Bras and breast forms you love
Comments
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Question for whoever can help me understand - I've seen some discussion about the prosthesis that adheres to your skin. You must wear a regular bra with this type? It sounds uncomfortable to me - are there advantages over a silicone prosthesis that fits in a mastectomy bra? How do you even begin to buy a bra from any of the mail order or internet sites - when I went in for a fitting, I tried about 5-6 bras and only one "fit" me. I'd be afraid that if I tried to mail order, they wouldn't fit and I'd spend so much time and postage mailing things back. Seems like the prosthesis would be the same way. Any thoughts to help?
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2hands4me,
I agree that it can be very challenging ordering bras (or breast forms) online. Sometimes, if I find a bra I like at my local fitter's, I'll buy one and then order more online, where they're often cheaper (I do this after I've gotten the bras covered by my insurance each year).
Sometimes, if I've found a particular manufacturer whose bras I like, I'll take a chance and order a different style by the same manufacturer online. For example, I bought a very comfy and pretty Anita bra from my fitter. I later decided to try two other styles from Anita that she didn't carry, which I ordered online. One worked and one I had to return. The one that worked has become one of my favorites, so it was worth the hassle and small extra expense to return the one that didn't work. The bras were on sale at the online site I used, so even with the return, the cost was still less than it would have been had my fitter even carried what I wanted.
Regarding the "contact" forms that adhere to your skin, some women love them. You should be at least six months post-surgery to try them, though, since your skin needs to be fully healed. I'm someone who's very sensitive to silicone. I really can't bear to have even a little right against my skin, so contact forms aren't the right choice for me. But other women don't have that problem and love the feeling that the form is part of them. Contact forms are worn with regular un-pocketed bras.
I've tried to find a middle solution--I've found some breast forms that are made of silicone but have some kind of fabric backing, so I can wear them in a regular bra. I'm very sensitive (always have been, even before bc) and never liked constricting bras, so I tend to wear the most unstructured bra I can get away with. Using the fabric-backed breast forms allows me to do that. Two such forms are made by Silique--the Comfort Tex and the Comfort Lite. Silique's a new company, so very few fitters carry these forms yet, though they might be willing to order them for you to try out.
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Thank-you so much, Erica. Yes, it is all so confusing. Your explanation really helps! It takes time and an unexpected education to figure all of these things out! I appreciate your help!
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My Silique Comfort Lite forms are definitely light. The size 3 forms only weigh 3 oz (85 grams) each. The microbead filling allows the forms to mold to the various dips and valleys in my chest. The forms work fine in the shelf bra of my tank/cami's as well as my old regular bras. They don't works so well in my Bellisse Compressure Comfort Bra--I only use that as needed for my lymphedema--as they really get squished a lot and I read somewhere that silicone forms should not be unduly compressed.
Barbara,
Thanks for starting this post and the breastfree.org site. I first learned about the Silique forms from you. I never thought I would need forms since I was supposed to have immediate reconstruction. That got delayed 'cuz 6 positive nodes were found during surgery which meant I had to have radiation first. I ended up developing some mild truncal lymphedema after surgery and have subsequently decided that I don't want reconstruction after all unless I have to have abdominal surgery down the line--we found out that I have ovarian cysts and I'm in a wait and watch mode right now since I just started tamoxifen a month ago. After hearing about how hot and heavy forms can be from so many survivors, I really wanted something that would be as comfortable as possible on the rare occasions when I felt the need to use them. Than you again for the info on the Silique forms.
2hands4me,
Good luck on getting the bras and forms that fit right for you. At least you got to try on stuff to find out what works before ordering. My "fitter" just handed over a binder w/ catalog pictures and told me to choose something.
So caveat emptor (buyer's beware):
Get estimates ahead of time before ordering and also find out if there will be any charges to you for returns of any items for whatever reason. Get everything in writing. Not sure how much it will protect you against some insurance company's statement to the effect that evidence of benefit does not guarantee coverage though.Tami
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I did get in touch w/ my HMO and my insurance company about some detail of my benefits and asked about that whole pricing thing I went through. The first few reps either didn't have a clue or couldn't explain. I finally did get a rep who told me it took him almost a year to figure out how to explain it properly.
As far as I understand it, this is the SOP when using insurance:
Let's say insurance and vendor have negotiated a fee schedule for bilateral forms at $500.
