Rug torn out from under me at 3rd taxol appt yesterday

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  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2009

    Belinda ~  I'm kind of fanatic about women who have been dx'd with bc getting an MRI because I initially had one that showed no areas of concern  prior to my lumpectomy, which was at a regional hospital with a comprehensive cancer center.  I was told that the MRI didn't show any problems.  What I wasn't told is that there were 3 "obscured areas."  When I went to UCLA for a second opinion about my rather odd pathology, they insisted on redoing the poor MRI, and bingo -- 2 more lesions that my original BS hadn't known about!  So, as you might imagine, I tell everyone to insist on an MRI at a place that is qualified to do breast MRIs.  I also think that thought that is eating away at you is doing so for a reason.  Not to say that there's anything more there -- but certainly saying, how do you know for sure there isn't?  There may be a very good reason why your onc doesn't think you need an MRI now, since you didn't have one prior to surgery.  But, if I was in your position, I think I would see if they'll do one for your peace of mind -- although be sure they get it preapproved by your insurance company.  As an alternative, you can always go somewhere for a second opinion.  That might also give you peace of mind if they also feel it's not necessary.    Deanna

  • Snappygoddess
    Snappygoddess Member Posts: 91
    edited March 2009

    Otter... thank you.. that makes sense!! Had I been thinking..I would have looked it up...but my mind has not been my own since entering the "chemo zone" and I hate that!!  I guess because I am triple negative and at a high risk to get cancer again, I just freaked a bit and worried too much. Now it is clearer to me...light bulb moment.. thank you so much! Good luck in your treatments  HUGS

    ~Belinda 

  • bluewillow
    bluewillow Member Posts: 779
    edited March 2009

    Barbe and Otter, thank you for putting my situation into perspective and taking the time to explain it-- my onc sure didn't bother to.  It was a real shock to get the IDC dx instead of DCIS, but thank goodness it was caught when it was, like yours, Otter.

    Belinda, I'm glad you found some help here.  The website that Otter mentioned also helped me decide not to have any post-treatment scans, even after my onc suggested them.  I know that sounds odd, but after I had asked during treatment if I had to have more scans after I finished tx, I was told no, which to me, was a great relief, because I have terrible, awful "scanxiety".  (I had CT and bone scans before treatment and they were all clean) Then for him to all of a sudden order CT and bone scans two weeks after I had my port removed... I suspected he was behind on his Jaguar payments or something...

    My best to everyone!

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Robyn - sorry I am late getting to this thread and really sorry that you have had this experience.  I can understand having to deviate from a preset treatment plan based on surgery and then biopsy reports of a tumor but to tell you at last minute that you might need radiation is still confusing to me but I have major chemo fog right now.  In fact this whole cancer stuff confuses me even though I read so much here on this board.

    What really confuses me right now is do you do radiation before implants or afterwards? 

    Like Apple said - that was one good rant!  Sometimes we need to just scream and yell and it is ok to do so.  Cancer is a crappy thing to get and I still have anxiety attacks trying to deal with it.  There are days I don't want to get out of bed.  After my chemo treatment I usually don't post for 2-3 days because I am just not feeling well and definately not feeling myself.  I am upset because I am nauseated and constipated and I really wanted to go to church today. 

    Hang in there Robyn  we are here to support you in any way that we can. 

  • mbscruggs
    mbscruggs Member Posts: 141
    edited March 2009

    Dear Robyn,

    I second what Janice said, and the others' comments.  My heart goes out to you.  I had a mast. Dec 9, 2008, just had tissue expander put in a week ago today.  It is all I think about sometimes.  I do know that I have gotten out of the house the last 2 days ( it is beautiful here In williamsburg, va)...and that has helped me to move forward.  A day at a time.

  • Robyn66
    Robyn66 Member Posts: 169
    edited March 2009

    Well ladies, I had my last Taxol on 3/12 and my onc told me I didn't need radiation.  I am going back in April to get the whole Tamoxifan thing going and I am starting reconstruction.  This damn expander is KILLING ME!  I can't wait to get rid of it! 

    So we were planning on celebrating this past weekend and the entire family came down with the STOMACH FLU!!!  Nothing can be simple! I swear!!!!

    Love to all

    Robyn

  • Makratz
    Makratz Member Posts: 12,678
    edited March 2009

    Great news Robyn!!!!  Maybe you can celebrate next weekend!!

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