Anyone starting chemo in June 08
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Hi everyone. Congrats liz19. Glad you made it through surgery. Great avitar Nancy! Wish I had the guts to post a pic. That reminds me....very funny about going Commando" and the underwear inside out. I was lol. Well, another week at work done for me. I am very tired of being tired. I am not really sleepy like you Wyoming but am physically tired as all get out. Neck and shoulders are sore too. Haven't even been cooking or doing anything really. I guess the take out food industry does a great business with people suffering from cancer. Maybe they cause cancer on purpose with their food additives. Guess I got my cancer from drinking alcohol though. Hope all you ladies are doing well. I'm not doing as well as I want to be but maybe rest this weekend will help. Later...HunkyD
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HunkyD sorry to hear how tired you are. Rest up this weekend and have take out and a glass of wine!!!! I didn't have to work today so I took two naps. I need to clean but have been putting it off. I'm looking for some temporary hair color so I can use it. The week of March 8 our school is having a spirit week and Monday is crazy hair day so I have to think of something.
Everyone take it easy this weekend and do something for yourself and have fun.
Wyoming
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We were a pretty quiet group this week and I don't have anything exciting to add except my underwear is clean and I too am tired after a busy week at work. Sleep is still an issue for me...every night I hope the Sandman will come and do his thing but no-ooo! Isn't just like a man leaving you wanting more???
Rover
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Appointments are made for a MUGA, because I am on Herceptin (routine check, I pray), Mammogram (annual one), but also first one since surgery in December, and Surgical follow up. My Herceptin tx are scheduled thru May, they only let your schedule so far ahead.
Not much going on with me. I am wearing an unlined pair of Isotoner gloves and the neuropathy in my fingers is much better. I know it is not the "cure all", but it helps me and does no harm. It was in the 60's yesterday,so I did look a bit odd, but I usually look odd...!!! Today it is back to the 30's and raining.
Have a good weekend, HUGS, Nancy
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What is a MUGA? I haven't had to have one. I also don't have to have Herceptin as I'm triple negative.
Rover I'm glad you have clean undies.
I took a three hour nap today. Most of my weekend has been in bed. Husband is taking me out to dinner at a sit down place not fast food. HAHAHA
Sleep tight everyone and don't let the bed bugs bite.
Wyoming
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Wyoming a Muga scan is a scan of your heart to make sure that everything is ok. It is only done if you have to take Herceptin which is if you are HER2+. I am booked for my third Muga scan already as the first one was not ok. Then I insisted they try again after my chemo was finished and they did and it was normal so I am on the Herceptin now with them watching it constantly to make sure everything is ok.
Have a nice dinner.
Everyone have a nice weekend.
Bonnie
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MUGA checks the ejection factor of your heart muscle. How much it "releases" the blood going in. If it is "weak", or has dropped below 50%, they will not do or will temporarily stop Herceptin. I had one before I started dose dense A/C, one after and just before I started Taxol and Herceptin, and one after done with those. It is recommended every 3 months when on Herceptin. A/C and Herceptin have been known to cause heart problems, but usually reverse when it is stopped. It may not be the "plan" for everyone, but it is part of my oncologist monitoring process. That along with blood work.
Some onco will do an Echo cardiogram, but mine says the MUGA is better. It does involve having my port accessed to draw blood, mix the blood with a radioactive dye, wait an hour, re inject the dye and lie on a table with a machine taking pictures. Then back upstairs to have the port flushed and disconnected. Another long morning or afternoon of tests. The tech does tell me right away if there is a change that she notices. So far mine has stayed the same throughout all of this. It only takes a day or 2 to get a confirmation phone call from the onco.
Rain/snow is here today. Yesterday was in the 60's... Spring is not here yet !!!
Hugs, Nancy
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Hey Junies......thought I would check in.......had my TE reinserted this morning........was home by 1:00pm.........so not so bad......had a flat tire on the way home......but DH had it changed in no time.....
So now I will share a funny pic.......so there is a shoe sale that I attend a couple of times a year.......and it started on Sunday......DH thought I needed to take my mind off of surgery.......so we went shopping.......yay.......then out for supper and then to see Confessions of a shopaholic....a little ironic.......So here's poor DH and his emplty pockets!
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Thanks Nancy and Bonnie. Glad yours are fine. It is a never ending battle with the other things that can go wrong.
It is in the 60's here today and tomorrow. I'm ready for Spring but I know it is just teasing.
Have a great week.
Wyoming
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Vinogal good for you. Where is your shoe sale? I need one of those sales.