If patient chooses forms that actually cost $1000,
patient w/ 20% copay would be charged $100 (20% x $500) and
insurance pays $400 (80% x $500) and
vendor writes off the remaining $500.If patient chooses forms that actually cost $100,
patient w/ 20% copay would be charged $100 (20% x $500) and
insurance pays $400 (80% x $500) and
vendor gets to pocket the $400 profit.The second example is so counter intuitive since both patient and insurance end up paying more for something that costs less. That's why I felt like I was being ripped off both in terms of the copay charged to me as well as in the lifetime maximum amount my insurance will pay on my behalf. $1 million is not so much when you factor in the cost of treatment, therapy, and everything else when dealing w/ cancer. Every penny counts.
So caveat emptor (let the buyer beware):
Get estimates ahead of time before ordering and also find out if there will be any charges to you for returns of any items for whatever reason. Get everything in writing! Not sure how much it will protect you against some insurance company's statement to the effect that evidence of benefit does not guarantee coverage though. -
Hi, 1in8,
I use the Silique comfort lite forms, too (thank you, Barbara!) and wear them every day in my compression bra (which is by WearEase, not Bellisse). I'll say for the compression bras that they do make it more fashionable to wear button-down shirts than fitted T's
, but the silicone in my forms is holding up really well (haven't had them long, but even so, they come with a warranty -- so make sure you or your fitter fills out the paperwork to activate the warranty). I love the "beanie baby" back to these forms, because if part of my chest is hurting from the lymphedema I can just adjust the "beans" so they don't bug it. I think it's a brilliant design!It's amazing the contortions our insurance companies will go through, isn't it? When I read things like this I'm reminded of that party game "Twister" we all used to play. THAT was funny, though, and THIS is not!
Binney -
Tami,
I didn't reslove my insurance issues, as my husband changed jobs and we ended up changing health insurance. While, I now have better coverage, (80%) instead of 50%.... I also have a $500. deductable to meet, so may not be any better off!
I ended up getting 2 free forms from our local American Cancer society and 2 bras and 2 boob covers so you can wear normal bras! One of the forms is an Amoena. I also bought a form off ebay for $20. and it is decent! Now, I just need to get a swim form and may look for directions on how to make one!
I do think the system is corrupt, however I considered calling the insurance commission and just haven't done it yet. It sure does seem almost criminal to me!
Try your local American Cancer Society Resource room and see if they can be of service. Ours has wigs also!
Hugs and take care.
Carol
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1in8,
That's pretty close as for the insurance explanation... however, I was able to get a bit more information from Aetna in explaining to me that Aetna pays a set fee to each vendor at a prenegotiated price. In other words for the store that I went to... no matter what form they sold me they were only going to get $120. Then the store takes it upon themselves to write up an invoice to serve their needs! Who even knows what they are paid on the bras! I didn't get that far!
Unfortunately, this disease can take it's toll on our finances and financial security.
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Hi, gals!
Discovered something nifty today!
I bought two Hanes sports bras last week, because they were soooooo soft!
These are Item G467 - I got one in hot pink and another in lime green. May go back to see if they have any in white. I got them at Walmart.
Today I realized that there are two layers to the front of this bra. So I opened up about 2" of seam and stuck my prosthesis in there! Works just like a pocketed bra! My only question would be is the whole front open, in other words will I still have to pin the prosthesis over by the armpit to avoid ye olde uniboob look, when the prosthesis travels to the middle of my chest ...
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Erica,
It would be so great if you had a section on your site for free breast forms. I am going through a traumatic divorce and consequently do not have any income. I received forms from my ACS office located in the hospital. However, they are very fragile and I am not certain what they consist of, gel/silicone. As I mentioned in another place on this site, my breast form came apart after sleeping on it soon after I had it. Information regarding the types of free breast forms and maybe a variety to choose from would be wonderful for women going through similar circumstances as myself. Thanks for all you do!
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Seems like so many have problems with their prosthesis being hot, or too heavy, or different from the real breast. I was "fitted" with a silicone prosthesis that weighs almost exactly the same as my mastectomy side did, so I don't seem to have any "unbalanced" problems. I thought maybe it would feel warm once summer came, but it really doesn't seem warmer than my real breast - which is warm no matter what! If anything, at least I can lean forward and get some brief airflow between my skin and the warmth of the prosthesis!!!! And it feels the same to touch and even transfers sensation from the outside to my real skin. So, I'm pleased with the "fit" and wonder if there would be any reason to try one of the light ones later. Seems like this would make a difference in balance.
