White Blood Cell Counts low-Help!

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I am on a two week on and two week off CMF regime.  this is my off week, and i went in for a blood test.  they called to tell me white blood cell counts down, and i need to get a shot of Neopogin (spell?) tomorrow and the next day.  anybody have experience with this drug?  Any side effects?  Should i be working if my count is low?  i am around other people at work.  any help thank, you wonderful girls

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  • mmm5
    mmm5 Member Posts: 1,470
    edited March 2009

    Very Very common, I had a shot after each treatment, some achiness with drug, but you should stay away from others (especially sickies) until you are back up.

  • Tamara67646
    Tamara67646 Member Posts: 293
    edited March 2009

    My white blood cell counts dropped after almost all my TAC tx even though I was getting a Neulasta shot so my oncologist added the neupogen shots.  The shot didn't hurt - the nurse recommended getting the shot in my stomach rather than arm and even though that sounds bad - I never felt a thing.  I didn't have many SE from them but some women complain of muscle & bone pain for a few days after.

    What precautions you take partly depend on how long your counts were.  After my first chemo, my counts dropped to .7 and I was told to wear a mask if out in public, avoid crowds, avoid sick people, sanitize my hands alot, no fresh, uncooked fruits & vegtables or undercooked meat. 

    I had other tx where my counts were low but not dangerously low and I continued to work and be around people but just was careful to stay away from anyone with a cold or flu. 

    Your oncologist should give you some guidelines.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    After each of my 4 rounds of FAC, I received 10 days of leukine (a sort of neupogen) shots, then after each round of Taxol, I would get two days of leukine shots. General achiness at the injection site, minor joint pain, too. Nothing to fret about...but you should definitely steer clear of anyone who's sick! 

  • musicbean
    musicbean Member Posts: 3
    edited March 2009

    I was on a Taxotere/Cytoxim regimen and after my first treatment my white count was virtually zero.  Work is a pretty germy place, so I was planning on working from home anyway (if you have that option), but while my count was low, I felt pretty terrible for about 36 hours - chills, sore throat, the whole bit - so wouldn't have gone to work anyway. 

     After cycle 2 I got a Neulasta shot and my counts have been perfect - so they are well worth it.  I was warned of bone pain with Neulasta, which I had three or four days after the shot, and one night it got pretty bad, but a pain pill left from surgery did the trick and I was able to sleep. I only had the severe bone pain once, after cycle 2, and didn't at all after cycle 3 or 4.

  • margoMich
    margoMich Member Posts: 3
    edited March 2009

    Had 6 treatmetents and got Neulasta shots for 5 of the treatment between treatments and 3 times on the day before my treatments as my counts were low.  I had no side effects and would strongly recommend the shot.  Hope you have good insurance as the price can range from 4500.00 to 5600.00.   Check it out......

    Margo

  • counselor1
    counselor1 Member Posts: 7
    edited March 2009

    My husband receives Taxol one week and Taxol/Avastin the next.  He is completing his third cycle.  He takes four Neuprogen shots beginning the day after chemo.  No side affects from the drug.  WBC count is up.  You are right about the cost.  Our co-pay is $335 a week.  We will hit the dreaded gap and pay the entire treatment amount for two weeks.  What would you do without insurance?

  • BrittaA
    BrittaA Member Posts: 56
    edited May 2009
    Hi SusieQUE - Low white blood cell count, or Leukopenia is very common - I know I suffered days of this, and my father as well when he went through treatments. It's hard to find much information on daily ways to protect yourself during these days, so I started a blog, Cinco Vidas, as resource for cancer patients, and recently did a post on Leukopenia (http://blog.cincovidas.com/going-through-chemotherapy-protect-yourself-during-low-blood-count-days) that you may find helpful. Love, strength and survival, Britta
  • brewer2
    brewer2 Member Posts: 15
    edited May 2009

    i asked my onc about nepogin(sp) and she said she doesn't give that anymore.  She uses neulasta which she said was more effective. One shot about a week after chemo

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited May 2009

    Hi there..I did CMF also...and I did have the neupogen shots which

    caused me very severe bone pain..they gave me vicodin for the pain..( I gave myself the shots).it took a few times before I realized

    that I could just use half the dose and not have the bone pain, but have the benefits with high

    WBC and neutrophils..when I was doing this now eight years ago they told me not to

    have the shots 24 hours before or after the chemo...

    Sending hugs your way...

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