Wyoming
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Great picture Vino....your husband is a good sport! I see you are a fan of Sketchers. Glad your TE surgery went well. Now keep this one would ya!!! I just got home from work...bla...feeling a little better tonight though. I took Ativan to sleep every night this weekend and I actually got more than 4 hours of sleep per night. Amazing!!!! Rover...it is great to sleep. I don't want to turn into a pill junkie but got to the point where I said I don't care. Amazing what one little pill can do. I have one refill on them and guess I will have to put my begging shoes on at next doc.appt. OTC sleep aids do nothing for me except give me restless leg syndrome. Wyoming..how is the hair color going? I ordered a mini flat iron yesterday in hopes that with that and a little pomade I can at least get some spike funk going on. Only had one MUGA before chemo. It was a pretty painless test and my heart was good enough for the Red Devil. Nancy...sorry about the neuropothy in your hands. Are you going to do radiation? I can't remember what you said. Everyone else...hope you are pain free. Later...HunkyD
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I have my first round of imaging tests this week (MRI & CT-Scan) to evaluate how the new chemo is working. Hoping for good news......
My port wound has finally healed enough not to require dressing changes - yahoo!. It only took 2 months for the stupid thing to heal!
Mucked out my kitchen over the weekend. Even cleaned out the science projects growing in the vegetable bin. Still have a big pile of papers to sort through and some cardboard to break up for recycling but Rome wasn't built in a day or a weekend.
Hunky - Amen sister to the sleep issue! I average about 3.5 hours per night w/out drugs. I take Ambien CR - Ativan didn't do a thing for me. I try not to take the drugs every night but when you gotta sleep, you gotta sleep.
Vino - Loved the shoe picture. I have a bit of a shoe fetish myself - unfortunately my taste is expensive. My favorite Nordstroms salesman sends me thank you cards after my purchases. I'm probably paying his college tuition.
Not much else happening on this end .... busy w/ work and fighting cancer - same ole, same ole.
Rover
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Rover...good luck on your tests...and hope they show improvement. Your port problem sounds like a pain. Battle on sister....Everyone else...not much going on here except a tired woman with aching shoulder waiting for her TV night....LOST! Mr Sandman....bring me a dream! HunkyD
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Tests went well yesterday and the Imaging Dept. was actually on time for a change. The lab had problems getting an IV started - took 3 tries and normally I have veins like drain pipes - not sure what the problem was but now I feel like a junkie w/ track marks on up my arm! I meet w/ Dr. Overachiever tomorrow and will get the results then.
Was shopping the other day and a woman came up to me and said she loved my hair cut. She said isn't it nice just to get up in the morning and go w/o fussing w/ your hair. She obviously hasn't been a cancer patient ..... maybe she's a lesbian?
Mr. Sandman stood me up again last night. What's a girl gotta do to get a date w/ that man!!
Rover
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I want to apologize if anyone is offended my cancer patient / lesbian analogy. My intent is not to offend but to be humorous..
Rover
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No offense taken ((( rover )))). I know I have "strange" thoughts about some comments made to me or things I see. Some have called me gutsy, feisty, bit**, out spoken, etc... But I do not mean to offend either.
Turn you clocks forward tomorrow night. HUGS, nancy
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Your good to go by me Rover....and about Mr. Sandman...I am certain he sleeps around. Nancy, thanks for the reminder about the clocks. I'm not too worried about losing an hour of sleep this year for some reason...maybe cause I am usually up at 3:00am anyway. Thank god for the weekend. HunkyD
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Saw my oncol. yesterday and the new drugs aren't working. The lesions in my liver are stable but there is new activity in my lymph nodes, located behind my aorta somewhere - not totally sure of the location. Anyway, I'm off Dasatinib & Xeloda (D&X) and will now try Cisplatin and Navelbine. Both the new drugs require infusions vs. oral meds. The Navelbine has to be administered by a port so next week sometime I'll have a new port inserted and will probably have my first infusion the same day. I really felt the D & X were working. I've been feeling pretty good so it's hard to imagine the cancer getting worse when I feel so well.....cancer isn't fair. I'll be on the new drugs for 6 weeks and then another round of imaging tests - ugh! You do want you gotta do..... but I am so tried of breast cancer.....
