Starting Chemo February 2009?

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  • apple
    apple Member Posts: 7,799
    edited March 2009

    wired ass backwards?

    that make me laugh Jancie.

  • buddy1
    buddy1 Member Posts: 750
    edited March 2009

    Hello to everyone.  I have been enjoying your posts.  Will you please share with me the model or type of Braun shaver that you all are referring too.  I cant find the post.  I thought I remembered someone saying be careful you get the right one.  Thanks 

  • Gramof3
    Gramof3 Member Posts: 301
    edited March 2009

    I would appreciate the Braun information, too.  Thanks.

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Talk about chemo fog brain - I posted earlier that I was prescribed Tramadol to sleep at night - nope those were DH's pain meds from when he had back surgery and they ended up in "my basket of drugs"

    Actually the mid level physist (don't care if I spelled that right or not, I am on drugs right now) gave me Tramazone to sleep and it works!  I am going to make sure that drug stays high on my list of priorities to ask for!

    Apple - wired ass backwards I think is a term I picked up when I lived in Dallas for 20 years - we had lots of odd terms down south!  Laughing  Glad I got a giggle or *snort* out of you!

  • dmoore2009
    dmoore2009 Member Posts: 8
    edited March 2009

    Well my hair started falling out on Tuesday and I work in a Nursing Home in the kitchen so Friday night my husband took the clippers out and cut it all off for me.  I cried like a baby while he was cutting but was ok when it was all over.  It takes some adjusting not having hair.  I have a wig but today I wore a hat they gave me at the American Cancer Society.  I just don't know if I can handle the wig for 8 hours at a time so I went and bought a few scarves.  I go to A Look Good Feel Better Clas on Monday so hopefully they can show me how to tie them.  Then I go for my second round of A/C chemo on Thursday.  Not looking forward to that, last time it took me out of work for over a week.  Hope everyone is doing well.  Talk to you all later going to watch a movie and relax.  I don't have to work tomorrow so I am going to enjoy the weather.  It is suppose to be in the 70's here in Tennessee tomorrow.

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    Crap! Trying to keep up here! As usual I have a gazillion things to say. But now I'm late for my Lunesta. (Glad your new one is working, Jancie!) However, had to post my crappy landmark too. (Sorry.) Midway between TX #3 and #4 of TCx6, my eyebrows and lashes are going. Sigh.

    --Don't panic TC gals. It might not go this way for you. Remember I'm on dose dense so things are compacted quite a bit for me.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Oh, I am losing my eyelashes and eyebrows too. I am a bit in denial that I will lose them completely, but I keep getting them stuck in my eye, so they must be falling out!! My eye brows have started to stick straight out!

    On the upswing now from #3, starting to dread #4 in two weeks. But psycologically I know I will feel better after #4, 'cos then there are only 2 left.  Even went out shopping yesterday and got a couple of loose button up shirts to wear when I am doing Rads - not sure how much discomfort there will be.

    Jancie - you cracked me up too! love the "my onc thought I should try these now" line!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    so much for gliding thru chemo smoothly ...

    1. i have a nasty dry cough that feels like it's turning into a sinus infection. temp = 99.2.

    2. i cracked part of a molar or a filling fri night. i know i can't go 9+ weeks without having it fixed, at least temporarily.

    Nastya$$ Onc - who has the warmth & bedside manner of a rutabaga - was on call this weekend. he took forever to call back, said it sounded viral and no, i didn't need antibiotics since i'm on neulesta and my counts were good last week. not even for the dental work. he also said i could take OTC remedies and to call if my temp reaches 101. if i'm taking aspirin or tylenol, how will i know whether i have a temp or not, duh? 

    i'm crossing all parts that Beloved Onc is back in town tomorrow. he originally told me to steer clear of advil, motrin & aleve products, to stick with tylenol and to call if i developed a fever of 100.5. he's my real doc. i completely dislike & distrust this other guy.

