Starting Chemo February 2009?

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  • apple
    apple Member Posts: 7,799
    edited March 2009

    since we are sharing daughter photos.. here's my favorite of my little doll.. she's about 5 years older now and sports a different look.

    klara

  • buddy1
    buddy1 Member Posts: 750
    edited March 2009

    denail you are a a good person.  Thats great you could get her to open up a little and get her mind off chemo.  I hope I am with people like you when I start .

    apple.  wow,  I m not wierd or anything but man you look great.  I hope I look that good.

    I am going to get my treats at teh oncs office too.  I was wondering how this works.  some people go to the hospitol for 6 or 7 hours and some go to teh oncs for 2 hrs. 

  • Terri42
    Terri42 Member Posts: 56
    edited March 2009

    Hi guys - checking in - Feeling pretty good after AC #3 - a little tired but not so bad so I'm very grateful!

    I was actually thinking about driving myself to Target but after reading Apple's post I think maybe I better wait and go with someone since I am a bit on the foggy side - weird how I'm getting used to it - I would definitely waltz right out in front of someone!

    On the Hair, Hair Hair posts - someone suggested PlanetBuff.com - I ordered three and I love them - they can be used so many ways - easier than just a bandana or scarf and I used mine as a headband around my wig too - I like the look...I feel less "wiggy"

    I keep loving the pics!  I'll try some dayWink

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Oh, apple, your daughter is gorgeous! Adorable. I think it is almost the most lovely age (for girls anyway), 5-8, then they go all "tweeny" on you. Still adorable, but different.

    denail - way to go, helping someone else like that. She won't ever forget you, I bet. Wow, is it normal in the US to have a private Onc Chemo clinic?? I am in a yuckky hospital ward, blue plasticy chairs, awful. But we are on the top floor, so at least the view is good!

    terri - glad you are doing well. I am really feeling progressively more tired, but I do think you get used to the "chemo" feeling. hard to describe to others though...

    Well, I don't know what I did to that to make that so enormous....LOL! I'm not mad, really....

  • apple
    apple Member Posts: 7,799
    edited March 2009

    Good job Denali!  my chemo lab is usually very upspirited.

    how do you all wear wigs and not go crazy (omg.. the font got big on me too... (like Kerry Mac, i am not mad).

    i feal like i'm wearing fake fur in the shape of a hair do.. it's so hot and scratchy.. waaa.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Sometimes I feel like I have a cat on my head!!

    The big font is cracking me up!!

    Sunny and warm here today, it finally feels like spring may actually come this year after all.... Isn't it funny how a few nice days can really lift your spirits... (also no accident that both my kids were conceived in Spring...!)

  • susan13
    susan13 Member Posts: 732
    edited March 2009

    Beautiful pics of the kids, love it!

    That font just gave me back my headache:-))

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    I am leaving in 30 minutes to go get my head shaved.  My hair is falling out - it started very early this morning.  I wore a scarf out in public for the first time since I normally wear my wigs and I had to take hair from the middle of my head and cut it and pull it forward to look like I had bangs.

    I am going to a friend's house - she is a breast cancer NED and a really nice friend I met at the horse barn several years back.

    So tonight hopefully I will figure out how to post some pictures - if not I will just change my avatar for tomorrow.  But then again I might be too emotional to deal with this tonight.

    XpectMiracles - LOVE, LOVE, LOVE THE PICTURE.   If only I could look 1/2 as good as you bald then I would be able to deal with it better.

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    Cheryl - Don't feel stupid! Despite all these tutorials, I, too still can't figure out how to post a picture. I'll keep trying. In the meantime, I'm loving these beautiful pictures of you and your families! (Webwriter - I'm so sorry about all your pictures - that sucks! - I once had a problem like that with my hardrive crashing, and I actually hired a true computer geek, and he did retrieve the lost files. Maybe you could consult with someone to see if there's any hope of getting yours back.)

    Apple, Kerry, Kristine - what truly amazing children! Those smiles are the BEST medicine!

    Jancie - I feel for you, knowing that you did the head-shaving thing today.  I keep focusing on the "strangely liberating" feeling that Kristine and webwriter have referred to.  Strangely, even though I'm dreading the baldness so much, I can almost feel that it will be a relief when it's done.  That still doesn't mean I'm going to be going out a whole lot this Spring and Summer! (I think my wigs make me look like I'm in drag - seriously!)