Rover
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Hey Rover......sorry about the drugs.....this whole thing just sucks.......I will keep my fingers crossed for success with the new drugs..........I swear the light at the end of the tunnel is getting very dim..........somethime it feels like we will never be finished.........surgery went OK on Monday.....feel pretty healed up.......but instead of the 170cc she thought she'd put in......I ended up with only 60.......apparently because of scar tissue........so now I will need to add on more time to this awful expansion process.......she is definately slow moving and cautious compared to the other PS that ladies talk about on the board.......so it feels like I'm forever away from my exchange.......I am keeping my fingers crossed for boobs for my birthday.......July......we'll see
Oh and Mr. Sandman hasn't been spending much time at my place these days.......I wonder who's hogging him......
Shoe shopping was a blast.......there's a warehouse about an hour from my place that has these sales a couple of times a year......I wish I could say that this is the only time I have come out loaded up like this..........but it seems like a bi-annual event for me oops..........I love shoes......and have many that have still gone unworn from the last big shop.......I'l try and dig up the pic of the last haul......I know I have it somewhere.....and Rover......don't worry......I too have expensive tastes......these are just my shoes for shopping.....hockey.....and riding my scooter......hubby is not allowed to come on the nice shoe shopping expedition........he'd have sticker shock....for sure.
HunkyD......where'd you get the mini flat iron......and how's it working out for you?
Cheers to all......and have a good weekend!
Jax
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hi y'all,
Rover ~ I know how scared you must feel and it sucks a$$ to say the least! There's something you might not have done yet that could help you a lot - cut out sugar and starches from your diet. Seriously. I know we all hate to cut things out of our diets, but it will help you fight the cancer longterm.
Have you ever had a PET Scan? The radioactive die is carried into the cancer cells faster than all other cells because they lace it with.....glucose! Cancer uptakes glucose faster than the rest of your body so you need to cut it out completely. I have been living a low glucose diet for the better part of 5 years, (all while having stage IV cancer, mostly in the lymph nodes in my throat and chest behind the aorta!) and I know it has helped slow down the growth of the cancer. Without this "food source" it can't grow, right?! It migh be tough at first, but overall I feel much healthier eating this way. Stick to only low GI (glycemic index) veggies, fruits and protein at each meal and it will help your body stay strong.
Also consider fasting before chemo. I do this now, so that the cancer (not to mention me too) is starving and sucks up the chemo as food. (this is only my own theory, but in the past few years, I have been right 90% of the time and my onc is amazed I'm doing so well considering)
I am on Liposomal Doxorubicin - ask your onc about that. The liposomal part is very new to science. Scientists have figured out that some people need chemo with an added carrier to actually get it into the cancer cells and the liposomal chemo has a fatty molecule that does this.
I don't mean to confuse you with too much info, but definitely consider all this. And definitely cut out glucose. I know it will help you. Good luck Rover.
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Gosh Rover...sorry to hear the first trt did not do it's job. I am praying the next ones will. sounds like one of them is pretty necrotic if you have to have port back in. This is a never ending battle. I am glad you are feeling well anyway. I hate this disease. I can't seem to get a great attitude about it anyway. I am just waiting for progression. On my mind a lot anyway. Choc...glad you are here for support and some great tips. Vino....glad your surgery went well. It is a long haul with the expanders and from looking at pics online...painful. Hang with it and you will get your exchange and be happy with them. I am looking at prophylactic mastectomy on other breast next if I haven't had any progression at next checkup. Don't know about recon yet. To answer your question about the flat iron Vino, I just ordered a JOSE EBER PETITE MINI TOURMALINE 1/2" TRAVEL HAIR STRAIGHTENER FLAT IRON online. Haven't used it much yet. Just got it! Hope it takes some of the kinks out anyway. Wyoming...? KKing...are you home from Mexico yet? Where is everyone else? Take care all...going to babysit shoulder and neck pain. HunkyD
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Sorry I haven't been talking. Been working on the kitchen and painting living room. Counter came in but didn't fit. I'm pretty angry at my retailer. We had them measure so this wouldn't be a problem. Of course no one in authority was at the store. Will have to fight them on Monday.
Rover sorry to hear about you drugs hopefully new ones will work. I felt great before I found my cancer. Talk to Onc about how can I have cancer and feel so good. I have my next blood test in April and still nervous even though Jan. was fine. I don't think the fear goes away. rover I liked your attempt at humor. Sounds like something I would say.
Jax good luck with your boobs.
HunkyD I found some temporary hair dye, Lynx Pink. I will be using it on Tues. as we have a spirit week and Tues is crazy hair day. HundyD have you tried the patches for pain, the Well Patch etc? You can get them so they heat or with menthol.
KKing if you are home from Mexico let us know how much fun you had. Also did you feel frightened because of the unrest there?
I think I have been hogging Mr Sandman.
