APRIL Rads Anyone?

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Lainey64
Lainey64 Member Posts: 740

Hi all.  I finished chemo on 3/12 and had my first planning session yesterday with the radiation department.  I had my scan and tattoos done.  My first rad will be on March 30th for a total of 33.  Since I'm starting at the end of the month I thought I'd start an April group.  Please join me! 

Elaine

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    I'm gonna hop on this group, even though my rads started today, because the March 09 group is sorta rude...

    I am slated for 33 treatments, ending on May 6, 2009! 

     Robin 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    My simulation is on April Fools Day, so count me in for April. I am 9 weeks post-op, having had all sorts of complications from surgery. So relieved to finally be starting phase three of my treatment.

    Tattoos and scans next week, the day after I return from my honeymoon. I am getting married on 3/28!

    Bette 

  • sjr585
    sjr585 Member Posts: 20
    edited March 2009

    I will meet with the radiation dr on the first.  Finished chemo 4 rounds of T/C on March 11th.

    sally 

  • gatormom2006
    gatormom2006 Member Posts: 11
    edited March 2009

    I had a CT Scan yesterday and will get my tattoos this week - maybe will begin radiation next Monday but want to join the April group.  I was really concerned about the blue markings they labeled me with yesterday because we have Relay for Life on Saturday and I was told 'DO NOT SWEAT' until I get my tattoos.  I am my Team Captain and cannot see myself sitting on the sidelines but I have been reassured that they will get me in this week.  I had my lumpectomy on February 11 and no chemo.  Looking forward to sharing with all of you as we go through this! 

  • BrandonMom
    BrandonMom Member Posts: 412
    edited March 2009

    I'm in!  I had my first appt yesterday with the rad onc. I go next week for simulation.  I've decided I do not want the tattoos, so I'll have to keep sweating to a minimum for the 6 weeks.  The rad onc keeps telling me to think about it, but I can't imagine changing my mind at this point. 

  • murphmort
    murphmort Member Posts: 157
    edited March 2009

    Good luck to all of you April RAD ladies.  I started my RAD last year, April 2008.  You'll get through this phase of treatment also.  Just take care of yourselves, eat right, get rest and keep the faith!!! 

  • Lainey64
    Lainey64 Member Posts: 740
    edited March 2009

    Hi.  I'm so glad I have some joining me for April.  Woohoo...   :)  I got had my CT scan and tattoos done last Wednesday.  The tattoos are very tiny, pinsized marks.  I don't mind them too much but they kind of hurt when they were being done.  Luckily the pain didn't last for long.  I am set to start on March 30th.  She said I'll have my simulation that day before treatment.  I'm scheduled at the end of the day so that will work out good with my job. 

    Bette:  Congratulations! I hope you have a wonderful honeymoon.

    Murphmort:  Thanks for the encouragement! 

  • Majanumba1
    Majanumba1 Member Posts: 99
    edited March 2009

    Hi Lainey64 and Everybody.

    I know Lainey from December 2008 Divas so we are right on the same schedule. I just finished chemo yesterday and have an appointment with the radman on April 1. I think I should start 3 weeks later 5x/wk for 6/wks so we can do this together and some of you will lead the way! These boards have been remarkable during the chemo ordeal so lets keep the support and information flowing.

    Murphmort: Thanks for checking in. Nothing is better than hearing good advice from a survivor.



    Bette: have a fabulous wedding and honeymoon! We will be here when you get back.



    maja/carolyn

  • kjbell
    kjbell Member Posts: 974
    edited March 2009

    I too will join you ladies. Had last chemo Mar.13. Had the scan and tattoos last week. My tattoos are very small, they kind of remind me of blackheads (kind of distgusting, I know). Thurs. I go for simulation and Mon the 30th I start with the rads. Theprettiestmess, I just love that name!

    Together we will get thru this!

    Karen

  • berrypatch
    berrypatch Member Posts: 90
    edited March 2009

    Hi there!  

    Finished 6 rounds of T/C today!!!    Yay!  I have a PET scan tomorrow for rads.  My sim and tatoos are on 3/30 with rads starting officially on 4/6.. Back to work on 4/13.  I am so excited to have this crappy chemo behind me!  I believe that it was/is the worst part of the entire thing.  Yeah, I'm going to feel like sh** for a few days, but I can get through this know it's the last time.  I am also excited to go back to work and have a normal life again!  I've been told that rads isn't the most pleasant thing in the world, but it's a walk in the park compared to chemo!

    Hugs to all,   Carol 

  • Lainey64
    Lainey64 Member Posts: 740
    edited March 2009

    Hi Carolyn! It's great to be able to move on from chemo and get this next phase of TX knocked out of the way!

