the FASHION thread
Comments
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LMAO. I know they make those circle fabric pouches that go into your bag and keep everything organizaed. But that takes away the fun of standing in a dangerous parking lot looking like a lunatic as you thumb through your purse looking for keys.
My biggest problem is that I need a business card holder, but they are so thin, that for the amount of cards I have in my purse I would need 2 or 3 of them. I keep the cards in this one pouch, but they always manage to spill out unless I jam my phone into the same slot.
And, can I just tell you, I've had the same wallet for 8 years??? hahahahhaa. I cannot find one that is similiar and I don't want a long wallet like so many women carry.
A year or three ago I wanted to patent an idea of a light that goes into your purse and lights up when you push on it (like a key chain) to help you find items in your purse. I thought it was a stellar idea, but there were a million patents for it already. I just don't understand why you can't find them in any stores.
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HaHaHa. You need to do what my grandmother did with her keys. Put them on a 12" length of covered elastic and safety pin them to the inside top of your purse. You can always find them and they boing out just as far as you need them to when you have to put them in the keyhole.
Gramma also always had Reed's root beer or cinnamon drops in her bag. Grammas are so smart.
So, okay, here's my bag (I hang a watch on it 'cause I hate wearing watches.) Then, contents of bag, then contents of the little bag. I don't do those circular purse inserts.
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Beth, you look great in that dress, I must say. You really carry it off. What a fun even that must have been.
Tina, re the Barbie outfit. Yes, I remember that Carly picture, and it's funny you should mention her, because I still get told occasionally that I look like Carly Simon, too. I really looked like her in my late twenties when she and I both had a shaggy haircut, which is when it started.
Listen, fashionistas, if you have a chance to visit my blog, you might get a few chuckles. I have a couple of posts on it about Barbie's 50th, and be sure to read "Will Barbie Have Hot Flashes Now?" first. You would not believe the old Barbies I found online (there are links to everything on the posts), but the one that will really frost you is the Pink Hope Barbie (I kid you not) which was put out for-----guess what?? To say I felt ambivalent about it when I saw it is an understatement. It's a very glamorous doll, no question, but what it could possibly achieve for BC awareness, I don't really know. I'm not at home on my own computer, otherwise I'd post a photo. Anyway, the link to my blog is http://www.accidentalamazon.com/.
BTW, I'm in NH to attend a rehab conference this weekend about helping BC patients. My wonderful boss at the Visiting Nurse agency I work for is very interested in my idea to train a few multi-disciplinary teams to help BC patients when they first get home from surgery, to help treat lymphedema, etc., etc. So, it's very cool. I'll let you all know if I learn anything new.
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Kathi- that is a really great idea; I hop more people, groups and agencies jump on that band wagon--after surgery, stage 4 issues, lymphodema issues etc. It is so important to have teams with different expertises represented.
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Beth, what a great experience. I bet you had a great time! Where does this question go? Make up or fashion? I have not really had my hair cut of styled since being bald. Does anyone have a good style for a very very round face? After chemo my hair was curly but again poker straight, fine and somewhat thin. Not horribly thin nor straight but yet with round face still quite a challenge. Please help my fashionistas! Have to add that it come in very soft and after 4 years has remained soft with very little texture. Did anyone else find this to be true?
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Barbe-- I read in another thread that you pick up every penny cause it means someone is watching over you??? I was wondering who told you that, and if you really think it to be true... I was told that a few years back, and have an incredible story (very long) that goes along with it, and I was wondering where the 'superstition' or whatever you would call it originated from.
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Beth, pennies on the ground are "Pennies from Heaven!" didn't you know! I tend to find them when I'm thinking about someone who has passed. Or do I think of someone who has passed when I find them.....? Hmmmm, now you've made me think.
I truly believe it to be true. I am very spiritual and know that God touches us in many ways. There are wonderful miracles around us all the time that people ignore because they don't see them, or can't appreciate. I find wonder in the most simple things. Pennies on the ground get me pretty excited. Have you noticed you don't find quarters, nickels or dimes?
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Without going into the full back story... when my stepdad died, my little brother was really distraught. I mean, we were all a mess, but the little one really took it the hardest. One day after the funeral, he was sitting on my moms terrace, looking at the ocean that she and Dave had cherished every day together, and he was looking over all the trinkets that Dave would bring home from his scuba dive that week, and he was looking at an old penny. I overheard my sister say to him, every time you see a penny on the ground on heads, it's Dave looking at you...