I can't seem to get enough lately. It takes me awhile to get to sleep but then I can't wake up. The weekends have been used for sleeping except this weekend cuz I have been doing home improvement. I will tell Mr Sandman that you gals need him so I should share. I did learn to share in school!!!!!! I didn't mean to keep him to myself.Have a good week.
Wyoming
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Should find out tomorrow when I'll have my port inserted and the first round of chemo. Still can't believe I'm doing this again. Did some research on the drugs and they are pretty tough. Platinol or Cisplatin is an older version of Carboplatin, which is widely used for breast cancer. Platinol is suppose to be a promising drug for the triple negatives. It is used to treat many forms of cancer and has been around for a long time. It's the drug that was used to treat Lance Armstrong. Unfortunately, I haven't found many ladies who have done the Platinol / Navelbine combo for breast cancer. Guess I'll be a trendsetter ........
Choc. L - Thanks for the tips about diet and Liposmal Doxorubican. Cutting out glucose would be tough - just bought Girl Scout Cookies! One of the side effects of Platinol is it affects your taste buds so I may find cutting out carbs & sugar easiler than I think.
Vino - Sorry to hear your expander process is so complicated. It's never easy is it? As for shoes I love expensive shoes at bargain prices so your bi-annual shoe sale is right up my alley. I love the Nordstrom Rack - not sure they have it in Canada - kinda an outlet from the Nordstrom Dept. Store., which is shoe heaven. We all have our vices and mine is shoes.
The Sandman finally showed at my place last night and we spent this afternoon together too. Had wilddreams! This was not a drug induced sleep so I can only blame the dreams on my own subconscious - what was I thinking!!
Rover
Choco - Thanks for the advice
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Hello June Ladies
Back from Mexico..I did have a drink for all of you courtesy of Pablo the pool boy. It was really lovely there, sun each day and the ocean was beautiful. Stood by the oceans edge and took in all the healing powers. I think there is something to this. Wyoming.. no unrest where I was...I think it is going on more along the borders.
Glad eveyone is doing well. Rover, hoping the next chemo will do the job for you. Jax, hoping things go your way now. HunkyD...why are you considering the mast on the other side?
Went for my physical with my family doc today, she is the one that originally said my lump wasn't cancer and then panicked when it didn't go away. Anyway, I have swelling around where the lymph surgery was done and she says it is'nt anything. I am doubting her now... probably should call the surgeon and ask. What do you all think??
Well back to reality, got to go clean the house or maybe watch a movie....leaning towards the movie.
Karen
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Checking in from work this morning. So glad you had a good time Karen. I drove to work in the snow this morning....bla. Makes Mexico sound even more wonderful. I would have your surgeon look at your swelling although it is probably nothing. What about Lymphedema? Have you had issues with that? It will just give you peace of mind to have it looked at and in my book that is worth a lot. Regarding your question about the mast....even though I wasn't tested for the BRCA gene, I just would feel a lot better knowing I dont have to go through a second breast cancer. Chances are with my dx it would be mets somewhere else in my body, but both myself and my oncologist feel the prophylactic mast would be a good idea. Also, I am fairly large breasted and sick of fighting with either the breast form or being extremely lopsided. Anyway, I will know more after I talk to surgeon and possibly PS about it at the end of the month. Well, best get back to work now. Have a great day all. Happy Crazy Hair Day Wyoming. Hope your hair turned out good and pink. Later all! HunkyD
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Good Morning, Most of my students are taking the ACT so I have time to post. When I get a chance I will post a picture of my hair.
Karen I would at least let your onc or surgeon look at your lump. As HunkyD says the peace of mind is worth it. Thanks for the drink from Pablo. I also drove to work in snow the last two days and bitter cold.
Had a massage last Friday boy was that wonderful. I would like one every week!!!!
Back to work, have a great day and stay warm if you live where it is cold.
Wyoming
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I will have my port inserted on Thurs. and my first infusion of Cisplatin and Navelbine on Friday - the infusion is 7 hours long - OMG! I guess the Cisplatin needs A LOT of hydration - 2 hrs. before and after the drug. Platinol or Cisplatin is an older version of Carboplatin. Platinol is suppose to be a promising drug for the triple negatives. It is used to treat many forms of cancer and has been around for a long time. It's the drug that was used to treat Lance Armstrong - if it worked for Lance..... Unfortunately, I haven't found many ladies who have done the Platinol / Navelbine combo for breast cancer. Guess I'll be a trendsetter ........
Hunky - There are no guarantees that you won't get a second cancer. If the second mast. gives you peace, do it. Worrying about a recurrence is wasted energy you should be enjoying this time you know you are cancer free. I can't tell you how much time I've wasted obsessing about BC - why do I do this to myself? It doesn't make me feel any better that's for sure.
