If you have just been diagnosed....
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I was Dx on Dec 4 2008. I had a lumpectomy on Jan 19 2009. Yesterday(Jan 29 2009) the surgeon told me that there were residual cancer cells in the tissue and that she has to do a second surgery to remove more tissue. I am debating whether or not to have a double mastectomy or just try one more time. My mom died of ovarian cancer in 1977 at the age of 29.
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Hi Mfgibby
I had a double simple mastectomy with TRAM reconstruction last week (22). DCIS grade 1. I have no family history. This was caught on a routine mammo. I'm glad I decided to do this surgery. I could never live comfortably wondering "when the shoe will drop". The recovery is not as bad as I expected. I keep up on the pain meds, try to move around as much as possible. I will probably drive the end of this coming week. The reconstruction looks great. It's amazing to me what the docs do. I look at my kids and know I did the right thing for me.
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Thank-you qutypy.
I am still have a hard time dealing with everything. I just concerned about recovery time and time off from work. I guess for now I will follow what the surgeon says and if she has to go back again I will go for a double mastectomy. What is TRAM reconstruction.
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Hi Mfgibby
TRAM reconstruction is using the latisimus muscles from your back for reconstruction, as opposed to the abdominal muscles. My plastic surgeon felt I didn't have enough abdominal tissue to use, sp opted for the other. I'm glad because to recuperate from a tummy tuck as well, must be hard. Sounds shallow, but hearing that my gut was too small made my day!! Especially after 3 kids. I do feel better each day. Actually drove my girls to school today (10 days post op) not sure if I should have, but depending on others makes me nutz....No big deal, I just try to be careful. My husband took off 4 days to help me. Anymore than that would have been too much.take care....
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Hi mfgibby
I had LAT reconstruction, not TRAM...must have been the pain killers I was on that made me think that!! The recouperating is not bad at all. Much better than expected although my back is sore. Actually the worst part is the drains. I had 2 removed and 2 to go. i will be a very happy camper when they are gone...Started driving this week (12 days post op) so I am not confined to the house.I dont parallel park yet, but then I was never very good at it anyway. I don't work now, but I imagine that I would have gone back after about 2 weeks no problem.
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I was diagnosed on Jan 16 but have already had a mastectomy (on Feb 5). The cancer was multifocal with lymph node involvement so the surgeon wanted to move quickly. This scared me of course but now that the surgery is over, I am glad it is done and I am recovering. My arm is still very tender and swollen but I am trying to do some exercises to prevent scaring and to regain movement faster. I have 2 drains that will remain for another week. I am 43 years old with three children ages 12, 10, and 7. My husband has been WONDERFUL thru all of this and I consider myself extremely lucky. I am going to try to figure out how this board works so I forgive me if it takes me a little while. I have never been part of anything like this. I will say, thanks for allowing me to post my thoughts, questions, and concerns.
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Hello. I was just diagnosed yesterday (some valentine's present) and I can't remember everything, I'm still in shock. I know it is invasive, grade 2 intermediate, and I can't remember if he said ductal or not. Mammogram didn't show it, ultrasound did - actually I found the lump about 4 weeks ago and went immediately to my ob/gyn. I am terrified. My doctor will be scheduling an MRI, CT scan and other tests, before we set up surgery - he prefers to do a lumpectomy w/radiation, unless a mastectomy is needed. I can't sleep, I am having diarreah and just generally losing my mind. I will begin keeping a notebook with questions for the doctor. What can I expect from those who have undergone similar?
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Good evening ladies,
I was diagnosed on 2/5 with IDC, grade 2, stage II, 1 lymph node positive, ER/PR, HER2 negative. I had yearly mammo on 1/29, ultrasound 1/29 and biopsy 1/30. I had MRI (showed some enhancement around tumor..could be result of trauma from biopsy?) and PET scan (only shows one 2 cm. mass and slight activity in one node) as well as all the blood work. Surgery was scheduled for 2/10. I wanted a node biopsy prior to surgery so I would know as much going into surgery as possible. Node was positve. Dr. recommended postponing surgery and doing chemo first. Said this way the tumor will shrink in size to make surgery less disfiguring. We can also tell what effect chemo is having on the cancer by seeing the tumors reaction. First round of chemo (AC four cycles, followed by 4 cycles of Taxol) is scheduled for 3/11. I have a cruise scheduled for 3/1-3/7. Does this time frame seem reasonable or do you think I should cancel vacation and bump up the chemo by a week? Dr. seems to feel it will be fine. I'm worried and don't want to "push the envelope". I also don't want to cancel a trip with my family if it won't make a difference. What is the usual delay between diagnosis and treatment?? Guess I am looking for others with this same time frame for reassurance!
God bless all of you...
Chris
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I was diagnosed on June 3, 2008. I had all the testing done and my surgeon wanted to schedule surgery as soon as possible. I had travel plans, baby showers and even a few weddings. I said I didn't want to have surgery until these things were over. My surgery was on September 15, 2008. I had bilateral DCIS. I am happy with the decision I made. I am finished with radiation now but I wanted to enjoy my life before dealing with surgery and radiation. It was in the back of my mind but I didn't let it rule. I think the decision is up to you and how you feel about the IDC and treatment.
