first chemo done
Comments
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Hi Jill
Well iam a little confused because i clicked on another post other than my own from some one else and seen your post to me ( i think) iam still learning to navigate these treads and learn the lingo, but thank you so much for the information, it really, really helps, when we go to the doc, my husband says, do you know what you want to ask, i say no, i have no idea, so this is so useful, and i will go to that link, i know that i have 3 lumps the largest being 1.9 my stage is a 1 but since i havnt had surgery yet i dont know about nodes or grades, i know that iam er+ pr- and my her is - thanks and god bless
debbie
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Hi Jill,
My ocologist has already told me that after all treatment it will possibility of recurrency will be 20% which is close to your figures in your private message. i wanted to get second opinion. Thanks for your concern.
Hi Kristi,
I will get FEC which i dont know if it has the same side effects as yours. Lets pray and i know that it will be hard time which we need god support on it. God bless you all.
Salwa
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Salwa -
Hi. Well.. now I am just feeling a little smug (and kind of relieved). I was so worried about setting you up for a false expectation. Yes, that 20% is close to what I said. It makes me feel good about the algorithms in Adjuvant and what I have read on radiation. I take it that you addressed the 100% ER/PR thing with him too ? Everything I read (as I have to admit I found your case interesting) said your age and tumor size trumped that pretty good. I am actually a little relieved that you have come around on this. But, it is your choice in the end. How many kids do you have ? How old are they ?
Debbie - Hi. Well.. I am scratching my head trying to figure out what I sent to you. I see you are from Paducah, KY, which is the home of my ancestors (not kidding). So, perhaps we might have a link there and managed to find each other.
When I get back tonight, I will look through my posts to try to figure it out. But, in any case... welcome. I did post something earlier on this thread to another Debbie that talked about what you should ask when going to the doc (it was a long time ago). So, perhaps that is what it is. But, I am glad it helped you. Gotta go to work now. Running late.. as per usual.
Jill
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Hi Jill,
I have 2 kids 9 and 2 y. do you know long survivors breast cancer statistics or stories. I heard some ppl live normally the whole age with no problem after they finish their treatments. is that ture. i would appreciate any resources on this regard.
Salwa
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Salwa -
Hi again. Oh my, that is quite a question that you asked. To be truthful, there are THOUSANDS of women who went on to live normal lives after treatment - and I really hope that you and I add two more to the equation - as I hope for everyone on this site.
The statistics are as you have seen already. In your case, 80% of all the women who are similar to yourself will not relapse and live as normally was we all can. Because the word "normal" is rather subjective (who is really to say what is normal), all I can really offer you on this one is a story of personal triumph.
My aunt was diagnosed 23 years ago at the exact same age I am right now with a very similar type of breast cancer. Of course, this was in the mid 80's when technologies were not nearly as advanced as they are today. Here it is 23 years later. She is 66, has raised two great sons, has a load of grandchildren and is a very busy retiree after a fulfilling lifetime in a job she adored. We were never that close, but she called me earlier this year when I was diagnosed. From her I learned the intervening years in between treatment and today were just fine. She barely gave breast cancer much of a thought other than to be supportive to others going through it. There is a bond that instantly occurs once you have been through this.
We both found the similarity of our diagnoses kind of eerie, but even that gave us both some comfort - because if she could do it, then so could I. And my Aunt's story is not unique. There are several women at work who are happy "survivors" for whom their time during treatment has turned into a blur.
While it might seem somewhat arrogant, I have never given one thought to letting the cancer win. For it to win has always seemed somewhat inconceivable to me. That is why I hopped on a plane and went to California after my last chemo and took that family vacation we had already paid for. That is why I continued to work. That is why I continue to make plans for the future. To do otherwise lets the cancer win in my strange little world, and I won't let that happen.
