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Hello, I'm a 19 years old and my mother was diagnosed with inflammatory breast cancer last November on my 18th birthday. At that point she was given two and a half years to live. She has gone through chemo therapy but it did not help, it only affected her immune system and did not affect the cancer. Since inflammatory cancer is not a ball of cancer, they cannot operate. Over the last year she has gotten quite a bit worse. In two days my mother is going for brain surgery because the cancer has moved. She now has cancer in her lungs, breast and brain and I'm waiting for some good news after this surgery. This is by far the scariest thing I have ever had to deal with. It is affecting my life in every aspect. My work and social life have become less fulfilling and I feel like I'm always waiting for bad news.
All of the information I have found from breast cancer foundations and other sources do not put me at ease.
I'm looking for someone who has been through something similar to give me some hope and possibly find a suggestion to help me through this. I am not looking for false hope but for someone who has been there.

Thanks

Comments

  • Alethea
    Alethea Member Posts: 2
    edited March 2009

    My sister has inflammatory breast cancer.  She is very upbeat and is handling it better than I would.  I can't possibly imagine what you are going through.  I have no support to give you other than, we are also just getting bad news.  Advice?  you didn't ask for any.  But I am a mom of a 19 yo.  If I were your mom, i would want more than anything to know that YOU were ok.  Don't give up all of your social life.  God bless you. 

  • vivo
    vivo Member Posts: 532
    edited March 2009

    My mom has been diagnosted with stage IV last November and my husband's mom has died from this disease when he was at your age. He is now the one that stands against the hell and helps me. Only he knows. Right now we are the actors and cannot do much. I believe that after the end we will be able to get the answers to our questions for all this hell. Our role right now is to support , give a hugI am feeling left alone and I find myself feelling that noone can help me (not only friends but even my father or my brother) rightnow. However my husband The truth is that all these bad and unbelieving feelings and thoughts are so natural and show a logical person as psycologists say. The feeling that you will allways have bad news is logical because our brain depends on our experiences. However you are very young and the time will help you find your way. I wish you to spend the time that has left with your mom in the better heartfilling way as you are still lucky you have her in your life.

  • vivo
    vivo Member Posts: 532
    edited March 2009

    My mom has been diagnosted with stage IV last November and my husband's mom has died from this disease when he was at your age. He is now the one who helps me. Only he knows. Right now we are the actors and cannot do much. I believe that after the end we will be able to get the answers to our questions for all this hell. Our role right now is to support , give a hug and hope that we are good daughter for our moms. I am feeling left alone like you and I find myself feelling that noone can help me (not only friends but even my father or my brother) rightnow. The truth is that all these bad and unbelieving feelings and thoughts are natural and show a logical person. The feeling that you will allways have bad news is logical because our brain depends on our experiences. However you are very young and the time will help you find your way. I wish you to spend the time that has left with your mom in the better heartfilling way as you are still lucky you have her in your life. I wish you to be strong and stand for your mom after the surgery...

  • HeyLo
    HeyLo Member Posts: 1
    edited March 2009

    I'm sorry you are going through this. It definately has ill effects on the family. My Mom has Metastatic Breast Cancer, terminal, as it has now spread into her liver, and lungs. She is still able to care for herself, make short trips to the grocery store, etc. I have had a hard time too. I am experincing many of the same emotions you mentioned. I pray constantly for strength, and God is always there for me. I try to live each day as it comes. If Mom wants to go out shopping, or church, then we go. If she wants to visit with friends/family, we visit. I let her lead, and we enjoy one another to the max. I keep everything as positive as I can around her, and I shoulder the responsibility of the doctors, nurses, medicines, Hospice, etc., as much as I am able. The emotions you are feeling are very normal, and expected. Maybe you have someone you can talk with, and express yourself too. I've found it to be a great help, just being able to talk about it all with someone who isn't directly involved.

  • asisterofalovedone71
    asisterofalovedone71 Member Posts: 2
    edited March 2009

    I am sorry you are having so much to deal with. Especially at such a young age. It seems her cancer has moved very fast. I think it is hard for family members or the support person to find the support for themselves. I have been the support person for my sister. I don't have any answers cause I have felt at such a loss myself. Others whom are so far removed from the situation do not understand. I have close family members that just shrug their shoulders and move on. Meanwhile, I am upset and wanting my sister to keep up the fight against this disease. She is at a point of quitting the treatment. If there is anyone with any assistance or pointers, please post.

  • Jadai
    Jadai Member Posts: 182
    edited March 2009

    I am 34 and I thought I was too young to deal with this.  I am so sorry for you and can relate.  My mom was also diagnosed in September with metasatic IBC.  It is hard for us because we can't fix it.  For me, I know my mom just enjoys spending time with me and my sister and I am guessing your mom is the same.  It is great that you found us here because our friends just don't get it.  They don't get how we feel like throwing up every time the phone rings, after every test and before every appointment.  They don't get why we can just cry for "no reason".  It is hard and you really need to try and take time to take care of yourself.  There are lots of women living with all of the problems your mom has.  Search the recurrence and metastatic section of this website, you will be surprised.  Please feel free to send me a message if you want to just talk.  This is so hard for all of us.  Take care.

  • thelootlady
    thelootlady Member Posts: 5
    edited March 2009

    Hi there.. it is physically and emotionally exhausting when it feels like you are always living in crisis mode. Losing my DAD to cancer at when I was 40 was hard.. I cannot imagine a young woman dealing with the fears and the issues of their mom dealing with cancer.  Like everyone else says.. you support your mom, but make sure someone else is there to support you. Friends, Teachers, Lover (girl or boy) someone who can listen to you and is not so deeply involved other than being there.    Right now.. our family is facing terminal cancer again except this time it is my sister in law with metatstic cancer and my young neice and nephew both under 11we are trying to support.   There is never a good time to lose a parent but the younger you are the more difiucult it it is.  Keep talking about it, your friends really do want to support you.   all the best

  • ldh54
    ldh54 Member Posts: 5
    edited April 2009

    Sweetie - the most important thing your mom needs is to know that your life is full.  Do make time to spend with your mom, but also make time for yourself and your friends.  Share about your life with your Mom so she will know you are okay.  That's important!  Find a couple of friends you can talk to about your own feelings, cry on their shoulders, scream if you need to.  Your friends will understand and will support you.  Hang in there!

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