So I head back to Baltimore a week later, and I went to Rite Aid to buy shampoo and conditioner. I paid on my credit card, b/c like most college kids I was broker than broke. So there were no dollars or coins changing hands. I got to the apt, and opened the bag, and put the shampoo and conditioner in the shower.
I crumpled the bag with the receipt in it, and threw it away. I got in the shower, and I started to cry. I was so sad that this wonderful man that I had treasured for ten years was taken from the Earth with no warning, a few weeks shy of his 43rd birthday. I cried thinking about my mom losing her soul mate and best friend. I let the water run down over my head and I wept, and wept, and suddenly, I looked down, and there, in between my feet in the middle of the shower was a penny on heads.
I couldn't believe it. I got out of the shower, conditioner still in hair, and told my roomate. Of course, we kept thinking that the penny somehow must have gotten in the bag at Rite Aid, but I kept saying, how could that be??? I paid with a credit card???
The mystery was never solved, and to this day when I see a penny on heads I always think somehow, Dave is still watching over me. He would've turned 50 this past August, and I still miss the incredible, loving, joyful man that he was, but everytime I see a penny on heads, I am always reminded.
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WOW, very powerful Beth. Something so special...
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Does make you wonder, doesn't it?
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oh Beth, I've got chills. What a tremendous story.
Gracejon - I suggest perhaps getting some layers in your hair to make it fuller. ?
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Girls, my net netbook has arrived! I bought the Acer 10.1" in seashell white and it's lovely. I decided I preferred that to the dark red.
So, now I don't know what to do. I guess I have to insert the battery and plug everything in and charge it for a while. Then, I have to figure out how to make it go online. My wireless is invisible so I have to call my guru to have him tell me what to do but that won't be until tomorrow.
I'm so excited!
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White...so classy! Now aren't yah glad yah waited and didn't get the blue?
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You can set it up yourself Tina-- this is easy. First, put the battery in it, and let it charge for a few hours. Then press the power button, and follow the prompts on the screen to set up your router/motem/ etc....
The computer should walk you through everything. It basically does everything for you. You just click the button for it to search for the wireless router, and it will find it....
you can make a user password as well.
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Beth, what a great story. Made me tear up. I really believe that especially after someone we love dies, we do hear from them in some pretty miraculous ways. I have had similar things happen to me.
Ladies, this is an indirect fashion item. I just wanted to share that I am back from my seminar this weekend on rehab for BC patients and it was a really wonderful experience. We covered other kinds of cancer, but the main focus was BC. Great teacher, great group of OTs and PTs. We learned a lot of good stuff about helping reduce scar tissue, decreasing lymphedema and the risk for developing it even in those of us who haven't had it, decreasing limited motion and cancer fatigue. Itwas great. I got worked on, along with another PT who was also a survivor, and I found a few women I can now feel safe about going to myself to get my scar tissue worked on. It was a very, very healing experience.
I went also so that I can put together a team at work (Visiting Nurses) to help women when they come home for surgery. So, we could have a nurse, and a PT and/or OT, even nurses aides to help women shower or get dressed, social worker to help with community resources, the whole range of issues. My boss is totally on board with this idea. It will take some time to work it out, train my colleagues and get the word out, but really worth it, I think. There are so many women who go home from even day surgery with inadequate discharge information. We all know that. I was one of them.
Tina, have fun with your new toy!
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Kathi -
I love the idea of the team. What a fantastic idea. It is so scary when a woman comes home from surgery whether it be a lumpectomy, uni or bilateral mast. To have someone there to help with changing of bandages, rewrapping the Ace bandage; help with drains, hygiene - I could go on. Not to mention the fact, that they discharge us in 23 hours, when we can barely move our arm, let alone do these other things! Very tough for women who live alone and have no one to take care of them.
BRAVO!
TinaTech - how's the laptop coming along?
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Thanks, Raye, that's exactly what I mean, and I'm very glad to hear what you (& all of you) think and any suggestions you have. I think when I get further along with it, I'm going to start a thread here to gather info, concerns, suggestions, etc. to help put it together.