    I am having a mammogram done this Friday.  My BS wanted me to have it done before rads because she said I'll be pretty sore after treatment ends.  I have to say I'm a little nervous about it.  I keep telling myself it will be fine but there is still that little bit of fear.  I'm praying alot! 

    Karen, looks like we are starting on the same day.  My tattoos look like blackheads too!  As yuck as that sounds fortunately they don't look too bad.   

  • Britt
    Britt Member Posts: 731
    edited March 2009

    Hi, Lainey -

    Looks like we are on the same schedule! I had my simulation with the scan and tattoos yesterday, and will start being "zapped" on March 30 also!  Since I did not require chemo due to a low risk Oncotype score, this is my next "protocol of treatment" -  33 sessions five days per week - which means ending in the second week of May, I believe (must consult the calendar!)

    Happy to have found this thread - good luck to all!

    Maria

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Hi all.  Count me in.  Had sim with tattoos Monday, CT scan today and starting rads Monday, 3/30.  Same as you Maria, Oncotype was 13; no chemo.  33 sessions 5days a week.  Also in my 3rd week of Arimidex. 

    Let the journey begin. 

  • Britt
    Britt Member Posts: 731
    edited March 2009

    Ok, Patoo and everyone -

    Let the games begin!  Wonderful to be among such a great group of gals!

    We must compare notes about our Zapping Premieres next Monday - that goes for everyone starting on 3/30 - and yes, the tiny tattoos rather look like tiny blackheads or dark freckles! 

  • BonnieK
    BonnieK Member Posts: 655
    edited March 2009

    Hi Elaine and all,

    I hope to be starting rads before April is over and would like to join this group.  My exchange surgery is scheduled for April 3rd and the radiation onc wants to start rads within 2-3 weeks of the surgery.  That seems fast, but we'll see what happens.  Good luck to everyone in this phase of treatment!

    ~Bonnie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Hey all!!

    Just completed my third round of rads out of 33!!

    I also think that this is a phenomenal group!

    Robin 

  • Lainey64
    Lainey64 Member Posts: 740
    edited March 2009

    Hi Robin!  So, how was it?  You know, they didn't tell me anything last week when I went for my tattoos and I vaguely remember the Rad Onc telling me something about not wearing deodorant or lotion.  He chatted with me during my last chemo TX and my mind wasn't quite where it needed to be.  I feel kind of unprepared for this! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Hey Lainey! The actual radiation is exactly like the simulation...the machine moves to the same places, the lights were on, boob exposed...lol...and two and a half minutes later, I'm done for another day! I can wear the Thai crystal deodorant and RadiaGel (if I feel I need it), but anything else has to be throughly washed off. 

    It's a piece of cake, really....You can do it! 

    Robin 

  • marthamm
    marthamm Member Posts: 16
    edited March 2009

    I'll be starting Radiation in April as well, I don't know what day I begin but my simulation is on Tuesday.  I'm also taking Xeloda during radiation, not sure if anyone else is doing that as well?

  • shan1171
    shan1171 Member Posts: 138
    edited March 2009

    I'll be joining you guys for more fun and games.  I had my appt. w/rad onc today, will have simulation on Tues.  He said rads will begin in two to three weeks, so it should fall somewhere in April.  He only wants me to have the radiation on the side w/larger tumor and lymph node involvement.  He also mentioned that it could affect outcome of reconstruction as far as symmetry, possible skin thickening on left side.  Lovely, I say.  The poor buggers are already lumpy (hopefully goes away with permanent implants) and scarred all to hell, now one is gonna look like a shriveled prune.  Daggone, I'd at least like a matching pair of prunes..........ha!

  • kjbell
    kjbell Member Posts: 974
    edited March 2009
    Lainey64-I don't blame you for feeling unprepared. The nurse said she would go over all the "do's and don'ts" at the simulation. If your simulation and actual treatment are back to back, how are you going to know what to do, wear...etc... Shan1171 do you have a T/E in? I am in the same boat. Mine is filled and I was told that everything could shrink due to radiation. This is my only chance to finally have some boobs and I would like to get to a C cup instead of the little B's I have had all my life. I hope the shrinkage isn't too bad. I call the boob I have left my banana because it hangs low. So in reality I am a 36 B long!!! Looking for a perky C!
  • shan1171
    shan1171 Member Posts: 138
    edited March 2009

    kjbell - yeah, I have the expanders in already.  I put off most of my fills through my chemo and am now having double fills to get caught up before my rads start.  My scars are not uniform because they had to take more skin on the left side due to the size of the tumor.  So far the left side is not quite as round or symmetrical as the right after fills, all I need is for the radiation to make this matter worse.  I was actually opting for a B cup (I've been a large C my whole life), but the nurse doing the fills thought C cups would match my frame better (my shoulders ARE a bit broad from lugging a 10 month old around).  I'm more than willing to go smaller if it means I'll have a better matching pair......oh, well, I'll talk to my PS today, I'm scheduled for another fill (fun, fun).  I hope you get your perky C's!  One way to look at it (BC), it's one opportunity to get some perky foobies on your insurance's dime..........ha!  Gotta look at the bright side!