Now... let's be clear. That is how I chose to to deal with it. That does not make it right. To be honest, there were times I should have listened to my body more and there were times I did regret some of the things I did during treatment (and was just plain lucky because I was being really stupid and cavalier). But... what I want you to get is the attitude. Making a declaration that you won't let this thing make you victim, and doing the best you can to live up to that declaration, goes a long way to keeping you "normal" in the face of adversity.
Kristi keeping her garden, Cindy buying her puppy, Cristl continuing to work, Deb fighting to quit smoking, Belinda dealing with her household stress, (I can go on), are all small declarations of "normalcy" in an otherwise crazy situation. We will be "normal' because to be otherwise is unacceptable and lets the cancer win. I hope that makes sense.
So.. at this point, consider this a "bump" in your lifetime - an annoyance, a royal pain in the ass, a journey which you will complete. But, never once doubt that you will be as "normal" as any of us can be at the end. Changed perhaps, and hopefully smarter. But, never the less, that is what keeps us all going - a shot at normalcy.
Sorry to get so philosophical, but that is about the only way I can answer the question you posed.
Jill
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Jill,
Thanks for your reply. i also think it is a matter of determination to live and defeat this disease.
As you know i already have mastectomy with 14 lymph nodes taken out. Today and after almost one month after the sergical operation i feel my left hand (my mastectomy was for the left breast) i feel tension in my left arm and i notices it is little enlarged. i don't know if this is normal or i have to go to the doctor who make the operation. Is there are any training for my arm that can help it performing?
I wish you have information about this as i used to find you sourcful.
Salwa
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Salwa -
Good morning. Either you are an early riser or somewhere east of me.
In regard to your arm - first realize that you are still not that far removed from surgery. I recall that well after my lymph node surgery, I was still getting little stingy pains in my arm and at the removal site.
However, what you describe (particularly the enlargement part), sounds a little like lymphedema. Lymphedema is caused by a collection of excess fluid. What I suggest is that you do get looked at for this. If it is indeed lymphedema, then they will likely tell you to get a compression sleeve (and may even write you a prescription for a custom fitted one if you are in the US). There are also some exercises you can do. Since you have a two year old at home, I am sure you are using that arm a lot. Over doing it with that arm can cause some lympedema type symptoms.
I have posted the link from this site about lymphedema below. This particular link takes you to the part about avoiding it. But, on the left, you will see other topics such as "managing lymphedema".
http://www.breastcancer.org/tips/lymphedema/avoid.jsp
There is also an entire topic on the forum index about lymphedema. One of the biggest things you should remember is to not get needle sticks and/or blood pressure taken on your left arm any more. It can exacerbate the situation. To this end, I wear a bracelet on my "bad" arm to remind myself. That has come in handy on a couple of occasions when I just got going and forgot - either myself or the nurse caught it when we saw the bracelet. You really do need to be vigilant about this.
In the meantime, I suggest you get checked out for that. Better safe than sorry.
I hope all else is going well this morning for you.
Jill
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Hello, ladies. I'll be joining the chemo club within a week or two - I have IDC, stage II, grade II, estrogen 95%, progesterin 5%, HER2 - cancer. Had a lumpectomy on February 27, 2009 with all margins and lymph nodes clear. My team of doctors (breast surgeon, radiation and hematology oncologists) sent my tumor for Oncotype DX testing and the 18% mestatasis possibility over 10 years is right on the edge of a definite Yes for chemo, so it appears I will starting this soon. I meet with my hem. onc. this week to go over the results and I guess, schedule the port placement. I am scared and nervous about all of this. I will have 4 treatements, 3 weeks apart, and am trying to prepare as much as possible - your posts are all wonderful! I work full time, but with the economy, we are on a week layoff / 3 week work, so actually if I can get my chemo scheduled for the week I am laid off, I think it will help my recovery from it. I will be getting my long hair cut next week into a pixie, to deal with the hair loss (my doc says it will happen, so I can imagine I will be getting a fairly high dose of chemo(?)), and have ordered some hats and hair pieces, and will pick out a wig or two from the American Cancer Society's wig closet this week. I am a marketing manager, and am in a public position, and am nervous about going out but I'm sure I'll be able to do it once I get over the first fear. My main fears are the port / side effects. Any advice would be helpful. I'm 46, post menopausal due to surgery and only started taking HRT about 2 years ago, which is suspicious for my cancer. My husband wants to shave his head in solidarity with me, and has been so kind and caring.