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KAK I think it's a brilliant idea.. if you can get it going where you are, I can see it growing huge, like where there was a central web site, and these teams available all over the country....You're really onto something here! I wish you all the best, and I can't wait to hear your updates.
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Couldn't there be volunteers? We know what needs to be done and we could offer our assistance?.....
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Yes. Totally. That's a great idea, Barbe. For practical purposes, there would need to be clinical/medical teams like us at the visiting nurses to do things like change dressings & help with pain, exercises or scar tissue. But you've given me a whole nother angle, which is to organize survivors to make home visits, too, as volunteers. Is that what you meant?
I'd like to even put together a booklet or a book or a series of pamphlets eventually. I'd like to get grant money so that a woman would be able to get this info for free as soon as she's diagnosed. I want to see my colleagues -- nurses, OT's, nutritionists, home health aides, social workers, and even speech therapists (who might be able to help with chemo brain) -- get up to speed in what BC patients need before and after they have surgery and rads and chemo.
One of the nurses on here just sent me to a great thread, (Lack of Pre and Post op Education for Women Facing Mastectomy) that really goes into the kind of info I want to gather. If any of you have any other suggestions for good threads to visit, let me know. I found a chemo thread that sounds good. Any "checklist" suggestions would help. Beth, I will certainly be referring to Breast reconstruction.org to reread your checklists there.
So, whatever suggestions of this type or info or ideas or checklists or books or education stuff you got during treatment, any of that you can pass on to me would be great. It's going to be a big project, maybe more than one project really, but one that needs doing. And what better place to start than here on the forum?
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Oh, Kathi - you're my hero(ine)!
What a stupendous idea you are formulating. After my bilateral mastectomies (and the traumas of immediate recon. with DIEP - owie!) I received NO booklets, guidelines, PT referrals, etc. I would have thought you and your team were angels if I had access to those kind of services. Keep us updated, please!
Lisa
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Checklist for what to bring to the hospital. (there's a thread somewhere)
How to manage pain.
What to expect on your recovery (itchy! did I mention itchy?)
LYMPHEDEMA! risks
How/what to tell family and friends and work.
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Kathi, you have some dynamite ideas and the input from the rest of you is so valuable! I'm sure this will take off; I hope it does spread beyond your immediate area. It's so sadly true that we get precious little information going into this. I was fortunate in that my hospital has a whole breast center where there are lots of tuned in people but even then so many details were left out. Maybe they think they are overwhelming women if they tell them too much or give too many options but it's maddening for at least SOME of us to find out later that things could have been done differently and some of the issues that may develop.
Kathi, speaking of fashion, how about a list of resources for wigs, prostheses, etc. Sometimes these things are hard to find. You also might form a swap service for no longer needed items.
The computer has not yet been turned on. I plugged in the battery yesterday afternoon and the little green light came on (power indicator) and I left it plugged in until this morning, when it was still green. I was reading and the very inadequate booklet said that the light would be amber while charging. Now I don't know if the battery came fully charged or if the battery charger is not working. The booklet says it shows green when fully charge when in AC mode. I guess that means all is well. I will find out soon............
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You would start by informally getting this team together, and taking the steps to figure out the process of what you would be doing in the patients home. Then you'd think of a clever name, get a web site, and fill out the 501c3 not for profit paperwork.
You can do all of this fairly easily at WWW.GODADDY.com you can check which domains are available, and pay for web hosting for 1-2 years, and they can walk you through setting up a basic web site. After you get your 501c3 status, then you can begin applying for grants.
While I no longer work for breastreconstruction.org, I did write the web site, and there is great information there. They would allow you to link their links onto your website if you wanted, but I would rewrite it in your own language and copyright it on your own.
You will need legal and medical disclaimers, so it will help if you know a lawyer...
You can do a fundraiser before becoming a noted non profit, lets say a bake sale, or something like that to raise the startup capitol you may need to get the website going, and all the legal forms-- say $5,000.
Basically you would be revamping a similiar program called Reach to Recovery from the ACS, but you'd be taking it to a whole new level.
R2R, only provides a survivor to meet you after you've had surgery.... sometimes they don't meet you until you are discharged from the hospital, and we all know that that doesn't help. But, they do have great informational packages that they give to the newly dx women, and I think if you called 1800 acs 2345, and stopped by your local ACS chapter just to see the bag, and their information, or you could go undercover and pretend you're newly dx and get a bag from a r2r volunteer and see what they put out there. The r2r office I volunteer at is the top in the country, so we do all kinds of support called Early Supports... where we get to the person before surgery, but it is rare....
