**NEW** Starting Chemo March 2009

Hi All,

Returned from the oncologist and the white blood count was good. So I am ready for treatment two this coming Monday.

MOB..Jan- How are you feeling? Hope the infusion went well..Any different side affects than last time.

Donnadio-I think your chemo regimen sounds like 4 TC's. That is once every three weeks for nine weeks. Yes one does loose your hair. It begins on or about 14 days. My head head and each pain a little more sheds.I have cut my hair short in preparation for the big day.

PattiB and MOB- my makeup class said to definitely buy a kit with stencils for eyebrows. Also she stressed to use a powder not a pencil. She said if one goes to a department store or a Sephora at an off time they would definitely show you how to do it .

ChrisC--Too bad you are not feeling well.

Alyad..I like this board and really see no reason to change.I am currently not on FB and really am not interested in joining it. An interesting aside is that the 24 year old founder of Facebook went to the same schools as my son. Zuckerberg lives in a nearby town . Also I do at times check other things on this board ..

Buddy- No chickens here.The chemo also played havoc on my tastebuds. I ate chicken chow mein for days.

Ginagina- Loved the up to date chicken joke..You are doing an awesome job on this board. I see no reason to change at all. I am sorry the great picture of your family is on the other board..

Oh yes we can put nail polish on but not go to a nail salon...

Hugs to All..

Francine

I hit 51 post today.  Does that mean I am not restricted to the 5 limit anymore.  I guess I am a blabber mouth and didnt realize it.

I LOVE THE CHICKEN PIC.  I wish you could have seen us all out there this morning.  Running around in the mud. I was still in my P.J.s.  The hawks and coyotes and racoons and  are just waitng for a chance to get at them. 

Still now problem from my shot.

I do have a large hard blood vessle under my left TE. about 2 inches long. Surgeon said to take low dose 81 mg children asprin .and sleep with heating pad.  Kinda scarry 

I still cant figure out how to post pics.  I guees I have to wait for one of my kids to help me.

I never intended a facebook group to be an alternative  to here- I think we should keep all the discussion here and just have the FB as a way to share pics if we went- totally optional. You can share FB photo albums with people even if they're not on FB- so if you post some pics on FB- you can post the link to the  pics here and people can go look at them if they want. I tried to post a link to a pic on FB here using the add pic tool and it didn't take it- I am going to set up an acct at Picasa to try to post pics here when I have some to post. I'm guessing it works with some websites- and not with others. Those of you who have managed to post piccs- what site are your pics on?

Hi Alyad.. Gina and others..

Here are the directions from this site about posting photos.

How do I add an image to my message?To add an image to a Topic or a Post, click the image icon in the Post/Topic toolbar. A popup will appear where you can enter the image's URL (see note below), description, and dimensions. Click "Insert" to add the image.

Note: The image you wish to insert must be saved online somewhere, such as http://www.photobucket.com/ or http://www.flickr.com/. Each of these sites explains how to share your images. You should select the HTML code option for the image you want, and paste it into the "Image URL" box.

Hugs...

Francine

Hey all this is fun talking about something beside wigs, constipation etc. Only kidding ..this is a great board with many terrific women who are upbeat..and glad to share their concerns and info in helping all of us get thru this chemo...

Hi, I have been reading and posting on other forums before this, but finally started chemo on March 12th. I am getting TCH x 6 cycles. First one went fine, no nausea. Got neulasta and fluids the next day and no bone aches either. I was pleasantly surprised. A cousin who went through chemo for ovarian CA told me to take Glutamine powder mixed in a drink for three days following chemo. She said it made a huge difference with the bone pain and the neuropathy sometimes associated with the taxols. I did catch a cold from one of my sons, and spiked a fever. Had to go back in for antibiotics and more fluids Other than the headache from the URI, I just felt run down. I know they say subsequent treatments usually get worse, but I am just hoping I am tolerating chemo OK! I also used those "cold caps" to prevent hair loss so we will see...

I hope the rest of you are doing well. I will pray for each and every one of you tonight!

how do you post your diagnosis info?

This is the first FB group I've started- it does take a bit to find where they've hidden everything. you'd think requests to join the group would be on the group page - but no. There are two ways to join- you can friend request me and then I can send you an invite- or you request to join the group and then one of the admins (I made the two people who have requested to join already admins too) accepts it.

If anyones knows any more about this - if I need to do something else- let me know. I'm not sure how many admins a group is allowed to have. I think it'd be good to have as many as possible so someone requesting to join can get accepted sooner.

for all of you who want nothing to do with this- bear with us while we get it set up- then discussion of it will fade.

You can have as many admins as you want....I created a group for my HS class and a few others....The nice thing about the group is that you can message all members.
As for finding the group, go to the search field and type the name of the group.  It should come up with "all results" then just click group.

I have first post chemo oncologist appointment tomorrow for bloodwork and followup.....bringing my 16 month old and 2 1/2 year old with me.  Think I will be in and out?   After they meet my kids I hope so.

My onc's office has a machine and it took not time at all when they did my pre chemo bloodwork.  I told them in advance that my peeps would be coming to my follow ups....too much of a hassle to drop them off...blah blah blah....They should be good. 

I hope the counts are OK>....I didn't get the nuelasta shot.  Feeling good though so hopefully the next 3 treatments will be kind to me, too.

jdeking..i work nights so this is the first time I have worn a scarf. I'm not use to it yet. At home I wear a winter stocking cap because my head gets cold.Brrrr!!



michele54....where did you order your buffs from? I have such a hard time tying a scarf, I'm all thumbs. Fashion and me are not so good of friends. i need lots of help at times.



ginagina...thanks for the pep talk. day two of my lost hair is better but my head still hurts. how do i get that to stop?



Laurie

The sleep fairy missed my house again tonight.  I am getting so frustrated with being awake at night.  I have tried three different sleep aids and nothing will keep me asleep.  I try so hard to keep quiet when I wake up so I don't wake anyone else.  A sleepy (and cranky) 7 yr old is horrible when it comes to getting up for school!!  I was going to try another pill but then I remembered I have a dentist appt this morning and don't want to end up sleeping thru it.  My mouth is getting worse.  The cheeks feel like I can scrape the insides out and the sores have begun.  I am using "magic mouthwash" that was prescribed and it does seem to help. It is not very pleasant tasting however. 

I will try again today to post pics of my new 'doo.  I will also see about joining the FB group.  I am new to FB and am not on it very often. I do like this board but who says we can't have more than one place to meet?

I ordered some hats and scarves from tlccatalog but have not received them yet.  I am hoping they will come soon as I don't think I have too much longer until the hair starts to come out.  Today is day ten so I know I do have a little more time.  I am not really a hat person and I'm not sure I'll be able to tie the scarves but we will see. 

Here's to a great day to everyone.  I think I'll clean out my youngest daughter's room/closet today.  Maybe if I work extra hard today, I'll sleep better tonight. 

See what happens when you are up at 4am?  You start rambling on and on. 

Thanks for letting me go on and on....

Cyndi