    /end miserable self-absorbed post 

    hair report: day 4 after 3rd AC - still have some hair on my head, around the sides, back and some on the crown. enough to comb & blend into my wig and have pop out from under caps & scarves. it seems like it may stay. it doesn't hurt anymore. it just looks ... sad & old by itself. still have eyebrows, thank goodness. eyelashes seem much shorter. 

    remind me to tell you guys about my "look good feel better" class. it was beautiful, in so many ways.Smile

    (((everyone))) 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Hey lisa - you sound miserable, and you are entitled to be!! I was told not to take any sort of analegesic as it could mask a fever, and that is your best sign of detecting an infection. I would use with caution...Take care, and hope you feel betterSmile

  • Gramof3
    Gramof3 Member Posts: 301
    edited March 2009
    expectmiracles- I just sent you a PM.    SmileThanks!  Helen
  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    Hi All-

    First of all, Jancie - It's funny that you should say that about spicy food, because it's the thing I seem to be craving most. My oncologist's Nurse Practitioner told me at the outset to avoid it, so I'm scared to try it, but all I want is Indian or Thai food. Maybe I'll give it a try. I feel guilty eating almost everything (fat, sugar, coffee) - I'm feeling I should be a vegan now. But I guess Indian/Thai are better than most.

    Webwriter and Lisa -  No more apologies for stating it plainly when you feel like CRAP! This is where we come to let it all hang out - where else can we do that? It's so hard when you feel so profoundly rotten, for days and days on end, in a way that you can't even describe to the people closest to you.  I think of the incredibly brave fighters on the metastatic boards, and it helps me be so thankful that this chemo stuff is temporary right now.

    But along those lines:  last night I fell into this incredible funk, after having read for a long time what a lot of these ladies are going through.  I've felt pretty strong thus far emotionally, putting a positive spin on things much of the time, but last night this dark cloud descended, and I could not escape this dread about the future, the never knowing, the things that could happen a few years down the line. Does the chemo have a depressive effect on anyone else?  It really felt like more than my own mind at work. I'm not sure sometimes how you approach the future, wake up with the optimism that you need to embrace the day, when you just never know?

    Now I'M sorry for being for being such a downer, but I'm wondering how you all handle these feelings? 

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    Liz I am so there with you! Most of the time I'm fine & optimistic but there are time when the unknown future scares the crap out of me & leave me in tears. Especially when I watch my girls sleeping....why does it always get you then?? Don't worry about being a downer, I can bet we all have these thoughts! How can we not when we know what this disease does. Speaking only for myself, I can only hope & pray that I'm not done here yet & live my life that way....as best I can anyway. {{{HUGS}}}

    Both my girls are sick & have had fevers, coughs, etc. I'm trying hard not to get it but am not feeling so well today. Of course that could just be the chemo but I'm not sure. I'm a bit foggy today I think.

    What does "dose dense" mean?? I'm not familiar with that term I don't think.

  • webwriter
    webwriter Member Posts: 535
    edited March 2009
    Crap Lisa! Just what you needed. And I'm betting it's not even your birthday! /end sarcasm I'm glad you're getting to keep a lot of your hair, even if it is a bit patchy. I'm very, very glad that it stopped hurting. That weird pain was just NUTS! It will be great to see if yours grows back faster than mine because you have so much more to start with. If I hadn't shaved, I would have a huge strip down the middle of my head,  a tiny bit at the bottom near my ears and NOTHING in back or mid sides. I'd look like a zebra with a mohawk! Crazy. I have been able to stop shaving my arm pits tho, and am down to once a week or less on the legs. The neither regions got a perky new do at the same time my head did (after I bought that Braun 8985--buddy1 and gramof3, recommended by the lovely ReneeS) so there is an upside Terri42!(BTW, thanx for the advice on the Mom visit! I sent her and my daughter to the beach today and they're STILL not back!)
  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    TwillNW it was nice to see you, even if you're like me and never get around to posting! Thanx for the hair report.Glad you're comfy in either wigs OR hats. I'm finding variety is the spice of life, but bald is best. It's just danged comfy now that it's getting warm outside.

    Like Denali, I am loving all the photos.(BTW, woman, you ROCK! What a way to turn someone's day around!) Post 'em if you got 'em!

