Starting Chemo April 2009
Hi All,
I didn't see a thread for April so I thought I'll start one. I'll be starting sometime week 2 or 3, depending on when my period comes. My DH and I want to conserve our fertility first through IVF so the eggs gotta be taken out before chemo starts.
So far, I've seen 4 oncos. 3 for ACH and 1 for TCH. Think I'll go with ACH although I really prefer TCH. Anyone else out there? Would be great to share the thick and thin of this ordeal together
Members:--
tulipbebe - Dx 02/25/09, 2 cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2+
sakura73 - Dx 1/22/2009, ILC, 2cm, Grade 2, 2/17 nodes, ER+/PR+, HER2-
dbOak - Dx 2/3/2009, IDC, 2cm, Stage IIa, Grade 3, 0/4 nodes, ER+/PR+, HER2-
TBB - Dx 01/19/09, ILC Stage IIb, 9+nodes rt and sent lt +, ER+/PR+, HER2-
txgal -
jlp - Dx 2/13/2009, IDC, 4cm, Grade 3, 0/3 nodes, ER-/PR-, HER2-
sherrimo - Dx 2/24/2009, IDC, 2cm, Grade 3, 0/3 nodes, ER+/PR+, HER2-
Nadine54 - Dx 2/24/2009, 1cm, Stage I, Grade 2, 1/2 nodes, ER+/PR+, HER2-
comingtoterms - Dx 1/9/2009, IDC, 2cm, Stage II, Grade 2, 0/27 nodes, ER+/PR+, HER2-
Pamelamont - Dx 1/26/2009, IDC, 2cm, Stage IIa, Grade 2, 0/3 nodes, ER+/PR-, HER2-
TMD - Dx 1/15/2009, ILC, 1cm, Stage IIIa, Grade 1, 4/9 nodes, ER+/PR+, HER2-
jax65 - Dx 2/11/2009, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
aoandrews43 - Dx 01/23/09 2.8cm, stage IIa, grade 2, 0/2 nodes, ER+/PR- HER2-
inthemoment - Dx 2/20/2009, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2+
chelev - Dx 2/14/2009, IDC, 3cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2-
Laurie - Dx 2/20/2009, IDC, Grade 2, / nodes, ER+/PR-, HER2-
Lena - Dx 2/9/2009, IBC, 6cm+, Stage IV, / nodes, mets, ER+, HER2+
giglgrl - Dx 3/2/2009, IDC, 2cm, Stage IIb, ER+, HER2+
Daisy47 - TCHx6, Hx1yr, Tamoxifenx5yrs
Believe1 - Dx 2/2/2009, Stage 1, Grade 2, clear nodes, ER+/PR+, HER2-
rebeccar - Dx 2/24/2009, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2+
stephanie1 - Dx 1/26/2009, IDC, 3cm, Stage IIb, Grade 2, 3/18 nodes, ER+/PR+, HER2-
WasaBlonde
sherrilynne... - Dx 3/10/2009, 2cm, Stage I, Grade 2, 0/1 nodes, ER+
lindatwo - Dx 12/15/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
vicbils - Dx 2/13/2009, IDC, 2cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+, HER2-
TSmith - Dx 10/28/08, IDC, Double Mastectomy 1/20/09, 4cm, Stage III, Grade 3, 1/6 nodes, ER-/PR-, HER2-, Chemo Tx 4/23/09
florbo - Dx 1/20/2009, IDC, 1cm, Stage II, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Paula3558 - Dx 2/2/2009, IDC, 2cm, Stage II, Grade 1, 2/19 nodes, ER+/PR+, HER2-
aris - Dx 1/29/2009, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2+
ikat - Dx 1/29/2009, IDC, 1cm, Stage I, 0/5 nodes, ER+/PR+, HER2-
joyceyg - Dx 2/12/2009, DCIS, Stage IIa, Grade 2, 1/1 nodes, ER+/PR+, HER2-
bombus - Dx 3/4/2009, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2-
mariemarie - Dx 2/3/2009, ILC, 2cm, Stage IIa, Grade 2, 2/15 nodes, ER+/PR+, HER2+
nico1012 - Dx 4/2/2008, IDC, 2cm, Stage IIb, Grade 3, 5/15 nodes, ER+/PR+, HER2-
Mittenmomma - Dx 02/05/2009, IDC 1CM,STAGE IIA,GRADE 2,1/15NODES,ER+, PR+, HER2-
jeezy - Dx 2/20/2009, IDC, 3cm, Stage IIa, Grade 3, 0/1 nodes, ER-/PR-, HER2+
ljh58 - Dx 3/11/2009, IDC, 2cm, Stage IIb, Grade 2, 4/4 nodes, ER+/PR+, HER2-
rinna40 - Dx 2/23/2009, IDC, 3cm, Stage II, Grade 3, 0/13 nodes, ER-/PR-, HER2-
Lesleyanne67 - Dx 3/27/2009, IDC, 5cm, Stage IIIa, Grade 2, / nodes, ER+/PR+, HER2-
nyelene - Dx 03/24/2009, IDC, 2.6 cm, Stage 2, Grade 2, ER+/PR+, HER2+
