HELP Friend with TX advice.

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tespi68512
tespi68512 Member Posts: 4

My friend has HER2/neu, which was not diag. until after all of her treatment when the cancer appeared on the surface of breasts.  She has been cut to hell (double mastectomy, and hysterectomy) due to problems related to the surgeries, reconstruction, and preventative measures, which I was opposed to. Then a couple years after all of the surgeries a rash appeared on the breast tissue they saved, but they overlooked the possibility of being cancer.  Finally, some doctor told her that the cancer was HER2/neu, and was never treated for properly in the first place.  She has been on Herceptin for about 2 years, but now it is back. 

There are so many different doctors with so many different opinions "just like assholes everyone has one" it is really hard to choose what the best treatment is.   I need to help her find people who have been through this, and who can give advice on what really works, not someone we end up hiring and who's influenced by the pharm. companies.  I truly believe hearing from those who their treatment has worked (no matter where in the country) will help her make the right choice.

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  • orange1
    orange1 Member Posts: 930
    edited March 2009

    tespi -

    You may want to consider posting this on the metastatic forum.  There are many HER2+ women with a lot of experience with treatments for metastic HER2+ cancer.

    Good luck

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