Are breast prostheses necessary and for who?

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  • tos
    tos Member Posts: 376
    edited February 2009

    Lisa-e,

     I have been thinking about consulting a plastic surgeon.  Would have to find out if my insurance would cover this surgery, thank you for the suggestion though.  What I worry about is not having enough skin left but maybe there are other alternatives for me.

    I'm happy to see you like your forms and that they are comfortable.  It is something to get used to but it is good we have these alternatives too. 

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited February 2009

    gainok,

    You absolutely should be able to have reconstruction even though you didn't have skin sparing mastectomies. It may be heard to do implants, though, since the skin has to be stretched and it might become too thin. However, plastic surgeons sometimes use alloderm--perhaps that would even make implants a possibility. But definitely, one of the various flap surgeries should be an option for you. If you have enough belly flat, there's DIEP or TRAM. If you have enough fat in your buttocks, there's GAP, and a newer surgery seems to be available more often, using thigh tissue, called TUG. Even if you're very thin, lat flap surgery is a possibility. 

    Since you're unhappy without recon, definitely consult a plastic surgeon. You may be pleasantly surprised at the options available.

    Barbara

  • tos
    tos Member Posts: 376
    edited February 2009

    Thank you so much for the information, I feel so much better already!  I appreciate your telling me about the different options, I have a bit of fat from about anywhere they can have.  I've been going thru all of these threads and find this all very interesting as I guess I had thought I was just stuck with what I had in my drawer.  It's great to see even if you don't have recon there are options for trying other things to be more comfortable.  Thank you ladies!!

    Another problem I have with the foobs I always seemed to be adjusting, shifting them around, ducking into a restroom when I know they are off.  I notice other women saying they are going thru similar experiences.  Maybe it is the bra fit or the foobs but it doesn't help enourage me to wear them that's for sure. 

  • KatherineA
    KatherineA Member Posts: 54
    edited February 2009

    I didn't have my reconstruction until 15 months after my bilateral. My surgeon told me it was better to wait until after I had radiation because to have recon immediately and then radiate it would not be good. I had the TUG (thigh upper grascilis). I talked to a couple of women that waited over 3 to 5 years then had recon and it worked just fine.

    I do understand the women that are not wanting to have more surgeries. I am glad I took the time between mine. I had a few months with no chemo, no radiation and felt normal for awhile so that I could gear myself up for the recon.

  • Sher
    Sher Member Posts: 540
    edited February 2009

    galnok, that's me............always the constant adjusting.  I had bilateral masts in July and unfortunately was left with a lot of excess tissue that shows through as odd bumps here and there, even when wearing rather large t-shirt tops, so I usually wear forms just when I go out.  Because of the excess tissue, strangely I feel as though I still kind of have boobs and am going without a bra.  Makes me feel undressed.  

  • Nana7
    Nana7 Member Posts: 71
    edited February 2009

    I was looking for why we should wear poofies and found this discussion. I just went back to work last Monday 2 weeks after DM. I really struggled that first morning about wearing something so that I wouldn't make everyone at work uncomfortable. I work in a small office with 5 others. Then I finally made the decision that I was going through enough without putting myself through that...worrying about whether they are staying in place, certainly not going to wear a bra 2 weeks out...etc.

    So I went flat chested. Everyone was very caring and considerate....My boss (female) in an open discussion of how I was doing...told me she was glad that I was comfortable with making that choice.

    I have TE surgery on Feb. 17.....I am 59 and if recon was not available to me I would be fairly OK to stay like this....but since it is available, I am going to take advantage of it.

    Everyone has to make their decision as an individual ..........but it is truly good to hear from others as we make our way on this journey.

    Thanks to you all for sharing...........good luck to each of you.

  • KatherineA
    KatherineA Member Posts: 54
    edited February 2009

    After my Bilateral Mast I wore the poofies once. They were weird I kept having to pull them down. I felt like they were coming up to my chin. I found I felt very comfortable not wear prostheses with people I knew well and those I didn't know at all. It was the acquaintances that were hard. Like the people in the small local market. They knew something was different and that is when I felt self conscious.

    When I wore vests or a loose jacket then I was okay. Now that I had my reconstruction I am giving up bras and just wearing camisoles with a shelf bra most of the time. I never could have done that before! I like the freedom and after almost a year I'm getting use to the smaller breasts. I do wear a bra when I want a smoother more fitted look. It nice to have options.

  • msphil
    msphil Member Posts: 1,536
    edited February 2009

    hi, sweetie, I had reconstruction on L eft and my body rejected the expander it harden and it was taken out more surgery, I started to wear prothesis, and I am very comfortable with it andd my clothes look better to me than one side flat and other not, PLUS I was in the process of making wedding plans so I wanted to look even, but like someone here said it,s a personal chioce. God Bless.msphil

  • trying2deal
    trying2deal Member Posts: 3
    edited February 2009

    I had Bilateral Mast. on 01/29/09, had 6 rounds of chemo prior to surgery. still healing. My Doctors recommended waiting abit prior to reconstruction. I was so sad and devastated to lose my breasts I am still mourning them, I thought for sure I would have reconstruction, now I am not sure. I hate that everyone told me that I didn't need my breasts my health was more important,and now they say you can have reconstruction. If I don't need them , why have reconstruction? I think I will get the prosthesis for now and wear them on the days I feel insecure and continue to debate reconstruction. 