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Morning Ladies...
Well I am starting to feel much better...hense DAY 9 after KILLMO...
These last few days here in Northern California have been beautiful and then today we expect clouds and rain tonight but not much and then we should be back to beautiful sunshine next week. Sounds a lot like chemo treatment...LOL
Jill so glad to hear the treatments are going great for you. How many Herceptin treatments do you have? Did you know that Herceptin is made here in Vacaville at Genetech? I feel like I have a tiny spec of participation in your treatment...LOL And to answer your question...my fever was gone within a day after taking antibiotics.
I met with my onco doc on Wednesday and showed him where my hands were peeling and I have little tiny blisters that itch...he said it was a SE and that I was doing great. He asked if I was having trouble swallowing...and I responded "..at 205 pounds I really don't think so doc." He chuckled.... He also said it was good that I had 4 treatments down and mentioned that if I had to stop it was okay although going with the 2 more it would benefit me as long as I could handle it. I agreed I want to kill this mother...
I am going to a funeral today for a co worker that retired a few years ago. I think he had a heart attack since he was pretty big and heavy...not sure on what happened but I will find out today. So depressing to say the least but need to pay respects.
That goes to say...LIVE EACH DAY TO THE FULLEST...
and we will ladies...Have a great fantastic and beautiful DAY....
Cindy
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Chelev - Welcome to the the thread, although I am sorry for the circumstances that brought you here. Also, that week lay off, although likely painful financially, will likely be a blessing. First.. you will find that the anticipation of the chemo is worse than the actual event. I am a little surprised they are going the port route with you with only four treatments. Usually when there are six and below treatments, a lot of docs don't opt for a port. Maybe you have bad veins. Regardless, the nursing staff will be glad about it! My port annoys me sometimes, but when I get a treatment, I am really glad I have it. There are others on this thread who are counting down the days for getting it out. It does not bother me that bad.
Do you know yet which regimen you are on? Given it is four treatmens and looking at your signature line, I am thinking it will be ACX4 or TCX4. I am asking because there are women here that are familiar with different treatments that could probably tell you what to expect. Also... just about any chemo treatment will cause you to lose your hair. I literally have only met one woman who did not lose her hair on chemo and it was because she was given a very different regimen. The reason we lose our hair on chemo is because chemo targets rapidly dividing cells in the body. Hair cells (and the cells inside the mouth) divide quickly. There's a fun fact to impress your friends at cocktail parties !
I also worked during chemo in a pretty demanding job. I have had a lot of folks ask about working and chemo. Because of the number that have asked, I have saved a message that I have used over an over again with some tips that I found useful. I will send you a private message with it. But, that week off will really come in handy.
Once you find out your regimen, please let us know. While everyone is a little different, you will find that someone will have dealt with a side effect you are dealing with and some side effects track with certain regimens.
Now hang in there. Really, the anticipation is worse than the event. Once you get one under your belt, you will realize that you can do it.
Jill
P.S. That is really sweet of your husband !
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Cindy -
Hi again ! You do sound a lot better. Glad to hear that fever is gone. I just finished Herceptin # 4 of 18. So, a ways to go. But, clearly more doable than chemo. The worst part is the two hours it takes and the Benedryl they give with it. I always have to sleep that off. Afterwards I deal with some drippy nose for about three days and my face breaks out a little. (Feel like a teen ager). I did not know herceptin was made in Vacaville. So.. I guess we are linked.
