Lung Mets starting treatment today

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Myrajuc
Myrajuc Member Posts: 117
edited June 2014 in Second or Third Breast Cancer

My lung mets is now confirmed. I am in the hospital so to speak, staying in.

Will start Navelbine with Herceptin today.  That will be weekly.  I have multiple mets to the lungs, andpossible mets to ribs.  Brain MRI negative.  Checking liver further, it's slightly elevated.  Will also have Zometa today, that's 1x/month.  Will have bone scan later.

Who started with Navelbine?  Navelbine only?  With Avastin?

My oncs initially suggested Taxotere/Carboplatin with Herceptin. But I do NOT want to lose my hair this time.  Not because I'm vain, because I don't want to tell my parents second time around.  And I don't want to look too sick either.

Thoughts?

PS.

I'm on oxygen now too.  On 4.  Third time they drained it last night.  900 cc of fluid and still more.  But now I can lay on my back a lot better, not too propped up. 

I want you ladies with lung mets to give me positive thoughts please.  That I will still live longer.............?  I am so scared.  We can't stop crying every day! every second!  I have a 17-year old only daughter and a wonderful husband. 

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  • orange1
    orange1 Member Posts: 930
    edited March 2009

    Hi Myrajuc,

    I am so sorry about your diagnosis.

    I suggest that you post on the recurrance and metastatic disease forum.  It gets a lot more traffic and the women who post there have a lot of experience with treatment so will be able to give you good advice.  Also they are wonderfully supportive and can help you get through this hard time.

    My thoughts and prayers are with you.

    Jackie

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  • nosurrender
    nosurrender Member Posts: 2,019
    edited March 2009

    Myra,

    I am so sorry you are going through this.

    I hope everything goes well today.

    Definitely post this over on Recurrence thread - there are many more women there with lung mets experience.

    Big hugs to you!

    g

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  • anjae
    anjae Member Posts: 1
    edited February 2011
    I also have breast with lung mets and a 17 year old daughter , i am on morphine pump which helps for comfort , will be starting new treatment now on docetaxel hoping it will shrink tumours i told my parents and they are very supportive this is my second time aswell , my hair is starting to fall out again and i feel 100% the same as you feel , but if the treatment is working its more important , keep us updated hope this treatment works for you.

    praying for you!Laughing
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  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2011

    Myrajuc:

    How are you doing?  Please try to post to let us know, if you can or care to. We care.

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited February 2011

    As the post is nearly 2 years old, I doubt you'll be getting an update! It's always useful to look at the date a thread is started, before adding to it.

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  • J_Jackson
    J_Jackson Member Posts: 7
    edited March 2011

    Still, it's hopeful for us all to ask how she's doing and actually then get an answer. I find I am scared to write anything in here as response b/c I am afraid if the thread doesn't continue it somehow means the person didn't make it. How do others deal with this on this site?

    I'm just 35, diagnosed when I was 31, recurrence at 33, mets at 35 (as of last week I'm on chemo). I was diagnosed initially w/ Stage 0 DCIS ER/PR+. I did a lumpectomy and radiation followed by tamoxifen. It came back a year later as DCIS and invasive with LVI. I had a double mastectomy, full axillary dissection (no lymph nodes were involved!), did chemo and back on Tamoxifen. Now, it's a year and a half later and I am metastatic in my lungs and skeleton. I'm on Capecitabine chemo and doing bisphosphonate injections but about to switch to hormonal therapy per my new doctor's suggestion. This sounds good to me b/c I can do everything chemo would do (albeit slower) through diet and mind and exercise. Sorry to bore you all with my story, just trying to participate in this for the first time today and wonder how does it work to interact with posts that stay up for years and no one is there anymore to keep them going? Ug.

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited March 2011

    J_jackson - it's hard to tell with these old threads....she last logged in 02/2011 so maybe she reads the boards, but doesn't always log in??  That's my hope anyway......

    You are welcome to come join us over on the stage IV forum....if you haven't already.  It''s very active and a great place to get support and information.  In addition to those of us who are stage IV, you'll see postings from daughters, sons and husbands.  It can be difficult to lose a member, but it is nice to communicate with others who can relate :>  Hope to see ya over there!!  lisa

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  • J_Jackson
    J_Jackson Member Posts: 7
    edited March 2011

    wow, what timing! i was just in your bio and smiling at what an inspiration you are! you are totally rockin' w/moving through all of this. i'll look for the stage iv forum now. am i stage iv b/c i'm mets? it's weird to be stage 0 and then this. not sure on the terms yet.

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