  • KatherineA
    KatherineA Member Posts: 54
    edited February 2009

    I found some of the people that were most adamant about me  not doing the reconstruction were family that was worried about me having more surgery. This is such a personal choice. When I didn't have breasts for 15 months it was okay, but I didn't want to spend the next few decades without them.

    The nice thing about recon, especially if you are going to use your own tissue is that you can do it just about any time. I know of women that waited 3 to 5 years.

    This is a long hard process and everyone of us needs to do it at our own pace.

  • unique
    unique Member Posts: 554
    edited February 2009

    I'm very conflicted. I had a left side mastectomy and might have done the implants, altho I didn't like the idea of being expanded while trying to heal. But my PS said I wouldn't have enough skin for the implants. The TRAM seemed bizarre and WAY too much surgery for me, altho for many it seems to really work well.

    A girlfriend gave me her little prosthesis and altho it's a size too small I just put some fiberfill behind it and this is great, I haven't even gone for a fitting because this arrangement is not firm at all, and the healthy boob is floppy. So I have a matched set. The foobie goes into one of those flesh-colored pockets they give you in the hospital for the fiberfill, then I just pin it into a bra. I did sew pockets into a couple bras, but then got lazy :@*

    At night I am lopsided. I'm not keen on this, but it's the only comfortable thing.

    I might go flat though if my other boob goes bust. Ha! Ha!

  • unique
    unique Member Posts: 554
    edited February 2009

    P.S. - Later will ask about TUG but I know I'm not comfortable with anything that needs a blood supply tunneling thru my body or if I'm losing muscle, like with the TRAM. Actually I kind of like having the silicone on the OUTSIDE of my body. My wish is to have some kind of thing where they could take my big old floppy boob and make two good small ones out of it. I think they're not there yet.

  • Joanna1
    Joanna1 Member Posts: 11
    edited February 2009

    I am 65.....had a left mastectomy in Feb. 06.  I wear my protheses daily. I have 2  what you would call a regular type- one lighter weight than the other + one swim form.  I feel "unbalanced" when not wearing one. I have never used one with a nightgown. I think if I had both breasts removed- I would not wear a protheses. I have a friend who had a double. she wears vests- does the layered look and is quite satisfied with the resulting look. I think you should do what makes you feel comfortable.

  • mollyann
    mollyann Member Posts: 472
    edited February 2009

    Yes, vests are great! Also, I have a bunch of colored safari shirts with military-style pockets that are perfect for putting a little something in (or not). That way there is no prosthesis under my clothes annoying me.

  • mollyann
    mollyann Member Posts: 472
    edited February 2009

    What about posture?

    My posture has gotten terrible since my double mast.

  • Sher
    Sher Member Posts: 540
    edited February 2009

    Molly4, I actually think my posture is better after bilateral masts since I don't have to hold up those heavy boobs! 

    More and more I'm going without any forms and it's so very comfortable.  I love the freedom of no bras......always hated them anyway.

  • KatherineA
    KatherineA Member Posts: 54
    edited March 2009

    Molly,

    If you aren't already, you should be doing exercises and stretches to help with your posture. I agree with Sher not having to wear a bra is great! Camis with the shelf bra is what I wear unless I have something on that is form fitting.

    I just returned from the Young Survivors Conference in Dallas TX there were women of all ages and stages of treatment and recovery some had recon, some wore prostheses and some didn't.

  • crusader1
    crusader1 Member Posts: 1,222
    edited March 2009

    I recently had a bilateral mastectomy with reconstruction. Due to complications I had to have the expander removed. Now I am unhappy as my chest is all hard ..I guess from my ribs ..bone structure etc. I feel uncomfortable as I touch it. I think if I was heavier it would be soft. After years of having a breast I am not happy. I am considering having reconstruction once again in a while.

    Do any of you women have this uncomfortable feeling touching a hard chest.

    Francine

  • angeljoy
    angeljoy Member Posts: 128
    edited March 2009

    Francine, I had a bilateral and later had to have one of my implants removed due to complications.  I've experienced a discomfort on that side.  It was tender and overly sensitive. I think some of it was an emotional discomfort for me as well. But both have diminished over the course of a few months. It's still a weird feeling when I roll over onto that side in bed.  I still feel the absence of a breast on that side I guess. And the lack of "padding" feels a bit weird. I'm pretty sure I've decided against further reconstruction, at least until they come up with better options for me, but lots of women are happier choosing recon.

    I wish you luck with both your recovery and your decisions about recon.

    Angela

  • 3boys4me
    3boys4me Member Posts: 319
    edited March 2009

    I had a unilateral mastectomy and felt it necessary to wear a form.  Had I had a bi-lateral, I think I would have felt much more comfortable being flat. 

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