The peeling hands thing sucks. I have heard a number of ladies here mention that one. I personally did not get that SE. Maybe someone else here can give you some tricks for dealing with it.
Also, please accept my condolences in regard to your friend and co-worker.
Debbie - Well for the life of me, I cannot figure out how you found that post, but I suspect that someone sent you the post I wrote a long time ago to another Debbie in regard to what to ask at the doctor prior to treatment. I will go and find it and post it again here, and let's see if that is the same one. In any case, welcome to the thread !
Jill
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Debbie -
Hi again.. Actually, I looked at that post again and it was about what to ask your Medical and Radiology oncologist. I wrote it to the other Debbie last November. Given you are heading into surgery, it is probably a bit early for that part. However, there is a part of that post you might find helpful. I have kept it below.
There is a wonderful site you can go to - The Dr. Susan Love site (I posted the link below), where you can put in your information and it will spit out a wonderful battery of questions you can and should ask your doctors. While this might seem like a bit much, I personally found the doctors to be quite amenable to the questions and very forthcoming. Some docs will even let you tape record the conversations (some won't). But, all of them told me they appreciate it when their patients come in with their questions written out.
Anyway, with this link below, go to the gray area on the right - the treatment option tool and click on the link. It will have you sign up (it's all free) and then just follow the directions.
http://www.dslrf.org/breastcancer/content.asp?L2=3&L3=2&SID=161
I hope you find this useful. Take care. If you find any of it confusing after your appointment, come back here and there will be someone that can put it into perspective for you.
Jill
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Hi again ladies...
Wow...I must have missed some posts along the way before I posted this morning.Welcome to the group Debbie and Chelev...
Chelev...your diagnose and mine are very similar....I did the same thing..buzzed off my hair..in fact my hairdresser came to my house and buzzed off mine and my dear husbands (DH). I thought I could work but with the stressful environment of my business and with my hour long commute I went on short term disability and glad I did.
Salwa..from what I have been reading in your posts...it sounds to me that you do not have a good relationship with your doctors or nurses...is there some truth to that? I would be concerned if they are not advising you or giving you information that could benefit you. When I was first diagnosed I spent two hours with my onco doc and then the nurses...they handed me a great book that had all the questions you are asking on this thread. We are of course here to help you as well and want you to be sure you are getting the right medical care during this time. But concerned that you are not getting your answers from your care givers.
Jill...They give me benedryl at my chemo sessions and it puts me into a sleep and I get really cold and cranky....so my DH says...LOL
Well I went to my co workers funeral..He did not have a heart attack....here is what happened after he retired he got Hodgkin's Lymphoma and having diabetes his chemo treatments did not work and his kidneys failed. Such a sad situation...he was only 60 years old. His older children spoke and it was so heartbreaking to hear...but also great to hear the stories about him. He was a character full of life, active in his church and always made people laugh...His oldest son was heartbroken when he got up to speak and talked so highly of his father and that his father always said...when they bantered..."You know you will miss me when I am gone"....there was not a dry eye in the church...and you know...there is truth in what we say to our friends and family.
Many people were there that I had not seen in years...many left the bank and went to other banks...they saw me and said how great I looked and how they loved my new hair do...I had to tell them it was a wig...(they were really stunned) and of course I explained what I was going through...then they told me of relatives and friends who they know are 15, 20 and 25 year survivors.....that of course gave me increased HOPE...
HOPE...for everyone to be cured.
Cindy
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Salwa, hello,
Just jumping in here to say I agree with Jill that you need to get help for the swelling and tension in your left arm. It does sound like lymphedema, and without treatment that will progress to hardness and a very high risk for serious systemic infections. You will need one of your doctors to refer you to a well-trained lymphedema therapist. Here's a web page about finding a good one near you (anywhere in the world):
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
Once you have swelling in your arm, you need a lymphedema therapist's help to reduce the swelling before you get compression garments. Here are two websites with lymphedema information. This one is the National Lymphedema Network, which has Position Papers on risk reduction, exercise, air travel, therapy, and training of lymphedema therapists:
And this one is an information site especially for women and men with breast cancer, so they can learn about lymphedema and how to deal with it. All of us who have been treated for breast cancer are at risk for lymphedema for the rest of our lives (whether we've had lots of nodes removed or only one -- in fact, even with a prophylactic mastectomy!