    I got this new symptom last night, and it's so far the worst one.  I'm wondering if anyone else has had this:  I suddenly got really intense, spasming pain in my lower back, which literally makes me yell. There's no position left to sleep in, because with the tissue expanders, I can't sleep on my side or stomach.  Sleeping on my back, as I have been doing since surgery, makes my back go into spasm.  Has anyone else had anything like this?  Could it be the chemo, or more likely the neulasta (6 days later?)? I'm writing this in squatting position!

  • apple
    apple Member Posts: 7,799
    edited March 2009

    ouch...

    can you put pillows or something under your waist?  ouch..

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    I'll try to play around with pillows tonight.  And my friend, who's also a wonderful physician, told me I had to take an ativan. I'm so thankful to her - it helped make it manageable.  I'm still wondering whether it's connected to chemo/neulasta, though.

  • apple
    apple Member Posts: 7,799
    edited March 2009

    i bet your muscles are strained from the new sleeping positions..

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited March 2009

    Liz, a heating pad may help, too.

  • Artemis
    Artemis Member Posts: 759
    edited March 2009

    Hi, Furies ~
    I have a question for you:  most of you are saying "shave" in reference to your heads.  Are you really shaving or just getting really short buzz cuts?  Maybe some are doing one thing and some the other, hmmm....

    I buzzed mine to 2 inches.  Most of the sides and back fell out after that, but I swear what's left on top is growing!  I'm wondering if I should buzz it off and/or shave it.  I want it to be all the same when it starts to grow after treatment, so I'm needing to know what I need to do for now.

    I know you ladies can help a sister out!

    Hugs to all,
    Artemis

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited March 2009

    Artemis,I used an electric clipper that I use to cut my husband and kids hair initially. That got my hair down to stubble. Then, I purchased a Braun electric razor that was recommended earlier on this thread. The new razor shaves the hair very close to the head. It gives my head a nice clean look. I have heard that razor blade shavers are not recommended due to cuts and potential infection. Not to mention ingrown hairs!

    I also am wondering how my hair will grow back after chemo is done. Will it come back in patches, or in unison? Anyone know?

  • Denali
    Denali Member Posts: 347
    edited March 2009

    At first my son buzz cut my hair to 1/2 inch.  But it was long enough that I could pull it out.  I DID NOT want little half inch hairs falling down my back and all over my pillows.  So he shaved to the lowest, so now it's like beard stubble.  I'll have him shave it with a razor soon probably.

  • Terri42
    Terri42 Member Posts: 56
    edited March 2009

    elizzim - I feel for you on the sleeping positions - I didn't get the spasms but with the expanders and port, etc I find sleeping sitting up high is the best.  Actually my couch is the most comfy but I go to bed and prop myself up with at least 4 pillows!

    As for the hair loss - I shaved mine with an electric shaver then had the hairdresser clean it up - I'm not feeling liberated at all - I still want to be able to run to the store or just step outside without wondering what the heck to do with my head!  It's funny how we all seem to still have a patch on our heads of some hair though - I kind of hope it stays...it's comforting to still see some hair!

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Artemis - I used a pair of dog clippers.  I have the equivalent of 1 days growth of a man's beard - maybe 1/16" of an inch.  I am leaving it that way.  I am not one to walk around bald so I am wearing my nice soft sleeping cap during the day and it will catch any hairs and I am also going to use Webbie's trick of taking a lint roller to my head several times a day.

    Do I feel good about shaving my head?  Absolutely not!  Was it as devastating as I thought it would be?  Not really because I had 2 glasses of wine and a valium to help me through it Laughing

    I will say that I FEEL much better because my scalp was so sore that I couldn't even tough it with my hands without hurting like crap.  My scalp hurt for about 1/2 hour after shaving it and now I have no pain left at all.

    Judy who shaved me said that she took some duct tape and took off that little last layer of hair - there was no way I could have done that last night with my scalp hurting so bad but it is an idea.  She never used a razor and I personally wouldn't do that either because it is too easy to nick yourself.

    I would share some pictures but the disk I put in my camera didn't operate last night  *$&$^#%^^#&$&&$&(%*$*&#%^$^.   Judy took some but now I am on hold until she emails them to me.  She did start with a mohawk - her idea - not mine but I was glad she did that so I could show xpectmiracles what my mohawk looked like.  The hard thing was trying to get it to stand straight up with some gel because my hair kept falling out everytime she touched it.