    Kristine, I STILL can't see the one of your family. Wonder what's up with that?! Grrr. I still think you look so awesome without hair, I hardly recognize your avatar anymore! 

    Thank you all for the heartfelt condolences on the loss of my beloved hard drive! I have a long history in IT and have tried every trick I can think of, both to recover the drive and break into the damaged areas of the backups that failed. If it would just spin up, I could get in! Sadly it won't. so, the only remedy left is shipping it off to a lab, which charges by the GB to recover it. I've had it done for several corporate clients in my time, it's INCREDIBLY expensive. It will just have to wait. The good news is that in my chemofog (OH I HEAR YOU Jancie!) I totally forgot about my personal website! There are some good ones stashed there of my little girl. So, one of these days, if I can remember how, I'll break them out of their flash slide show and post a few.  

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    TwillNW it was nice to see you, even if you're like me and never get around to posting! Thanx for the hair report.Glad you're comfy in either wigs OR hats. I'm finding variety is the spice of life, but bald is best. It's just danged comfy now that it's getting warm outside.

    Like Denali, I am loving all the photos.(BTW, woman, you ROCK! What a way to turn someone's day around!) Post 'em if you got 'em!

    Kristine, I STILL can't see the one of your family. Wonder what's up with that?! Grrr. I still think you look so awesome without hair, I hardly recognize your avatar anymore! 

    Thank you all for the heartfelt condolences on the loss of my beloved hard drive! I have a long history in IT and have tried every trick I can think of, both to recover the drive and break into the damaged areas of the backups that failed. If it would just spin up, I could get in! Sadly it won't. so, the only remedy left is shipping it off to a lab, which charges by the GB to recover it. I've had it done for several corporate clients in my time, it's INCREDIBLY expensive. It will just have to wait. The good news is that in my chemofog (OH I HEAR YOU Jancie & Apple!) I totally forgot about my personal website! There are some good ones stashed there of my little girl. So, one of these days, if I can remember how, I'll break them out of their flash slide show and post a few.  

    Who in the heck posted that FANTASIC link to PlanetBuff.com? I can't find the danged post to save my life. (Thank you Chemogods of Brain Fog!) However, I've had that link open for DAYS trying to figure out how to save enough out of my allowance to buy a dozen of those things. They are just FRACKIN' (yes I AM a BSG fan!!!) COOL! Thank you, thank you, thank you for posting it. Stand up and take a bow! 

  • buddy1
    buddy1 Member Posts: 750
    edited March 2009

    Webwriter--You Rock.  Thanks

    Kristine- Are your girls still sick.  Its been a few days now hasen't it.  Please be careful  Take care of yourself.

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    You're welcome Buddy1! Hope it helps! But credit goes to ReneeS for that--she started it all over in Embracing the Bald! And look out, that puppy is EXPENSIVE. But it's worth every dime. Both hubby and I are using it now. We'd both tried others--many others--in the past to no avail. This guy works AND cleans itself!

    Jaimeah, how are you feeling? 

    Liz, I have a note here to you too. I can't tell if it says ball, bail, bait...danged chemobrain anyway.

    But hey, ladies! The chemobrain MUST'VE come with chemoPAUSE cause I haven't seen hide nor hair of Chocolate Week since my first TX on 1/29. WOOT! Let freedom ring! 

    Kristine, dose dense means I get a TX every two weeks instead of every three. Lots of folk doing dose dense AC, but as far as I know on this board, I'm the only one doing it with TC--not enough studies to make a judgement on whether it works better or not. 

    dmoore, it's hard, but you'll make it. Hang in there. Your class on Monday, from what I'm told, should give you some great ideas and some big time support. Keep us posted on how you are doing. We're here to listen anytime, and BOY, you KNOW we get it! ((hugs))

  • apple
    apple Member Posts: 7,799
    edited March 2009

    chocolate week?

     Laughing

    another southern thing?

  • apple
    apple Member Posts: 7,799
    edited March 2009

    so mr. apple just  saw Kristine's picture and he said.