):http://www.stepup-speakout.org
Sure hope you get the help you need with this quickly and easily.
Be well!
Binney -
Good Advice Binney...and thanks for popping in to help Salwa.....
Happy Sunday Ladies....
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Good Evening Ladies !
Quiet tonight. Must mean that everyone is doing great !
Binney - Thanks for popping in and helping with that lymphedema advice. Good advice for Salwa.
Cindy - Nice as usual seeing you.
Quiet week-end here. Just me and my daughter as my husband and son are out of town. My Mom took us out for lunch yesterday to celebrate our birthdays. Mine is tomorrow and my daughter's is on Friday. Was nice to have a girls time out.
Both my Mom and daughter are saying it is time to go without the hats. Even though my hair is still really short, they are saying I can get away with it because of my small features. The weird thing is that the people at work are saying the same thing. So.. I think this will be the first hatless week ! This assumes, of course, the weather stays warm.
Have a good rest of your Sunday ladies !
Jill
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hello everybody,
thank you very much for your advice. I will go to see the doctor today and see what he will say about it.
Thanks to you all
Salwa
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Happy Birthday jill123. Enjoy your 1st hatless week.
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HAPPY BIRTHDAY JILL.......
Celebrate and have some CHAMPAGNE for me...since I can't....
Salwa...Way to go....Please let us know what your doctor tells you....
Happy Monday Ladies....it's laundry day....
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Happy Birthday to you Jill.
Cindy, everyday is laundry day at my house.....I take it that the antibiotics did the trick and prevented any further complications from the over doing it fever. Hope you are well.
Deb, havent heard anything in a while, everything going alright?
Moms next appointment is on Wednesday. Hopefully her labs will be better this week and she will be ready for cycle 2 on 04-01. Her hair is thinning a little more this week, and her face is peeling a little, has anyone experienced this? But, she is still in pretty good spirits.
Have a happy Monday everyone....Check in later Shannon
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Hi Shannon...
Great to hear from you...Mom may be experiencing dry skin and changes to her skin color...my hair started thinning and falling out at around 21 days after my first treatment. I buzzed it off and it was the best idea and I have not regretted it. I am almost completely bald now and I have a few white hairs peaking out but I noticed the little hairs (looks like eyelashes) have come out even more since I been to the T stuff. My skin is peeling on my hands and I get these tiny little bubbles of itchy patches. I also notice that I get these little scabs which look red and take a longer time to heal.
Has your mother gotten a wig? I have received so many compliments ...actually I have had several women ask me where I get my hair done. They are shocked to find it is a wig.
I am going in on 04-02 so we can exchange SE's together....Just hope I don't get another fever and have to take antibiotics I don't want to get ammune to them just in case I get something really bad.
Shannon...can you update your home page to show your mothers diagnose? We know it's not you but it is a good reference and reminder of what stage your mother's diagnose is.
We are picking up my 7 year old granddaughter this Friday for a weekend visit...we raised her for three years after my son was killed in a car accident who has gone back to her mother about a year and a half ago....she looks so much like my son...she has his spirit and attitude, temper etc...Fun to be with her she is his angel for sure. I just hope she doesn't wear me out...LOL
Done with laundry....on to reading Danielle Steele....