    I was so embarrassed to show my bald head to my husband last night but he was very kind and compassionate.  I did sleep downstairs only because I am so constipated from the meds I took some laxatives and knew I would be up and down during the night and I didn't want to disturb his sleep.  I did take the sleep cap off while sleeping and it felt weird putting my bald head on my pillow.  I haven't shown my stepson my head yet - thankfully he went to spend some time with his mother ( he doesn't like going over there) and so I have some privacy with my hubby today for awhile.

    Be back later!

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    I want a t-shirt with THIS one on it.

    Have you all seen the ones with the pink boxing gloves that say "Fight Like A Girl?" I'm thinkin we can do SO much better than pink boxing gloves now! 

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    I love that picture!  That's how I want to feel when I get my head shaved on Tuesday. (I've got a lot of work to do between now and then! 

    Cheryl, I'm glad that you mentioned why not to use regular razor blades on our heads. I was going to try this, to avoid buying an electric razor with all these medical bills piling up.  But now I'll make sure I get an electric razor today. Why does the hair continue to grow, even as it's falling out? It doesn't make sense to me.  

    Another question:  has anyone needed to have their wigs styled?  Mine are so smooth, sleek and weird looking that they make me look like a drag queen.  That, in combination with the weird greenish color that my skin has become - not a good look!! 

  • apple
    apple Member Posts: 7,799
    edited March 2009

    i wore my wig to the hairdresser and she cut it with a razor.

    then i went home and cut another couple of inches of it myself.. (rolly eyes)..  i am so uncomfortable in a wig..  but i wear them for church performance.  i have two.. one short and darker and one kind of funky.   the only good thing is that they already match your outfit and you don't have to color coordinate.  I'm glad i have them but only wear them once or twice a week.

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    Yeah, wigs, when you have to wear then because you're bald underneath, just feel so...artificial. Just so not part of you. I just can't figure out which is going to feel more distasteful to me - that wig feeling, or the hat/scarf look, in public domains.  At home, I'll just be content in my sleep caps.

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Liz - I have 5 wigs and one on order.  I went to a wig shop that caters to those patients with chemo.  This lady has over 500 wigs in stock!  There are so many styles and shapes and colors that you can't help but find something you are comfortable with.  This to me personally is also a time to experiement.  My friends know that I am bald and so do the members of the church.  I wake up each day and figure out what personality I want to be for that day. 

    I also buy synthetic wigs that can be as cheap as $50 each.  The ones by Forever Young are nice because the part in the middle of the head does not look fake.  You can always put a nice hat on top - I do that a lot.

    I was told since they were synthetic to not restyle the wig.  Yes, have someone cut the bangs to the correct length and thin them out if you desire but not to totally restyle them as it can mess them up.  The great things about the synthetic ones if you get a curly one- you wash it in the sink (swish it around a little bit in special shampoo - don't use regular shampoo) , spray conditioner on it, hang it up to dry and then when you brush it out it goes back to the original shape.  Look at the selections on www.wilshirewigs.com for an example - you can search by brand, length, etc.  I find the ones I like on the website and then go to my wig shop and try them on because sometimes you think they will look good on you but they won't.

    The synthetic wigs look real and feel real - unless someone knew me personally they would never know I have a wig on.  One lady thought I had dyed my hair from blonde to red - she had no idea I was wearing a wig.

    What will get interesting is if the cops ever stop me and look at my driver's license and wonder if I am giving them a fake license Cool

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    Thanks, Jancie.  Yes, I've been reading since the beginning, and I know that you're our resident wig expert!  I think it's great that you took this situation and turned it into an opportunity to play. My wigs just need some tweaking to look good in relation to my face, so I'll have the lady who's shaving me modify them a little with a razor/scissors. Can you post some more photos of you in your various wigs - that would be an inspiration to me! (On the other had, I still can't figure out how to get my photos up on this board...)

  • Artemis
    Artemis Member Posts: 759
    edited March 2009

    Thanks, Furies, for all of your input.  I think I'm going to have Mr. Artemis use an electric razor on the rest of my hair. 

    Hugs to all,
    Artemis

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Liz - it would be faster for me to get some pictures to you via email as I still have to figure out this photo stuff myself and just am too nauseated to deal with it today.

    Hopefully I will feel lots better tomorrow so when I get home from church I will have my hubby take pictures of me in all of my different wigs other than the one that is on order and won't get in until early next week.

    I searched for the perfect shape for me so that all I had to do was get the bangs cut.  I have always worn bangs and I am glad because typically my bangs went down to my eyebrows so nobody could see those anyways.  When I have to "don" fake eyebrows they probably won't even be noticeable.