HelenNC - Dx 1/10/2009, 2cm, Stage IIb, 1/18 nodes, ER+, HER2+
vicbils - Dx 2/13/2009, IDC, 2cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+, HER2-
luckofthedraw - Dx 1/19/2009, IDC, 2cm, Stage IIIa, Grade 2, 6/10 nodes, ER+/PR+, HER2-
AmylsStrong - Dx 3/2/2009, IDC, 2cm, Stage IIa, Grade 2, 0/2 nodes, ER+/PR-, HER2+
Alaina - Dx 3/20/2009, IDC, 6cm+, Stage IIIb, ER+/PR-, HER2+
shannon56 - Dx 3/20/2009, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER-/PR+, HER2+
lindatwo - Dx 12/15/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
hrf - Dx 2/6/2009, ILC, 2cm, Stage IIb, Grade 1, ER+/PR+, HER2-
DUTCHinAtlanta - Dx 1/15/2009, IDC, 1cm, Grade 3, 0/7 nodes, ER-/PR-, HER2-
joanmac52 - Dx 2/2/2009, IDC, 1cm, Stage I, Grade 3, ER-/PR-, HER2-
jeanohio47 - Dx 4/2009, IDC, 1cm, Stage II, Grade 3, 2/6 nodes, HER2-
colette37 - Dx 3/17/2009, IDC, 5cm, Grade 3, ER+/PR-
rkclund
Titan - Dx 3/18/2009, IDC, 1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-, HER2-
Alaina - Dx 3/20/2009, IDC, 6cm+, Stage IIIb, ER+/PR-, HER2+
Comments
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Hi tulipbebe,
I'm a member over on the march thread but as I don't start until 31 March and have a 24 week protocol I'll be going much longer than all those lovely girls, so may I be an honorary member of your group too?
I'm doing AC-T, but my start date was delayed until 31 March so that I too could do fertility treatment. I have had part of one ovary removed and frozen for reimplanting later, and am right now doing the injections hoping I get a good crop of eggs to freeze. I do have a boyfriend but things are a bit new for us to freeze embryos so eggs it is.
I totally sweated on the arrival of my period, and of course given all the stress it arrived late even though the fertility doctor had given me medication to bring it on! So don't be surprised if you are later than normal.
I'm also going to be on Zoladex which is meant to reduce the risk of permanent infertility somewhat. Am happy to discuss precise IVF drugs etc if that would be of any assistance to you.
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Hi there, I'll most likely start TCx4 in mid-April. Am 39 with one little girl, will not be doing fertility treatments and am doubtful fertility will return... Tulipbebe if you prefer TC then do that, it may be slightly better and does have fewer side effects.
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Hi to all,
I will be starting Chemo in the next few weeks and have been given a few options by one onco. I am planning to get a second opinion from another on the 27th of March and was wondering everyones thoughts on the second opinions or if it just gets more confusing on what treatment to go with. TAC was the highly aggressive, highly recommended treatment but the side affects of the Adriamycin were very scarry..... Heck it is all scarry because diagnosis to treatment has only been 2 months... What are thoughts on Radiation as well... No fertility here either since had to have partial hysterectomy at 37...
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Hi. I'm coming over from the March group because I've been delayed until April. I live in Houston. Married, no kids. I'm going to have four rounds of FAC starting April 14th. I am planning on continuing to work through all of this but I guess we'll see how it goes!
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I am starting 6 cycles of TAC on 1st April.