    "oh wow - who is that?  she looks famous!"

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    Apple, that would be the one week per month (in most cases) that Mr. Webbie knows to bring home chocolate or DIE!

    Mr. Apple is quite correct. I think Kristine looks a bit like Leslie Parrish (Bach), who is as delightful a person as she is beautiful. She shaved her head for one of the Star Trek movies and was just stunning.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    So, is Kristine really a Star Trek character in cunning disguise? According to wikipedia (http://en.wikipedia.org/wiki/Ilia_(Star_Trek) ) she must be a Deltan, a bald species which excudes special pheromones to arouse human males....so apple, I would be locking mr apple up if I was you!!

  • Artemis
    Artemis Member Posts: 759
    edited March 2009

    jancie ~ You asked about spicey foods.  I have been eating a lot of kosher dill pickles; I really like the strong garlic, and it does make me feel less nauseated.

    Furies ~ do any of y'all get totally stressed out the night before chemo?  I have to go in the morning, and I feel as if I'm going all to pieces tonight.  I was the same for the last treatment.  I've taken Xanax and a hot shower, but has it helped at all?  No, it has not.  I'm still shaking...

    ...and I just don't know why I'm so nervous.  I KNOW what they're going to do to me, I know how long it will last, blah blah blah.  All I can figure is that I just plain don't want to do it. 
    Yell

    webbie ~ thanks for the info on the Braun shaver.  I'm dreadfully sorry about your hard drive; I do hope you can get your info pulled.  What a drag that your backups didn't work!!!

    Ok, I'm outta here.  I'm going to go read some Psalms and talk with Jesus.  Oh!  That just reminded me of a Rich Mullins song:  "Hold me, Jesus, 'cause I'm shaking like a leaf.  You have been king of my glory, won't you be my prince of peace."  I think I'll give it a listen.

    Hugs to all.  I love you guys.
    Artemis

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    Oh gosh you guys, thanks so much for making me laugh & cheering me up a bit. I'm sitting here bawling my eyes out because I feel awful & am just having a weak chemo fog mortality moment. I am a big Star Trek fan & one of my closest friends kept talking about how I'd look like a Deltan. Somehow my husband still thinks I'm beautiful even with no hair & huge mastectomy scars. I'll take what I can get. lol

    I don't have a fever but both my girls have been running them. My oldest woke me up in the middle of the night last night with a 102 fever & she threw up. She's been fighting it all day. They both finally went to sleep. I hate this time change. I just feel like I'm all congested & have a sinus headache. Hopefully it's just the chemo & not an actual infection!

    My WBC count is still normal so that's good right??

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    It's a Deltan Invasion!!!!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Kristine, the Deltan Warrior Woman!!!!

     I think depression is a side effect of the chemo, I have a rough few days every round - about 5 days in.  I think mortality moments are normal too, I wonder sometimes how we all keep going actually. Most days I am just fine but every now and then it just hits me and i think "Holy Cow I have CANCER"

    Kristine, I am not sure if you check out the Stage 3 forum at all, there is a thread there "How are people doing in Treatment and After" and there are literally dozens and dozens of Stage 3 women 2, 3, 4, 5 years out of treatment, doing marvelously. I read their posts every time I get myself in a panic and it really helps. 

    Artemis - good luck today. I hope you managed to calm down a bit and sleep. I got myself all nervous last time too. I was so tense, and I don't think that helped when they were trying to insert my IV. I hate it. Even thinking of that room puts me in a state, and makes me feel nauseous.  Just focus on the end goal, one more treatment down, one less time you will have to go through it all.

    As for food, my husband and I went to the movies yesterday afternoon and had KFC beforehand - I felt better afterwards that I have all week! My theory is I haven't been eating enough fat and grease!! As for weight, everytime I get weighed in I have put on 2lbs. so much for fading away during treatment, I will need to go on a diet once I am done. I think it must be the steroids, as I don't think I am eating more, maybe excercising less...??