I think the fact that you would have a specialized team brings you to a whole new level. The question is this, would you only serve the underserved, as in people who have no insurance, or would this be open to anyone on a first come first serve basis, and how do you see it growing-- these are all things you would need concise answers for whern applying for grants etc....
but you are really onto something here, and I think you start one step at a time... with each visit to a patient you guys can refine your protocol/program.....
You may also want to do some market research, or an internet survey to see what the need is and where the need is for newly dx patients. It will truly help if you can get a big name hospital behind your project, and they can be your test facility... if it works with their patients, that will give you a lot of clout in the bigger cancer world
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Beth, you're a wonderful human being, you know that?? Thanks for all the practical advice.
Here's the thing with the homecare team. Because I'm doing this through my job, that means I'm already hooked up with a non-profit organization, which is very cool. I may still start a website to address another angle on things, and I'll definitely check out R2R. See, even that, no one ever told me about R2R beforehand. And I was seeing a doc who worked through a breast health center, and I am sorry to say that I've found the center to be completely unhelpful. In fact, I won't see any of my doctors at the center premises anymore. They have been rude to me when I've shown up for appointments, they don't take messages for the docs, and there's this weird lax atmosphere there. Don't know what their problem is. But that's another issue.
Because we're talking clinical services here, a physician has to write an order for us which then enables us to bill insurance. In RI, we would be very unluckly to see a woman post-op who didn't have some kind of insurance and there are programs for people who can't afford insurance to get some that is state provided. So, we would be going out to anyone who could get a doctor to write a referral for it. Doesn't have to be the BS, though, which is good if the BS is an idiot (which, sadly, some are about post-op care). It can be their PCP, and it often is, even with other surgeries we see people for, like orthopedic or cardiac. So, that's a good thing, because a lot of times the PCP is way more likely to give the poor patient what they want and need.
I have to go back to my boss and have a chat. She's been good at getting grant money for stuff in the past, and so have I. I got a research grant in grad school for a clinicial study. So, between the two of us, we'll have to work on this.
The other thing is that we are about to start being trained on our new laptops, which we are finally getting to do our documentation and save a few trees. So, we're not going to be able to jump on this immediately, but in the meantime, I can gather info.
What are you doing for work these days then, Beth? When did you leave br.org?
Kathi
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You could call the team "Thanks for the Mammaries, the Breast is Yet to Come!
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Groan.
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OOOOH, Barbe!! LOL for real!!
I'm on another committee at work to address urinary incontinence, which one of my nurse colleagues dubbed the Pee-Bodies.
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Okay-- so going on referrals from docs, is basically how R2R started... they work with referrals from hospitals. The program started in the 70's, and I've been a volunteer for about 3 yrs, and I know that it needs overhauling to get with the times....
however, if you really wanted to dream big... if you had a web site, do you know that there are limited exercise videos for post mastectomy, or reconstruction or even lumpectomy and snb? Literally it's an untapped market that could make a fortune, even if it was just to pay salaries and keep a non profit going... if your team made a video people could purchase or download, you'd be able to reach people in so many countries... I know that's thinking ahead.... but it's still something to think about.
Love the PEE BODIES....I went to college at Peabody Conservatory... just makes me laugh.
KAK I am always available to talk more in detail if you ever need.... just shoot me a PM.
As far as the job.... have an interview this Friday and I'm very excited....and back to fashion....
wearing black pants, and a great purple sweater that is attached to a white dress shirt....
wish me luck
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Update of the order from North Style:
Two items finally arrived a couple of days ago: the pigment dyed T (very satisfactory) and the embroidered empire tunic in aqua.
The aqua color is very pretty and good on me. I ordered a small and it's a little big so I will machine wash and dry, then iron and see if I still need to alter a bit. I will definitely shorten the top, though, as it is cut very straight and starts to bunch a bit over the bum. I will make it hit just the top of my hips. That's a good length on me.
It's quality is okay. I was shocked to see that the hems on both the sleeves and the body were simply serged, though. No hem, just serged. I was not impressed.
The red gingham dress was backordered and is just now being shipped. Will let you know about that later.
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