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Your chemo is beginning approx 5 weeks after diagnosis. It was 4 weeks from the time I was diagnosed to my surgery due to scheduling of both breast surgeon and plastic surgeon. I think 4 weeks is about average so I wouldn't worry too much about waiting 5 weeks. After my surgery I found out I needed chemo due to one positive node and I waited 5 weeks to begin chemo. If your doctors are not worried about waiting I wouldn't worry either. Enjoy a trip while you can.
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Thank you for your replies. Dr. didn't seem concerned. Told me to have fun...may not feel well for quite awhile! It's just one of those things that eats at you! I want to go and have a good time with my family (DH and 4DS's). But...I also get nervous this thing is growing and spreading in me like wildfire! What a mess to wake up to. One minute your life is going a long just fine (soccer mom, taxi cab, wedding arrangements for my oldest son) and then the next it just sucks!
Sending hugs out to all you ladies that are picking up the pieces and making a new puzzle out of them!
Chris
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Hi Chelev I know how you feel. I was diagnosed Dec.18, had a bilateral Mastectomy with immediate reconstruction. It's been about 4 weeks and I am back in the swing of everything. I decided against a lumpectomy because of the rate of recurrence. I also did not want to have radiation on skin that would need reconstruction. I am happy with the decision. I have three kids at home, so this was why I decided to do the aggressive form of treatment. I just scheduled my surgery for the implant switch today, so i'm feeling good about that. This board will give you all kinds of good info. You just need to ask. It really saved me when my head was spinning from all the info.
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I was also just diagnosed on Feb 10. And I understand exactly how you feel. Surgeon says it's a early Stage 1-very small. I am scheduled for a lumpectomy w/ lymph node biopsy on Friday. I was feeling OK with it until I talked to a few acquaintances w/ bc. Seems like everyone I talked to elected to get a mastectomy. Am I making a mistake with the lumpectomy? One friend asked if I got a second opinion. I didn't!! Now I am more nervous than ever.
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JulesD,
My doc told me there is not difference in survival/reoccurance rates between a mastectomy and lumpectomy with radiation. He preferred the lumpectomy. Why take away more than is necessary? He opted for me to have chemo first to shrink the tumor and leave with me better aesthetics post surgery. From what I have been reading, this seems to be the best choice. If you do have questions, TALK to your doctor (or nurse) and get answers..if not, seek another opinion to put your mind at ease.
Take care....
Chris
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Hi I was diagnosed with breast cancer grade 2 with microcalcifactions. I am going to have a right mastectomy on March 25th. I am waiting because I am going on a cruise the first week of March (already planned before I was diagnosed). I have been reading several posts and they have helped me to understand more. My surgeon did not tell me what kind or stage of cancer it is and I was too shocked to ask. I will have plenty of questions when I go back. My prayers are with us all.
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Can some one please explain to me the different grades of cancer. My sister was diagnosed yesterday with breast cancer and i am trying to find out all i can to help her and her 3 kids and so i can educate myself as much as possible. What grade should i be hoping for???
thank you so much
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wanting ~ I'm sorry to hear about your sister, as I am about everyone here who has recently had a bc diagnosis. It's always so shocking and surreal in the beginning, but you have all found the best place for information and support.
To answer your question, "Grade" has to do with how much the cells have changed from normal cells, which translates into aggressiveness. If you click on the Symptoms & Diagnosis section of this site, you can search Grades and get a complete explanation. Grade 1 would be the least aggressive.
What is perhaps more important than the Grade is the "Stage", which has to do with how large the tumor is and if it's traveled anywhere from the initial tumor site, such as to a lymph node. Stage I would be the very best scenario, but later stages don't necessarily mean a worst prognosis -- just that more systemic treatment (chemo) might be recommended. Staging is also explained under Syptoms & Diagnosis.
Hope this helps. And julesd ~ As long as you've had an MRI and there are no additional areas of concern, lumpectomy is a very logical choice and the one I initially made, as have thousands of other women. Good luck tomorrow, and please let us know how you do ~ Deanna
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Jai1950,
I am beginning chemo the week I get back from my cruise..also the first week in March. Where are you going and with what cruiseline? I am with MSC Orchestra. This is my last hurrah before I dig in deep for treatment!
Chris
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Hi to all,
I am reminded of the words from a Sylvia Plath poem:
"So many of us,
So many of us! ("Mushrooms')
I am recovering at home right now from a mastectomy performed Wednesday, Feb 18, I have a high grade cancer and had a large tumor removed. I await the results from the node biopsy. I had heard that I would get the results in about one week, but reading some posts on this site I am beginning to think I may not find out the stage, etc., for weeks. Does anyone have any input?