  • living4today
    living4today Member Posts: 215
    edited March 2009

    Good morning to you all.  Although I don't post often on this site, I do read all of your posts and get so much encouragement from it.  I just wanted to write about my latest experience to warn everyone how fast we can get really ill while on chemo.  Before BC I was what I considered very healthy, very few colds or illnesses, never missed work that type of thing.  However since starting chemo (AC 1 and 2 done), I have been in the hospital three times.  This latest time, I came home from work, started having chills, heart racing in the 140's, temp 100.5...didn't feel too ill, just like I was coming down with something, advised to go to ER, while waiting for labs etc, started to feel really crappy, immediately admitted and started on IV abx's...the oncologists said it was a good thing I came in or else I would have been really sick by morning.  Before starting chemo, I didn't realize how low our white counts got and how seriously sick we can get...I take the neulesta shot with each chemo dose, but white count still ends up in the 300's...urgghhh. 

    Someone expressed the sad/depressed thoughts, how can we not have some of that with this journey?  I didn't expect it to be so hard...but still positive that we need to push on!  I have # 3 on Thursday and am all ready thinking "I don't know if I can go do this"

    Thanks to you all for the pics, laughs and the tears.  Praying for you all that have had significant losses in your life at this time...sometimes life just isn't fair.

    Good luck to all those who have treatments this week.

  • Nancyb7912
    Nancyb7912 Member Posts: 84
    edited March 2009

    Sharing a funny story - funny I guess because only the people around me and my family (who will REALLY enjoy this one) will remember. I ventured out to the local NHL ice hockey game surrounded by my adult children and DH ysterday. Team is having a great probably play off bound season. Well, Nancy is never one to be shy about the hoopla and when tee shirts started falling from the rafters attached to little parachutes I wasn't going to just stand there. I tilted my head to the ceiling hoping for one of those parachutes to drop in my general direction - I wasn't going to dive for it, but if it floated toward me I would be ready. Well, that was before my wig AND hat flipped right off my head. Seems there is a correlation between the numbers of minutes/ seconds that you can tilt your head back before full gravity kicks in. I just decided to make do in place until the end of the game rather than risk another trip through the crowds.

    We all had a good laugh with a silent hope that the guy behind me who yelled at me to sit down early in the game when I was trying to get settled might have noticed and felt even the slightest pang of guilt.

  • apple
    apple Member Posts: 7,799
    edited March 2009

    cute story.

    when i first lost my hair i was wearing a scarf as a tie with a baseball hat on top.. my normal look.  i went to pick up my daughter after basketball practice and all the little 4th graders and their parents are standing around on the steps.. along comes a mini tornado and oooph, my hat is gone and i'm standing there bald..

    the kids just looked at me with wide eyes and one of them said

    WOW.

    not one of my best moments and i got used to taking my hat off often (since certain acquaintances would steal it during public times).

    it's kind of discombobulating to be so exposed..   i got immune tho and often went out just with a scarf as a bow.. people reacted well.. all the time.  sending me thoughts, wishing me well..

    being bald sux even tho we know it's our souls inside that are important.

    have a great day gals.

  • susan13
    susan13 Member Posts: 732
    edited March 2009

    Had some warm weather this weekend and I'm not looking forward to the summer with wearing a wig, my head was sweating and it was just 70!

    Kerry- Ok I guess it's the steroids!  My tastebuds seems to be shot, day 12 after #3 treatment.  But somehow I'm managing to really put on the pounds... go figure, I can't taste a darn thing but I'm eatting for 2 people!

  • Terri42
    Terri42 Member Posts: 56
    edited March 2009

    Love the wig story - you know anything for a laugh nowadays!

    I can totally relate to the fear and depression before chemo rounds - I don't know how we step foot in there every time other than the thought that we are one step closer to being done!  I too feel nauseous just thinking about it and get more anxious each time - I'm going to try the ipod next time and just blast it!  Good luck to everyone this week!

    Today - one week after 3rd AC I know the "anemic" feeling now (dizzy and bodily tired - not sleepy) - my neighbors got me out walking and it does help - it's very hard but you have to get out of the house and get some fresh air - it definitely helps!!!!!!!!!!

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