One problem I have is not really new since surgery. My bra fits well but I still have skin to skin contact under the real breast - enough that I end up with a rash and need to be very careful it doesn't get worse. Any ideas? I've tried a soft cloth, but it doesn't stay in place very well with exercise and more active work. Cream feels wet and slippery once I get sweaty and seems to keep the area damper. I had always wondered if I really needed a larger bra size to prevent this, but after trying on several bras with the fitter, it is obvious that a bigger cup size wouldn't help this. (I'm a C size). Any suggestions?
And if you are new to Dx and mastectomy surgery - there are so many options available, and everyone is different. There are now "new normals" - it's a little more awkward to put my bra on due to the heaviness of the one side, but once it's on, it's so much more normal than just after surgery when I was wearing a "poofy".
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I finally ordered the Silique Comfort-Lites and they came last week. I love them! They are SO light! and they aren't hot on me at all. I can barely feel them!
Dawn
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Hello All--
I have gotten a tremendous education reading the various posts you have all offered on this topic and benefitted greatly from finding breastfree.org where I have posed a question similar to my inquiries that follow:
I am working at a product development company in Cincinnati OH. We've worked extensively with many large companies including P&G, Motorolla and Johnson & Johnson. We've developed consumer products which many of you likely use each day in your home as well as many medical devices and surgical instruments. We are now working with a female entrepreneur who has developed a non-silicone breast form. Despite 20+ years working in healthcare, much of it developing women's health programs and facilties, including women's imaging centers, I find that I am woefully undereducated about the journey after diagnosis of breast cancer. I am trying to become as educated as possible about breast forms--when in the process of breast cancer treatment do women first learn about breast forms, how do they find their way to a particular form and/or breast form fitter, etc.
Would you share with me, anonymously via this blog, your experience? Any info you can provide or recommendations you would make would be most gratefully accepted and could help us work more effectively with a client whose product could prove very helpful to many women.
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Erica,
I found your BreastFree website through the ladies on these discussion boards.
THANK YOU for what you are doing and providing for all of us.
I wish I would of found it prior to my bilat mastectomy-no reconstruction in January '09.
Oh well.........
Today, I got my first forms---great experience at Nordstroms.
--I opted for the AMOENA CLIMATE LIGHT, and the AMOENA bra style Rita 2004.
The only issue right now is that the forms, size 8 seem to be a tiny bit bigger than the bra--on the top side?? This is the only bra that I liked-I looked at and tried on 4 or 5 others--the other Amoena bras head a seam that showed through my clothes.
Prior to bilat I was a 34DDD in the BC breast and a 34 G in the non-BC breast.
I am now happy to choose my look, and decided on a 'D' .....yeah--the freedom of choosing--
Thanks again and I will let you know how I like the forms, since this is Day 1.......
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I'm jumping in here without carefully reading all the other posts, so forgive me if I'm being redundant. I had a single MX last fall and have been wearing a size 8 Amoena breastform which I hate! Heavy, makes my bra sag, doesn't really match my other side. Ugh. A couple of weeks ago I had a second MX, so I've been looking for a pair of different breast forms to wear until I have reconstruction. Based on comments on this site and/or breastfree.org, I ordered a pair of Silique Comfort Lite forms. I chose one size smaller than their size chart suggested because of a comment that they run large -- I purchased a size 6, though the chart recommended size 7. They arrived today and I think I'm going to love this product as it is so light and seems like it will be very comfortable, but I should have gone with the size 7. (I was a 38C prior to surgery.) So from my perspective they do not run large. My only other comment about this product is that I found the shipping charge to be outrageous. The actual shipping cost was under $8, but the company charges $19 for shipping. Particularly when you're dealing with a population (i.e., women who have had mastectomies and are in need of prostheses) that is somewhat of a captive audience, I think it's inexcusable to profit from the shipping charge. In my case I'll have to pay another $19 (plus the return shipping cost of the first pair) to get my correct size. I thought of buying two sizes at the outset and returning one, but the shipping cost for two pair was even crazier despite the fact that the forms only weigh ounces. The Silique Comfort Lite seems great and the customer service rep is very responsive and quick. I have communicated my objections about the shipping fees to the company. I sure hope they reduce their shipping fees. I'll let you know.