I'm 44 and my sister was diagnosed 10 years ago at 33 (she's healthy now with 2 great kids since treatment). I live in Northern Virginia but originally from England.
I'm hoping to be able to work through treatment, at least some of the time, too.
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Welcome all! I was s'posed to be part of March initially. But due to the stress of the recent DX, my period hasn't come. So chemo is postponed to April for sure.
sakura73 - i'm freezing the embryoes with my DH's sperms. we have one loving DS and was planning for another baby this year....that's before I got the DX. The doc did mention freezing the ovary...but only wedges of it coz he said it's more efficient and has seen better results than freezing the whole ovary. Btw, why are you on a 24 week protocol?
dbOak - My onco said in the world that's been only ONE clinical trial (BCIRG) proving TCH to be as effective as AC-TH so he rather go with the trialed and tested. Besides, the TCH doesn't have much data past the 3 year mark so it's still a shot in the dark for long long term disease free stats.
TBB - Get as many opinions as you feel comfortable. I got 4 and still struggled with the choice of chemo regimen. But I think I'm finally decided ... for now :P I think AC-TH is really scarry as well...but for the long term benefits, I need to go with it. My son's only 2 years old...so I really need to be around for as long as I can be! Radiation is scarry as well .. but the onco assured me that these days, the machines are very sophisticated and they only target the breast....so the lungs etc won't get affected.
txgal - Welcome to the April group. Houston is a great place coz it has the one of the best cancer centers in the world! I'm planning to continue work as well. But the onco said to take the first few doses of chemo to see how the body reacts first. From what I read on the other threads, sometimes the effects are cumulative and the body gets more tired as we go further into chemo.
Really sucks - As I am sure for the rest of you and I, we all feel and function perfectly fine (other than having bc). If only we can do the surgery and just forget about it!!! Hopefully technology would improve soon to offer the next generation of bc patients that choice.
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Hi tulipbebe and other April ladies (you're going to need a cute name!)
I'm doing 4 lots of AC, three weeks apart, and then 12 weeks of Taxol. My oncologist offered me that or FECx3 and Taxotere x 3, which would have been 6 weeks shorter but with more severe side effects. I want to keep working, so picked the longer but less side-effect heavy regime. Fingers crossed that is how it works out!
I had one third of one ovary removed and it is now neatly sliced into 90 pieces and in the freezer! My doctor tells me they have had great success with the re-grafting, though not many actual babies yet.
So what is everyone doing about head coverings, etc? I have bought a whole lot of headwraps from www.headwraps.com.au and am going to get a wig from the range of www.reneofparis.com.
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I realised my sig re: nodes was wrong my earlier post - I did get a sentinel node biopsy that was clear - tulipbebe can you edit the roll call?
Went for my bone scan today and was pleasantly surprised - no pain (really easy injection in hand to spare my already sad arm veins), no disrobing, just lie really still for 20 minutes, I almost fell asleep! That's my last test out of the way, just have to get my port in, which is planned for next Wednesday.
Head coverings: I got the phone number of the local American Cancer Society chapter (Vienna, VA) from the nurse at the radiation onc center. Apparently they have a 'salon' where you can go and try on wigs and even get 1 or 2 free (I don't know if there is any qualification criteria...), and I'm going to try to go next week. I picked out some hats and scarves from http://www.headcovers.com/ but couldn't quite bring myself to order anything yet.
I currently have nearly waist length hair and (in normal times) I hate going to the hairdresser more than the dentist!!! So one of my friends is getting her hairdresser to come over and we will have a hair cut party at her house on 5th April. Hope I don't cry too much....
Be strong! Lou.
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Hi Lou,
Like you I started with waist length hair and my recommendation is to do it in stages. Don't go really short all at once. I had mine cut to the length in my pic a few weeks ago, and next Monday will have it cut to pixie length. Then the shaver will come out on day 14 or so after my first treatment.
I think it helps - I have always defined myself as some one with long hair and it takes some time to alter that view of myself. I really like my present cut but am in some ways looking forward to the shorter one. After all, if it were not for the fact it is going to fall out anyway I would never have had the guts to try short hair!
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sakura - I think I'm going to get an ear length bob on 5th April, which I've had in the past and really loved (except for the daily blow dry before work...) I should have 10 days to enjoy it before the buzz cut!
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Good plan!