    I am going to the Look Good Feel Good class put on by the American Cancer society on Tuesday from 11 am to 1 pm.  I heard it was better to wait until you were losing hair/bald/or lack of eyelashes or eyebrows so that you have a clear idea of what you are working with.  All I have lost is my hair on my head.  I still have my hairs down south - they are being stubborn Yell

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    I too bought my wig & had it styled by a lady who specializes in them (she's had alopecia since she was like 23 & been a wig expert since then). She did a good job cutting the bangs & thinning it out so it looks more "normal". And I got the wig shampoo, spray in conditioner & texturizer.

    Oh Jancie, I'm going to a Look Good Feel Better class too. On the 16th I think. Has anyone done one yet? I'm wondering what exactly they are like.

    I haven't had my "chemo crash" yet but I expect it'll come this afternoon sometime!

  • elizzim
    elizzim Member Posts: 146
    edited March 2009

    Jancie- I'm sorry you're so nauseated today! Just for the record, I hesitate to take any meds at all, but I needed to take an ativan last night for my severe back pain - and it's my new best friend!  I'll use it sparingly, but for me, it removed my queasy feeling entirely.  Maybe you could try it. I know that early after treatment, nothing really helps too much. 

    My email is elizzim@yahoo.com. No rush on pictures, but I'd love to see them! 

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Kristine - I heard the class is just wonderful.  They teach you how to make up your face so it looks like you have eyebrows and eyelashes - all through make up.  They also give you $200 worth of free make up from what people have told me.  They teach you how to tie scarves in all different styles, how to adjust wigs, etc.  If they have extra wigs you are free to take one if you ask.  I am bringing Judy's wig to the class with me on Tuesday to donate it.  She bought it and never wore it - but dang she looked great bald.  She is 6' tall - total model body with a slender long neck so she could pull it off and look great.

    I feel more like the oompalumpa (spelling?) from the old Charlie and The Chocolate Factory - short and pudgy.  I have a short neck and I am only 5' tall.

    I am having a problem tying the long rectangular scarves because they are so long and my arms are short that I can't seem to get it together in the back to at last put one knot in them so I am looking forward to the scarve tying lessons.

    I will be bringing some of my wigs and scarves so that they can teach me on my own items - after all I need to learn how to do all of this with what I will have when I get back home.

    Don't know why the class lasts 2 hours - I am not sure I can keep my focus that long.  In any case, I will report back on Tuesday afternoon and let you know how the class went.

    What is odd is I used to NEVER wear make up at all except for weddings, funerals, and date nights with my hubby.  Since I got cancer I wear it every day - if anything to maybe feel a little bit better about myself?  I was running out of face powder (had the same one for probably 2 years) and figured that I would wait to buy some more and use what they give me.

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    Liz - I have some antivan, along with valium but don't take them simultaneously.  I take the antivan in the mornings and if I am going through a major nicotine mental withdrawal fit I will pop a valium and that helps.  The oncologist told me to take the antivan for nausea.  I did so much better last round when I had antivan and compazine but then I had that allergic reaction to compazine.

    I was given Zofan to replace the compazine - doesn't work so well.

    Then I griped, biatched, and moaned about not being able to sleep at night due to the steroids and was given Tramadol to take at night.  Can someone explain this one?  Tramadol is a narcotic pain reliever for chronic pain.  But what the heck it puts me to sleep.  Just now that I know this - I need to be more cautious about when I take my valium and my lortabs because sure as heck don't want to start mixing all of those up!

    I feel like a freaking drug addict everytime I walk into Target and get meds.  Just the fact that I started off with Ambien and Valium and now over to Tramadol - forget the fact that I have a stash of about 30 Lortabs on top of that - oh and the Antivan. 

    I have gotten to the point where I walk in with ALL of my prescriptions (normally around 3) and tell them "My oncologist wants me to try these instead"  I don't want them to think that I stole a prescription pad and am writing prescriptions for myself illegally since most of all of these are narcotics to begin with.

    I am so thankful that my husband has such great insurance coverage - I can walk out with 20 lortabs and it costs me a whopping $3.52

    One other thing that I think is totally weird - I am nauseaus and the one type of food that helps me get through that is spicy food.  I had Indian food last night and chili tonight for dinner and I feel so much better.  You would think that bland food would be great for nauseau but I swear sometimes I am wired ass backwards because spicy foods help me get through stomach aches and nausea better than anything else.

    Anyone else do better on spicy foods or am I the odd ball?

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