Neoadjuvant chemo wiped out breast tumor

caligrlof68
caligrlof68 Member Posts: 323

So I had my left MX on Feb 25. It went well, i suppose. The pathology report came back and showed no tumor remained in my breast tissue.. Yippee!!  However, 7 of 11 nodes tested positive for cancer. My surgeon said he couldn't be sure that this was dead cancer or live cancer. Has anyone heard this before?? I guess I have to have rads now. Do you think they will only do rads to my axilla? Or will they do the breast area too? I don't meet with the rad onc until next week, and I'd like to hear from any of you who have experienced anything similar to my diagnosis. As you can see from my signature line I have ILC, 7 cm tumor originally. My path report also showed LCIS.

Comments

  • lexislove
    lexislove Member Posts: 2,645
    edited March 2009

    I'm pretty sure whether you have ILC or IDC or IBC...when it comes to radiation the same standard goes for each. They will radiate your breast area (chest wall)  axilla (armpit), and supraclavical lymph node region (above coller bone).

    Most woman tolerate rads very well. I'm sure you will too!!!!

    P.S. You stated that your surgeon was unable to tell if the cells left in the nodes were dead or active, this is determined by pathology. They Will be able to tell, maybe ask your onc to review your final path with you.

  • caligrlof68
    caligrlof68 Member Posts: 323
    edited March 2009

    UGH!! I was sure hoping to limit the amount of rads i had to get. I haven't really tolerated anything so far. I nearly died from the taxotere....had an episode where all my muscles spasmed and I couldn't breathe.  I was totally nauseated from the AC. My fingernails all loosened and nearly fell off. I had a terrible amount of pain from the taxol. My hands went numb.....My onc couldn't figure out why I had every bad side effect from the chemo. I told him it's cuz i'm a big pansy!!  I really hope I do tolerate the rads very well. 

  • lexislove
    lexislove Member Posts: 2,645
    edited March 2009

    I had all those same sideeffects as well. and I tolerated rads very well. My skin went slightly pink. I started to apply the right cream 2 weeks before rads and continued 2x day ( day/night) during rads and then for a month after.

    Remember rads have a cumulitive effect, so even when you are finished with them...the skin still reacts. I found a week after finishing is when my skin started to be sensitive.

    I know you will be fine

  • caligrlof68
    caligrlof68 Member Posts: 323
    edited March 2009

    Thanks lexi and sherri for responding.  I'm not looking forward to rads, not one tiny bit at all. grrr It is good news to hear, sherri, that it's been more than 4 years and you are doing fine. What kind of chemo did you have before surgery? and what type did you have after? I was given the usual 4 rounds of AC followed by 12 weeks of taxol or taxotere....all before my surgery. I am hoping I won't need any more since my med onc agreed to let me have my port removed during my MX surgery.

  • SusieMTN
    SusieMTN Member Posts: 795
    edited March 2009

    caligrlof68, I was diagnosed July of '08 with ILC and poss. IBC, and a tumor of 10 cm (MRI said 12 cm.)  I had 12 weeks of Taxol (and Herceptin) and then another 12 weeks on a every 3 week course of  5 FU, Cytoxon, Epirubicin (similar to Adrimyicin) (and Herceptin). The neoadjuvant got rid of the very large tumor and only left a smattering of cells.  2 out of 3 nodes positive but the surgeon said the nodes in the axilla were gone just full of scare tissue, apparnetly according to the Radiology Oncologist that is a sign that the nodes at one point had cancer but the Chemo did its job.  Taxol, caused for me, lots of mucsle and joint pain, it was pretty painful and the next set just had digestive side effects, pretty hideous I might add and fatigue that has left me with a "modified" view of what  the word fatigue means, never experienced being that tired!

    The Radiology Oncologist is deciding if she will be radiating my axilla, but I believe always the chest wall.  She also told me Rads definetly not as bad as Chemo, but I would experience some fatigue as I progress thru my 6 week treatment.

    If your pathology report says no active cancer, WOW that is wonderful and a sign that the Chemo did its job COMPLETELY!  But even if there is still active cancer, the fact that you went from 7 cm to nothing is nothing short of AMAZING!  If you had positive nodes that is what Radiation is for, to kill those little buggers that still remain.  

    Do you have "The Breast Book by Dr Susan Love, would strongly recommend getting it!  I will look in it tonight and see if I can find anything that might help you!

    Take Care!

    Susie

  • caligrlof68
    caligrlof68 Member Posts: 323
    edited March 2009

    Susie,

    Thank you so much for the information. I  haven't yet actually seen my path report...the information from my surgeon was as he was reading it to me over the phone...so it will be interesting on Monday to actually see if the nodes were still active or scar tissue. I think that I prayed enough...and had plenty more people praying for me...that certainly aided the neoadj. chemo in doing it's job. I do not have the breast book...but will look at the book store or library for a copy tomorrow. I have to agree with you on my new definition of 'fatigue'....man oh man...for me it means the complete inability to lift ones own weight off that divot in the couch in front of the TV and retrieve a snack/drink that you're just dying to have...oh well... guess that will just have to wait until someone walks by and asks me if i need anything. grrrr!

    Tuesday I am meeting with the rad onc....let's hope he will only do rads on my nodes??? I will let you all know what tx I will be getting.

    Stacy 

  • JudyO
    JudyO Member Posts: 225
    edited March 2009

    Stacy, My dx is similar to yours...7+ nodes. I had my chemo after surgery so I don't know how well it worked. I did have rads to my breast, underarm and neck area. They did 25 rads that covered all of this area. I had tomotherapy and I believe they entered my dx into a computer that computes what is needed.I had a mx since my tumor was small enough that I had hoped it wasn't in the nodes and I could forgo rads. At my cancer center it is standard procedure to do rads with a mx if more than the sent nodes are positive. I hated the rads, especially the daily time consumption but now that I am done I feel a little more confident that I may have prevented a local recurrence. My surgeon was totally against the rads. His biggest concern was the lymph to the arms. So far I have been lucky and my arm is fine.

  • caligrlof68
    caligrlof68 Member Posts: 323
    edited March 2009

    Judy,

    I, too, am concerned about the risk of LE to my arm. I see both an OT and PT with hopes of preventing LE. Now that i need rads I realize the risk is even greater over my lifetime...and I am only 40 yrs young this year!!  

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