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jlp - I've changed the post. Pls check if it's correct. I think my chemo brain is already starting even tho chemo hasn't started yet!!!
Girls - Good luck with the hair cuts! I'm gonna let my longer than shoulder length hair thin out naturally and probably get a wig or two.
It's funny ... I was wondering what I would look like with a bald head.....thinking back.....be careful what you wonder!!!
I gotta check out those sites sakura! I'm thinking head coverings are probably a lot airier than wigs. Be strong Lou. Think of it as a new image and you're gonna emerge from this much stronger and more beautiful than ever
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I am also starting in April. Going with AC+T and may get into a clinical study that adds Bevacizumab depending on my Oncotype score. I had my hair cut short yesterday, looks really cute, should have had it done a long time ago. I am not worried about fertility, my daughter is graduating high school this year and going off to college in the fall. Good luck to all of you.
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Welcome sherrimo!
What does Bevacizumab do? My onco has not told me about this drug yet.
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Apparently this a study they are conducting, clinical trial at this point. The drug was originally intended for colorectal cancer but has shown some promise in lowering recurrence in other types of cancer including breast cancer. I thought, what the heck it's not like it is replacing any of the other treatments, just adding on. Bevacizumab also known as Avastin blocks the growth of blood vessels in the tumor. It is approved for treatment of metastic breast cancer. The study I am thinking about going in is to see the benefit of non-metastic cancer. I was a little leary about getting into a clinical study but I figure if people don't do these types of things, cancer may never get cured. I would be concerned if they were replacing the standard chemo with this but they adding this on to the regular regiment.
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It's awesome that you're volunteering for this clinical trial....most people with your prognosis don't want to do it. Only those with more advanced stages choose to undergo the trials. Thanks for being so selfless
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I'm going to start FAC on April 14th. Is anyone else getting FAC? I'm getting a central line put in on April 13th (not a port...temp IV line for chemo) which I'm not looking forward to, and then on the 14th they start the first of four treatments. It's a several day process. Day one is 1/2 the F, all the C and then home with a portable pump to infuse the A over 48 hours. Stay home on day 2 then back to the center on day three to have the pump removed and get the other half of the F. Anyone have anything remotely similar to this schedule? I don't think I've run across anyone who doesn't get this all in one go. Would be interested to know other people's schedules. Thanks!
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I'm getting the AC-T-H. But from what my onco told me, it's always better to spread it out (especially the A) than have all in one shot. The body takes it in better and the SE are more manageable.
Btw txgal/TBB - mind if you share with us your prognosis? Would love to have a complete members' list. Thanks!
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Cooking tonight... I am getting my port on Wednesday, and husband is out of town, so I am making chicken casseroles and lasagne so I won't have to cook the rest of the week. There will be some left for when I start chemo - who knows if I will want to eat it?!
I am not looking forward to getting the port - I've seen many reports of it being more painful than breast surgery. I had my lumpectomy/SNB on 3/4 and I have been sore ever since in the area between the two incisions (fluid/swelling). I still can't wear a bra all day, so I'm hoping the port heals faster than that.
I was asked to consider a clinical trial of TCx6 vs. TACx6. They want to find out if the TC works as well as TAC with less side effects - if it does that would be a great treatment advance. I still might go in the trial - there's a 50/50 chance I would be on the same treatment anyway, just not sure yet as I don't know if my insurance company would still cover all the treatments if I get TC as apparently its not officially approved. But I've seen lots of people on other threads say they are getting TC... so maybe the insurance would not be a problem (it will cost them a lot less than TAC + a Neulasta shot each time!) Has anyone else had issues with insurance for a clinical trial?
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My mom will be starting chemo q T/C x 4 Rx. Her Onc. said she would not need a port. I was wondering if this is unusual. I have read many posts where ladies have had a port put in. Her BS originally told her she would require one. When we went to see Onc. two weeks ago, he said she would not. I am a little confussed. Thanks for any information.
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Hello all - I got my pixie cut and I love it! You should definitely consider getting a cute short cut, even if only for a few weeks (mine will fall out in three). Might as well take what pleasure we can from all this crap.
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sakura, the haircut really suits you - I hope I look any where near that good! I went to a party on Saturday with my hair down for a 'final fling' - I made a friend take a pic of me from the back and I'll try to get a copy and post it some time. Lou.