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Having just started a new avenue and an unexpected path in my life I now find my self doing a lot of thinking and research. Given two options I am choosing the mastectomy road. My surgery is two days away. Knowing that this is something that must and will be done is a hard one to swollow. However I have one life and keeping my chin up and and knowing I have a good doctor and the love of my family will get me through this. With researching the net I think today which is the day after the bomb was dropped in our laps has helped me better understand what to expect. The not knowing and waiting for the test results was a sure killer on my mind. But now the word is in and I am as ready as I can to jump into the next phase. I am constantly keeping in mind I am not the first nor will be the last going through this. And knowing I am not alone in the long list of survivors of bc. So with that I wait for the big day and move on with my head high knowing I will be added to the list of us who are survivors.
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I have a question about biopsy of lymph nodes. Is that always done at time of surgery (lumpectomy or mastectomy), or is it ever done first as a separate procedure?
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libby ~ Axillary dissection is sometimes done separately. For example, if a sentinel node was thought to be clear in the OR, but turned out on final pathology to be positive, then the surgeon would go back to check additional (first and possibly second level) nodes. I think the concern is to expose a woman to anesthesia as few times as absolutely necessary, so I'm guessing that's one reason it's done at the same time as the other procedures whenever possible -- at least the sentinel node biopsy.
Not sure if that answers your question, but maybe you can elaborate on the situation if it doesn't. Deanna
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Hello rascal, and to All here, I just want to add, just take a deep breath, and take it one step at a time, that is what I did with my diagnosed, it is all so much to take in all at once, I will keep U and all in my prayers I will lift U up and ask God to help U with all u need to do. I am a survivor and a long time one at that Praise the Lord, it,s 15 yrs, I had a left total radical mastectomy, and during making wedding plans. I had my cry and then I became angry with the cancer and told it to leave my body, I spoke to it eac night up until the surgery, I had chemo, radiation, and on tamoxifen for 5 yrs. God Bless us all, take care sweet heart. msphil
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I was just diagnosed Jan 28 after a surgical biopsy. Now I'm told there is no hurry for my second surgery to clear margins. It's been five weeks and the dr finally wrote the surgical orders today for a lumpectomy with SNB. It seems like forever before the scheduling to take place. Is this normal? I had DCIS invasive, stage 2 so far. How should I deal with this? Deep breaths and patience or squawk a little for a second surgery date soon?
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I have just been diagnosed with breast cancer this week. It is devastating news. I have always lived a healthy lifestyle, I breastfeed both of my children and there is no strong genetic predisposition (no immediate family members have had cancer). This is not supposed to happen to me. It is so out of the blue. So completely unexpected. I went for a routine mammogram, which I do each year, and they found a growth in my left breast. The radiologist called me back for more images, and then called me back for a biopsy. The biopsy came back positive. I have an appointment with a breast surgeon next week, which is the soonest I could get in to see him. The wait is painstaking. I have tried to remain positive and not do too much research online in an attempt to not misinterpret my pathology results. I can't seem to get on with my life. I am preoccupied and devastated and convinced that I am going to die. All the plans we have made for our future and retirement, seeing my daughters grow and have families of their own - I suddenly cannot think past today. I don't know what to do. My husand is devastated as well. I have two teenage daughters who I have tried to stay upbeat for, but they know something is up and are scared too. I don't want to tell them too much at this point until I know more. Is there any advice someone can give to boost my spirits? I want to remain positive but can't seem to get there.Thanks in advance!
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Just met my oncologist and waiting to meet the radiologist oncologist. I have a head full of words I dont understand. This has been very helpful, Thanks!
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Libby,
I had my node biopsy prior to surgery. Once the node came back positive, my doc switched from doing surgery first to doing chemo first. This way he can shrink the tumor (2 cm) prior to surgery. He also said that they can "see" the effects the chemo is having on the tumor.
I insisted on having the node biopsy ahead of surgery so I knew going into it what to expect.
Hope this helps,
Chris
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Deni63--. I, too was just diagnosed and understand your sense of panic. But take heart and know that this is NOT a death sentence. Just read all the wonderful stories from all these amazing survivors! I expect you will feel much better once you have met with the breast surgeon and can get a better understanding of exactly what is going on. I know I did! Try to stay positive and don't assume the worse-case scenario. I have found the waiting is the hardest part. Hang in there and be strong! We are all here to support each other!
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I had my surgery on Feb 27th. Fear is our worse enemy and something we can not control. I was like everyone else in living with the fear. I prayed and prayed some more for the strength to face all of this head on. Not being an overly religious person however praying helped me so much. I, like so many found real comfort in this forum. We are not alone in all of this. We have our friends, family and so many who we never gave a thought too. My thoughts and prayers are with you. Know you are not alone, I feel all of us who have already walked this path are with you every step of the way.
Nadine
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I just watched a Jerry Lewis video that was for another cause, however it says it all. We are not alone. We walk this journey together. We are a sisterhood (and yes brothers included), we never asked to join but now are in a club of special people. We are strong even in those times we feel we can't walk another step. Watch the video and yes it made me cry but you know it just reminded me that yes we will survive and we are NOT alone.
http://www.youtube.com/watch?v=Fn-bXSlPlMo
Nadine
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