  • hotandcold
    hotandcold Member Posts: 205
    edited March 2009

    Hello April Group, 

    Hopefully I will be starting in April after Bi-lat mast in January, no recon, but complications after surgery. I had first meeting with rads Dr. yesterday. My Dr. said he wants to see me red where it is being radiated.   I'm really worried and upset about this.  Why would he want to see me red?  Did anybody have their Dr. say they wanted to see them red?  Opinions?

    Corrine 

  • julesd
    julesd Member Posts: 17
    edited March 2009

    I'd like to join you lovely ladies.  I just had my simulation today.  It was not bad at all.  My tech (a woman) was very laid back and personable (even if she had very cold hands!!! ) I start treatment on Monday-33 sessions.  Should I start the Tamoxifen during the radiation treatment or do I start after completed?  My radiation oncologist said they do it both ways but it's up to the medical oncologist.  Your thoughts??  Unlike most of you , I did not have chemo, so I feel like I am just starting my treatment now.

  • susan13
    susan13 Member Posts: 732
    edited March 2009

    Joining the April group!   Completed 4 CAF from Sept-Oct.  Had bilat mast with recon (tissue expanders) in Dec., and just completed 4 lovely tx's of Taxotere 2 weeks ago.  I have my simulation on the 31st and will probably start week of April 13th, if they let me choose my start date.  I also still have tissue expanders in, as all my doc's agreed that it will be best to get my exchange after rads and I heal... so I join you girls with the same... I sure hope they hold up, I'm a litlte nervous about that.  Also I'll be getting 3 areas radiated... breast/chest, axilla and supraclavicular (oie sp?). Wondering if they do all 3 at once, or one area zapped at a time??

    Oh another thing... anyone using any special creams to try and ward off a bad burn or to prepare the skin?

    Julesd-My onc. told me today he might have me start Tamoxifen during my rads.  I'm 2 weeks out from chemo so he wants to give me a litlte bit of a "break" before putting me thru anything more.

    Sue

  • Britt
    Britt Member Posts: 731
    edited March 2009

    Hi,Jules -

    I also did not have chemo, and had my simulation last Tuesday, and start my session of 33 rads on Monday.  My med onco is starting me on Tamoxifen after the radiation treatments are completed, so I would suggest asking your med onco about it.  Good luck - so many of us are starting on Monday!

    Maria

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Hi ladies, My simulation is on April 1, 2009, the day I come back from my honeymoon!

    I am busy having pre-wedding jitters right now, and will count on you all on what to expect with the sim and the rads themselves. I have had tons of complications with chemo and surgery, so am hoping for a smooth course of rads.

    Bette 

  • kjbell
    kjbell Member Posts: 974
    edited March 2009

    bettelou-how exciting, you are getting married! Congrats and I hope everything is lovely! Enjoy your honeymoon and try to live for the moment with happy thoughts.

    julesd-I will be starting Tamoxifen while doing rads. My doc said they are made to "compliment" each other. (whatever that means).

    hotandcold-I saw something posted in the March rad group about the doc wanting someone there to get red too. I have no idea what it means, but maybe you'll want to check out the March group.

  • Juli50
    Juli50 Member Posts: 859
    edited March 2009

    Sue -- I started rads on Monday and am using Australian Emu oil 3x a day. Someone suggested it from the January rads group, so I decided to try it.

  • gatormom2006
    gatormom2006 Member Posts: 11
    edited March 2009

    I have had three days of rad treatment and all is well!  I am getting a bit pink around the treatment area.  I asked the nurse what I could use and she said nothing over the counter.  I will talk about lotions/oil with my rad doc on Monday.  It's been a piece of cake so far.  For some reason people don't understand the concept of going through this every day.  Every morning I walk into my office and people look at me as if 'why are you late?'  It is totally driving me nuts. 

    I have a question for you guys.  It seems like I go on day to day and I'm fine and feel like I'm at the top of the world and then I have a total meltdown!  I assume (?) that this is normal.  I just don't understand why I can go days and weeks and then something will tip me off.  Does anyone else go through this?

    Thanks!

    Donna

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