Karen - Isn't Pablo the best??? I have a weakness for Mexican pottery. The things I have carried onto a plane. It's always a lot of fun at Customs. Definitely ask your BS about your lymphnode swelling. My ocol. has turned me into a doctor snob - specialist all the way. I also have doubts about seeing my gen. practitioner again - she ordered all the right tests w/ my BC she just didn't handle the situation w/ TLC. I often thought "Would she want to be treated that way?" - my guess is not.
Wyoming - Hope your pink hair was a hit today at school. Unfortunately, I'll probably lose what little I have w/ the new drugs. Did I ever tell you I lived in Moose and Moran WY for a couple of years? I love WY - still have my red and white cowboy license plate.
Choc. L - Thanks for the tips about diet and your drug regimen. Think it will be hard to cut out glucose and carbs - since I just bought Girl Scout cookies! Although the new drugs are suppose to scramble my taste buds so it might be easier than I think.
Vino - Sorry to hear your expanders are so complicated. It's never easy is it? I love expensive shoes at bargain prices so your bi-annual shoe sale would be right up my alley. My favorite place to shoe shop is The Nordstroms Rack - not sure you have those in Canada - bummer. It's like an outlet for the Nordstroms Dept. Store - shoe heaven for girls like me.
O.K. I've told everyone my major weaknesses - Shoes and Mexican pottery ..... O.K. better add yarn to that list - I'm a knitter. What are yours?
Rover
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Rover, I have brought back a couple of pottery items from Mexico, many years ago when you could bring all sorts of stuff aboard the plane. Black pottery is my favorite. Once I brought this reproduction of an Olmec head, about 18 inches high, and when the customs agent took it out, he screamed because the face is pretty scary -- too funny. Our son was afraid of the face and I had to put it away when he was young.
I have been reading the posts and forget who and what is going on. Hugs and Blessings and have a good "hump day". I go to t he primary today for more referrals, they want them updated every so often. And a general touching base with her. Not that I want another medical appointment,but she is the one who has to do all the referrals and I do not want any snags when I phone for them. Mammo, Muga and Dexa are the ones coming up.
Tomorrow is my 21st treatment... 16 chemo and now Herceptin every 3 weeks. How different life is with constant medical things blocked off on my calendar. I know I can and will do it, but some days it is depressing. Hugs and Blessings, Nancy
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Rover, I hope the Cisplatin and Navelbine combo works for you. Hopefully the side effects won't be too terrible either. Treatment response seems to be such a mystery. Good luck on the port surgery tomorrow also. 7 hours is a long time for infusion but maybe you can sleep some Friday. Wyoming has released Mr. Sandman. Rover, also, thanks for the comments regarding prophylactic mast. I just really don't know what I am going to do until I talk to my surgeon. F'ng disease, talk about obsessing....I guess I need a new attitude. Wyoming...forgot to say thanks about the suggestion on the Well Patches. I will have to check those out this weekend. My husband has been rolling my back with some funky little roller thing. It does feel pretty good. He asks me if I want to get "rolled." Geeze...crazy men!!! Also Wy, hope your new countertop for the kitchen fits this time. Nancy...glad your doing well with your trts. I guess I don't have any pottery in my home now that think about it. However, I do have a slight weakness for shoes also. Jax..."Boobs for my Birthday" could be the title for a country western song! Glad your doc isn't pushing the fills to the limit. Do they hurt terribly? To everyone I've missed....sorry and have a great Wednesday. Can't wait for the end of the work day. LOST Tv night for me. Later, HunkyD
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Hello ladies,
I think since my last post I have been going non stop. My family (mom, dad, sister, daughter, and assorted cousins and in laws) went to Hawaii as an escape winter and end of radation treatment trip. It was a bit windy and cool but a nice change of pace. Then I was home a week working a lot so I could turn around and go to dude ranch for three nghts with my girl friends. It was fun and exhausting all at the same tme. I am not the cowgirl type but had fun playing dress up with the boot and hat bin before riding and I never once fell off, bruised my bottom and hurt my back but stayed on that darn horse!
I am so tired now and I keep wanting to cry. I think maybe it is my post treatment blues? I finished the chemo and radiation and now just go every three weeks for herceptin. I am feeling blue and weepy. I don't want to work or do anything but sleep. I hope I get over this soon. I am used to marching along and keeping a stiff upper lip. Oh well, thanks for letting me vent a bit... maybe now that I have whined I can move along. Kelly
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