightens the sense of having a band across your chest. I had a lumpectomy and radiation three years before my bilateral and had range of motion issues that were only alleviated when I finally had physical therapy after two years. When I subsequently had my bilateral mastectomy, I went to the PT as soon as possible afterward. Like many women, I initially felt tight across my chest, but as Otter, said, releasing the adhesions helped make the skin more pliable and less tight. My PT said (as Mouser mentioned) that she's worked with women many years after surgery and still had success in easing tightness, so unless you've decided you want reconstruction after all, I'd try to find a PT (preferably one who specializes in working with breast cancer patients) before resorting to flap surgery.

    Good luck!

    Barbara

  • sarabhealed
    sarabhealed Member Posts: 179
    edited April 2009

    Thanks for all of the responses...I did start physical therapy right away and have little shoulder or range of motion issues....I do yoga--in fact went to a class last night and it has been invaluable for stretching arms, torso etc. I have been fortunate to have had lymphatic massage and have healed great with no evidence of adhesions and STILL the tightness and difficulty breathing. HOWEVER, I just had a regular massage with a very gifted masseuse..I asked her to work my chest, including scar and ribs--she said the intercostal muscles really get ignored and needed attention. I feel better than I have in months!!!

    Barbara, I wanted to also thank you for your web site and knowledge shared in posts about prostheses--they have been a big help to me...

  • nagem
    nagem Member Posts: 353
    edited April 2009

    Maybe practice taking deep breaths, expanding your chest from the inside? That might gently stretch the area?

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2009

    Nagem,

    Excellent suggestion.  That is one of the things my PT had me do after my bilat.  I would also note that my chest still (almost 3 years later) feels like there is a band across it, but I think that is just due to the numbness.  The deep breaths helped a great deal with the tightness.  I was amazed at how much I could expand my chest, and I still do it when I think to!

    Dawn 

  • chiquita
    chiquita Member Posts: 135
    edited April 2009
    Smile My scar is very tight all so and is hard to take big breath or stretch my arms up, my Dr.Oncologist just told me to use the arm and eventually it go way, the Dr. Surgeon told me to Wait until the chemo is over and them go for massages...I think I can have the massages rigth way and try to stretch the  skin as soon as possible...my scar is very bad look like the Dr. did a bad job sewing and know is full of gathering of skin and lumps I need to see a plastic surgeon and have that fixed....please any suggestions?
  • otter
    otter Member Posts: 6,099
    edited April 2009

    Nagem's suggestion is an excellent one.  I was doing the regular stretching exercises after my mast/SNB, but couldn't relieve the sense of tightness across my chest wall.  My arm was fine--it was my chest that was bothering me.

    Then I watched myself in a mirror while I did some arm stretches.  Turns out, I wasn't expanding my chest (my ribcage) as I stretched.  So, that scar tissue under the skin on my chest wall wasn't being moved around at all.  I started doing what Nagem has suggested:  I stretched my arm way up high, or out sideways, and then took a really slow, deep breath to make my ribcage expand.  It was obvious that I'd found the problem.  After that, I used a combination of deep breaths and complete exhalations where I even tucked/scrunched my ribs in, to move things around.

    After awhile, I could breathe deeply with my arm stretched up or out, and not feel any tightness at all.  Then I realized I could put my hand over my mast scar and move the skin/scar around, just like I could on the "normal" side.

    I had an LE/PT assessment a few weeks after that, and the therapist commented on how mobile my scar was.  (That was a good thing.)

    otter 

  • moogie
    moogie Member Posts: 499
    edited April 2009

    I take a bath towel and roll it. Lie down with it perpendicular to my spine and allow myself to bend backwards. You might need to start with a small towel, and work bigger. I lay there and try to relax into it. Afterwards, I sit up and bend to touch my toes in the opposite direction. Whatever stretching you do, do an opposing stretch. I have great range of motion and think doing this has helped. Give it a try.

    Moogie 

  • VisaliaMom
    VisaliaMom Member Posts: 12
    edited May 2009

    I had a right-side mast in May 2008. My chemo treatments ended 11/20/08, and finished my rads on 2/13/09.  About 6-8 weeks after rads, I began to feel tightness across the affected side of the chest with some burning along the right side of the upper sternum.  I have Stage I lymphedema, so when it felt like my underarm was a little swollen I went to my onc and my lymphedema therapist.  I have been going to PT for two weeks now.  The Lymphedema Therapist said exactly what has been said above--Otter's 3/31 post and Erica's.  She also has given me several stretch exercises, such as where you just let your tummy hang out and take deep breaths where your tummy fills with air and the chest expands (like nagem's suggestion).  She also suggested rolling the towel, like moogie suggested above, and rest with it in place for about 5 minutes. She also said to continue doing the corner stretch (push-ups in the corner walls). Count to twenty out loud so that you make sure you are breathing as your are stretching.  One thing she did stress...when doing stretches don't go for pain.  As soon as you feel pain, let up.  When you feel that has gotten "comfortable", then try stretching a little further.  She has taught me some self-massage techniques to do at home.  However, she is having a little more resistance in the skin loosening near the sternum, but that's because the ribs and tissue there are inflamed due to irritation caused by my severe allergy cough. 

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