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Hey Shannon, I'm still here, just don't post alot, hurts the fingernails....have last chemo tomorrow...TG!!!!!!!!!!!!! Have lost both thumbnails and one fingernail, one toenail, have another bout to fall off, neuropathy has moved from outter left hand and ring finger, baby finger to center of hand also, wonderful, I'm left handed............go to B.S. April 6th, will find out surgery date then.............and have one more day of Chantix to go, then I have to quit smoking......ugh
ooooooooooo Cindy, which book are you reading? I love her books, think I have read all of them..right now I'm reading the Twilight books..didn't think I would like them, normally don't get into that kind of garbage but am impressed, they're really good..........
Deb
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Chelev, it's OK to be scared. I was speechless when I found out as I have NO family history, and am 2 years out from a baseline mammo. I balled my eyes out when my ob/gyn told me, but I'm glad I found it!! Now, Im halfway through chemo, and kicking this thing right in the butt!!
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Hi, I'm new. I had to post under a reply because I couldn't figure out how to do a new thread. I guess it will take time to learn to navigate.I am 64 and I have IDC, Stage11, grade 3 Her (1+).Lump was 1cm. I start chemo on April 6th (cytoxan and taxotere. I have multile Sclerosis so I am really worried about further neuropathy. I only have 1 kidney so I have to hope and pray that it will make it through the chemo. I also have had a stroke and I think that is why I am not getting the big A. It seems like there is so much to take in and I forgotten alot of what I was told. I'm glad I found you guys and I am looking forward to getting to know you.
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Welcome CaroleAnn and Bethie1....There are great ladies on this thread who can help with any questions you may have. We are all in this together....
CaroleAnn if you go up to the top of this page and go to "My Home' you an input your diagnose so that it follows your postings. This will help with us to get to know your diagnose and help answer your questions...you can see the examples on the bottom of most of our postings. While there you can indicate that you want an email if someone posts or replies.
Deb...great that you like her books too...I am currently reading her newest one...One Day At A Time...I have several others that I am trying to catch up on....We go way back to the earliest ones...you know she has one of her homes near here in Yountville.
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I love her books, my MIL does too..........I think my favorite one was "Accident"...I read them, wait a few months, read them again....I didn't know that, have you ever seen one of her homes?
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CINDY, I will try and figure out how to update the stats of moms diagnosis....when i try to edit my home page there is no heading to fill in under, i will check it out again later. She was IDC, 2 cm, Stage 1, Grade 3, ER+/PR+/HER2+, no node involvement.
Please do enjoy your visit with your angel baby. Very sorry to learn about your son, another testament to your strength. Little Miss probably has enough energy for the both of you so dont go over doing it grammy, but do enjoy. Take care...
Yeaaaah DEB on the last chemo tomorrow.....so happy for you to get this part behind you and move forward. I am sorry you are having such trouble with the nails and neuropathy. Any idea on when you can expect relief from this? Thinking of you tomorrow.....
CarolAnn, you could not have picked a better group of ladies to find. If there is something you have forgotten, they will probably remember it for you. Take care of yourself and may you find comfort here with this fantastic group of ladies.
Forgot to add...Mom says she does not want a wig. I have however found a very nice one for her if she should change her mind, i just need to take a measurement when she is ready. Where may I ask did you get yours Cindy? Sounds like it must be very nice.
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Deb...Yes it of course is beautiful and over the top...if you notice she writes a lot about Napa and San Francisco.
Do you like to read Nicolas Sparks? He is good too...except something always happen to his characters...
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hmm I don't know if I've ever read one of his books....I buy alot of books at the local consignment shop or Goodwill, sorry but just can't see spending that kind of money on something that will only take me like 4 hours to read. (I speed read)..........then they sit here and collect dust till I forget about them and re-read them! LOL...........will have to go thru my books and see if I have any by him..
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Shannon, I asked him last visit about if the neuropathy would go away and the problems with my fingernails and all, he said Oh yes they will go away eventually..............didn't give me a time frame, it better be soon, it sure is aggravating...
I bought 2 dozen cupcakes to take in with me tomorrow to celebrate my last chemo! LOL........usually some guy brings in donuts, hoping he doesn't show up tomorrow too!
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