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Hi, Lazydaisy.
My shipping for Silique comfort-Lites was supposed to be Preferred Mail, and it was $11.81. I thought that was pretty high, as I've mailed other things that way, things that weighed much more than the 7 ounces these size 4s weighed, for more like $7. Then they came by FedEx. And I don't think I ever paid that much for heavier clothes from Coldwater Creek, who used FedEx too. So I also wondered about the cost of shipping, but unless you did Express Mail, I can't imagine $19!
About the size, I ordered 4s, which I expected to be smaller than they were. Maybe the smaller sizes run large, but not the larger sizes? I was wishing I had ordered 3s, but I am adjusting to what I see when I look down. I may yet get a second pair in size 3. I am delighted with the product, however, and if I ever find the perfect bra (my biggest struggle), I think I will be quite happy!
Dawn
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Dawn, I think the shipping depends on your zip code since you have to enter it before postage is calculated. I'm in Seattle, so maybe that's why my shipping was more expensive -- but the product (though ordered from Truekare) was shipped directly from the manufacturer in Salt Lake City, which is not very far from us. I chose the cheapest shipping option, which was supposed to be priority mail, but they shipped FedEx Ground, which is cheaper in this instance (because of the extra charge for insurance with USPS) as well as a day slower. And yes, they did charge me $19.
I exchanged a few emails with the customer service rep at Truekare about shipping costs and they have offered to refund one of my shipping charges, which I very much appreciate. Now I wish they'd make the shipping rate more reasonable for everybody.
As for size, I inquired ahead of time and the rep said that some people say the forms run small and some say they run large. It's hard for me to compare, since my Amoena form is an 8 (and too large, I think); I ordered a 6 in the Comfort Lite, and that's too small -- it could work, but just looks a little smaller than I'd like. I feel like the three bears -- I hope the 7 will be just right.
I expect to be delighted with the Comfort Lites, too -- love the extreme light weight!
I should note that although I quibbled about shipping, I found the company's customer service rep, Patricia, to be very quick to respond and very helpful.
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Hi, Lazydaisy!
I'm in Oklahoma, and mine said it was drop-shipped from Las Vegas, as I noted via FedEx. They came in a huge box. I think they could have been shipped in a smaller box and maybe that would have cost less, but at the moment, I'm not going to complain. I got off easy compared to your cost!
It is great to know they were responsive to your needs, and I hope you get just what you want.
As for the size issue, my original silicones were TruLife size 5 for a 36B bra. These size 4s are able to fill that size bra just fine, though they may be very slightly smaller. I really don't want that much projection, so I'm playing with bras at the moment. I tried them with a spaghetti strap sports bra, and it just flattened them, so the answer is somewhere in between. I was wanting a 36A size. If I can ever get my weight back down to where I want to be, I can do a 34B, which is the same size cup. Of course, I've been trying to do that for 3 years with very limited success!
Thanks for all the info, and good luck getting the perfect fit!
Dawn
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bump (This was such a good thread...)
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Here it is a year later, and I hadn't worn forms since last July until a couple of weeks ago, when I tried a pair of size 2 tlc microbead forms. I really do like them. They are just the limited projection I wanted, and weigh less than nothing, almost! I had ordered a second pair, which I got in the mail today. I love that the package with two of them fit through the 1" mail slot in my door! Really! Hilarious, but true!
Dawn
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I had a BMX in 6/10. Just found out I need a LE Sleeve/Guantlet so I am seeing a fitter for the first time in 2 weeks. Mostly going As Is! but my chest sensitivity and bare ribs leave me very disheartened. I am going to check into the Jovi Packs as well. And just something so I can HUG and lay in bed. I also have twin nephews comming and I want to be able to hold them.
I have not read all the posts but the ones that that I am looking for would be hanging in T Shirts, and camis at this point. Maybee a sports bra....for a short period. Sounds like alot of thumbs up for the PALS/ TLC Microbead for my sitchy? I don't forsee getting into anything dressy for a while. And I have alot of tightness still with manual massages daily.
Any updates would be appreciated.