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sakura! what a cute pixie cut!! suits you totally!! now you're making me consider the pixie cut seriously.
jlp - based on the bcirg rpts, TC is just as good/if not better than ACT for her2- so don't worry. btw, is ACT the same as TAC? where are you placing the port? my onco suggested one for me as well but i'm not sure coz I don't want scars on my shoulder (meaning no strapless or tube tops!)
LAM2009 - usually the port thing is optional. maybe the onco thinks your mom has good veins so they will do the needle thing each time? alternatively she can do the catheter as well.
Girls! We need to stock up soon. Let's prepare for the chemos. Any suggestions on things to buy/do before the big day?? I'm gonna get a lot of tissue, a nice little bowl by the side of my bed (in case I need to puke into it)......nice mood music to induce sleep......take off my nail polish soon, buy wigs and scarfs and hats, good socks to protect the feet from dehydration....that's all I can think of for now. Btw, do we still get our periods during chemo? I forgot. Or does it become less and less until we temporarily (permanently for some of us) menopause?
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Another new person to our April 2009 Chemo group here. On the hair topic, I have had thin hair on top for many years...I was pretty good with styling my hair where it wasn't so noticeable. Had my hair long and short and long and then more short. I had decided I was going to grow my hair long long again...and then BC came and brought me an unwelcome surprise. Thought surgery would be enough...nope now treatments and the soon to be shaved head. Going tomorrow to look at wigs. I figure since I will have no hair, I will just get some nice looking wigs. Bought some turbins this evening and going to get scarves soon also. And wouldn't you know it I have complained about bad hair days...man what a trip there! My hair this last week has been a mess. But hair will grow back, THANKS GOODNESS! My problem over all is having seen both of my parents in resent years going threw chemo and its still fresh in my mind the sickness and all that they both went through. If I could just shake those images maybe I could chill somewhat. I am a control person...time to only control what I really can control. So with April 1 coming up I am only trying to think of simple things. My mind is in overdrive...I am not in this alone and we will all hang in here together. So ladies...gets do it together.
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Lets see how much of the world us special April ladies can cover. Such as...I am in Idaho.
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I'm in Melbourne, Australia.
In relation to preparing for the big day, I have got lots of good tips from the Shopping List for Chemo thread. Have bought mouthwash, wet tissues, senna, imodium, lots of fruit juice, ginger ale, little tubs of fruit puree, and so on. I recommend that thread to you all.
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Welcome Nadine.
I'm in Singapore currently. Was from New York but got posted to Singapore for my DH's job. Really am not liking it here even though it's a great city country.
Saw the shopping list for Chemo. Great help.
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I am in Virginia.
ACT vs TAC: ACT and TAC are the same combo of drugs, but I think "TAC" is used if you are getting all three together, vs. "AC-T" is typically 4 doses of AC followed by 4 or 12 of T from what I have seen. For me, the less total treatments the better - I just want it over with!
I've made an appt at the American Cancer Society to look at wigs on April 6th, the day after my haircut. And I've done most of the pre-chemo shopping, though the bowl for the side of the bed is a nice idea I had not thought of. I haven't stocked up on food except protein drink mix that was on sale last week... and 2 big tubs of active yogurt from the local farm. I'm planning to send DH to store with orders daily for what I fancy
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My port will go on the right - not sure of exact placement (Left side tumor) but I am not worried about having a scar. My onco said to get one because both taxotere and adriamycin can trash your veins - I was already feeling like I could not take more needle sticks in the arm after 3 weeks of surgery and tests and that's without toxic chemo drugs going in!
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To prepare for chemo, I watched Dying Young again. DH said it's too dramatic coz it's just a movie.
I got that bowl idea from Dying Young as well as Nip/Tuck
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Hello all,
Add me on to the list. Seeing ONC on April 2 - we'll go from there. I have been a real rebel about the hair thing. Last week, after years of coloring my own thick, wavy brown hair, I had it colored red, highlighted in honey, cut, blown out and flat-ironed at the salon! Probably seems like a ridiculous thing to do, but I felt like I needed some TLC and I looked great and felt great. Even though I know it won't be mine for long, I will have those couple of hours and some pictures to remember it by. Funny thing, months before I was DX, my hair began falling out in clumps. No one ever did figure out why. Maybe it was my preparation for what was to come. A question: How long after the initial ONC visit does Chemo typically begin?
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