Blessings!
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After having such an allergic reaction to my first day of wearing a prothesis, I went on the search for something non silicone. I found this one by truelife that is foam and slightly weighted. It is not to heavy at all and so far I like it. I want to give it a try in my sports bra before making a finaly yah or neah. I do think I could have gotten a size 12 over the 13. I think it would be great for the BMX people who want something light weight but not as light as the micro beads.
Trulife Naturalwear Tri-Leisure Lightly Weighted Breast Form 611 -
I ordered one of the microbead forms and was disapointed. What I don't like about it is that is is so FIRM when it's in the bra. It's light, but in the bra, it feels like a firm sandbag. I wear a 34D bra.
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Hi starzhere,
I agree with you about the microbead form. It feels soft when I'm holding it in my hand, but firm when it's in the bra, no matter what bra or camisole I try. I also find that it doesn't project like a natural breast, but looks kind of flat. And it's hard to keep the edges from showing in some bras. Although I like the lightness of the forms, I hardly ever use them.
I've been interested in how popular they are among other women--once again, I've realized how different we all are. I'm glad this is a good option for others, but it doesn't work well for me. I much prefer the Silique Comfort Lite form (Silique makes the microbead form sold on TLC and the Comfort Lite is also sold on the TLC site, but not using the Silique name). The Comfort Lite is more expensive than the non-silicone microbead form, but it's the lightest silicone form I've found and it uses microbeads behind a microfiber back, which feels nice against my skin. The front, being soft silicone, looks and feels much more like a natural breast.
I'm still searching for the "perfect" form. I really like the new Amoena Energy form. It minimizes perspiration behind the form for me, though I can't wear it directly against my skin, like I can with the Comfort Lite. There are always tradeoffs.
I miss my real breasts, but still find breast forms a more appealing option than reconstruction (and I'm not ready to go flat).
Barbara
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Hi, I had a single mastectomy (left) in late February, and have been wearing a size 5 Amoena form (both natura and essential) in my pocketed bras. Now that my incision is completely healed, I would like to wear a contact form underneath my yoga tanks. (Sorry, I haven't read everything on this thread, somebody else may have asked about this). What works better, Pals or the Silique comfort lites? My main concern : in the course of a sweaty work out, will the form stay in place, even when I am doing downward dog?
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You have no idea how happy I am to have found this thread today! A breast form is in my near future and all of your posts will be so helpful as I figure out how to deal with this. I had single MX with immediate reconstruction in Oct. '08 and then implant was placed in April '09 after chemo and rads. The first implant developed capsular contracture and was replaced in December '09. Capsular contracture is back.... and I don't want a lat or tram flap (too much surgery/recovery time), so am having the capsule removed Oct. 26 and am feeling much better about how to deal with being one breasted now that I've found this thread. --bonnie
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Starxhere so glad you posted that info. It was next on my list to try. I really do like the Trulife Naturalwear Tri-Leisure Lightly Weighted Breast Form 611 but....I read the tiny print and it says contains LEAD. OMG and you are wearing it right on your chest. I am a little concerned about that. Anybody know of anything else I can try? Once I am healed from my hystorectomy (not until 25) I will be willing to try another silicone one. I am just scared to do anything before surgery. It took 10 days to get rid of my rash. I still think lotion but everybody else says the foob.
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I am seriously reconsidering my purchase of 2 Amoena Essential Lite 2s prosthetics from just last week. I can definitely return; but unfortunately I won't be able to wear forms with a "mature drape" when I dine tom'ow with extended family for Thanksgiving. I'll wear the foam forms; tho they project like JOanie Cunningham from Happy Days.
I really think the amoenas are not lite enuf for someone with osteoporosis. My real breasts never bothered my back and neck and I was 36DD. But I can feel every skeletal bone moving after wearing these for just a few hrs a day. Perhaps I should wait for end of PT and then decide what to buy. Insurance covers one pr every 2 yrs; so I need to find a pr I love.
I did not want to order online so I did not order the silique lite silicone product. the fitter I went to only sells amoena.
One positive; these amoena forms have gel backs that really feel good against my uneven chest wall. Any suggestions? I know it's the eve of US holiday so I'll be very patient waiting for responses. thanks.
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Barbara, is the Silique Comfort Lite form light enough to wear in the Still You Cami?
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